Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Please post to the list too..... is going in for T,A? and ear tubes on the 26th, and we're all ears for information right now! Thanks, ----- Original Message ----- > If possible, please e-mail us directly as time is tight these days. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Sounds like a good plan to me! My son had a really rough time when he had his removed. I know if a pedatrician were not right there all night long, he could have died. He had swelling and a difficult time breathing. Epinephrine and steroids were given and a few hours later, he was back to his hold self. I put a basektball in the hospital bed and knew he would be ok once he started to play. I woke up to hear the ball bouncing off the metal rails..lol. I also bought ready made jello and fed that to him pretty consistenly for a day or two. He was back eating pizza in no time. tonsils and adenoids Hi Everyone, Howland here asking for some advice on pre-op questions to ask our ENT doctor on Thursday. Our son, Bobby (DS, LSHD, Hypothyroidism, obstructive sleep apnea, aspiration, asd, etc) will have surgery next Tuesday to remove his tonsils and adenoids. We are told that children with Down Syndrome can expect an especially rocky course, and that the protocol at Boston Children's is book them into ICU post-op. We are comfortable with the ICU there - have been there before, but would greatly appreciate any stories to prepare us. My coping mechanism works best when we seek out the worst possible horror stories, emotionally prepare for them - develop a " what if that happens to us also " plan, and hope we never have to use the plan. If possible, please e-mail us directly as time is tight these days. Thank you so much! - Howland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 Nic had his done in June. He spent 1/2 day in ICU, was doin so well they moved him to a reg room for the rest of the night. Nic did so well, I literally had to look down his throat to make sure they removed the tonsils! He was eating pretzels the next morning.......... One thing I didn't like was the awful breath he had for the following week...P U Di, mom to Jake(19,nda) and 4 (DS) Pennsylvania tonsils and adenoids Hi Everyone, Howland here asking for some advice on pre-op questions to ask our ENT doctor on Thursday. Our son, Bobby (DS, LSHD, Hypothyroidism, obstructive sleep apnea, aspiration, asd, etc) will have surgery next Tuesday to remove his tonsils and adenoids. We are told that children with Down Syndrome can expect an especially rocky course, and that the protocol at Boston Children's is book them into ICU post-op. We are comfortable with the ICU there - have been there before, but would greatly appreciate any stories to prepare us. My coping mechanism works best when we seek out the worst possible horror stories, emotionally prepare for them - develop a " what if that happens to us also " plan, and hope we never have to use the plan. If possible, please e-mail us directly as time is tight these days. Thank you so much! - Howland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 In a message dated 2/11/2002 10:58:12 PM Eastern Standard Time, bchowland4@... writes: << develop a " what if that happens to us also " plan, and hope we never have to use the plan. If possible, please e-mail us directly as time is tight these days. >> , How old is your son? My son LIam was 2 1/2 when he had his out. As per the advice of others we stayed overnight in the hospital. It was good for my peace of mind, although we didn't actually need to, Another piece of advice I got which I think was invaluable was to have tylenol suppositories on hand. His throat is going to be very sore. Tylenol rectally takes the edge off the pain so kids can swallow the Tylenol/Codeine elixir and get more relief. I asked the nurse and she agreed to it. She had to adjust the amount of elixir he got later so he didn't get too much tylenol. It really worked. Liam was drinking ginger ale later that afternoon and demanding waffles for breakfast the next morning. He didn't get them, but his eagerness to eat was great. I've known a couple of kids who didn't get the suppositories and then couldn't swallow the elixir. Kids can become dehydrated very quickly. I was also told to expect a week or two of crabbiness which I got. This was the first of many Barney video marathon's. So if your child is old enough be prepared for that too! Kathy, Liam's mom (3 3/4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 Subject: Re: tonsils and adenoids We had a very rough time. Bridget was 5 when she had t & a surgery. We did not go to ICU which was best, because the only way to calm her was for me to hold her. Bridget is sensitive to anesthia (sp) and was very agitated. I was called into recovery and ended up sitting on the gurney holding her to try to calm her. She had an especially hard time. She refused to drink. It took a good two weeks to recover. When the scab came off there was some excessive bleeding and we ended up back in the hospital overnight, which was good because she was dehydated. For pain relief we ended up going to tylenol suppositories because the pain med made her sick, plus we had a hard time getting it into her. The docs and nurses were very helpful. Most everyone else we have come in contact with have not had as hard a time as we did. To prepare for surgery, we visited the hospital the day before and saw the operating room, recovery room, and pre-op room. They assigned her nurses so she could see a familiar face. They gave us hats, face mask for docs as well as the apparatus to beathe in the anesthia. This helped Bridget because we could practice. She was very calm and did well at least for the early part. Surgery itself went well. Recovery was hard. Please feel free to email any questions or concerns. I think we had a rougher than usual experience. Good luck! mom to Bridget 8 ds --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 In a message dated 6/11/2002 10:30:35 AM Eastern Daylight Time, macfamily38@... writes: << Any advice on what makes it easier, better, safer, etc. would be greatly appreciated. >> I don't know if anyone's mentioned it to you yet, but you should stay overnight with him. Dr. Len can give the reason, but it's recommended that kids with DS stay overnight after a T & A. Before my Son's T & A 2 years ago I asked for advice and got a lot of great ideas. The best was Tylenol suppositories. They prescribe an elixir of Tylenol & Codeine, but it sometimes burns when it goes down. The nurse recalculated the amount of tylenol he could receive so he could use the suppositories to take the edge off the pain & allow the elixir to go down. It worked, because he was sipping ginger ale 2 hours after surgery and demanded waffles for breakfast the next morning. Someone warned me that although he'd probably bounce right back after the surgery, he would be cranky for 2 weeks. It was true. Be prepared with videos or whatever soothes him. They also warned me about his bad breath after surgery and that, too was true. No one could prepare me for the big difference in his health and breathing, especially at night. It was wonderful! It's definitely worth it. Kathy, Liam's mom(4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 > Well...it's time. is having his tonsils and adenoids taken out. > They are calling to schedule it for the next few weeks. Any advice on > what makes it easier, better, safer, etc. would be greatly appreciated. Get the old Bill Cosby record about tonsils and listen to it. :^) granny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 In a message dated 7/24/04 2:36:59 AM Central Daylight Time, writes: > I'm just glad Karrie's doctor is as cautious as he is. What really worries > me is what she will eat afterwards...she won't touch pudding, jello, ice > cream, gravy, most anything like that. Wonder if mac and cheese would > qualify??? > > Sue mom to Kate 14 and Karrie 8 w/ds and other issues > > > Sue, ate luke warm noodle soup and mac and cheese for the first week or so. I found that if I made sure he had his pain medication (tylenol) a 1/2 hour before eating then he would eat. Otherwise it hurt to much. Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Hi everyone again, Thank you and Kimmie( hope I got it right). I really appreciate your telling me both your stories. Thank you for the advice and I agree with you. My sons asthma I do believe is not asthma at all. It seems so much like asthma but yet it is not in his lungs so they claim. No the steriods do not seem to help. Yes it does seem to be that the wheezing is during a sinus attack or cold. But also almost all the time due to he has such bad allergies. Well I made my decision and the surgery is scheduled for April 27. I am having them both removed. I am still leery about it though. However I talked at length with my sons pediatrician who has been seeing him since 9 months old now last night on the phone. Yes he actually called me at 6:30 at night. He told me he thinks that having them out would benefit my son in many ways. Not sure about the speech he says though. he thinks it is not going to help improve his speech any. Since he totaly agrees that has dyspraxia since day one (diagnosed at 3 yo). But does think that the allergies will improve and the asthma could be solved too. ( He has never been certain with that asthma diagnosis since he never seems to hear him wheeze in the office. But his colleagues have. He has even on the phone heard him wheezing.) But the diagnosis of asthma did not come from him directly. Came from the allergist/asthma specialist at CHaD. Anyway wish us luck with our surgery. I hope things go well. I will post to let everyone know what happens. Thanks again, Jeanne Berlin,NH _____________________________________________________________ Netscape. Just the Net You Need. Quote Link to comment Share on other sites More sharing options...
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