Guest guest Posted July 27, 2006 Report Share Posted July 27, 2006 That is so WONDERFUL! Surges like this give you renewed hope and inspiration, don't they?! CONGRATULATIONS to you and Charlotte! As an aside, started booming in February and hasn't stopped since. I hope that this is the beginning of a long " boom " period for Charlotte (and you!). Warm regards, ****************** (Rochester, NY) Mom to , 3.2 years, Verbal Apraxia & , 1 year ________________________________ From: [mailto: ] On Behalf Of anncat1996 Sent: Thursday, July 27, 2006 12:55 AM Subject: [ ] Big changes I am trying to be cautiously realistic here, but I had to post about the changes we have seen in our daughter in the last few days. We started her on ProEFA 4 weeks ago and I find it hard to believe all of these changes at the same time are coincidental. My daughter has spina bifida and hydrocephalus to complicate her apraxia. She learned to walk (no braces or anything ) right around her second birthday. Her gross motor skills have slowly been developing just have been delayed. Her occupational therapist commented though that looking back the apraxia has probably complicated her gross motor skill development as well. I feel fortunate that we have breastfed for as long as we have (for many reasons), but I think also all of the DHA and EPA in breastmilk have really been helpful for her. Anyway in the last few days Charlotte has suddenly started saying lots of words. I mean we've heard her say probably 25 or 30 new identifiable (by us anyway) words! She already had two words phrases through her signs and limited (3 word) oral vocabulary and she is now using 2 word oral phrases quite a bit! She brought me two little plastic Bs (those cheap plastic magnetic letters) tonight and clearly said " two Bs. " Then I said " yes 2 Bs, one green and one yellow. " She said " green, yellow. " Wow! Of course then I screwed it up. She does not like any recognition of her speech at all, especially positive reinforcement when she says something. We are extremely careful to not point it out to her at all or she completely melts down and shuts down. Well I said " yes, green and yellow " a little too enthusiastically and she melted down. It was still a fabulous moment to hear her saying so many things. My husband hears a lot more than I do as she is much more willing to play around with her speech with him. He heard it a lot last night, but I didn't hear anything really until tonight. It was very cool. Also, today we went to a playdate and she was climbing things that really surprised me. Her climbing skills have definitely been slowing improving, but this seemed like a bigger jump forward to me. Her self-help skills are also starting to improve in the last couple of weeks. These are things we've been working on so maybe she's just getting them figured out, but the timing is really amazing. Her speech therapist has commented to me that she thinks Charlotte is just going to have a language explosion some day when she is able to get over her anxiety about speech, but I think even she is going to be a little amazed at how many different words we are hearing this week. (Not that the therapist will hear any of it I suspect as Charlotte doesn't speak much at speech, but I can report it to her anyway). For anyone who has gotten this far and wants to know we are just giving her one capsule of the ProEFA each day. She also get a couple of tablespoons of flax oil every morning, but she's been getting that for a year at least. I know we still have a long row to hoe, but it's nice to really see some progress. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2006 Report Share Posted July 27, 2006 That is so WONDERFUL! Surges like this give you renewed hope and inspiration, don't they?! CONGRATULATIONS to you and Charlotte! As an aside, started booming in February and hasn't stopped since. I hope that this is the beginning of a long " boom " period for Charlotte (and you!). Warm regards, ****************** (Rochester, NY) Mom to , 3.2 years, Verbal Apraxia & , 1 year ________________________________ From: [mailto: ] On Behalf Of anncat1996 Sent: Thursday, July 27, 2006 12:55 AM Subject: [ ] Big changes I am trying to be cautiously realistic here, but I had to post about the changes we have seen in our daughter in the last few days. We started her on ProEFA 4 weeks ago and I find it hard to believe all of these changes at the same time are coincidental. My daughter has spina bifida and hydrocephalus to complicate her apraxia. She learned to walk (no braces or anything ) right around her second birthday. Her gross motor skills have slowly been developing just have been delayed. Her occupational therapist commented though that looking back the apraxia has probably complicated her gross motor skill development as well. I feel fortunate that we have breastfed for as long as we have (for many reasons), but I think also all of the DHA and EPA in breastmilk have really been helpful for her. Anyway in the last few days Charlotte has suddenly started saying lots of words. I mean we've heard her say probably 25 or 30 new identifiable (by us anyway) words! She already had two words phrases through her signs and limited (3 word) oral vocabulary and she is now using 2 word oral phrases quite a bit! She brought me two little plastic Bs (those cheap plastic magnetic letters) tonight and clearly said " two Bs. " Then I said " yes 2 Bs, one green and one yellow. " She said " green, yellow. " Wow! Of course then I screwed it up. She does not like any recognition of her speech at all, especially positive reinforcement when she says something. We are extremely careful to not point it out to her at all or she completely melts down and shuts down. Well I said " yes, green and yellow " a little too enthusiastically and she melted down. It was still a fabulous moment to hear her saying so many things. My husband hears a lot more than I do as she is much more willing to play around with her speech with him. He heard it a lot last night, but I didn't hear anything really until tonight. It was very cool. Also, today we went to a playdate and she was climbing things that really surprised me. Her climbing skills have definitely been slowing improving, but this seemed like a bigger jump forward to me. Her self-help skills are also starting to improve in the last couple of weeks. These are things we've been working on so maybe she's just getting them figured out, but the timing is really amazing. Her speech therapist has commented to me that she thinks Charlotte is just going to have a language explosion some day when she is able to get over her anxiety about speech, but I think even she is going to be a little amazed at how many different words we are hearing this week. (Not that the therapist will hear any of it I suspect as Charlotte doesn't speak much at speech, but I can report it to her anyway). For anyone who has gotten this far and wants to know we are just giving her one capsule of the ProEFA each day. She also get a couple of tablespoons of flax oil every morning, but she's been getting that for a year at least. I know we still have a long row to hoe, but it's nice to really see some progress. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2006 Report Share Posted July 27, 2006 How wonderful! Thank you for sharing. I enjoy reading about everyone's children and feel hope when I read positive stories! > > I am trying to be cautiously realistic here, but I had to post about > the changes we have seen in our daughter in the last few days. We > started her on ProEFA 4 weeks ago and I find it hard to believe all of > these changes at the same time are coincidental. > > My daughter has spina bifida and hydrocephalus to complicate her > apraxia. She learned to walk (no braces or anything ) right > around her second birthday. Her gross motor skills have slowly been > developing just have been delayed. Her occupational therapist > commented though that looking back the apraxia has probably > complicated her gross motor skill development as well. I feel > fortunate that we have breastfed for as long as we have (for many > reasons), but I think also all of the DHA and EPA in breastmilk have > really been helpful for her. > > Anyway in the last few days Charlotte has suddenly started saying lots > of words. I mean we've heard her say probably 25 or 30 new > identifiable (by us anyway) words! She already had two words phrases > through her signs and limited (3 word) oral vocabulary and she is now > using 2 word oral phrases quite a bit! She brought me two little > plastic Bs (those cheap plastic magnetic letters) tonight and clearly > said " two Bs. " Then I said " yes 2 Bs, one green and one yellow. " She > said " green, yellow. " Wow! Of course then I screwed it up. She does > not like any recognition of her speech at all, especially positive > reinforcement when she says something. We are extremely careful to > not point it out to her at all or she completely melts down and shuts > down. Well I said " yes, green and yellow " a little too > enthusiastically and she melted down. It was still a fabulous moment > to hear her saying so many things. My husband hears a lot more than I > do as she is much more willing to play around with her speech with > him. He heard it a lot last night, but I didn't hear anything really > until tonight. It was very cool. > > Also, today we went to a playdate and she was climbing things that > really surprised me. Her climbing skills have definitely been slowing > improving, but this seemed like a bigger jump forward to me. Her > self-help skills are also starting to improve in the last couple of > weeks. These are things we've been working on so maybe she's just > getting them figured out, but the timing is really amazing. > > Her speech therapist has commented to me that she thinks Charlotte is > just going to have a language explosion some day when she is able to > get over her anxiety about speech, but I think even she is going to be > a little amazed at how many different words we are hearing this week. > (Not that the therapist will hear any of it I suspect as Charlotte > doesn't speak much at speech, but I can report it to her anyway). > > For anyone who has gotten this far and wants to know we are just > giving her one capsule of the ProEFA each day. She also get a couple > of tablespoons of flax oil every morning, but she's been getting that > for a year at least. > > I know we still have a long row to hoe, but it's nice to really see > some progress. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2006 Report Share Posted July 27, 2006 Thanks, . It definitely gives me renewed hope and energy. We must be doing somethiing right. Of course I'm not telling most of my family yet because I have one sister who I worry will make some comment about Charlotte just needing more time and there's really nothing wrong. She probably wouldn't, but I want to enjoy this longer before risking that. > > That is so WONDERFUL! Surges like this give you renewed hope and > inspiration, don't they?! CONGRATULATIONS to you and Charlotte! > > As an aside, started booming in February and hasn't stopped > since. I hope that this is the beginning of a long " boom " period for > Charlotte (and you!). > > Warm regards, > ****************** > (Rochester, NY) > Mom to , 3.2 years, Verbal Apraxia > & , 1 year > > > ________________________________ > > From: > [mailto: ] On Behalf Of anncat1996 > Sent: Thursday, July 27, 2006 12:55 AM > > Subject: [ ] Big changes > > > > I am trying to be cautiously realistic here, but I had to post about > the changes we have seen in our daughter in the last few days. We > started her on ProEFA 4 weeks ago and I find it hard to believe all of > these changes at the same time are coincidental. > > My daughter has spina bifida and hydrocephalus to complicate her > apraxia. She learned to walk (no braces or anything ) right > around her second birthday. Her gross motor skills have slowly been > developing just have been delayed. Her occupational therapist > commented though that looking back the apraxia has probably > complicated her gross motor skill development as well. I feel > fortunate that we have breastfed for as long as we have (for many > reasons), but I think also all of the DHA and EPA in breastmilk have > really been helpful for her. > > Anyway in the last few days Charlotte has suddenly started saying lots > of words. I mean we've heard her say probably 25 or 30 new > identifiable (by us anyway) words! She already had two words phrases > through her signs and limited (3 word) oral vocabulary and she is now > using 2 word oral phrases quite a bit! She brought me two little > plastic Bs (those cheap plastic magnetic letters) tonight and clearly > said " two Bs. " Then I said " yes 2 Bs, one green and one yellow. " She > said " green, yellow. " Wow! Of course then I screwed it up. She does > not like any recognition of her speech at all, especially positive > reinforcement when she says something. We are extremely careful to > not point it out to her at all or she completely melts down and shuts > down. Well I said " yes, green and yellow " a little too > enthusiastically and she melted down. It was still a fabulous moment > to hear her saying so many things. My husband hears a lot more than I > do as she is much more willing to play around with her speech with > him. He heard it a lot last night, but I didn't hear anything really > until tonight. It was very cool. > > Also, today we went to a playdate and she was climbing things that > really surprised me. Her climbing skills have definitely been slowing > improving, but this seemed like a bigger jump forward to me. Her > self-help skills are also starting to improve in the last couple of > weeks. These are things we've been working on so maybe she's just > getting them figured out, but the timing is really amazing. > > Her speech therapist has commented to me that she thinks Charlotte is > just going to have a language explosion some day when she is able to > get over her anxiety about speech, but I think even she is going to be > a little amazed at how many different words we are hearing this week. > (Not that the therapist will hear any of it I suspect as Charlotte > doesn't speak much at speech, but I can report it to her anyway). > > For anyone who has gotten this far and wants to know we are just > giving her one capsule of the ProEFA each day. She also get a couple > of tablespoons of flax oil every morning, but she's been getting that > for a year at least. > > I know we still have a long row to hoe, but it's nice to really see > some progress. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2006 Report Share Posted July 27, 2006 You have no idea how many times I've heard this. If it wasn't for regression off supplements, I would probably be believing it myself. - [ ] Big changes > > > > I am trying to be cautiously realistic here, but I had to post about > the changes we have seen in our daughter in the last few days. We > started her on ProEFA 4 weeks ago and I find it hard to believe all of > these changes at the same time are coincidental. > > My daughter has spina bifida and hydrocephalus to complicate her > apraxia. She learned to walk (no braces or anything ) right > around her second birthday. Her gross motor skills have slowly been > developing just have been delayed. Her occupational therapist > commented though that looking back the apraxia has probably > complicated her gross motor skill development as well. I feel > fortunate that we have breastfed for as long as we have (for many > reasons), but I think also all of the DHA and EPA in breastmilk have > really been helpful for her. > > Anyway in the last few days Charlotte has suddenly started saying lots > of words. I mean we've heard her say probably 25 or 30 new > identifiable (by us anyway) words! She already had two words phrases > through her signs and limited (3 word) oral vocabulary and she is now > using 2 word oral phrases quite a bit! She brought me two little > plastic Bs (those cheap plastic magnetic letters) tonight and clearly > said " two Bs. " Then I said " yes 2 Bs, one green and one yellow. " She > said " green, yellow. " Wow! Of course then I screwed it up. She does > not like any recognition of her speech at all, especially positive > reinforcement when she says something. We are extremely careful to > not point it out to her at all or she completely melts down and shuts > down. Well I said " yes, green and yellow " a little too > enthusiastically and she melted down. It was still a fabulous moment > to hear her saying so many things. My husband hears a lot more than I > do as she is much more willing to play around with her speech with > him. He heard it a lot last night, but I didn't hear anything really > until tonight. It was very cool. > > Also, today we went to a playdate and she was climbing things that > really surprised me. Her climbing skills have definitely been slowing > improving, but this seemed like a bigger jump forward to me. Her > self-help skills are also starting to improve in the last couple of > weeks. These are things we've been working on so maybe she's just > getting them figured out, but the timing is really amazing. > > Her speech therapist has commented to me that she thinks Charlotte is > just going to have a language explosion some day when she is able to > get over her anxiety about speech, but I think even she is going to be > a little amazed at how many different words we are hearing this week. > (Not that the therapist will hear any of it I suspect as Charlotte > doesn't speak much at speech, but I can report it to her anyway). > > For anyone who has gotten this far and wants to know we are just > giving her one capsule of the ProEFA each day. She also get a couple > of tablespoons of flax oil every morning, but she's been getting that > for a year at least. > > I know we still have a long row to hoe, but it's nice to really see > some progress. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2006 Report Share Posted July 27, 2006 Same here. Sigh... ________________________________ From: [mailto: ] On Behalf Of Sent: Thursday, July 27, 2006 7:37 PM Subject: RE: [ ] Re: Big changes You have no idea how many times I've heard this. If it wasn't for regression off supplements, I would probably be believing it myself. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2006 Report Share Posted July 27, 2006 How wonderful! Thank you for sharing. I enjoy reading about everyone's children and feel hope when I read positive stories! > > I am trying to be cautiously realistic here, but I had to post about > the changes we have seen in our daughter in the last few days. We > started her on ProEFA 4 weeks ago and I find it hard to believe all of > these changes at the same time are coincidental. > > My daughter has spina bifida and hydrocephalus to complicate her > apraxia. She learned to walk (no braces or anything ) right > around her second birthday. Her gross motor skills have slowly been > developing just have been delayed. Her occupational therapist > commented though that looking back the apraxia has probably > complicated her gross motor skill development as well. I feel > fortunate that we have breastfed for as long as we have (for many > reasons), but I think also all of the DHA and EPA in breastmilk have > really been helpful for her. > > Anyway in the last few days Charlotte has suddenly started saying lots > of words. I mean we've heard her say probably 25 or 30 new > identifiable (by us anyway) words! She already had two words phrases > through her signs and limited (3 word) oral vocabulary and she is now > using 2 word oral phrases quite a bit! She brought me two little > plastic Bs (those cheap plastic magnetic letters) tonight and clearly > said " two Bs. " Then I said " yes 2 Bs, one green and one yellow. " She > said " green, yellow. " Wow! Of course then I screwed it up. She does > not like any recognition of her speech at all, especially positive > reinforcement when she says something. We are extremely careful to > not point it out to her at all or she completely melts down and shuts > down. Well I said " yes, green and yellow " a little too > enthusiastically and she melted down. It was still a fabulous moment > to hear her saying so many things. My husband hears a lot more than I > do as she is much more willing to play around with her speech with > him. He heard it a lot last night, but I didn't hear anything really > until tonight. It was very cool. > > Also, today we went to a playdate and she was climbing things that > really surprised me. Her climbing skills have definitely been slowing > improving, but this seemed like a bigger jump forward to me. Her > self-help skills are also starting to improve in the last couple of > weeks. These are things we've been working on so maybe she's just > getting them figured out, but the timing is really amazing. > > Her speech therapist has commented to me that she thinks Charlotte is > just going to have a language explosion some day when she is able to > get over her anxiety about speech, but I think even she is going to be > a little amazed at how many different words we are hearing this week. > (Not that the therapist will hear any of it I suspect as Charlotte > doesn't speak much at speech, but I can report it to her anyway). > > For anyone who has gotten this far and wants to know we are just > giving her one capsule of the ProEFA each day. She also get a couple > of tablespoons of flax oil every morning, but she's been getting that > for a year at least. > > I know we still have a long row to hoe, but it's nice to really see > some progress. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2006 Report Share Posted July 27, 2006 Thanks, . It definitely gives me renewed hope and energy. We must be doing somethiing right. Of course I'm not telling most of my family yet because I have one sister who I worry will make some comment about Charlotte just needing more time and there's really nothing wrong. She probably wouldn't, but I want to enjoy this longer before risking that. > > That is so WONDERFUL! Surges like this give you renewed hope and > inspiration, don't they?! CONGRATULATIONS to you and Charlotte! > > As an aside, started booming in February and hasn't stopped > since. I hope that this is the beginning of a long " boom " period for > Charlotte (and you!). > > Warm regards, > ****************** > (Rochester, NY) > Mom to , 3.2 years, Verbal Apraxia > & , 1 year > > > ________________________________ > > From: > [mailto: ] On Behalf Of anncat1996 > Sent: Thursday, July 27, 2006 12:55 AM > > Subject: [ ] Big changes > > > > I am trying to be cautiously realistic here, but I had to post about > the changes we have seen in our daughter in the last few days. We > started her on ProEFA 4 weeks ago and I find it hard to believe all of > these changes at the same time are coincidental. > > My daughter has spina bifida and hydrocephalus to complicate her > apraxia. She learned to walk (no braces or anything ) right > around her second birthday. Her gross motor skills have slowly been > developing just have been delayed. Her occupational therapist > commented though that looking back the apraxia has probably > complicated her gross motor skill development as well. I feel > fortunate that we have breastfed for as long as we have (for many > reasons), but I think also all of the DHA and EPA in breastmilk have > really been helpful for her. > > Anyway in the last few days Charlotte has suddenly started saying lots > of words. I mean we've heard her say probably 25 or 30 new > identifiable (by us anyway) words! She already had two words phrases > through her signs and limited (3 word) oral vocabulary and she is now > using 2 word oral phrases quite a bit! She brought me two little > plastic Bs (those cheap plastic magnetic letters) tonight and clearly > said " two Bs. " Then I said " yes 2 Bs, one green and one yellow. " She > said " green, yellow. " Wow! Of course then I screwed it up. She does > not like any recognition of her speech at all, especially positive > reinforcement when she says something. We are extremely careful to > not point it out to her at all or she completely melts down and shuts > down. Well I said " yes, green and yellow " a little too > enthusiastically and she melted down. It was still a fabulous moment > to hear her saying so many things. My husband hears a lot more than I > do as she is much more willing to play around with her speech with > him. He heard it a lot last night, but I didn't hear anything really > until tonight. It was very cool. > > Also, today we went to a playdate and she was climbing things that > really surprised me. Her climbing skills have definitely been slowing > improving, but this seemed like a bigger jump forward to me. Her > self-help skills are also starting to improve in the last couple of > weeks. These are things we've been working on so maybe she's just > getting them figured out, but the timing is really amazing. > > Her speech therapist has commented to me that she thinks Charlotte is > just going to have a language explosion some day when she is able to > get over her anxiety about speech, but I think even she is going to be > a little amazed at how many different words we are hearing this week. > (Not that the therapist will hear any of it I suspect as Charlotte > doesn't speak much at speech, but I can report it to her anyway). > > For anyone who has gotten this far and wants to know we are just > giving her one capsule of the ProEFA each day. She also get a couple > of tablespoons of flax oil every morning, but she's been getting that > for a year at least. > > I know we still have a long row to hoe, but it's nice to really see > some progress. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2006 Report Share Posted July 28, 2006 You have no idea how many times I've heard this. If it wasn't for regression off supplements, I would probably be believing it myself. - [ ] Big changes > > > > I am trying to be cautiously realistic here, but I had to post about > the changes we have seen in our daughter in the last few days. We > started her on ProEFA 4 weeks ago and I find it hard to believe all of > these changes at the same time are coincidental. > > My daughter has spina bifida and hydrocephalus to complicate her > apraxia. She learned to walk (no braces or anything ) right > around her second birthday. Her gross motor skills have slowly been > developing just have been delayed. Her occupational therapist > commented though that looking back the apraxia has probably > complicated her gross motor skill development as well. I feel > fortunate that we have breastfed for as long as we have (for many > reasons), but I think also all of the DHA and EPA in breastmilk have > really been helpful for her. > > Anyway in the last few days Charlotte has suddenly started saying lots > of words. I mean we've heard her say probably 25 or 30 new > identifiable (by us anyway) words! She already had two words phrases > through her signs and limited (3 word) oral vocabulary and she is now > using 2 word oral phrases quite a bit! She brought me two little > plastic Bs (those cheap plastic magnetic letters) tonight and clearly > said " two Bs. " Then I said " yes 2 Bs, one green and one yellow. " She > said " green, yellow. " Wow! Of course then I screwed it up. She does > not like any recognition of her speech at all, especially positive > reinforcement when she says something. We are extremely careful to > not point it out to her at all or she completely melts down and shuts > down. Well I said " yes, green and yellow " a little too > enthusiastically and she melted down. It was still a fabulous moment > to hear her saying so many things. My husband hears a lot more than I > do as she is much more willing to play around with her speech with > him. He heard it a lot last night, but I didn't hear anything really > until tonight. It was very cool. > > Also, today we went to a playdate and she was climbing things that > really surprised me. Her climbing skills have definitely been slowing > improving, but this seemed like a bigger jump forward to me. Her > self-help skills are also starting to improve in the last couple of > weeks. These are things we've been working on so maybe she's just > getting them figured out, but the timing is really amazing. > > Her speech therapist has commented to me that she thinks Charlotte is > just going to have a language explosion some day when she is able to > get over her anxiety about speech, but I think even she is going to be > a little amazed at how many different words we are hearing this week. > (Not that the therapist will hear any of it I suspect as Charlotte > doesn't speak much at speech, but I can report it to her anyway). > > For anyone who has gotten this far and wants to know we are just > giving her one capsule of the ProEFA each day. She also get a couple > of tablespoons of flax oil every morning, but she's been getting that > for a year at least. > > I know we still have a long row to hoe, but it's nice to really see > some progress. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2006 Report Share Posted July 28, 2006 Same here. Sigh... ________________________________ From: [mailto: ] On Behalf Of Sent: Thursday, July 27, 2006 7:37 PM Subject: RE: [ ] Re: Big changes You have no idea how many times I've heard this. If it wasn't for regression off supplements, I would probably be believing it myself. - Quote Link to comment Share on other sites More sharing options...
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