RE: Preliminary Results of ProEFA for Dylan

January 24, 2006

Sounds very familiar.

We saw immediate improvement in coordination (within 3 days), but as far as

speech - it was more babbling (and " normal " sounding babbling - as opposed

to ahhhhhhhhh grunting we were hearing before). Then we saw less drooling,

less tongue protruding and he started to pucker his lips for a kiss (about 2

weeks into thing) - which he was never able to do. It was a few weeks before

we heard new words. We went from 3 word approximations to 10 words by a

month. (Then we stopped using cod liver oil - I obviously had not spent

enough time on this site to know at the time that wasn't the ideal choice)

due to intolerable sensory integration issues that developed. Bad

regression over the next week. Stopped babbling, was falling down all over

the place. Then started Pro-EFA and in a week regained and surpassed all the

previous gains. We went to 2x a week dosing and the first 2-word sentense

came out. We are now at 1/2 tsp 3 times a day with meals and he is doing

well, 4 months into supplements...with over 35 words (that we understand)

and attempts at conversations which are impossible to understand. Even the

words he knows how to say well alone or in a 2 word phrase get totally

garbled as the complexity of this sentense increase. But at least he is

trying. He is signing still with his attmepts at conversation so we can

usually figure out what he is trying to tell us.

We saw another big surge when I went to twice a day (as opposed to just

doubling the dose). Plus much better sessions with the SLP. Consider trying

this. You can always go back to the lower dose if you don't see a change -

but I bet you will. Let me know if you give this a try. -

[ ] Preliminary Results of ProEFA for Dylan

Hi,

I just wanted to post my son Dylan's (28 mo) results so far from the

ProEFA supplements. He has been on them for 2 weeks now (1/2 teaspoon

of liquid form). Most notably, we are seeing much more babbling from

him. We also notice much more immitation from a physical standpoint

(hand gestures, jumping, etc). He's doing better in therapy too. We

don't yet see many new words consistently being used or used without

prompting, but we're hoping that will come later.

Does this sound familiar to anyone who had successful results from the

ProEFA? I'm hoping these changes are a sign that Dylan will respond

well to the EFAs.

January 24, 2006

OK - ph is pedaling a tricycle!!!! Anyone out there with a globally

apraxic child knows how pedals are such a difficult concept. Very exciting!

This I attribute to our excellent new OT. -C

January 24, 2006

- thanks for the feedback. I'll definitely try the 2x/day

dose once I see a plateau. For now, I noticed that giving it to him

in the morning as opposed to nighttime was better.

We just had the session with our SLP and Dylan did great! I asked

her what she thought and she said " the best session by far! " . So

now I know that's it not just in my head that he's responding well

to the ProEFAs. He tried to say most everything she asked and did

it pretty well.

In two weeks I went from highly anxious to very hopeful and excited!

January 24, 2006

This reminds me if I may quote myself?? In The Late Talker you can

find my quote " It has gone from hopeless to hopeful in such a short

time " on page 114. The original quote was on a post to this group

many years ago. I am happy to say that my son talks & talks all the

time now. Sometimes I forget when he didn't utter a word!!!

Tammy I. in FL

to say most everything she asked and did

> it pretty well.>

> - thanks for the feedback. I'll definitely try the 2x/day

> dose once I see a plateau. For now, I noticed that giving it to

him

> in the morning as opposed to nighttime was better.

>

> We just had the session with our SLP and Dylan did great! I asked

> her what she thought and she said " the best session by far! " . So

> now I know that's it not just in my head that he's responding well

> to the ProEFAs. He tried

>

> In two weeks I went from highly anxious to very hopeful and excited!

>

January 24, 2006

We also heard ph attempt to repeat things said to him, after complete

silence for nearly 2 years (outside of occasional grunting for when he

wanted something, maaaaa, daaaa, and baaa (ball). We just updated his word

list for our SLP and he is nearly at 50 words, but will attempt to repeat

nearly everything now - sometimes its accurate and understandable, sometimes

its not. But he has not incorporated all these new repeated words into

conversations (yet). We didn't wait for the plateau since a few weeks

passed and he was making definite progress - but I wanted to see if we could

maximize benefits - so played around with dosing. This is not the

recommendation from the group, so you should know that. But we saw an

impressive surge with each increase (despite never getting to a plateau).

Glad to hear you are seeing improvements and hope it continues! -C

[ ] Re: Preliminary Results of ProEFA for

Dylan

- thanks for the feedback. I'll definitely try the 2x/day

dose once I see a plateau. For now, I noticed that giving it to him

in the morning as opposed to nighttime was better.

We just had the session with our SLP and Dylan did great! I asked

her what she thought and she said " the best session by far! " . So

now I know that's it not just in my head that he's responding well

to the ProEFAs. He tried to say most everything she asked and did

it pretty well.

In two weeks I went from highly anxious to very hopeful and excited!

January 25, 2006

,

WoooHooo to ph!!!!!

By the way, how old is ph?

Abby is 4.7, and just this week she has made some progress with her

tricyle. She needs some help getting going. And then she can peddle

for a VERY short distance, maybe half the width of a single car

driveway. BUT it's improvement non the less. I'm not sure if it's a

coordination issue (global apraxia, since she was never officially

dx'd with global apraxia) or if it's more of a hypotonia issue.

She also cannot use the foot presses/pedales at Build-A-Bear

workshops either. She can put her foot on it, but doesn't apply

enough pressure. I had to press my hand on her foot, to physically

show her, but unfortunately it didn't really work. However that was

about 9mths ago. (We are NOT going back anytime SOON, to try it again

though! LOL)

Anyway Congrats to ph again!

Dawn in NJ

>

> OK - ph is pedaling a tricycle!!!! Anyone out there with a

globally

> apraxic child knows how pedals are such a difficult concept. Very

exciting!

> This I attribute to our excellent new OT. -C

>

January 25, 2006

ph is nearly 2.5. He's not actually " moving " the tricyle himself - but

he's keeping his feet on the pedals while we push him - which is still

huge. -C