Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 Ok I have been gone because the internet was off for a few days and we still have dial up but I hate it and can't wait that long for screens to pop up. Anyway yesterday Eva went to the Cardiologist and she had an echo and everything and they had to put her to sleep for it, once she got sleepy she fought going to sleep for like 30 mins and it was so hard to watch, she threw her head everywhere and she was all over the extaiming table I tried holding her and she didnt like it. When she finally went to sleep I was so relived. They took her in for her echo and she was out for the whole thing. The tech was done and anther doctor came in to make sure he had all the pictures he needed and then we went back to our room. A few minutes later our doctor came in and he sat down and looked at Eva and said " everything looks good, it looks like she never had any problems with her heart " SO her broken heart is now fixed and there is nothing else we need to worry about. Her hypertention is also gone so we no longer need the O2 at night. Also if she keeps gaining weight her Mic Key button (feeding tube) will be taken out in March. So it looks like the next year will be filled with good news!!! Hugs, Crystal mom to (10), (3), and Eva (20 month old CHARGEr) wife to Dan in Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 that is such GOOD news to hear mommy to {15 months} I am back with some news!! Ok I have been gone because the internet was off for a few days and we still have dial up but I hate it and can't wait that long for screens to pop up. Anyway yesterday Eva went to the Cardiologist and she had an echo and everything and they had to put her to sleep for it, once she got sleepy she fought going to sleep for like 30 mins and it was so hard to watch, she threw her head everywhere and she was all over the extaiming table I tried holding her and she didnt like it. When she finally went to sleep I was so relived. They took her in for her echo and she was out for the whole thing. The tech was done and anther doctor came in to make sure he had all the pictures he needed and then we went back to our room. A few minutes later our doctor came in and he sat down and looked at Eva and said " everything looks good, it looks like she never had any problems with her heart " SO her broken heart is now fixed and there is nothing else we need to worry about. Her hypertention is also gone so we no longer need the O2 at night. Also if she keeps gaining weight her Mic Key button (feeding tube) will be taken out in March. So it looks like the next year will be filled with good news!!! Hugs, Crystal mom to (10), (3), and Eva (20 month old CHARGEr) wife to Dan in Illinois ________________________________________________________________________________\ ____ Cheap talk? Check out Yahoo! Messenger's low PC-to-Phone call rates. http://voice.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 YAY > > that is such GOOD news to hear > mommy to {15 months} > > I am back with some news!! > > Ok I have been gone because the internet was off for a few days and > we still have dial up but I hate it and can't wait that long for > screens to pop up. > Anyway yesterday Eva went to the Cardiologist and she had an echo > and everything and they had to put her to sleep for it, once she got > sleepy she fought going to sleep for like 30 mins and it was so hard > to watch, she threw her head everywhere and she was all over the > extaiming table I tried holding her and she didnt like it. When she > finally went to sleep I was so relived. They took her in for her > echo and she was out for the whole thing. The tech was done and > anther doctor came in to make sure he had all the pictures he needed > and then we went back to our room. A few minutes later our doctor > came in and he sat down and looked at Eva and said " everything looks > good, it looks like she never had any problems with her heart " SO > her broken heart is now fixed and there is nothing else we need to > worry about. Her hypertention is also gone so we no longer need the > O2 at night. Also if she keeps gaining weight her Mic Key button > (feeding tube) will be taken out in March. So it looks like the next > year will be filled with good news!!! > Hugs, > Crystal mom to (10), (3), and Eva (20 month old CHARGEr) > wife to Dan in Illinois > > __________________________________________________________ > Cheap talk? > Check out Yahoo! Messenger's low PC-to-Phone call rates. > http://voice.yahoo.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 Crystal- That is FABULOUS!!!!Way to go super Eva!! Janay Rasha's mom > > > > that is such GOOD news to hear > > mommy to {15 months} > > > > I am back with some news!! > > > > Ok I have been gone because the internet was off for a few days and > > we still have dial up but I hate it and can't wait that long for > > screens to pop up. > > Anyway yesterday Eva went to the Cardiologist and she had an echo > > and everything and they had to put her to sleep for it, once she got > > sleepy she fought going to sleep for like 30 mins and it was so hard > > to watch, she threw her head everywhere and she was all over the > > extaiming table I tried holding her and she didnt like it. When she > > finally went to sleep I was so relived. They took her in for her > > echo and she was out for the whole thing. The tech was done and > > anther doctor came in to make sure he had all the pictures he needed > > and then we went back to our room. A few minutes later our doctor > > came in and he sat down and looked at Eva and said " everything looks > > good, it looks like she never had any problems with her heart " SO > > her broken heart is now fixed and there is nothing else we need to > > worry about. Her hypertention is also gone so we no longer need the > > O2 at night. Also if she keeps gaining weight her Mic Key button > > (feeding tube) will be taken out in March. So it looks like the next > > year will be filled with good news!!! > > Hugs, > > Crystal mom to (10), (3), and Eva (20 month old CHARGEr) > > wife to Dan in Illinois > > > > __________________________________________________________ > > Cheap talk? > > Check out Yahoo! Messenger's low PC-to-Phone call rates. > > http://voice.yahoo.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 Way to go Eva! in Ma. (, 21 yrs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 Crystal - What wonderful news!! I hope she thrives through the winter, the G-tube comes out, and you are on your way to all good things! Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 All great news, Crystal! What a great early Christmas gift! , mom to (4) http://kauffmanlak.blogspot.com/ --------------------------------- Everyone is raving about the all-new Yahoo! Mail beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 all good, its great to see a year on our girlies are improving all the time, gives me strength and hope when I read these posts!! Well done Eva xx Les x > All great news, Crystal! What a great early Christmas gift! > > , mom to (4) > http://kauffmanlak.blogspot.com/ > > --------------------------------- > Everyone is raving about the all-new Yahoo! Mail beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 My name is Rose. My daughter Kaylin " maybe " had CHARGE. She also ended up being fighting Leukemia. She passed away unexpectedly last week. I am trying to find another CHARGER and her parents but at this time my life has spun out of control and I cannot find their number. I know they would like to know. Could you please ask maybe on the group listing and see if anyone might have their address or phone number? Thank you. They live in the Los Angeles, California area. Their last name is Khouri. CHARGER is Cierra (4 and a half years old). Dad is . Mom is Eloise or Eloisa. I have been a member since my daughter was born, taken great information, comfort, joy, and love reading the messages but I have not ever posted a message. I know you are very active so I was just wondering if you could post a question out for me. Of course, thank you and all more than words can say. The Group understands I know. That has a been a great comfort to us these years.If anyone knows them, my e-mail is krose2@... or (310)612-4075. Re: I am back with some news!! All great news, Crystal! What a great early Christmas gift! , mom to (4) http://kauffmanlak.blogspot.com/ --------------------------------- Everyone is raving about the all-new Yahoo! Mail beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 Crystal - So nice to get good news, isn't it. Have a good holiday. Jody Jody - mom to Ethan (ChARGE) and --------------------------------- Any questions? Get answers on any topic at Yahoo! Answers. Try it now. Quote Link to comment Share on other sites More sharing options...
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