Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Hello everyone: I was at my surgeon's yesterday and asked for my path report - I have some questions...I know that I have Invasive ductal carcinoma - I had the lumpectomy (twice) and one group nodes removed - the sentenial node was positive - all others negative. I am ER Negative, Her-2 Negative, PR (strongly) Positive. How do these things affect treatment or recovery? Good or Bad? (I see the rad and oncologist next week.) Also What is the Nottingham score/grade? I had my second lumpectomy about 10 days ago. When I went in for a check yesterday - it seems that I have another " cyst " possibly two already...how is this possible? He told me not to worry I was in " freak out " mode. He would check it in a week. Have any of you'all developed a cyst right after surgery? I have never had any cyst my whole life - now it seems they are popping up like spring flowers. I am worried and thinking maybe I should just do (or should have done) the mastectomy? Any thoughts? Bless you all. Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Penny, I was diagnosed back in 1990 and they did not do the HER2 test. I have never heard of the Nottingham score/grade. Try looking it up at www.webmd.com or try googling it on www.google.com I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com I have questions. Hello everyone: I was at my surgeon's yesterday and asked for my path report - I have some questions...I know that I have Invasive ductal carcinoma - I had the lumpectomy (twice) and one group nodes removed - the sentenial node was positive - all others negative. I am ER Negative, Her-2 Negative, PR (strongly) Positive. How do these things affect treatment or recovery? Good or Bad? (I see the rad and oncologist next week.) Also What is the Nottingham score/grade? I had my second lumpectomy about 10 days ago. When I went in for a check yesterday - it seems that I have another " cyst " possibly two already...how is this possible? He told me not to worry I was in " freak out " mode. He would check it in a week. Have any of you'all developed a cyst right after surgery? I have never had any cyst my whole life - now it seems they are popping up like spring flowers. I am worried and thinking maybe I should just do (or should have done) the mastectomy? Any thoughts? Bless you all. Penny ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.409 / Virus Database: 268.15.18/584 - Release Date: 12/12/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 I guess, at this point, I'd wait to see what your surgeon says in a week after the pathology report comes back. I had 2 lumps appear after my lumpectomy.... one was fluid, one was tumor. I think the surgeon thought the first one was fluid build up from the lumpectomy (which it was) and didn't feel the second. It was a PET scan that found it. Your lumps could very well be fluid filled from surgery and in a week would go down or need draining. In my case it seems the original tumor at only about 1.6 cm was actually only one of many that were connected. I did then have a mastectomy and that is where they found the tumor to be 5 cm in total length, but several smaller ones connected. It's hard not to 'freak out' but try to take it a day at a time until all the information is in, including your path report and your next trip to the surgeon. At the point I was suppose to go in for another lumpectomy is when the surgeon said to me he thought my best choice was a mastectomy. I never felt pressured to do that or to do the original lumpectomy first..... he was always sure to let me make the decision, but also let me know what he would recommend. Barb Michigan I have questions. Hello everyone: I was at my surgeon's yesterday and asked for my path report - I have some questions...I know that I have Invasive ductal carcinoma - I had the lumpectomy (twice) and one group nodes removed - the sentenial node was positive - all others negative. I am ER Negative, Her-2 Negative, PR (strongly) Positive. How do these things affect treatment or recovery? Good or Bad? (I see the rad and oncologist next week.) Also What is the Nottingham score/grade? I had my second lumpectomy about 10 days ago. When I went in for a check yesterday - it seems that I have another " cyst " possibly two already...how is this possible? He told me not to worry I was in " freak out " mode. He would check it in a week. Have any of you'all developed a cyst right after surgery? I have never had any cyst my whole life - now it seems they are popping up like spring flowers. I am worried and thinking maybe I should just do (or should have done) the mastectomy? Any thoughts? Bless you all. Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Barb: My thought is ...is why wouldn't a second " lump " have shown on the scan and mamo? Would it grow that quickly? I found the nottingham score - it scores the combined " grades " of the tumor. I have an overall of 9 combined- which as far as I can tell - the worst on the scale. Also the grade which shows how fast a tumor will grow is 1 2 or 3. Mine is a 3 " the fastest " - - - how fast is fast? Did your other lumps show on the scan and mamo? Why couldn't they tell with you that you had more than one and they were connected? Thanks. -penny Barb Roy blroy1@...> wrote: I guess, at this point, I'd wait to see what your surgeon says in a week after the pathology report comes back. I had 2 lumps appear after my lumpectomy.... one was fluid, one was tumor. I think the surgeon thought the first one was fluid build up from the lumpectomy (which it was) and didn't feel the second. It was a PET scan that found it. Your lumps could very well be fluid filled from surgery and in a week would go down or need draining. In my case it seems the original tumor at only about 1.6 cm was actually only one of many that were connected. I did then have a mastectomy and that is where they found the tumor to be 5 cm in total length, but several smaller ones connected. It's hard not to 'freak out' but try to take it a day at a time until all the information is in, including your path report and your next trip to the surgeon. At the point I was suppose to go in for another lumpectomy is when the surgeon said to me he thought my best choice was a mastectomy. I never felt pressured to do that or to do the original lumpectomy first..... he was always sure to let me make the decision, but also let me know what he would recommend. Barb Michigan I have questions. Hello everyone: I was at my surgeon's yesterday and asked for my path report - I have some questions...I know that I have Invasive ductal carcinoma - I had the lumpectomy (twice) and one group nodes removed - the sentenial node was positive - all others negative. I am ER Negative, Her-2 Negative, PR (strongly) Positive. How do these things affect treatment or recovery? Good or Bad? (I see the rad and oncologist next week.) Also What is the Nottingham score/grade? I had my second lumpectomy about 10 days ago. When I went in for a check yesterday - it seems that I have another " cyst " possibly two already...how is this possible? He told me not to worry I was in " freak out " mode. He would check it in a week. Have any of you'all developed a cyst right after surgery? I have never had any cyst my whole life - now it seems they are popping up like spring flowers. I am worried and thinking maybe I should just do (or should have done) the mastectomy? Any thoughts? Bless you all. Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 Penny, Could you post the link to the Nottimgham score site? Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com I have questions. Hello everyone: I was at my surgeon's yesterday and asked for my path report - I have some questions...I know that I have Invasive ductal carcinoma - I had the lumpectomy (twice) and one group nodes removed - the sentenial node was positive - all others negative. I am ER Negative, Her-2 Negative, PR (strongly) Positive. How do these things affect treatment or recovery? Good or Bad? (I see the rad and oncologist next week.) Also What is the Nottingham score/grade? I had my second lumpectomy about 10 days ago. When I went in for a check yesterday - it seems that I have another " cyst " possibly two already...how is this possible? He told me not to worry I was in " freak out " mode. He would check it in a week. Have any of you'all developed a cyst right after surgery? I have never had any cyst my whole life - now it seems they are popping up like spring flowers. I am worried and thinking maybe I should just do (or should have done) the mastectomy? Any thoughts? Bless you all. Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2006 Report Share Posted December 13, 2006 nne: I googled " nottingham score " " yahoo answers " came up on the bottom. I went to that site...someone else asked a question about it and there was a very thorough answer there. I was able to follow my path report word for word based on their info. & nne Svihlik moochie1@...> wrote: Penny, Could you post the link to the Nottimgham score site? Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com I have questions. Hello everyone: I was at my surgeon's yesterday and asked for my path report - I have some questions...I know that I have Invasive ductal carcinoma - I had the lumpectomy (twice) and one group nodes removed - the sentenial node was positive - all others negative. I am ER Negative, Her-2 Negative, PR (strongly) Positive. How do these things affect treatment or recovery? Good or Bad? (I see the rad and oncologist next week.) Also What is the Nottingham score/grade? I had my second lumpectomy about 10 days ago. When I went in for a check yesterday - it seems that I have another " cyst " possibly two already...how is this possible? He told me not to worry I was in " freak out " mode. He would check it in a week. Have any of you'all developed a cyst right after surgery? I have never had any cyst my whole life - now it seems they are popping up like spring flowers. I am worried and thinking maybe I should just do (or should have done) the mastectomy? Any thoughts? Bless you all. Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 Penny, I haven't had surgery yet (scheduled for the 20th), but I have completed 8 cycles of chemo. After chemo, we could feel a new lump, plus the MRI picked up something too. I also, went into panic mode and couldn't understand how this could be. Turned out they were both enlarged benign lymph nodes. They 'suddenly' appeared because my body was trying to rid itself of all the dead cells from chemo. I hope that you will hear similar good news! > I guess, at this point, I'd wait to see what your surgeon says in a week after the pathology report comes back. I had 2 lumps appear after my lumpectomy.... one was fluid, one was tumor. I think the surgeon thought the first one was fluid build up from the lumpectomy (which it was) and didn't feel the second. It was a PET scan that found it. > > Your lumps could very well be fluid filled from surgery and in a week would go down or need draining. In my case it seems the original tumor at only about 1.6 cm was actually only one of many that were connected. I did then have a mastectomy and that is where they found the tumor to be 5 cm in total length, but several smaller ones connected. > > It's hard not to 'freak out' but try to take it a day at a time until all the information is in, including your path report and your next trip to the surgeon. At the point I was suppose to go in for another lumpectomy is when the surgeon said to me he thought my best choice was a mastectomy. I never felt pressured to do that or to do the original lumpectomy first..... he was always sure to let me make the decision, but also let me know what he would recommend. > > Barb > Michigan > > I have questions. > > Hello everyone: > I was at my surgeon's yesterday and asked for my path report - I have > some questions...I know that I have Invasive ductal carcinoma - I had > the lumpectomy (twice) and one group nodes removed - the sentenial > node was positive - all others negative. I am ER Negative, Her-2 > Negative, PR (strongly) Positive. How do these things affect > treatment or recovery? Good or Bad? (I see the rad and oncologist > next week.) > Also What is the Nottingham score/grade? > I had my second lumpectomy about 10 days ago. When I went in for a > check yesterday - it seems that I have another " cyst " possibly two > already...how is this possible? He told me not to worry I was > in " freak out " mode. He would check it in a week. Have any of > you'all developed a cyst right after surgery? I have never had any > cyst my whole life - now it seems they are popping up like spring > flowers. I am worried and thinking maybe I should just do (or should > have done) the mastectomy? Any thoughts? > Bless you all. Penny > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 Penny, I don't have an answer for that, but it happens all the time. That is why it is so important that we listen to our bodies. My breast just said ouch when I laid on my right side, like a pulling. pinched feeling. My cancer was aggressive, so it can grow fast, but hopefully not that fast or they would have not had time between the mastectomy and the chemo to get rid of the stray cells. At this point, I hope they are all gone, but I really don't know. It's a waiting game. I think mine was a grade 3 as well. And only the one lump showed on the mamo. Until they were able to examine my breast after mastectomy, they were not sure if there were more tumors there. But that's when they found them. I at times wondered if I should have required an MRI after the first biopsy. But I didn't know I could, didn't want to wait, wanted the lump out asap. It's always possible that the other tumors didn't show up until the first one was out only because the first one was in the way, similar to why the fluid filled one kind of hid the tumor the second time. There is no exact way to detect or treat breast cancer. Again probably because each person is different in how they develop cancer and how they react to treatment. We just have to do what is best for us. Barb Michigan I have questions. Hello everyone: I was at my surgeon's yesterday and asked for my path report - I have some questions...I know that I have Invasive ductal carcinoma - I had the lumpectomy (twice) and one group nodes removed - the sentenial node was positive - all others negative. I am ER Negative, Her-2 Negative, PR (strongly) Positive. How do these things affect treatment or recovery? Good or Bad? (I see the rad and oncologist next week.) Also What is the Nottingham score/grade? I had my second lumpectomy about 10 days ago. When I went in for a check yesterday - it seems that I have another " cyst " possibly two already...how is this possible? He told me not to worry I was in " freak out " mode. He would check it in a week. Have any of you'all developed a cyst right after surgery? I have never had any cyst my whole life - now it seems they are popping up like spring flowers. I am worried and thinking maybe I should just do (or should have done) the mastectomy? Any thoughts? Bless you all. Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 Thank you, Barb. I need to settle myself down a bit, I think. When I first found all of this out I was walking around like its no big deal...I'll just go to the doctor and he will fix me! The more I am exposed to the facts the more anxious I get. I see the Oncologist next week to see about when treatment will start and what it will be. I am sure she will answer alot of my questions. I just was floored when he told me I had another cyst - maybe two. I had two surgeries in three weeks time and 10 days after that he is talking about having to cut another one out! What kind of crap is that?? I will be patient though and think POSITIVE. Thank you for your kind words and wisdom. Penny Barb Roy blroy1@...> wrote: Penny, I don't have an answer for that, but it happens all the time. That is why it is so important that we listen to our bodies. My breast just said ouch when I laid on my right side, like a pulling. pinched feeling. My cancer was aggressive, so it can grow fast, but hopefully not that fast or they would have not had time between the mastectomy and the chemo to get rid of the stray cells. At this point, I hope they are all gone, but I really don't know. It's a waiting game. I think mine was a grade 3 as well. And only the one lump showed on the mamo. Until they were able to examine my breast after mastectomy, they were not sure if there were more tumors there. But that's when they found them. I at times wondered if I should have required an MRI after the first biopsy. But I didn't know I could, didn't want to wait, wanted the lump out asap. It's always possible that the other tumors didn't show up until the first one was out only because the first one was in the way, similar to why the fluid filled one kind of hid the tumor the second time. There is no exact way to detect or treat breast cancer. Again probably because each person is different in how they develop cancer and how they react to treatment. We just have to do what is best for us. Barb Michigan I have questions. Hello everyone: I was at my surgeon's yesterday and asked for my path report - I have some questions...I know that I have Invasive ductal carcinoma - I had the lumpectomy (twice) and one group nodes removed - the sentenial node was positive - all others negative. I am ER Negative, Her-2 Negative, PR (strongly) Positive. How do these things affect treatment or recovery? Good or Bad? (I see the rad and oncologist next week.) Also What is the Nottingham score/grade? I had my second lumpectomy about 10 days ago. When I went in for a check yesterday - it seems that I have another " cyst " possibly two already...how is this possible? He told me not to worry I was in " freak out " mode. He would check it in a week. Have any of you'all developed a cyst right after surgery? I have never had any cyst my whole life - now it seems they are popping up like spring flowers. I am worried and thinking maybe I should just do (or should have done) the mastectomy? Any thoughts? Bless you all. Penny Quote Link to comment Share on other sites More sharing options...
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