A huge thank you from Trish

[Guest guest]

I can't possibly express how much you all ave helped me since I subscribed to

this list only last week. , I don't know how you find the time to sit

here and answer these questions in such detail! Bonnie, same thing. But I went

to the Americal School of the Deaf here in CT yesterday, it was very

interesting, and if nothing else I left there knowing that the school system is

not doing enough. Period. How I get to the point where they do (if I ever get

there) or if I just up and move to somewhere who can, is yet to be seen.

I now have information I never knew even existed. I have a ton more questions,

but at least I know where to get the answers now. was also a big help and

I know we will be meeting him in person someday.

I just had to say that I had forgotten how important it is to get support from

people who have been there. When I answered so many of the same questions over

and over on other lists, I wondered if I was just wasting my time. But to those

new moms, or people who were brand new to tube feeding, who were scared to death

and overwhelmed by all the information they couldn't possibly process all at

once, every email that explained one more thing was like a life line. And now I

feel the same way too.

So thanks, this list is great, and it feels good to be " home " !

Trish, mom to Bobby, who will hopefully be getting the second hearing aid on

Thursday which will amplify the high frequency sounds in his " good " ear, which

he really should have had 8 moths ago! (Hey, how do you work with little kids

who love to cuddle, but who will now have two aids and so either side of their

head tthat they snuggle into you feels uncomfortable because of the hearing aid

getting smushed? He always cuddles into me with the unaided ear now. I have a

feeling he's not going to love having asecond one.)

[Guest guest]

Maggie and her now deceased " Grammy " had a sweet little cuddle thing that they

did since they both had hearing aids. They would cuddle to try to maximize the

feedback and then they'd just giggle!!

[Guest guest]

>>how do you work with little kids who love to cuddle, but who will now have

>>two aids and so either side of their head tthat they snuggle into you

>>feels uncomfortable because of the hearing aid getting smushed? <<

Kids are great in that they're highly adaptable (even though it seems like

they're not). They'll find a way. With JD, he would just sort of do it, and

if he happened to get feedback, I looked at it this way: he knows he's going

to get it and if he doesn't react to it, it doesn't bother him and so it

shouldn't bother me (and it never seemed to bother him). If there is a

particular time he likes to snuggle, you can work something out like I did.

JD loved to snuggle as he was waking up. I would let him snuggle without

rushing to put his hearing aids in (but as soon as he was ready to get off

my lap or got squirmy, in they went). This time was 'our time' and if truth

be told, this is the one thing I miss the most now that he's 19.

-Kay

Kay

kay@...

The Listen-Up Website

http://www.listen-up.org