Re: Tim Re: Autism and charge

[Guest guest]

thanks for the reply, could you please confirm what you mean by OT

services - is that Occupational Therapy.

And for a quick rant, was I the only one surprised that there is no

standard sign language, even Switzerland and Germany have different ones

never mind UK and America.

the comments about the link with the digestive system led me to

wondering if too many rennies over the years had given me too high an

aluminium amount which in turn had triggered charge in Cai.

Ian - Cai's dad

> language growth, obtain sensory and OT services, attend to any digestion

[Guest guest]

Ian,

Yep OT is occupational therapy.

I was also surprised to learn about all the different sign languages around

the world when I began learning it. We had a woman move here from Quebec (a

French speaking province of Canada) who was deaf. She had learned " QSL " -

Quebec Sign Language - but she was easily able to adapt to the ASL we use

here. I think you would find the case for most native signers; they will be

able to adapt much better than us hearing folk when place in an environment

where a 'new to them' sign language was being used.

www.chargesyndrome.info

>

>

> thanks for the reply, could you please confirm what you mean by OT

> services - is that Occupational Therapy.

>

> And for a quick rant, was I the only one surprised that there is no

> standard sign language, even Switzerland and Germany have different ones

> never mind UK and America.

>

> the comments about the link with the digestive system led me to

> wondering if too many rennies over the years had given me too high an

> aluminium amount which in turn had triggered charge in Cai.

>

> Ian - Cai's dad

>

> > language growth, obtain sensory and OT services, attend to any digestion

>

>

>

--

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

[Guest guest]

Yes, OT is Occupational Therapy - not all OT's are trained in sensory

integration techniques, but many are.

Sign languages are native languages that have developed naturally within

deaf communities. They are not languages that hearing people created for

the deaf. Well, there are some of those, but American Sign Language, for

example, is a native language, and by and large the deaf community spurns

any attempt by the hearing world to impose sign language systems. There are

even dialects in sign language. For example, I know that in Michigan,

where I live, there are variations of ASL, and this is true around the US.

So that is why each country has its own sign language. When I was in

Finland for the Nordic CHARGE conference there were three different sign

language interpreters going at one time because of the different countries

represented.

Tim Hartshorne

[Guest guest]

Ian-

Don't give your guilty thoughts one moment's notice! There is nothing that

you or your wife did to cause Cai's CHARGE. There are so many other things

that need your energy and attention. Let go of that one :-)

Michele W

the comments about the link with the digestive system led me to

wondering if too many rennies over the years had given me too high an

aluminium amount which in turn had triggered charge in Cai.

Ian - Cai's dad

[Guest guest]

Ian-

Another thought related to sign language -- Does anyone there use Cued

Speech? It's a manual representation of a spoken language. Each speech

sound has a hand shape and placement. It began here in the US but I

understand they have added speech sounds of other languages as well so that

a child can learn his native language in Cueing.

I haven't visited this website myself, but I understand it has on-line

Cueing lessons: <http://web7.mit.edu/CS/Art/> http://web7.mit.edu/CS/Art/

Cued Speech can be learned in a one or 2 day session. A person can become

fluent in several months with practice. So it's easy to learn and use. And

it represents the native language so it's not a new language. Kids who Cue

do better learning to read than kids who sign because they Cue the same

language that they are learning to read.

Just another option to throw into the mix for you!

Michele W

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

Michele Westmaas

Sent: Thursday, December 14, 2006 8:45 AM

To: CHARGE

Subject: RE: Tim Re: Autism and charge

Ian-

Don't give your guilty thoughts one moment's notice! There is nothing that

you or your wife did to cause Cai's CHARGE. There are so many other things

that need your energy and attention. Let go of that one :-)

Michele W

the comments about the link with the digestive system led me to

wondering if too many rennies over the years had given me too high an

aluminium amount which in turn had triggered charge in Cai.

Ian - Cai's dad

[Guest guest]

My name is Rose. My daughter Kaylin " maybe " had CHARGE. She also ended up

being fighting Leukemia. She passed away unexpectedly last week. I am trying to

find another CHARGER and her parents but at this time my life has spun out of

control and I cannot find their number. I know they would like to know. Could

you please ask maybe on the group listing and see if anyone might have their

address or phone number? Thank you.

They live in the Los Angeles, California area. Their last name is Khouri.

CHARGER is Cierra (4 and a half years old). Dad is . Mom is Eloise or

Eloisa.

I have been a member since my daughter was born, taken great information,

comfort, joy, and love reading the messages but I have not ever posted a

message. I know you are very active so I was just wondering if you could post a

question out for me.

Of course, thank you and all more than words can say. The Group understands I

know. That has a been a great comfort to us these years.If anyone knows them, my

e-mail is krose2@... or (310)612-4075.

RE: Tim Re: Autism and charge

Ian-

Don't give your guilty thoughts one moment's notice! There is nothing that

you or your wife did to cause Cai's CHARGE. There are so many other things

that need your energy and attention. Let go of that one :-)

Michele W

the comments about the link with the digestive system led me to

wondering if too many rennies over the years had given me too high an

aluminium amount which in turn had triggered charge in Cai.

Ian - Cai's dad

[Guest guest]

My name is Rose. My daughter Kaylin " maybe " had CHARGE. She also ended up

being fighting Leukemia. She passed away unexpectedly last week. I am trying to

find another CHARGER and her parents but at this time my life has spun out of

control and I cannot find their number. I know they would like to know. Could

you please ask maybe on the group listing and see if anyone might have their

address or phone number? Thank you.

They live in the Los Angeles, California area. Their last name is Khouri.

CHARGER is Cierra (4 and a half years old). Dad is . Mom is Eloise or

Eloisa.

I have been a member since my daughter was born, taken great information,

comfort, joy, and love reading the messages but I have not ever posted a

message. I know you are very active so I was just wondering if you could post a

question out for me.

Of course, thank you and all more than words can say. The Group understands I

know. That has a been a great comfort to us these years.If anyone knows them, my

e-mail is krose2@... or (310)612-4075.

Re: Tim Re: Autism and charge

Ian,

Yep OT is occupational therapy.

I was also surprised to learn about all the different sign languages around

the world when I began learning it. We had a woman move here from Quebec (a

French speaking province of Canada) who was deaf. She had learned " QSL " -

Quebec Sign Language - but she was easily able to adapt to the ASL we use

here. I think you would find the case for most native signers; they will be

able to adapt much better than us hearing folk when place in an environment

where a 'new to them' sign language was being used.

www.chargesyndrome.info

>

>

> thanks for the reply, could you please confirm what you mean by OT

> services - is that Occupational Therapy.

>

> And for a quick rant, was I the only one surprised that there is no

> standard sign language, even Switzerland and Germany have different ones

> never mind UK and America.

>

> the comments about the link with the digestive system led me to

> wondering if too many rennies over the years had given me too high an

> aluminium amount which in turn had triggered charge in Cai.

>

> Ian - Cai's dad

>

> > language growth, obtain sensory and OT services, attend to any digestion

>

>

>

--

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

[Guest guest]

Hi Michele,

I don't give them any time, at first I thought maybe we were being

punished, but then I realised we were being rewarded, although I am not

always grateful especially like this morning when you spend the first

half hour when you wake up with suction pump in one hand, tea in the

other and a hope in your heart that he will cough it all up in time for

you to make the toilet. :-)

Ian

Michele Westmaas wrote:

>

>

> Ian-

>

> Don't give your guilty thoughts one moment's notice! There is nothing that

> you or your wife did to cause Cai's CHARGE. There are so many other things

> that need your energy and attention. Let go of that one :-)

>

[Guest guest]

Ian,

Oh gosh, I just about spit out the coffee on that one-

from now on I'm going to be prepared-no idly opening

Ur messages till I've 'secured the area'.

in Ma. (, 21 yrs)

(a self-proclaimed laugh junkie)

[Guest guest]

Ian-

That's the sense of humor we all need to survive! Thanks for the morning

chuckle. Instead of starting my day as you described, I'm starting it with

a giggle!

Michele

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

swisspace

Sent: Friday, December 15, 2006 1:49 AM

To: CHARGE

Subject: Re: Tim Re: Autism and charge

Hi Michele,

I don't give them any time, at first I thought maybe we were being

punished, but then I realised we were being rewarded, although I am not

always grateful especially like this morning when you spend the first

half hour when you wake up with suction pump in one hand, tea in the

other and a hope in your heart that he will cough it all up in time for

you to make the toilet. :-)

Ian

_,___