Meagan's back in the hospital

[Guest guest]

To add insult to injury, Meagan is once again in the hospital. Not only did

we receive the devastating news that her Cochlear Implant did not fire upon

initial stimulation this week, but we had to take her to the ER lastnight

for dehydration. Meagan came home from CI surgery Thursday afternoon. Friday

morning we took her to have her bandages removed; she was a little " urpy

/nauseous on the way to the doctor's office. We chalked it up to the pain

meds on a relatively empty stomach. Then the diarrhea started Thursday late

afternoon. We chalked that up to her antibiotic (it always blesses the poor

girl with the runs). Friday was a little more of the same. But, yesterday,

things took a turn for the worse...and fast. Long story short, Meagan was

looking a little dry to us, so lastnight we decided to put her back on her

pump to drip fluids into her belly all night long. I put her down at 10:30

(she was looking gaunt in the eyes and had a wimpy cry, but could still

fight like the dickens). A half an hour later, her pump alarmed. went

in and literally ran out sobbing. He said he actually thought she was dead.

I went and checked on her. She was lifeless, gaunt, dark around the eyes,

wouldn't close her mouth and couldn't see us; she would look past us. She

really looked as if death were hovering close by. and his dad made the

trip into the ER where nurses took her back immediately. Hooking her up to

an IV was a chore, but it was successful and they immediately hand-pushed in

200 cc's (almost 7 ounces) of fluid. They said there was no time to wait.

Then they allowed the IV to drip another 400 cc's (almost 13 ounces) in.

They did a ton of blood work, and so far it's just confirming her

dehydration (high sodium levels). She was admitted lastnight because

although she had been re hydrated, her diarrhea still persisted. They don't

want to stop the diarrhea incase she has something viral. That way it can

run it's course and be done. As this info was being relayed to me over the

phone at 2 am this morning, Meagan's twin began vomiting. This went on every

half an hour for what seemed like forever. She is still sick, but is now

down to about every hour and a half. Then, as I was sharing the news of

Meagan and over the phone with my mom at 7 this morning, began

to cry. He was apologizing to me for throwing up in my bed. He said he

couldn't run fast enough to get to the bathroom on time. My guess is that we

have a bug in the house....what do your think?!?

PS... Enjoy the attached photos of Meagan and her bandages. Her siblings had

a great time doing arts and crafts on their sister! I know it doesn't go

through to the CHARGE group...sorry!

, mommy to Meagan (CHaRgE) and 2 year old twins, and big brother

4 1/2 years, married to the best daddy in the world for 9 years!

[Guest guest]

Oh I hope she is feeling better soon, poor little thing! We had a bug

around here too but it didn't get too bad.

www.chargesyndrome.info

>

>

> To add insult to injury, Meagan is once again in the hospital. Not only

> did

> we receive the devastating news that her Cochlear Implant did not fire

> upon

> initial stimulation this week, but we had to take her to the ER lastnight

> for dehydration. Meagan came home from CI surgery Thursday afternoon.

> Friday

> morning we took her to have her bandages removed; she was a little " urpy

> /nauseous on the way to the doctor's office. We chalked it up to the pain

> meds on a relatively empty stomach. Then the diarrhea started Thursday

> late

> afternoon. We chalked that up to her antibiotic (it always blesses the

> poor

> girl with the runs). Friday was a little more of the same. But, yesterday,

> things took a turn for the worse...and fast. Long story short, Meagan was

> looking a little dry to us, so lastnight we decided to put her back on her

> pump to drip fluids into her belly all night long. I put her down at 10:30

> (she was looking gaunt in the eyes and had a wimpy cry, but could still

> fight like the dickens). A half an hour later, her pump alarmed.

> went

> in and literally ran out sobbing. He said he actually thought she was

> dead.

> I went and checked on her. She was lifeless, gaunt, dark around the eyes,

> wouldn't close her mouth and couldn't see us; she would look past us. She

> really looked as if death were hovering close by. and his dad made

> the

> trip into the ER where nurses took her back immediately. Hooking her up to

> an IV was a chore, but it was successful and they immediately hand-pushed

> in

> 200 cc's (almost 7 ounces) of fluid. They said there was no time to wait.

> Then they allowed the IV to drip another 400 cc's (almost 13 ounces) in.

> They did a ton of blood work, and so far it's just confirming her

> dehydration (high sodium levels). She was admitted lastnight because

> although she had been re hydrated, her diarrhea still persisted. They

> don't

> want to stop the diarrhea incase she has something viral. That way it can

> run it's course and be done. As this info was being relayed to me over the

> phone at 2 am this morning, Meagan's twin began vomiting. This went on

> every

> half an hour for what seemed like forever. She is still sick, but is now

> down to about every hour and a half. Then, as I was sharing the news of

> Meagan and over the phone with my mom at 7 this morning,

> began

> to cry. He was apologizing to me for throwing up in my bed. He said he

> couldn't run fast enough to get to the bathroom on time. My guess is that

> we

> have a bug in the house....what do your think?!?

>

> PS... Enjoy the attached photos of Meagan and her bandages. Her siblings

> had

> a great time doing arts and crafts on their sister! I know it doesn't go

> through to the CHARGE group...sorry!

>

>

> , mommy to Meagan (CHaRgE) and 2 year old twins, and big

> brother 4 1/2 years, married to the best daddy in the world for 9

> years!

>

>

[Guest guest]

OH my gosh!!

Your house sounds like a a gee, I don't even have a word for it!!

Hopefully, things will settle down and hopefully YOU will not get sick, too!

pam

Meagan's back in the hospital

To add insult to injury, Meagan is once again in the hospital. Not only did

we receive the devastating news that her Cochlear Implant did not fire upon

initial stimulation this week, but we had to take her to the ER lastnight

for dehydration. Meagan came home from CI surgery Thursday afternoon. Friday

morning we took her to have her bandages removed; she was a little " urpy

/nauseous on the way to the doctor's office. We chalked it up to the pain

meds on a relatively empty stomach. Then the diarrhea started Thursday late

afternoon. We chalked that up to her antibiotic (it always blesses the poor

girl with the runs). Friday was a little more of the same. But, yesterday,

things took a turn for the worse...and fast. Long story short, Meagan was

looking a little dry to us, so lastnight we decided to put her back on her

pump to drip fluids into her belly all night long. I put her down at 10:30

(she was looking gaunt in the eyes and had a wimpy cry, but could still

fight like the dickens). A half an hour later, her pump alarmed. went

in and literally ran out sobbing. He said he actually thought she was dead.

I went and checked on her. She was lifeless, gaunt, dark around the eyes,

wouldn't close her mouth and couldn't see us; she would look past us. She

really looked as if death were hovering close by. and his dad made the

trip into the ER where nurses took her back immediately. Hooking her up to

an IV was a chore, but it was successful and they immediately hand-pushed in

200 cc's (almost 7 ounces) of fluid. They said there was no time to wait.

Then they allowed the IV to drip another 400 cc's (almost 13 ounces) in.

They did a ton of blood work, and so far it's just confirming her

dehydration (high sodium levels). She was admitted lastnight because

although she had been re hydrated, her diarrhea still persisted. They don't

want to stop the diarrhea incase she has something viral. That way it can

run it's course and be done. As this info was being relayed to me over the

phone at 2 am this morning, Meagan's twin began vomiting. This went on every

half an hour for what seemed like forever. She is still sick, but is now

down to about every hour and a half. Then, as I was sharing the news of

Meagan and over the phone with my mom at 7 this morning, began

to cry. He was apologizing to me for throwing up in my bed. He said he

couldn't run fast enough to get to the bathroom on time. My guess is that we

have a bug in the house....what do your think?!?

PS... Enjoy the attached photos of Meagan and her bandages. Her siblings had

a great time doing arts and crafts on their sister! I know it doesn't go

through to the CHARGE group...sorry!

, mommy to Meagan (CHaRgE) and 2 year old twins, and big brother

4 1/2 years, married to the best daddy in the world for 9 years!

[Guest guest]

-

A bug, huh? That's one powerful little insect you guys have!! And what

timing the creature has coming just after surgery! I hope everyone gets

over it quickly. I suppose it's some relief to find the kids all coming

down with it - at least you don't have lots of questions about what happened

to Meagan. The trick is to get her delicate little body well. Sending

prayers for a speedy recovery to all - and hoping that this bug doesn't like

grown-ups so you and stay well to do all the caretaking.

Hugs-

Michele W

[Guest guest]

,

OMG I am so sorry, what a thing to go threw right before the

holidays. I hope everyone is feeling better soon and you and your

husband stay healthy.

Big hugs to all,

Crystal mom to (10), (3), and Eva (19 month old CHARGEr)

wife to Dan in Illinois

>

>

> To add insult to injury, Meagan is once again in the hospital. Not

only did

> we receive the devastating news that her Cochlear Implant did not

fire upon

> initial stimulation this week, but we had to take her to the ER

lastnight

> for dehydration. Meagan came home from CI surgery Thursday

afternoon. Friday

> morning we took her to have her bandages removed; she was a

little " urpy

> /nauseous on the way to the doctor's office. We chalked it up to

the pain

> meds on a relatively empty stomach. Then the diarrhea started

Thursday late

> afternoon. We chalked that up to her antibiotic (it always blesses

the poor

> girl with the runs). Friday was a little more of the same. But,

yesterday,

> things took a turn for the worse...and fast. Long story short,

Meagan was

> looking a little dry to us, so lastnight we decided to put her

back on her

> pump to drip fluids into her belly all night long. I put her down

at 10:30

> (she was looking gaunt in the eyes and had a wimpy cry, but could

still

> fight like the dickens). A half an hour later, her pump alarmed.

went

> in and literally ran out sobbing. He said he actually thought she

was dead.

> I went and checked on her. She was lifeless, gaunt, dark around

the eyes,

> wouldn't close her mouth and couldn't see us; she would look past

us. She

> really looked as if death were hovering close by. and his

dad made the

> trip into the ER where nurses took her back immediately. Hooking

her up to

> an IV was a chore, but it was successful and they immediately hand-

pushed in

> 200 cc's (almost 7 ounces) of fluid. They said there was no time

to wait.

> Then they allowed the IV to drip another 400 cc's (almost 13

ounces) in.

> They did a ton of blood work, and so far it's just confirming her

> dehydration (high sodium levels). She was admitted lastnight

because

> although she had been re hydrated, her diarrhea still persisted.

They don't

> want to stop the diarrhea incase she has something viral. That way

it can

> run it's course and be done. As this info was being relayed to me

over the

> phone at 2 am this morning, Meagan's twin began vomiting. This

went on every

> half an hour for what seemed like forever. She is still sick, but

is now

> down to about every hour and a half. Then, as I was sharing the

news of

> Meagan and over the phone with my mom at 7 this morning,

began

> to cry. He was apologizing to me for throwing up in my bed. He

said he

> couldn't run fast enough to get to the bathroom on time. My guess

is that we

> have a bug in the house....what do your think?!?

>

> PS... Enjoy the attached photos of Meagan and her bandages. Her

siblings had

> a great time doing arts and crafts on their sister! I know it

doesn't go

> through to the CHARGE group...sorry!

>

>

> , mommy to Meagan (CHaRgE) and 2 year old twins, and

big brother 4 1/2 years, married to the best daddy in the

world for 9 years!

>

>

[Guest guest]

wow hope shes better solon sounds like an abdo migrain to me but then y

would everyone else have it to hmmmmmmmmm

>

> ,

> OMG I am so sorry, what a thing to go threw right before the

> holidays. I hope everyone is feeling better soon and you and your

> husband stay healthy.

> Big hugs to all,

> Crystal mom to (10), (3), and Eva (19 month old CHARGEr)

> wife to Dan in Illinois

>

>

> >

> >

> > To add insult to injury, Meagan is once again in the hospital. Not

> only did

> > we receive the devastating news that her Cochlear Implant did not

> fire upon

> > initial stimulation this week, but we had to take her to the ER

> lastnight

> > for dehydration. Meagan came home from CI surgery Thursday

> afternoon. Friday

> > morning we took her to have her bandages removed; she was a

> little " urpy

> > /nauseous on the way to the doctor's office. We chalked it up to

> the pain

> > meds on a relatively empty stomach. Then the diarrhea started

> Thursday late

> > afternoon. We chalked that up to her antibiotic (it always blesses

> the poor

> > girl with the runs). Friday was a little more of the same. But,

> yesterday,

> > things took a turn for the worse...and fast. Long story short,

> Meagan was

> > looking a little dry to us, so lastnight we decided to put her

> back on her

> > pump to drip fluids into her belly all night long. I put her down

> at 10:30

> > (she was looking gaunt in the eyes and had a wimpy cry, but could

> still

> > fight like the dickens). A half an hour later, her pump alarmed.

> went

> > in and literally ran out sobbing. He said he actually thought she

> was dead.

> > I went and checked on her. She was lifeless, gaunt, dark around

> the eyes,

> > wouldn't close her mouth and couldn't see us; she would look past

> us. She

> > really looked as if death were hovering close by. and his

> dad made the

> > trip into the ER where nurses took her back immediately. Hooking

> her up to

> > an IV was a chore, but it was successful and they immediately hand-

> pushed in

> > 200 cc's (almost 7 ounces) of fluid. They said there was no time

> to wait.

> > Then they allowed the IV to drip another 400 cc's (almost 13

> ounces) in.

> > They did a ton of blood work, and so far it's just confirming her

> > dehydration (high sodium levels). She was admitted lastnight

> because

> > although she had been re hydrated, her diarrhea still persisted.

> They don't

> > want to stop the diarrhea incase she has something viral. That way

> it can

> > run it's course and be done. As this info was being relayed to me

> over the

> > phone at 2 am this morning, Meagan's twin began vomiting. This

> went on every

> > half an hour for what seemed like forever. She is still sick, but

> is now

> > down to about every hour and a half. Then, as I was sharing the

> news of

> > Meagan and over the phone with my mom at 7 this morning,

> began

> > to cry. He was apologizing to me for throwing up in my bed. He

> said he

> > couldn't run fast enough to get to the bathroom on time. My guess

> is that we

> > have a bug in the house....what do your think?!?

> >

> > PS... Enjoy the attached photos of Meagan and her bandages. Her

> siblings had

> > a great time doing arts and crafts on their sister! I know it

> doesn't go

> > through to the CHARGE group...sorry!

> >

> >

> > , mommy to Meagan (CHaRgE) and 2 year old twins, and

> big brother 4 1/2 years, married to the best daddy in the

> world for 9 years!

> >

> >

[Guest guest]

,

I truly know how you feel. Many, many years ago started the same

symptoms. It was ghastly - especially when the idiot er dr did various

tests and came up with wrong, wrong answers. She simply had a viral

infection which passed fairly quickly. Good luck to all of you and know that

my thoughts are with you. Martha

[Guest guest]

your having your fare share at the minute, poor little Meagan, I hope

thiings get back to normallity soon what ever that word means!!

hugs to you all Les x

> ,

> I truly know how you feel. Many, many years ago started the same

> symptoms. It was ghastly - especially when the idiot er dr did various

> tests and came up with wrong, wrong answers. She simply had a viral

> infection which passed fairly quickly. Good luck to all of you and know

> that

> my thoughts are with you. Martha

>

>

>

>

[Guest guest]

Thank you for everyone's kind responses. Sometimes letting it all out on

this group is just what the doctor ordered! Meagan is still in the PICU, and

we hope to get her home today. Her sodium levels were so high at the time of

admission, that she was on the verge of being 100% unresponsive. Because of

the high levels, they wanted her to come back down slowly. In fact,

yesterday they had to slow her down as the numbers began to drop too quickly

has been staying with her so I can stay here with the other two

sickies. The good news is that the bug has left the house! And all but a

queasy stomach (which could've been from all of my up close and personal

encounters with too many vomits!), I skated by without any harm! But, I want

to thank you all. What a great family I have in you!

, mommy to Meagan (CHaRgE) and 2 year old twins, and big brother

4 years, married to the best daddy in the world for 9 years!