Re: New to group and need advice-MsGeng

[Guest guest]

You wrote:

I don't believe apraxia as we know it today is curable 100% by any

> means we know of yet.

Those children that have not been " undiagnosed of apraxia " , have they

ever had OAT testing/amino acid testing done? I do understand as I

have read the archieves, that it is not discouraged, but by no means

encouraged either to have these children be seen by doctors that

understand what is going on with them metabolically.

I do know from colleagues that do look at these childrens testing do

say they are not outrageously abnormal, yet they are not " normal

tests either " . I do know that the majority of these tests would be

dismissed as " normal " . ALot of the kids have abnormal

dopamine./serotonin markers, extrememly low Gamma-aminobutyrate

levels some almost non existant levels/or abnormal glutamte to gamma-

aminobutyrate ratio. Gamma-aminobutyrate is essential for speech

production. They have wildy abnormal methylation dependant markers. I

am not speaking of autistic children now either. They also have

specific urea cycle derangements that are truly characteristic and

categorically will place them in a very mild grey area of

mitochondria dysfunction, yet none have diagnosis of mito disease.

They may have symptomology of McCardles for one example ,yet not have

the genetic mutations will have some markers yet still fall within

the normal range. This can be said of multiple mito type disease.

These are downstream effects without having the actual disease. There

are very few speacialists in this country that will acknowledge this

phenomena that is going on in todays children. Unfortunately, the

anecdotal information that is available is not getting to the public,

developmentally delayed children are NOT being treated medically

unless they are presenting with seizure and the like. So the data is

just not there for the regular local doctor to even investigate this.

But it is there, volumes of data of children with dx of all sorts,

from one camp to another that have lost their diagnosis, and no they

were not misdiagnosed being apraxic or autistic.

>

> I agree there are many overlaps today of apraxia and mild

> autism today in both diagnosis and issues such as digestive ones

> that even some " experts " mainly in the apraxia circle don't

> acknowledge...for example constipation. But where I disagree is

> I believe there 'are' clear differances. A child can have one/both

or something

> else. And in order to secure appropriate therapies you need to

know which.

>

> Quite frankly the diagnosis of autism has morphed so

> much in such a short time that I don't know what it means...and your

> emails make it even more confusing for me.

>

> The way we have separated autism from apraxia is social...and now

> you say that's not a divider either?

>

> The original children diagnosed years ago as having " childhood

> schizophrenia " previous to the diagnosis called autism which was

> what it was referred to back when -when they grew up were

> indistinguishable from adult schizophrenics. Of course all of those

> individuals diagnosed with childhood schizophrenia may have been

> schizophrenics -but the point is that is where autism had it's

> roots -not in children that presented normally but were " just " late

> talkers.

>

> " This is due to the fact that up until recently, very little has

> been known about individuals with autism, and they were lumped

> together into the category of mental retardation, or placed in

> institutions (from 1800-1938, it was referred to as childhood

> schizophrenia). "

> http://serendip.brynmawr.edu/biology/b103/f00/web1/obaray.html

>

> I've met many children with PDD or autism and to me it's clear it's

> different then apraxia. But I've also met children diagnosed as

> possible PDD/mild autism and to me some just present apraxic. In

> fact when those children are taken for second opinions -it's

learned that the child was

> misdiagnosed -hey...it happens....more than you want to know.

>

> And for those of us that watched the movie that originally put

> autism on the map for society -Rainman -that showed autism had

> nothing to do with a speech impairment at that point. Then again

> that presentation of autism was not typical since it showed autism

> together with Savant Syndrome.

>

> But here are some examples from that movie that stuck in our

> memories as what " autism " was then:

>

> " At a restaurant, a waitress (played by Bonnie Hunt) is slightly

> puzzled when says her name and home phone number. He had

> read and memorized up to the letter G — halfway through G — in the

> residential directory of a phone book the previous night. Charlie is

> able to convince the waitress that means well, and she seems

> slightly impressed. Later, the waitress drops a box of toothpicks,

> spilling its contents, prompting to instantly calculate the

> number of toothpicks on the floor (246). Charlie thinks his brother

> is wrong (since the box is a 250-count size), until the waitress

> says that four of the toothpicks remained in the box.

>

> constantly repeats the " Who's on First? " routine when

> Charlie is upset with him. This annoys Charlie, especially since

> does not understand the punchline and his repetition of it

> strips it of its comic meaning.

>

> shows echolalic tendencies when he does his impression of a

> line said by a D.J. all morning, much to Charlie's annoyance.

> At a small town (filmed in Guthrie, Oklahoma) intersection

> controlled by a stoplight, stops in the middle of a

> crosswalk after the " Don't Walk " light begins flashing, causing

> traffic to back up and angering motorists. Charlie frantically

> guides across the sidewalk as one of them approaches

> in a threatening manner.

>

> As they are traveling down a rural road, reminds Charlie

> that The People's Court is about to start. With no towns in sight,

> Charlie is forced to ask a local resident to allow his brother to

> watch TV. He poses as a representative from a television ratings

> survey firm, but the cover is blown as a very anxious begins

> peeking in the windows and worrying that he'll miss " Judge Wapner, "

> forcing Charlie to explain the situation. The woman reluctantly

> relents and allows the brothers inside.

>

> Stopping at a motel for the night, Charlie hears muttering

> the phrase " funny rain man. " Charlie realizes that, as a toddler, he

> tried to say '' but it came out 'Rain Man,' to which he

> responds, " You're the Rain Man? " produces a photo of two-

> year-old Charlie and thirteen-year-old , revealing that he

> was Charlie's supposedly imaginary friend. As Charlie draws water

> for a bath, has a panic attack, screaming, " Hot water burn

> baby, " suggesting that almost burned his infant brother in

> scalding water, and this is why he was sent to the Walbrook

> Institution, although it was more likely that the father found

> himself unable to look after following the death of the

> mother ( mentioned that he was sent to Walbrook a few days

> after his mother's death). "

> http://en.wikipedia.org/wiki/Rain_Man

>

> If you are saying you have a child with autism that is social and

> affectionate and is (was?) apraxic but is now cured ...do you accept

> the possibility that your child was misdiagnosed as both autistic

> and apraxic?

>

> I don't believe apraxia as we know it today is curable 100% by any

> means we know of yet. I'm sure your child is speaking fine now, but

> why wasn't he before? Could be many reasons outside of apraxia.

>

> Simple speech delays resolve for example even without therapy.

>

> We know what the autism definition is for medical professionals from

> years ago to how it's morphed since. Here's one history brief:

> http://www.autism-resources.com/autismfaq-hist.html

>

> What to you is the definition of autism? And what percentage of the

> population fits the criteria of autistic based on your definition?

> (estimate)

>

> =====

>

[Guest guest]

I have below one archive about Suzanne you may have read -but

yes in our original Jersey area support group about 1/2 tried lipid

testing and biomedical approaches either before or after trying the

EFAs.

The way I still see apraxia present today in my son Tanner is that

he talks in a way that is motor comfortable for him and that makes

him sound immature for his age, and not bright -like he is.

Tanner's receptive and cognitive ability in both clinical testing

and in the classroom in written tests, in some areas such as

creative writing and math are way above average. He reads better

than he talks. He is able to blend...and some may not know there is

an impairment there -but the discrimination presents in ways that I

posted such as his one teacher's comment (in front of Tanner) last

year in 3rd grade

" No matter how much time I give Tanner to answer a question when he

raises his hand, it's not clear he understands the work. The only

reason we know he understands it is because he tests so well " As a

parent I should not be faced with such hurtful ignorance from an

educational professional. Thank goodness that Tanner continued to

raise his hand to answer questions...that his belief in himself is

still high...but that's probably because I talked to Tanner, his

teachers -spent around a thousand dollars on private testing from

various professionals. If Tanner was deaf I wouldn't have had to do

this. So to be more direct -some may say Tanner himself is " cured "

of apraxia...I see the impairment present in a more sophisticated

way -and I see that Tanner has learned how to overcome it most of

the time. Get your child in a mainstream science and social studies

class if they are apraxic and have them answer questions using the

sophisticated words...and you let me know if he blends then.

Problem changes -but tired or stressed or put into a situation with

complex and sophisticated thoughts that need to be

communicated...and that's where you'll see apraxia pop up again. As

Earl once said about his stuttering... " Once a stutterer,

always a stutterer " Yet most people don't know he and many others

are stutterers.

Read this list and be amazed who is on it

http://www.stutteringhelp.org/Default.aspx?tabid=128

Stuttering some may not know, like apraxia, is a motor planning

impairment of speech.

And as far as a child having as you say a " very loving nature....very

interested in playing with other children...not withdrawn socially

(though he doesn't always interact appropriately). And he also has

ASD. " That fits many in our society that most don't view as

autistic. My friend Debbie 'and' her husband Kenny for just

two...the cast of Curb Your Enthusiasm (they try to be loving)

http://www.dvdtalk.com/reviews/review.php?ID=22977

You are correct in that today's communication impaired child no

matter what you call it typically presents with a multifacted

diagnosis and best responds to a multifaceted approach. Today's

child diagnosed with autism (not severe -mild to moderate) typically

does have an underlying and at times undiagnosed speech impairment

and apraxia is being diagnosed more and more in today's autistic

child. Why? (well apraxia is being diagnosed more and more in

children in general too come to think of it and in families with no

prior genetic predisposition towards speech impairments)

As one here wisely said -perhaps it isn't apraxia 'or' autism...

but something new?

About biomedical approaches to apraxia -below is the archive I spoke

about above:

~~~~~~~~~~~start of archive

As I posted once -I was standing next to Suzanne Smolyar who went

the blood analysis route for her 5 year old daughter 'after'

the ProEFA worked for her. Suzanne was talking to Dr. AJ

about her daughter's blood analysis results. I said excuse me to

both and asked " Dr. , if it was your child who is a child

like those of ours in this group with a speech impairment or ADHD or

whatever -and not for research, would you do blood analysis before

you supplemented with fish oil...or...would you just supplement your

child with the fish oils? " She (again) made a face like " you're

kidding, right? " squinting her eyes a bit with a smile and said " I'd

just give him the fish oils. "

Here's just one of many articles about the most recent study on EFAs

that Dr. AJ who spoke at the First Apraxia Conference was

behind

Can fish oil supplements really boost your brain power? Get the

lowdown:

http://www.gm.tv/index.cfm?articleid=14487

And...here's just one archive below as to why I'm not a huge

believer in blood analysis. It obviously has some major flaws due

to the blood brain barrier.

This story again was based on a time when we all knew each other in

person as a large group from mainly 1999 to 2003. When people post

here you don't know what's the reality for the group -you do when

you all know each other in person as a group.

~~~~~~~~~~~start of archive

Unless we understand what is going on in our children and can make

sure there is proper diagnosis/therapies for each -which we don't -

and we understand what all the many various supplements are doing to

help or not help, I'm not a huge believer of blood analysis for

neurological conditions. This is why I choose to stick to those

therapies/treatments/supplements I know are benign. I will add to

that -unless there are medical reasons.

My reasons on the blood analysis stem from EFAs due to another

scientist/mathematician/mom in our group -former CHERAB VP Suzanne

Smolyar who is now attending medical school to study EFAs due to her

daughter 's amazing reactions on EFAs.

" From: Suzanne Smolyar

Date: Wed Mar 21, 2001 2:36 pm

Subject: RE: [ ] progress

Hi Gloria,

I wanted to say that I know exactly how you feel. Last night at the

table, 's brother (Ari 6.8) began to speak while was

trying to say something, so she looked at Ari and said in a loud and

affirmative tone " Shut up Ari, Shut up " . We were so excited and

overjoyed at her using that phrase - we forgot to explain to her

that it was inappropriate to use at the table and to her family

members. We just thought it was golden -just like you did.

Here is some background from one of my previous posts that will tell

you why this is so exciting .

" I am a mother of a beautiful 5-year-old girl, . Since the

time she was about 11 mo old - I had a feeling that something was

wrong with fine motor, gross motor and of course speech. Through

the past 4 years, I have gone to numerous neurologists, best in the

field, I must add. We have gone non-stop to therapy with ,

but the progress was painfully slow. did not speak- making

it nearly impossible for us to communicate with her. Everyday at

night I would kiss , and standing over her head I would

say, " please start talking tomorrow " - subliminal messages - hoping

they'd work.

To no avail, my child was just not talking. Therapy helped, but

progress was limited. I don't want to continue with this sob-story,

as you probably all understand the fear and frustration in parents

and the child as well.

After becoming involved with

[Guest guest]

You wrote:

I don't believe apraxia as we know it today is curable 100% by any

> means we know of yet.

Those children that have not been " undiagnosed of apraxia " , have they

ever had OAT testing/amino acid testing done? I do understand as I

have read the archieves, that it is not discouraged, but by no means

encouraged either to have these children be seen by doctors that

understand what is going on with them metabolically.

I do know from colleagues that do look at these childrens testing do

say they are not outrageously abnormal, yet they are not " normal

tests either " . I do know that the majority of these tests would be

dismissed as " normal " . ALot of the kids have abnormal

dopamine./serotonin markers, extrememly low Gamma-aminobutyrate

levels some almost non existant levels/or abnormal glutamte to gamma-

aminobutyrate ratio. Gamma-aminobutyrate is essential for speech

production. They have wildy abnormal methylation dependant markers. I

am not speaking of autistic children now either. They also have

specific urea cycle derangements that are truly characteristic and

categorically will place them in a very mild grey area of

mitochondria dysfunction, yet none have diagnosis of mito disease.

They may have symptomology of McCardles for one example ,yet not have

the genetic mutations will have some markers yet still fall within

the normal range. This can be said of multiple mito type disease.

These are downstream effects without having the actual disease. There

are very few speacialists in this country that will acknowledge this

phenomena that is going on in todays children. Unfortunately, the

anecdotal information that is available is not getting to the public,

developmentally delayed children are NOT being treated medically

unless they are presenting with seizure and the like. So the data is

just not there for the regular local doctor to even investigate this.

But it is there, volumes of data of children with dx of all sorts,

from one camp to another that have lost their diagnosis, and no they

were not misdiagnosed being apraxic or autistic.

>

> I agree there are many overlaps today of apraxia and mild

> autism today in both diagnosis and issues such as digestive ones

> that even some " experts " mainly in the apraxia circle don't

> acknowledge...for example constipation. But where I disagree is

> I believe there 'are' clear differances. A child can have one/both

or something

> else. And in order to secure appropriate therapies you need to

know which.

>

> Quite frankly the diagnosis of autism has morphed so

> much in such a short time that I don't know what it means...and your

> emails make it even more confusing for me.

>

> The way we have separated autism from apraxia is social...and now

> you say that's not a divider either?

>

> The original children diagnosed years ago as having " childhood

> schizophrenia " previous to the diagnosis called autism which was

> what it was referred to back when -when they grew up were

> indistinguishable from adult schizophrenics. Of course all of those

> individuals diagnosed with childhood schizophrenia may have been

> schizophrenics -but the point is that is where autism had it's

> roots -not in children that presented normally but were " just " late

> talkers.

>

> " This is due to the fact that up until recently, very little has

> been known about individuals with autism, and they were lumped

> together into the category of mental retardation, or placed in

> institutions (from 1800-1938, it was referred to as childhood

> schizophrenia). "

> http://serendip.brynmawr.edu/biology/b103/f00/web1/obaray.html

>

> I've met many children with PDD or autism and to me it's clear it's

> different then apraxia. But I've also met children diagnosed as

> possible PDD/mild autism and to me some just present apraxic. In

> fact when those children are taken for second opinions -it's

learned that the child was

> misdiagnosed -hey...it happens....more than you want to know.

>

> And for those of us that watched the movie that originally put

> autism on the map for society -Rainman -that showed autism had

> nothing to do with a speech impairment at that point. Then again

> that presentation of autism was not typical since it showed autism

> together with Savant Syndrome.

>

> But here are some examples from that movie that stuck in our

> memories as what " autism " was then:

>

> " At a restaurant, a waitress (played by Bonnie Hunt) is slightly

> puzzled when says her name and home phone number. He had

> read and memorized up to the letter G — halfway through G — in the

> residential directory of a phone book the previous night. Charlie is

> able to convince the waitress that means well, and she seems

> slightly impressed. Later, the waitress drops a box of toothpicks,

> spilling its contents, prompting to instantly calculate the

> number of toothpicks on the floor (246). Charlie thinks his brother

> is wrong (since the box is a 250-count size), until the waitress

> says that four of the toothpicks remained in the box.

>

> constantly repeats the " Who's on First? " routine when

> Charlie is upset with him. This annoys Charlie, especially since

> does not understand the punchline and his repetition of it

> strips it of its comic meaning.

>

> shows echolalic tendencies when he does his impression of a

> line said by a D.J. all morning, much to Charlie's annoyance.

> At a small town (filmed in Guthrie, Oklahoma) intersection

> controlled by a stoplight, stops in the middle of a

> crosswalk after the " Don't Walk " light begins flashing, causing

> traffic to back up and angering motorists. Charlie frantically

> guides across the sidewalk as one of them approaches

> in a threatening manner.

>

> As they are traveling down a rural road, reminds Charlie

> that The People's Court is about to start. With no towns in sight,

> Charlie is forced to ask a local resident to allow his brother to

> watch TV. He poses as a representative from a television ratings

> survey firm, but the cover is blown as a very anxious begins

> peeking in the windows and worrying that he'll miss " Judge Wapner, "

> forcing Charlie to explain the situation. The woman reluctantly

> relents and allows the brothers inside.

>

> Stopping at a motel for the night, Charlie hears muttering

> the phrase " funny rain man. " Charlie realizes that, as a toddler, he

> tried to say '' but it came out 'Rain Man,' to which he

> responds, " You're the Rain Man? " produces a photo of two-

> year-old Charlie and thirteen-year-old , revealing that he

> was Charlie's supposedly imaginary friend. As Charlie draws water

> for a bath, has a panic attack, screaming, " Hot water burn

> baby, " suggesting that almost burned his infant brother in

> scalding water, and this is why he was sent to the Walbrook

> Institution, although it was more likely that the father found

> himself unable to look after following the death of the

> mother ( mentioned that he was sent to Walbrook a few days

> after his mother's death). "

> http://en.wikipedia.org/wiki/Rain_Man

>

> If you are saying you have a child with autism that is social and

> affectionate and is (was?) apraxic but is now cured ...do you accept

> the possibility that your child was misdiagnosed as both autistic

> and apraxic?

>

> I don't believe apraxia as we know it today is curable 100% by any

> means we know of yet. I'm sure your child is speaking fine now, but

> why wasn't he before? Could be many reasons outside of apraxia.

>

> Simple speech delays resolve for example even without therapy.

>

> We know what the autism definition is for medical professionals from

> years ago to how it's morphed since. Here's one history brief:

> http://www.autism-resources.com/autismfaq-hist.html

>

> What to you is the definition of autism? And what percentage of the

> population fits the criteria of autistic based on your definition?

> (estimate)

>

> =====

>

[Guest guest]

I have below one archive about Suzanne you may have read -but

yes in our original Jersey area support group about 1/2 tried lipid

testing and biomedical approaches either before or after trying the

EFAs.

The way I still see apraxia present today in my son Tanner is that

he talks in a way that is motor comfortable for him and that makes

him sound immature for his age, and not bright -like he is.

Tanner's receptive and cognitive ability in both clinical testing

and in the classroom in written tests, in some areas such as

creative writing and math are way above average. He reads better

than he talks. He is able to blend...and some may not know there is

an impairment there -but the discrimination presents in ways that I

posted such as his one teacher's comment (in front of Tanner) last

year in 3rd grade

" No matter how much time I give Tanner to answer a question when he

raises his hand, it's not clear he understands the work. The only

reason we know he understands it is because he tests so well " As a

parent I should not be faced with such hurtful ignorance from an

educational professional. Thank goodness that Tanner continued to

raise his hand to answer questions...that his belief in himself is

still high...but that's probably because I talked to Tanner, his

teachers -spent around a thousand dollars on private testing from

various professionals. If Tanner was deaf I wouldn't have had to do

this. So to be more direct -some may say Tanner himself is " cured "

of apraxia...I see the impairment present in a more sophisticated

way -and I see that Tanner has learned how to overcome it most of

the time. Get your child in a mainstream science and social studies

class if they are apraxic and have them answer questions using the

sophisticated words...and you let me know if he blends then.

Problem changes -but tired or stressed or put into a situation with

complex and sophisticated thoughts that need to be

communicated...and that's where you'll see apraxia pop up again. As

Earl once said about his stuttering... " Once a stutterer,

always a stutterer " Yet most people don't know he and many others

are stutterers.

Read this list and be amazed who is on it

http://www.stutteringhelp.org/Default.aspx?tabid=128

Stuttering some may not know, like apraxia, is a motor planning

impairment of speech.

And as far as a child having as you say a " very loving nature....very

interested in playing with other children...not withdrawn socially

(though he doesn't always interact appropriately). And he also has

ASD. " That fits many in our society that most don't view as

autistic. My friend Debbie 'and' her husband Kenny for just

two...the cast of Curb Your Enthusiasm (they try to be loving)

http://www.dvdtalk.com/reviews/review.php?ID=22977

You are correct in that today's communication impaired child no

matter what you call it typically presents with a multifacted

diagnosis and best responds to a multifaceted approach. Today's

child diagnosed with autism (not severe -mild to moderate) typically

does have an underlying and at times undiagnosed speech impairment

and apraxia is being diagnosed more and more in today's autistic

child. Why? (well apraxia is being diagnosed more and more in

children in general too come to think of it and in families with no

prior genetic predisposition towards speech impairments)

As one here wisely said -perhaps it isn't apraxia 'or' autism...

but something new?

About biomedical approaches to apraxia -below is the archive I spoke

about above:

~~~~~~~~~~~start of archive

As I posted once -I was standing next to Suzanne Smolyar who went

the blood analysis route for her 5 year old daughter 'after'

the ProEFA worked for her. Suzanne was talking to Dr. AJ

about her daughter's blood analysis results. I said excuse me to

both and asked " Dr. , if it was your child who is a child

like those of ours in this group with a speech impairment or ADHD or

whatever -and not for research, would you do blood analysis before

you supplemented with fish oil...or...would you just supplement your

child with the fish oils? " She (again) made a face like " you're

kidding, right? " squinting her eyes a bit with a smile and said " I'd

just give him the fish oils. "

Here's just one of many articles about the most recent study on EFAs

that Dr. AJ who spoke at the First Apraxia Conference was

behind

Can fish oil supplements really boost your brain power? Get the

lowdown:

http://www.gm.tv/index.cfm?articleid=14487

And...here's just one archive below as to why I'm not a huge

believer in blood analysis. It obviously has some major flaws due

to the blood brain barrier.

This story again was based on a time when we all knew each other in

person as a large group from mainly 1999 to 2003. When people post

here you don't know what's the reality for the group -you do when

you all know each other in person as a group.

~~~~~~~~~~~start of archive

Unless we understand what is going on in our children and can make

sure there is proper diagnosis/therapies for each -which we don't -

and we understand what all the many various supplements are doing to

help or not help, I'm not a huge believer of blood analysis for

neurological conditions. This is why I choose to stick to those

therapies/treatments/supplements I know are benign. I will add to

that -unless there are medical reasons.

My reasons on the blood analysis stem from EFAs due to another

scientist/mathematician/mom in our group -former CHERAB VP Suzanne

Smolyar who is now attending medical school to study EFAs due to her

daughter 's amazing reactions on EFAs.

" From: Suzanne Smolyar

Date: Wed Mar 21, 2001 2:36 pm

Subject: RE: [ ] progress

Hi Gloria,

I wanted to say that I know exactly how you feel. Last night at the

table, 's brother (Ari 6.8) began to speak while was

trying to say something, so she looked at Ari and said in a loud and

affirmative tone " Shut up Ari, Shut up " . We were so excited and

overjoyed at her using that phrase - we forgot to explain to her

that it was inappropriate to use at the table and to her family

members. We just thought it was golden -just like you did.

Here is some background from one of my previous posts that will tell

you why this is so exciting .

" I am a mother of a beautiful 5-year-old girl, . Since the

time she was about 11 mo old - I had a feeling that something was

wrong with fine motor, gross motor and of course speech. Through

the past 4 years, I have gone to numerous neurologists, best in the

field, I must add. We have gone non-stop to therapy with ,

but the progress was painfully slow. did not speak- making

it nearly impossible for us to communicate with her. Everyday at

night I would kiss , and standing over her head I would

say, " please start talking tomorrow " - subliminal messages - hoping

they'd work.

To no avail, my child was just not talking. Therapy helped, but

progress was limited. I don't want to continue with this sob-story,

as you probably all understand the fear and frustration in parents

and the child as well.

After becoming involved with

[Guest guest]

I notice the date of the archieve is 2001 in regards to the blood

testing etc., and apraxia.

The phenominal amount of information that has emerged since 2001 in

regards to these children in regards to the abnormalities in their

blood is astounding. If this area has not been investigated since

that time, and that is the last of looking into this area of

possiblities. These children will not benefit from what is being

found. I am talking serious benefits from this.

Like I said, your local doctor WILL NOT KNOW what to test for, will

not know what the results mean.

Remember this, the body wants to be well, and sometimes it will shunt

or slow down metabolic pathways for a specific reason to help repair

itself.

>

> I have below one archive about Suzanne you may have read -but

> yes in our original Jersey area support group about 1/2 tried lipid

> testing and biomedical approaches either before or after trying the

> EFAs.

>

> The way I still see apraxia present today in my son Tanner is that

> he talks in a way that is motor comfortable for him and that makes

> him sound immature for his age, and not bright -like he is.

> Tanner's receptive and cognitive ability in both clinical testing

> and in the classroom in written tests, in some areas such as

> creative writing and math are way above average. He reads better

> than he talks. He is able to blend...and some may not know there is

> an impairment there -but the discrimination presents in ways that I

> posted such as his one teacher's comment (in front of Tanner) last

> year in 3rd grade

>

> " No matter how much time I give Tanner to answer a question when he

> raises his hand, it's not clear he understands the work. The only

> reason we know he understands it is because he tests so well " As a

> parent I should not be faced with such hurtful ignorance from an

> educational professional. Thank goodness that Tanner continued to

> raise his hand to answer questions...that his belief in himself is

> still high...but that's probably because I talked to Tanner, his

> teachers -spent around a thousand dollars on private testing from

> various professionals. If Tanner was deaf I wouldn't have had to do

> this. So to be more direct -some may say Tanner himself is " cured "

> of apraxia...I see the impairment present in a more sophisticated

> way -and I see that Tanner has learned how to overcome it most of

> the time. Get your child in a mainstream science and social studies

> class if they are apraxic and have them answer questions using the

> sophisticated words...and you let me know if he blends then.

> Problem changes -but tired or stressed or put into a situation with

> complex and sophisticated thoughts that need to be

> communicated...and that's where you'll see apraxia pop up again. As

> Earl once said about his stuttering... " Once a stutterer,

> always a stutterer " Yet most people don't know he and many others

> are stutterers.

>

> Read this list and be amazed who is on it

> http://www.stutteringhelp.org/Default.aspx?tabid=128

> Stuttering some may not know, like apraxia, is a motor planning

> impairment of speech.

>

> And as far as a child having as you say a " very loving

nature....very

> interested in playing with other children...not withdrawn socially

> (though he doesn't always interact appropriately). And he also has

> ASD. " That fits many in our society that most don't view as

> autistic. My friend Debbie 'and' her husband Kenny for just

> two...the cast of Curb Your Enthusiasm (they try to be loving)

> http://www.dvdtalk.com/reviews/review.php?ID=22977

>

> You are correct in that today's communication impaired child no

> matter what you call it typically presents with a multifacted

> diagnosis and best responds to a multifaceted approach. Today's

> child diagnosed with autism (not severe -mild to moderate) typically

> does have an underlying and at times undiagnosed speech impairment

> and apraxia is being diagnosed more and more in today's autistic

> child. Why? (well apraxia is being diagnosed more and more in

> children in general too come to think of it and in families with no

> prior genetic predisposition towards speech impairments)

>

> As one here wisely said -perhaps it isn't apraxia 'or' autism...

> but something new?

>

> About biomedical approaches to apraxia -below is the archive I spoke

> about above:

>

> ~~~~~~~~~~~start of archive

>

>

> As I posted once -I was standing next to Suzanne Smolyar who went

> the blood analysis route for her 5 year old daughter 'after'

> the ProEFA worked for her. Suzanne was talking to Dr. AJ

> about her daughter's blood analysis results. I said excuse me to

> both and asked " Dr. , if it was your child who is a child

> like those of ours in this group with a speech impairment or ADHD or

> whatever -and not for research, would you do blood analysis before

> you supplemented with fish oil...or...would you just supplement your

> child with the fish oils? " She (again) made a face like " you're

> kidding, right? " squinting her eyes a bit with a smile and said " I'd

> just give him the fish oils. "

>

> Here's just one of many articles about the most recent study on EFAs

> that Dr. AJ who spoke at the First Apraxia Conference was

> behind

>

> Can fish oil supplements really boost your brain power? Get the

> lowdown:

> http://www.gm.tv/index.cfm?articleid=14487

>

> And...here's just one archive below as to why I'm not a huge

> believer in blood analysis. It obviously has some major flaws due

> to the blood brain barrier.

>

> This story again was based on a time when we all knew each other in

> person as a large group from mainly 1999 to 2003. When people post

> here you don't know what's the reality for the group -you do when

> you all know each other in person as a group.

>

> ~~~~~~~~~~~start of archive

>

> Unless we understand what is going on in our children and can make

> sure there is proper diagnosis/therapies for each -which we don't -

> and we understand what all the many various supplements are doing to

> help or not help, I'm not a huge believer of blood analysis for

> neurological conditions. This is why I choose to stick to those

> therapies/treatments/supplements I know are benign. I will add to

> that -unless there are medical reasons.

>

> My reasons on the blood analysis stem from EFAs due to another

> scientist/mathematician/mom in our group -former CHERAB VP Suzanne

> Smolyar who is now attending medical school to study EFAs due to her

> daughter 's amazing reactions on EFAs.

>

> " From: Suzanne Smolyar

> Date: Wed Mar 21, 2001 2:36 pm

> Subject: RE: [ ] progress

>

>

> Hi Gloria,

>

> I wanted to say that I know exactly how you feel. Last night at the

> table, 's brother (Ari 6.8) began to speak while was

> trying to say something, so she looked at Ari and said in a loud and

> affirmative tone " Shut up Ari, Shut up " . We were so excited and

> overjoyed at her using that phrase - we forgot to explain to her

> that it was inappropriate to use at the table and to her family

> members. We just thought it was golden -just like you did.

>

> Here is some background from one of my previous posts that will tell

> you why this is so exciting .

>

> " I am a mother of a beautiful 5-year-old girl, . Since the

> time she was about 11 mo old - I had a feeling that something was

> wrong with fine motor, gross motor and of course speech. Through

> the past 4 years, I have gone to numerous neurologists, best in the

> field, I must add. We have gone non-stop to therapy with ,

> but the progress was painfully slow. did not speak- making

> it nearly impossible for us to communicate with her. Everyday at

> night I would kiss , and standing over her head I would

> say, " please start talking tomorrow " - subliminal messages - hoping

> they'd work.

>

> To no avail, my child was just not talking. Therapy helped, but

> progress was limited. I don't want to continue with this sob-story,

> as you probably all understand the fear and frustration in parents

> and the child as well.

>

> After becoming involved with

[Guest guest]

I notice the date of the archieve is 2001 in regards to the blood

testing etc., and apraxia.

The phenominal amount of information that has emerged since 2001 in

regards to these children in regards to the abnormalities in their

blood is astounding. If this area has not been investigated since

that time, and that is the last of looking into this area of

possiblities. These children will not benefit from what is being

found. I am talking serious benefits from this.

Like I said, your local doctor WILL NOT KNOW what to test for, will

not know what the results mean.

Remember this, the body wants to be well, and sometimes it will shunt

or slow down metabolic pathways for a specific reason to help repair

itself.

>

> I have below one archive about Suzanne you may have read -but

> yes in our original Jersey area support group about 1/2 tried lipid

> testing and biomedical approaches either before or after trying the

> EFAs.

>

> The way I still see apraxia present today in my son Tanner is that

> he talks in a way that is motor comfortable for him and that makes

> him sound immature for his age, and not bright -like he is.

> Tanner's receptive and cognitive ability in both clinical testing

> and in the classroom in written tests, in some areas such as

> creative writing and math are way above average. He reads better

> than he talks. He is able to blend...and some may not know there is

> an impairment there -but the discrimination presents in ways that I

> posted such as his one teacher's comment (in front of Tanner) last

> year in 3rd grade

>

> " No matter how much time I give Tanner to answer a question when he

> raises his hand, it's not clear he understands the work. The only

> reason we know he understands it is because he tests so well " As a

> parent I should not be faced with such hurtful ignorance from an

> educational professional. Thank goodness that Tanner continued to

> raise his hand to answer questions...that his belief in himself is

> still high...but that's probably because I talked to Tanner, his

> teachers -spent around a thousand dollars on private testing from

> various professionals. If Tanner was deaf I wouldn't have had to do

> this. So to be more direct -some may say Tanner himself is " cured "

> of apraxia...I see the impairment present in a more sophisticated

> way -and I see that Tanner has learned how to overcome it most of

> the time. Get your child in a mainstream science and social studies

> class if they are apraxic and have them answer questions using the

> sophisticated words...and you let me know if he blends then.

> Problem changes -but tired or stressed or put into a situation with

> complex and sophisticated thoughts that need to be

> communicated...and that's where you'll see apraxia pop up again. As

> Earl once said about his stuttering... " Once a stutterer,

> always a stutterer " Yet most people don't know he and many others

> are stutterers.

>

> Read this list and be amazed who is on it

> http://www.stutteringhelp.org/Default.aspx?tabid=128

> Stuttering some may not know, like apraxia, is a motor planning

> impairment of speech.

>

> And as far as a child having as you say a " very loving

nature....very

> interested in playing with other children...not withdrawn socially

> (though he doesn't always interact appropriately). And he also has

> ASD. " That fits many in our society that most don't view as

> autistic. My friend Debbie 'and' her husband Kenny for just

> two...the cast of Curb Your Enthusiasm (they try to be loving)

> http://www.dvdtalk.com/reviews/review.php?ID=22977

>

> You are correct in that today's communication impaired child no

> matter what you call it typically presents with a multifacted

> diagnosis and best responds to a multifaceted approach. Today's

> child diagnosed with autism (not severe -mild to moderate) typically

> does have an underlying and at times undiagnosed speech impairment

> and apraxia is being diagnosed more and more in today's autistic

> child. Why? (well apraxia is being diagnosed more and more in

> children in general too come to think of it and in families with no

> prior genetic predisposition towards speech impairments)

>

> As one here wisely said -perhaps it isn't apraxia 'or' autism...

> but something new?

>

> About biomedical approaches to apraxia -below is the archive I spoke

> about above:

>

> ~~~~~~~~~~~start of archive

>

>

> As I posted once -I was standing next to Suzanne Smolyar who went

> the blood analysis route for her 5 year old daughter 'after'

> the ProEFA worked for her. Suzanne was talking to Dr. AJ

> about her daughter's blood analysis results. I said excuse me to

> both and asked " Dr. , if it was your child who is a child

> like those of ours in this group with a speech impairment or ADHD or

> whatever -and not for research, would you do blood analysis before

> you supplemented with fish oil...or...would you just supplement your

> child with the fish oils? " She (again) made a face like " you're

> kidding, right? " squinting her eyes a bit with a smile and said " I'd

> just give him the fish oils. "

>

> Here's just one of many articles about the most recent study on EFAs

> that Dr. AJ who spoke at the First Apraxia Conference was

> behind

>

> Can fish oil supplements really boost your brain power? Get the

> lowdown:

> http://www.gm.tv/index.cfm?articleid=14487

>

> And...here's just one archive below as to why I'm not a huge

> believer in blood analysis. It obviously has some major flaws due

> to the blood brain barrier.

>

> This story again was based on a time when we all knew each other in

> person as a large group from mainly 1999 to 2003. When people post

> here you don't know what's the reality for the group -you do when

> you all know each other in person as a group.

>

> ~~~~~~~~~~~start of archive

>

> Unless we understand what is going on in our children and can make

> sure there is proper diagnosis/therapies for each -which we don't -

> and we understand what all the many various supplements are doing to

> help or not help, I'm not a huge believer of blood analysis for

> neurological conditions. This is why I choose to stick to those

> therapies/treatments/supplements I know are benign. I will add to

> that -unless there are medical reasons.

>

> My reasons on the blood analysis stem from EFAs due to another

> scientist/mathematician/mom in our group -former CHERAB VP Suzanne

> Smolyar who is now attending medical school to study EFAs due to her

> daughter 's amazing reactions on EFAs.

>

> " From: Suzanne Smolyar

> Date: Wed Mar 21, 2001 2:36 pm

> Subject: RE: [ ] progress

>

>

> Hi Gloria,

>

> I wanted to say that I know exactly how you feel. Last night at the

> table, 's brother (Ari 6.8) began to speak while was

> trying to say something, so she looked at Ari and said in a loud and

> affirmative tone " Shut up Ari, Shut up " . We were so excited and

> overjoyed at her using that phrase - we forgot to explain to her

> that it was inappropriate to use at the table and to her family

> members. We just thought it was golden -just like you did.

>

> Here is some background from one of my previous posts that will tell

> you why this is so exciting .

>

> " I am a mother of a beautiful 5-year-old girl, . Since the

> time she was about 11 mo old - I had a feeling that something was

> wrong with fine motor, gross motor and of course speech. Through

> the past 4 years, I have gone to numerous neurologists, best in the

> field, I must add. We have gone non-stop to therapy with ,

> but the progress was painfully slow. did not speak- making

> it nearly impossible for us to communicate with her. Everyday at

> night I would kiss , and standing over her head I would

> say, " please start talking tomorrow " - subliminal messages - hoping

> they'd work.

>

> To no avail, my child was just not talking. Therapy helped, but

> progress was limited. I don't want to continue with this sob-story,

> as you probably all understand the fear and frustration in parents

> and the child as well.

>

> After becoming involved with

[Guest guest]

I'm not really sure what you mean when you say that many in your

Jersey support group tried biomed before or after trying EFAs. Almost

every child I know who is using a biomed approach takes EFAs as a part

of their nutritional supplements. They take other supplements too, but

almost all children with autism are deficient in EFAs.

But in my earlier message, I was describing my son's social behavior,

not my daughter's. My son has never had apraxia, though he still has ASD.

My daughter, who is now recovered, had extremely poor eye contact when

she was diagnosed, and we could scream her name from a foot away and

she wouldn't even look at us. She did not have joint attention. She

was very low tone, and as she started to speak, she had trouble with

the endings on words (consonant replacement) and her artic would fall

apart with longer utterances. I could go on... but if you had met my

daughter during the six months after she was diagnosed, you would not

have questioned that she had apraxia and ASD. Why my child who

initially appeared more severely affected (and had apraxia as well as

autism) recovered, and my son has not, I don't know, except that she

received intensive biomed and ABA early.

>

> I have below one archive about Suzanne you may have read -but

> yes in our original Jersey area support group about 1/2 tried lipid

> testing and biomedical approaches either before or after trying the

> EFAs.

>

> The way I still see apraxia present today in my son Tanner is that

> he talks in a way that is motor comfortable for him and that makes

> him sound immature for his age, and not bright -like he is.

> Tanner's receptive and cognitive ability in both clinical testing

> and in the classroom in written tests, in some areas such as

> creative writing and math are way above average. He reads better

> than he talks. He is able to blend...and some may not know there is

> an impairment there -but the discrimination presents in ways that I

> posted such as his one teacher's comment (in front of Tanner) last

> year in 3rd grade

>

> " No matter how much time I give Tanner to answer a question when he

> raises his hand, it's not clear he understands the work. The only

> reason we know he understands it is because he tests so well " As a

> parent I should not be faced with such hurtful ignorance from an

> educational professional. Thank goodness that Tanner continued to

> raise his hand to answer questions...that his belief in himself is

> still high...but that's probably because I talked to Tanner, his

> teachers -spent around a thousand dollars on private testing from

> various professionals. If Tanner was deaf I wouldn't have had to do

> this. So to be more direct -some may say Tanner himself is " cured "

> of apraxia...I see the impairment present in a more sophisticated

> way -and I see that Tanner has learned how to overcome it most of

> the time. Get your child in a mainstream science and social studies

> class if they are apraxic and have them answer questions using the

> sophisticated words...and you let me know if he blends then.

> Problem changes -but tired or stressed or put into a situation with

> complex and sophisticated thoughts that need to be

> communicated...and that's where you'll see apraxia pop up again. As

> Earl once said about his stuttering... " Once a stutterer,

> always a stutterer " Yet most people don't know he and many others

> are stutterers.

>

> Read this list and be amazed who is on it

> http://www.stutteringhelp.org/Default.aspx?tabid=128

> Stuttering some may not know, like apraxia, is a motor planning

> impairment of speech.

>

> And as far as a child having as you say a " very loving nature....very

> interested in playing with other children...not withdrawn socially

> (though he doesn't always interact appropriately). And he also has

> ASD. " That fits many in our society that most don't view as

> autistic. My friend Debbie 'and' her husband Kenny for just

> two...the cast of Curb Your Enthusiasm (they try to be loving)

> http://www.dvdtalk.com/reviews/review.php?ID=22977

>

> You are correct in that today's communication impaired child no

> matter what you call it typically presents with a multifacted

> diagnosis and best responds to a multifaceted approach. Today's

> child diagnosed with autism (not severe -mild to moderate) typically

> does have an underlying and at times undiagnosed speech impairment

> and apraxia is being diagnosed more and more in today's autistic

> child. Why? (well apraxia is being diagnosed more and more in

> children in general too come to think of it and in families with no

> prior genetic predisposition towards speech impairments)

>

> As one here wisely said -perhaps it isn't apraxia 'or' autism...

> but something new?

>

> About biomedical approaches to apraxia -below is the archive I spoke

> about above:

>

> ~~~~~~~~~~~start of archive

>

>

> As I posted once -I was standing next to Suzanne Smolyar who went

> the blood analysis route for her 5 year old daughter 'after'

> the ProEFA worked for her. Suzanne was talking to Dr. AJ

> about her daughter's blood analysis results. I said excuse me to

> both and asked " Dr. , if it was your child who is a child

> like those of ours in this group with a speech impairment or ADHD or

> whatever -and not for research, would you do blood analysis before

> you supplemented with fish oil...or...would you just supplement your

> child with the fish oils? " She (again) made a face like " you're

> kidding, right? " squinting her eyes a bit with a smile and said " I'd

> just give him the fish oils. "

>

> Here's just one of many articles about the most recent study on EFAs

> that Dr. AJ who spoke at the First Apraxia Conference was

> behind

>

> Can fish oil supplements really boost your brain power? Get the

> lowdown:

> http://www.gm.tv/index.cfm?articleid=14487

>

> And...here's just one archive below as to why I'm not a huge

> believer in blood analysis. It obviously has some major flaws due

> to the blood brain barrier.

>

> This story again was based on a time when we all knew each other in

> person as a large group from mainly 1999 to 2003. When people post

> here you don't know what's the reality for the group -you do when

> you all know each other in person as a group.

>

> ~~~~~~~~~~~start of archive

>

> Unless we understand what is going on in our children and can make

> sure there is proper diagnosis/therapies for each -which we don't -

> and we understand what all the many various supplements are doing to

> help or not help, I'm not a huge believer of blood analysis for

> neurological conditions. This is why I choose to stick to those

> therapies/treatments/supplements I know are benign. I will add to

> that -unless there are medical reasons.

>

> My reasons on the blood analysis stem from EFAs due to another

> scientist/mathematician/mom in our group -former CHERAB VP Suzanne

> Smolyar who is now attending medical school to study EFAs due to her

> daughter 's amazing reactions on EFAs.

>

> " From: Suzanne Smolyar

> Date: Wed Mar 21, 2001 2:36 pm

> Subject: RE: [ ] progress

>

>

> Hi Gloria,

>

> I wanted to say that I know exactly how you feel. Last night at the

> table, 's brother (Ari 6.8) began to speak while was

> trying to say something, so she looked at Ari and said in a loud and

> affirmative tone " Shut up Ari, Shut up " . We were so excited and

> overjoyed at her using that phrase - we forgot to explain to her

> that it was inappropriate to use at the table and to her family

> members. We just thought it was golden -just like you did.

>

> Here is some background from one of my previous posts that will tell

> you why this is so exciting .

>

> " I am a mother of a beautiful 5-year-old girl, . Since the

> time she was about 11 mo old - I had a feeling that something was

> wrong with fine motor, gross motor and of course speech. Through

> the past 4 years, I have gone to numerous neurologists, best in the

> field, I must add. We have gone non-stop to therapy with ,

> but the progress was painfully slow. did not speak- making

> it nearly impossible for us to communicate with her. Everyday at

> night I would kiss , and standing over her head I would

> say, " please start talking tomorrow " - subliminal messages - hoping

> they'd work.

>

> To no avail, my child was just not talking. Therapy helped, but

> progress was limited. I don't want to continue with this sob-story,

> as you probably all understand the fear and frustration in parents

> and the child as well.

>

> After becoming involved with

[Guest guest]

I'm not really sure what you mean when you say that many in your

Jersey support group tried biomed before or after trying EFAs. Almost

every child I know who is using a biomed approach takes EFAs as a part

of their nutritional supplements. They take other supplements too, but

almost all children with autism are deficient in EFAs.

But in my earlier message, I was describing my son's social behavior,

not my daughter's. My son has never had apraxia, though he still has ASD.

My daughter, who is now recovered, had extremely poor eye contact when

she was diagnosed, and we could scream her name from a foot away and

she wouldn't even look at us. She did not have joint attention. She

was very low tone, and as she started to speak, she had trouble with

the endings on words (consonant replacement) and her artic would fall

apart with longer utterances. I could go on... but if you had met my

daughter during the six months after she was diagnosed, you would not

have questioned that she had apraxia and ASD. Why my child who

initially appeared more severely affected (and had apraxia as well as

autism) recovered, and my son has not, I don't know, except that she

received intensive biomed and ABA early.

>

> I have below one archive about Suzanne you may have read -but

> yes in our original Jersey area support group about 1/2 tried lipid

> testing and biomedical approaches either before or after trying the

> EFAs.

>

> The way I still see apraxia present today in my son Tanner is that

> he talks in a way that is motor comfortable for him and that makes

> him sound immature for his age, and not bright -like he is.

> Tanner's receptive and cognitive ability in both clinical testing

> and in the classroom in written tests, in some areas such as

> creative writing and math are way above average. He reads better

> than he talks. He is able to blend...and some may not know there is

> an impairment there -but the discrimination presents in ways that I

> posted such as his one teacher's comment (in front of Tanner) last

> year in 3rd grade

>

> " No matter how much time I give Tanner to answer a question when he

> raises his hand, it's not clear he understands the work. The only

> reason we know he understands it is because he tests so well " As a

> parent I should not be faced with such hurtful ignorance from an

> educational professional. Thank goodness that Tanner continued to

> raise his hand to answer questions...that his belief in himself is

> still high...but that's probably because I talked to Tanner, his

> teachers -spent around a thousand dollars on private testing from

> various professionals. If Tanner was deaf I wouldn't have had to do

> this. So to be more direct -some may say Tanner himself is " cured "

> of apraxia...I see the impairment present in a more sophisticated

> way -and I see that Tanner has learned how to overcome it most of

> the time. Get your child in a mainstream science and social studies

> class if they are apraxic and have them answer questions using the

> sophisticated words...and you let me know if he blends then.

> Problem changes -but tired or stressed or put into a situation with

> complex and sophisticated thoughts that need to be

> communicated...and that's where you'll see apraxia pop up again. As

> Earl once said about his stuttering... " Once a stutterer,

> always a stutterer " Yet most people don't know he and many others

> are stutterers.

>

> Read this list and be amazed who is on it

> http://www.stutteringhelp.org/Default.aspx?tabid=128

> Stuttering some may not know, like apraxia, is a motor planning

> impairment of speech.

>

> And as far as a child having as you say a " very loving nature....very

> interested in playing with other children...not withdrawn socially

> (though he doesn't always interact appropriately). And he also has

> ASD. " That fits many in our society that most don't view as

> autistic. My friend Debbie 'and' her husband Kenny for just

> two...the cast of Curb Your Enthusiasm (they try to be loving)

> http://www.dvdtalk.com/reviews/review.php?ID=22977

>

> You are correct in that today's communication impaired child no

> matter what you call it typically presents with a multifacted

> diagnosis and best responds to a multifaceted approach. Today's

> child diagnosed with autism (not severe -mild to moderate) typically

> does have an underlying and at times undiagnosed speech impairment

> and apraxia is being diagnosed more and more in today's autistic

> child. Why? (well apraxia is being diagnosed more and more in

> children in general too come to think of it and in families with no

> prior genetic predisposition towards speech impairments)

>

> As one here wisely said -perhaps it isn't apraxia 'or' autism...

> but something new?

>

> About biomedical approaches to apraxia -below is the archive I spoke

> about above:

>

> ~~~~~~~~~~~start of archive

>

>

> As I posted once -I was standing next to Suzanne Smolyar who went

> the blood analysis route for her 5 year old daughter 'after'

> the ProEFA worked for her. Suzanne was talking to Dr. AJ

> about her daughter's blood analysis results. I said excuse me to

> both and asked " Dr. , if it was your child who is a child

> like those of ours in this group with a speech impairment or ADHD or

> whatever -and not for research, would you do blood analysis before

> you supplemented with fish oil...or...would you just supplement your

> child with the fish oils? " She (again) made a face like " you're

> kidding, right? " squinting her eyes a bit with a smile and said " I'd

> just give him the fish oils. "

>

> Here's just one of many articles about the most recent study on EFAs

> that Dr. AJ who spoke at the First Apraxia Conference was

> behind

>

> Can fish oil supplements really boost your brain power? Get the

> lowdown:

> http://www.gm.tv/index.cfm?articleid=14487

>

> And...here's just one archive below as to why I'm not a huge

> believer in blood analysis. It obviously has some major flaws due

> to the blood brain barrier.

>

> This story again was based on a time when we all knew each other in

> person as a large group from mainly 1999 to 2003. When people post

> here you don't know what's the reality for the group -you do when

> you all know each other in person as a group.

>

> ~~~~~~~~~~~start of archive

>

> Unless we understand what is going on in our children and can make

> sure there is proper diagnosis/therapies for each -which we don't -

> and we understand what all the many various supplements are doing to

> help or not help, I'm not a huge believer of blood analysis for

> neurological conditions. This is why I choose to stick to those

> therapies/treatments/supplements I know are benign. I will add to

> that -unless there are medical reasons.

>

> My reasons on the blood analysis stem from EFAs due to another

> scientist/mathematician/mom in our group -former CHERAB VP Suzanne

> Smolyar who is now attending medical school to study EFAs due to her

> daughter 's amazing reactions on EFAs.

>

> " From: Suzanne Smolyar

> Date: Wed Mar 21, 2001 2:36 pm

> Subject: RE: [ ] progress

>

>

> Hi Gloria,

>

> I wanted to say that I know exactly how you feel. Last night at the

> table, 's brother (Ari 6.8) began to speak while was

> trying to say something, so she looked at Ari and said in a loud and

> affirmative tone " Shut up Ari, Shut up " . We were so excited and

> overjoyed at her using that phrase - we forgot to explain to her

> that it was inappropriate to use at the table and to her family

> members. We just thought it was golden -just like you did.

>

> Here is some background from one of my previous posts that will tell

> you why this is so exciting .

>

> " I am a mother of a beautiful 5-year-old girl, . Since the

> time she was about 11 mo old - I had a feeling that something was

> wrong with fine motor, gross motor and of course speech. Through

> the past 4 years, I have gone to numerous neurologists, best in the

> field, I must add. We have gone non-stop to therapy with ,

> but the progress was painfully slow. did not speak- making

> it nearly impossible for us to communicate with her. Everyday at

> night I would kiss , and standing over her head I would

> say, " please start talking tomorrow " - subliminal messages - hoping

> they'd work.

>

> To no avail, my child was just not talking. Therapy helped, but

> progress was limited. I don't want to continue with this sob-story,

> as you probably all understand the fear and frustration in parents

> and the child as well.

>

> After becoming involved with

[Guest guest]

I just meant that EFAs are something that most tried with and

without asking their child's pediatrician, and of course almost all

had children with surges on them. Not as many in the group tried

blood analysis -it was probably a bit less then half. Out of the

group that did the biomed testing, most had already started the EFAs

prior to the testing -but a few waited to see the results of the

testing prior to putting the child on EFas -that was the minority.

As you say earlier is always best for treatment -so thank goodness

most didn't wait to start EFAs. (but what's funny is that many

parents of even " normal " children start them even sooner today with

the EFA enriched prenatal vitamins, infant formula & food.

Like doughnut or french fry oil, it's not questioned..

fish oil on the other hand....gasp!)

=====

[Guest guest]

I just meant that EFAs are something that most tried with and

without asking their child's pediatrician, and of course almost all

had children with surges on them. Not as many in the group tried

blood analysis -it was probably a bit less then half. Out of the

group that did the biomed testing, most had already started the EFAs

prior to the testing -but a few waited to see the results of the

testing prior to putting the child on EFas -that was the minority.

As you say earlier is always best for treatment -so thank goodness

most didn't wait to start EFAs. (but what's funny is that many

parents of even " normal " children start them even sooner today with

the EFA enriched prenatal vitamins, infant formula & food.

Like doughnut or french fry oil, it's not questioned..

fish oil on the other hand....gasp!)

=====