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Ok I have been gone because the internet was off for a few days and

we still have dial up but I hate it and can't wait that long for

screens to pop up.

Anyway yesterday Eva went to the Cardiologist and she had an echo

and everything and they had to put her to sleep for it, once she got

sleepy she fought going to sleep for like 30 mins and it was so hard

to watch, she threw her head everywhere and she was all over the

extaiming table I tried holding her and she didnt like it. When she

finally went to sleep I was so relived. They took her in for her

echo and she was out for the whole thing. The tech was done and

anther doctor came in to make sure he had all the pictures he needed

and then we went back to our room. A few minutes later our doctor

came in and he sat down and looked at Eva and said " everything looks

good, it looks like she never had any problems with her heart " SO

her broken heart is now fixed and there is nothing else we need to

worry about. Her hypertention is also gone so we no longer need the

O2 at night. Also if she keeps gaining weight her Mic Key button

(feeding tube) will be taken out in March. So it looks like the next

year will be filled with good news!!!

Hugs,

Crystal mom to (10), (3), and Eva (20 month old CHARGEr)

wife to Dan in Illinois

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that is such GOOD news to hear

mommy to {15 months}

I am back with some news!!

Ok I have been gone because the internet was off for a few days and

we still have dial up but I hate it and can't wait that long for

screens to pop up.

Anyway yesterday Eva went to the Cardiologist and she had an echo

and everything and they had to put her to sleep for it, once she got

sleepy she fought going to sleep for like 30 mins and it was so hard

to watch, she threw her head everywhere and she was all over the

extaiming table I tried holding her and she didnt like it. When she

finally went to sleep I was so relived. They took her in for her

echo and she was out for the whole thing. The tech was done and

anther doctor came in to make sure he had all the pictures he needed

and then we went back to our room. A few minutes later our doctor

came in and he sat down and looked at Eva and said " everything looks

good, it looks like she never had any problems with her heart " SO

her broken heart is now fixed and there is nothing else we need to

worry about. Her hypertention is also gone so we no longer need the

O2 at night. Also if she keeps gaining weight her Mic Key button

(feeding tube) will be taken out in March. So it looks like the next

year will be filled with good news!!!

Hugs,

Crystal mom to (10), (3), and Eva (20 month old CHARGEr)

wife to Dan in Illinois

________________________________________________________________________________\

____

Cheap talk?

Check out Yahoo! Messenger's low PC-to-Phone call rates.

http://voice.yahoo.com

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YAY

>

> that is such GOOD news to hear

> mommy to {15 months}

>

> I am back with some news!!

>

> Ok I have been gone because the internet was off for a few days and

> we still have dial up but I hate it and can't wait that long for

> screens to pop up.

> Anyway yesterday Eva went to the Cardiologist and she had an echo

> and everything and they had to put her to sleep for it, once she got

> sleepy she fought going to sleep for like 30 mins and it was so hard

> to watch, she threw her head everywhere and she was all over the

> extaiming table I tried holding her and she didnt like it. When she

> finally went to sleep I was so relived. They took her in for her

> echo and she was out for the whole thing. The tech was done and

> anther doctor came in to make sure he had all the pictures he needed

> and then we went back to our room. A few minutes later our doctor

> came in and he sat down and looked at Eva and said " everything looks

> good, it looks like she never had any problems with her heart " SO

> her broken heart is now fixed and there is nothing else we need to

> worry about. Her hypertention is also gone so we no longer need the

> O2 at night. Also if she keeps gaining weight her Mic Key button

> (feeding tube) will be taken out in March. So it looks like the next

> year will be filled with good news!!!

> Hugs,

> Crystal mom to (10), (3), and Eva (20 month old CHARGEr)

> wife to Dan in Illinois

>

> __________________________________________________________

> Cheap talk?

> Check out Yahoo! Messenger's low PC-to-Phone call rates.

> http://voice.yahoo.com

>

>

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Crystal-

That is FABULOUS!!!!Way to go super Eva!!

Janay

Rasha's mom

> >

> > that is such GOOD news to hear

> > mommy to {15 months}

> >

> > I am back with some news!!

> >

> > Ok I have been gone because the internet was off for a few days

and

> > we still have dial up but I hate it and can't wait that long for

> > screens to pop up.

> > Anyway yesterday Eva went to the Cardiologist and she had an echo

> > and everything and they had to put her to sleep for it, once she

got

> > sleepy she fought going to sleep for like 30 mins and it was so

hard

> > to watch, she threw her head everywhere and she was all over the

> > extaiming table I tried holding her and she didnt like it. When

she

> > finally went to sleep I was so relived. They took her in for her

> > echo and she was out for the whole thing. The tech was done and

> > anther doctor came in to make sure he had all the pictures he

needed

> > and then we went back to our room. A few minutes later our doctor

> > came in and he sat down and looked at Eva and said " everything

looks

> > good, it looks like she never had any problems with her heart " SO

> > her broken heart is now fixed and there is nothing else we need

to

> > worry about. Her hypertention is also gone so we no longer need

the

> > O2 at night. Also if she keeps gaining weight her Mic Key button

> > (feeding tube) will be taken out in March. So it looks like the

next

> > year will be filled with good news!!!

> > Hugs,

> > Crystal mom to (10), (3), and Eva (20 month old

CHARGEr)

> > wife to Dan in Illinois

> >

> > __________________________________________________________

> > Cheap talk?

> > Check out Yahoo! Messenger's low PC-to-Phone call rates.

> > http://voice.yahoo.com

> >

> >

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all good, its great to see a year on our girlies are improving all the

time, gives me strength and hope when I read these posts!!

Well done Eva xx

Les x

> All great news, Crystal! What a great early Christmas gift!

>

> , mom to (4)

> http://kauffmanlak.blogspot.com/

>

> ---------------------------------

> Everyone is raving about the all-new Yahoo! Mail beta.

>

>

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My name is Rose. My daughter Kaylin " maybe " had CHARGE. She also ended up

being fighting Leukemia. She passed away unexpectedly last week. I am trying to

find another CHARGER and her parents but at this time my life has spun out of

control and I cannot find their number. I know they would like to know. Could

you please ask maybe on the group listing and see if anyone might have their

address or phone number? Thank you.

They live in the Los Angeles, California area. Their last name is Khouri.

CHARGER is Cierra (4 and a half years old). Dad is . Mom is Eloise or

Eloisa.

I have been a member since my daughter was born, taken great information,

comfort, joy, and love reading the messages but I have not ever posted a

message. I know you are very active so I was just wondering if you could post a

question out for me.

Of course, thank you and all more than words can say. The Group understands I

know. That has a been a great comfort to us these years.If anyone knows them, my

e-mail is krose2@... or (310)612-4075.

Re: I am back with some news!!

All great news, Crystal! What a great early Christmas gift!

, mom to (4)

http://kauffmanlak.blogspot.com/

---------------------------------

Everyone is raving about the all-new Yahoo! Mail beta.

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Crystal - So nice to get good news, isn't it. Have a good holiday. Jody

Jody - mom to Ethan (ChARGE) and

---------------------------------

Any questions? Get answers on any topic at Yahoo! Answers. Try it now.

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