Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Dear , Amazingly great news! Whew. Make sure they coordinate 'same day visits' for you- they can do it. If it doesn't come about easily-then ask 'who can make this happen for you.' Snow or no snow..you need to be able to have a life in between. Having Jack home is certainly a lovely holiday gift. ;-) in Ma. (, 21 yrs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 After 86 days in the NICU and 5 surgeries Jack is finally home! It is so wonderful! The only issue i'm having is trying to move him, his g-tube pump and his feeding bag all at once and then figuring out where to hang the bag when we find a spot to play! I'm sure I'll get the hang of it soon! Next week I meet with the peds surgeon and hopefully we can start moving off the continuous feedings towards bolus and have some time to roam freely. I am thankful to not have to drive the hour and a half to Syracuse every day but will still have to drive up for the 6 specialists we are seeing! Life is finally starting to look better! mom to Jack, 3 month old CHArGEr ________________________________________________________________________________\ ____ Have a burning question? Go to www.Answers.yahoo.com and get answers from real people who know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 What a day of great news! Congratulations on getting Jack home! You'll fall into a great routine and your house will soon be " rigged " for all the extras that came home with him! Enjoy your " home " time with your baby boy! , mommy to Meagan (CHaRgE) and 2 year old twins, and big brother 4 years, married to the best daddy in the world for 9 years! -- Jack is home! After 86 days in the NICU and 5 surgeries Jack is finally home! It is so wonderful! The only issue i'm having is trying to move him, his g-tube pump and his feeding bag all at once and then figuring out where to hang the bag when we find a spot to play! I'm sure I'll get the hang of it soon! Next week I meet with the peds surgeon and hopefully we can start moving off the continuous feedings towards bolus and have some time to roam freely. I am thankful to not have to drive the hour and a half to Syracuse every day but will still have to drive up for the 6 specialists we are seeing! Life is finally starting to look better! mom to Jack, 3 month old CHArGEr __________________________________________________________ Have a burning question? Go to www.Answers.yahoo.com and get answers from real people who know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 WONDERFUL NEWS!!!!!!!!!! Give Jack a high five from Kennedy www.chargesyndrome.info > > > After 86 days in the NICU and 5 surgeries Jack is finally home! It is so > wonderful! The only issue i'm having is trying to move him, his g-tube pump > and his feeding bag all at once and then figuring out where to hang the bag > when we find a spot to play! I'm sure I'll get the hang of it soon! Next > week I meet with the peds surgeon and hopefully we can start moving off the > continuous feedings towards bolus and have some time to roam freely. I am > thankful to not have to drive the hour and a half to Syracuse every day but > will still have to drive up for the 6 specialists we are seeing! Life is > finally starting to look better! > > > mom to Jack, 3 month old CHArGEr > > __________________________________________________________ > Have a burning question? > Go to www.Answers.yahoo.com and get answers from real people who know. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 yea!!!! hope home life goes great! mom to timmy 11 ChARGE, keegan 8, liam6 wife topat Jack is home! After 86 days in the NICU and 5 surgeries Jack is finally home! It is so wonderful! The only issue i'm having is trying to move him, his g-tube pump and his feeding bag all at once and then figuring out where to hang the bag when we find a spot to play! I'm sure I'll get the hang of it soon! Next week I meet with the peds surgeon and hopefully we can start moving off the continuous feedings towards bolus and have some time to roam freely. I am thankful to not have to drive the hour and a half to Syracuse every day but will still have to drive up for the 6 specialists we are seeing! Life is finally starting to look better! mom to Jack, 3 month old CHArGEr __________________________________________________________ Have a burning question? Go to www.Answers.yahoo.com and get answers from real people who know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Congratulations! I hope this is the beginning of the upward side of your travels in CHARGEland! Michele W Aubrie's mom 9 yrs _____ From: CHARGE [mailto:CHARGE ] On Behalf Of Waggoner Sent: Wednesday, December 13, 2006 2:00 PM To: CHARGE Subject: Jack is home! After 86 days in the NICU and 5 surgeries Jack is finally home! It is so wonderful! The only issue i'm having is trying to move him, his g-tube pump and his feeding bag all at once and then figuring out where to hang the bag when we find a spot to play! I'm sure I'll get the hang of it soon! Next week I meet with the peds surgeon and hopefully we can start moving off the continuous feedings towards bolus and have some time to roam freely. I am thankful to not have to drive the hour and a half to Syracuse every day but will still have to drive up for the 6 specialists we are seeing! Life is finally starting to look better! mom to Jack, 3 month old CHArGEr __________________________________________________________ Have a burning question? Go to www.Answers.yahoo.com and get answers from real people who know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Hello, that is great news and i'm sure you will work out how to monover every thing at once. i had the same problem with Taylyah's continuous feeds. All the best. Raine. > >Reply-To: CHARGE >To: CHARGE >Subject: Jack is home! >Date: Wed, 13 Dec 2006 12:00:29 -0800 (PST) > > >After 86 days in the NICU and 5 surgeries Jack is finally home! It is so >wonderful! The only issue i'm having is trying to move him, his g-tube >pump and his feeding bag all at once and then figuring out where to hang >the bag when we find a spot to play! I'm sure I'll get the hang of it >soon! Next week I meet with the peds surgeon and hopefully we can start >moving off the continuous feedings towards bolus and have some time to roam >freely. I am thankful to not have to drive the hour and a half to Syracuse >every day but will still have to drive up for the 6 specialists we are >seeing! Life is finally starting to look better! > > >mom to Jack, 3 month old CHArGEr > > > > > >_______________________________________________________________________________\ _____ >Have a burning question? >Go to www.Answers.yahoo.com and get answers from real people who know. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 I am so happy for you!! I know its hard when you 1st get home and wonder where to put everything and how to move around. I will be praying your appointment goes well. Hugs, Crystal mom to (10), (3), and Eva (20 month CHARGEr) wife to Dan in Illinois > > > After 86 days in the NICU and 5 surgeries Jack is finally home! It is so wonderful! The only issue i'm having is trying to move him, his g-tube pump and his feeding bag all at once and then figuring out where to hang the bag when we find a spot to play! I'm sure I'll get the hang of it soon! Next week I meet with the peds surgeon and hopefully we can start moving off the continuous feedings towards bolus and have some time to roam freely. I am thankful to not have to drive the hour and a half to Syracuse every day but will still have to drive up for the 6 specialists we are seeing! Life is finally starting to look better! > > > mom to Jack, 3 month old CHArGEr > > > > > > _____________________________________________________________________ _______________ > Have a burning question? > Go to www.Answers.yahoo.com and get answers from real people who know. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 Congratulations to you! We also spent 3 months in the NICU and coming home will be all you hoped and more. Jack will thrive at home with his family! All the best!! > > > After 86 days in the NICU and 5 surgeries Jack is finally home! It is so wonderful! The only issue i'm having is trying to move him, his g-tube pump and his feeding bag all at once and then figuring out where to hang the bag when we find a spot to play! I'm sure I'll get the hang of it soon! Next week I meet with the peds surgeon and hopefully we can start moving off the continuous feedings towards bolus and have some time to roam freely. I am thankful to not have to drive the hour and a half to Syracuse every day but will still have to drive up for the 6 specialists we are seeing! Life is finally starting to look better! > > > mom to Jack, 3 month old CHArGEr > > > > > > _____________________________________________________________________ _______________ > Have a burning question? > Go to www.Answers.yahoo.com and get answers from real people who know. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 great xmas pressie > > Congratulations to you! We also spent 3 months in the NICU and > coming home will be all you hoped and more. Jack will thrive at home > with his family! All the best!! > > > > > > > > > After 86 days in the NICU and 5 surgeries Jack is finally home! > It is so wonderful! The only issue i'm having is trying to move > him, his g-tube pump and his feeding bag all at once and then > figuring out where to hang the bag when we find a spot to play! I'm > sure I'll get the hang of it soon! Next week I meet with the peds > surgeon and hopefully we can start moving off the continuous > feedings towards bolus and have some time to roam freely. I am > thankful to not have to drive the hour and a half to Syracuse every > day but will still have to drive up for the 6 specialists we are > seeing! Life is finally starting to look better! > > > > > > mom to Jack, 3 month old CHArGEr > > > > > > > > > > > > > __________________________________________________________ > _______________ > > Have a burning question? > > Go to www.Answers.yahoo.com and get answers from real people who > know. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 yes remember this day always its the best ever feeling after months of staring into the incubators. ugs Les x > great xmas pressie > > > > > > Congratulations to you! We also spent 3 months in the NICU and > > coming home will be all you hoped and more. Jack will thrive at home > > with his family! All the best!! > > > > > > > > > > > > > > > After 86 days in the NICU and 5 surgeries Jack is finally home! > > It is so wonderful! The only issue i'm having is trying to move > > him, his g-tube pump and his feeding bag all at once and then > > figuring out where to hang the bag when we find a spot to play! I'm > > sure I'll get the hang of it soon! Next week I meet with the peds > > surgeon and hopefully we can start moving off the continuous > > feedings towards bolus and have some time to roam freely. I am > > thankful to not have to drive the hour and a half to Syracuse every > > day but will still have to drive up for the 6 specialists we are > > seeing! Life is finally starting to look better! > > > > > > > > > mom to Jack, 3 month old CHArGEr > > > > > > > > > > > > > > > > > > > > __________________________________________________________ > > _______________ > > > Have a burning question? > > > Go to www.Answers.yahoo.com and get answers from real people who > > know. > > > > > > Quote Link to comment Share on other sites More sharing options...
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