RE: Vulvodynia? 'mladamsgte'

[Guest guest]

My name is Keva, however, I do not know your name. My last message was for Chelle, so if you got my last message, "disregard". And, anyway I was told the same about specialists at UT Southwestern and saw Dennis Factor who's not even a vulvar specialist. He is just a gynecologist. All is did for me was prescribed, and did it not solve the problem. So I moved on to someone help with a diagnosis and finding the right treatment. But, what didn't work for me, might work for you. We are all different. Good Luck!

From: Chelle <elliottmag (AT) yahoo (DOT) com>Subject: Re: Vulvodynia?To: VulvarDisorders@ yahoogroups. comDate: Monday, December 29, 2008, 2:10 AM

So you only have pain when attempting intercourse? Did anyone check you for vestibulitis? I actually had a doc check me 4 yrs. ago by doing the q-tip test - he said I didn't have vestibulitis. I went to a specialist this past April and said she I do indeed have localized vestibulitis (and I've had it for 16 yrs.)! Did your doc say you are having a histamine reaction? Histamine is released when there is inflammation and it can cause itching and burning. How often do you use the steroid cream? It can indeed reduce inflammation, but be careful. Most use estrogen cream with the use of steroids. Steroids can thin the skin and make the pain worse (that is why using estrogen cream can help). It protects the skin from thinning. Antihistamines are good, too. That is first treatment I stumbled up on myself that gave me any relief from the vulvar

pain. If you tell us where you live someone might know of a good doc or specialist. Some women experience problems with recurrent infections and pain due to tight pelvic floor muscles. So...physical therapy can be very beneficial for some, too. Hope this helps...Chelle

[Guest guest]

Keva: ML is my initial and i sign ML all the time for Lou.

We all get the message and whoever responds does respond regardless..That is the nature of this list so please I hope you do not mind my reply

Well, I have done so well there at UT since being referred there by my ob/gyn.

Dr. Diane who moved on from UT encouraged me to see Dr. Factor when she left and I value her judgement. I have progressed from so BAD to HEALED with their protocol! Maybe that is because I have had the blessing of seeing two female doctors and one female nurse practioner there at UT.

Although I amNOT delighted that a MALE has come on board (I understand he was at St. Hospital just down the street and that UT Southwestern bought St. and that is why he sees patients at UT as well as St. ) . I was also told I have the option to see the other two female doctors if I prefer. I will give Dr. Factor a try as they are on my insurance list of preferred docs.

Initially when I needed help, I was also told about Dr. Factor at St. but I elected to go to UT Southwestern WOMENS because I prefer female doctors!

..

You know I am so happy to be so much better that I am just GRATEFUL!! And I am ready to get off Lyrica and on to Tramadol and I feel the need to be supervised till I no longer require ANY meds.

Too bad Dr. Factor could not diagnose your disease, I guess. What did he prescribe for you? And how long did you give it to work?

So I am currently seeing another gynecologist who is more familiar with vulvodynia(at least.) She believes I don't have vulvodynia

So do you mind telling us who the above Dr. is so maybe I could see her if she is on my list of approved docs?

If you have not been diagnosed with vulvodynia (which is good cause who wants it anyway), then UT is not what you need I suppose. I sure hope you can get the help you need. And a diagnosis. I understand the frustration of not knowing and of feeling so very alone in that.

Anyway, thank you for your input and taking the time to respond...I wish you THE BEST of care. hugs, ML which stands for

Lou

"As for me and my house, we will serve the Lord.." ( 24:15b).

Re: Vulvodynia?To: VulvarDisorders@ yahoogroups. comDate: Monday, December 29, 2008, 2:10 AM

So you only have pain when attempting intercourse? Did anyone check you for vestibulitis? I actually had a doc check me 4 yrs. ago by doing the q-tip test - he said I didn't have vestibulitis. I went to a specialist this past April and said she I do indeed have localized vestibulitis (and I've had it for 16 yrs.)! Did your doc say you are having a histamine reaction? Histamine is released when there is inflammation and it can cause itching and burning. How often do you use the steroid cream? It can indeed reduce inflammation, but be careful. Most use estrogen cream with the use of steroids. Steroids can thin the skin and make the pain worse (that is why using estrogen cream can help). It protects the skin from thinning. Antihistamines are good, too. That is first treatment I stumbled up on myself that gave me any relief from the vulvar pain. If you tell us where you live someone might know of a good doc or specialist. Some women experience problems with recurrent infections and pain due to tight pelvic floor muscles. So...physical therapy can be very beneficial for some, too. Hope this helps...Chelle

[Guest guest]

My first, and main problem is recuurent bacterial vaginosis and secondary, vulvodynia? (maybe) which I was told I do not have. However, Dr. Factor prescribed me clobetasol and told me to continue to use the boric acid suppositories since it helped cleared the bacterial vaginosis I was having. I did as I was told and ended up having a yeast infection about two weeks later(He had me used the clobetasol for a month.) So I stopped both meds and was convinced that the boric acid had caused the yeast, because I read that moist areas and irritation causes yeast to grow.

The next time I saw Dr. Factor, I was diagosed with bv and was given metrodinozol. However, I was having symptoms of bv again and self-treated myself with boric acid(since Dr.Factor only worked only on 2 days out of a week it was hard to schedule a appointment with him because he teaches. And, all the previous gynecologists that I been to were also full. The boric acid would again give a yeast again and saw I Dr.Factor and he prescribed fluconazole. He told me to do douche with betadine( I was leery about doing so, since most doctors say not to douche. So I did douche anyway, hoping that it would keep bv from recurring. Yet, another surprise, yeast again; I saw my primary doctor for diagnoses. With all that I been through, I decided to discontinue seeing Dr. Factor and opt. to see someone else for a second opinion. I had been going through this for a year.So I am currently seeing Dr. Natour, who works at Baylor Medical Center in Irving.

I was actually referred to her from a appointment scheduling operator at Ut southwestern before Dr. Factor. Natour was the doctor being referred to with patients with vulvodynia,because the gynecologist at Ut southwestern have moved.

From: Chelle <elliottmag (AT) yahoo (DOT) com>Subject: Re: Vulvodynia?To: VulvarDisorders@ yahoogroups. comDate: Monday, December 29, 2008, 2:10 AM

So you only have pain when attempting intercourse? Did anyone check you for vestibulitis? I actually had a doc check me 4 yrs. ago by doing the q-tip test - he said I didn't have vestibulitis. I went to a specialist this past April and said she I do indeed have localized vestibulitis (and I've had it for 16 yrs.)! Did your doc say you are having a histamine reaction? Histamine is released when there is inflammation and it can cause itching and burning. How often do you use the steroid cream? It can indeed reduce inflammation, but be careful. Most use estrogen cream with the use of steroids. Steroids can thin the skin and make the pain worse (that is why using estrogen cream can help). It protects the skin from thinning. Antihistamines are good, too. That is first treatment I stumbled up on myself that gave me any relief from the vulvar

pain. If you tell us where you live someone might know of a good doc or specialist. Some women experience problems with recurrent infections and pain due to tight pelvic floor muscles. So...physical therapy can be very beneficial for some, too. Hope this helps...Chelle

[Guest guest]

I decided to see Dr. Factor instead of Dr. Natour. When I stopped seeing Dr. Factor, I wanted to give Dr. Natour a try. She seemed wonderful and caring to help me through this. She actually went over with me of what my vulvar biopsy reports meant. My previous doctor, where I had the vulvar biopsy done, didn't really explained to me what they show. She was vague with answers. Dr. Natour told me I had chronic inflammation and "scrathching" due to a itching sensation like, pruritus. She told me I didn't have vulvodynia and prescribed me clobetasol and a antihistamine,which seem to work, except for the irritation and burning. She told me my main problem was the recurrent infections and that she might have me to douche which is the only thing I don't like because I had some bad experiences with douching.

But, I'm hopeful, sorry I wrote so long. I wanted you to better understand my situation.

I feel better that I'm not the only person going through something similar in Texas.

In case things don't work out for you her name is, Natour Nahille at Baylor Medical Center, building 2. The second part of Baylor Medical Center.

From: Chelle <elliottmag (AT) yahoo (DOT) com>Subject: Re: Vulvodynia?To: VulvarDisorders@ yahoogroups. comDate: Monday, December 29, 2008, 2:10 AM

So you only have pain when attempting intercourse? Did anyone check you for vestibulitis? I actually had a doc check me 4 yrs. ago by doing the q-tip test - he said I didn't have vestibulitis. I went to a specialist this past April and said she I do indeed have localized vestibulitis (and I've had it for 16 yrs.)! Did your doc say you are having a histamine reaction? Histamine is released when there is inflammation and it can cause itching and burning. How often do you use the steroid cream? It can indeed reduce inflammation, but be careful. Most use estrogen cream with the use of steroids. Steroids can thin the skin and make the pain worse (that is why using estrogen cream can help). It protects the skin from thinning. Antihistamines are good, too. That is first treatment I stumbled up on myself that gave me any relief from the vulvar

pain. If you tell us where you live someone might know of a good doc or specialist. Some women experience problems with recurrent infections and pain due to tight pelvic floor muscles. So...physical therapy can be very beneficial for some, too. Hope this helps...Chelle

[Guest guest]

Hi:

I suffer from constant BV and yeast. Boric acid is supposed to help with both of them. It never helped me, but it didn't cause an infection either. I think that Clobestasol is a steroid and steroids feed yeast. Have they cultured you to see which type of yeast you have? Different yeast respond to different yeast meds.

Tindamax is a newer med used for BV. That is what I use.

Sherri

--------- Re: Vulvodynia?To: VulvarDisorders@ yahoogroups. comDate: Monday, December 29, 2008, 2:10 AM

So you only have pain when attempting intercourse? Did anyone check you for vestibulitis? I actually had a doc check me 4 yrs. ago by doing the q-tip test - he said I didn't have vestibulitis. I went to a specialist this past April and said she I do indeed have localized vestibulitis (and I've had it for 16 yrs.)! Did your doc say you are having a histamine reaction? Histamine is released when there is inflammation and it can cause itching and burning. How often do you use the steroid cream? It can indeed reduce inflammation, but be careful. Most use estrogen cream with the use of steroids. Steroids can thin the skin and make the pain worse (that is why using estrogen cream can help). It protects the skin from thinning. Antihistamines are good, too. That is first treatment I stumbled up on myself that gave me any relief from the vulvar pain. If you tell

us where you live someone might know of a good doc or specialist. Some women experience problems with recurrent infections and pain due to tight pelvic floor muscles. So...physical therapy can be very beneficial for some, too. Hope this helps...Chelle