Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 In a message dated 4/22/2006 9:36:11 AM Eastern Standard Time, steven.jones15@... writes: Steve, Try and catch your breath. You've heard of a man without a country? Your a man without a plan. Hang in there, things will be fine. You and two and half million people in the US have the same problem. AF. Your not alone. Also, be careful on self medicating. Eliminating or altering dosages with a Doctors ok is fine. Without a Doctor's ok, your could get in trouble. Be cool. I would suggest you call your cardiologist and insist to see him sooner or who else can he refer you to. Ask him if he can get you into an EP (electrophysiologist) who is a cardiologist who is a specialist in heart arrhythmia's. A heart electrician. AF is an electrical problem in the heart. The point is to insist for help now, not June 8th. You want a heart work up. 1. Stress test. 2. Echocardiogram 3. EKG 4. Blood tests 5. Cardio MRI (possibly) 6. TEE (trans esophagal echocardiogram) (possibly) 7. What are my options in dealing with AF. Drug therapy, Ablation, Mini Maze, Maze. Learn all you can about AF, so you can participate in the decisions. AF is a personal, kind of custom tailored afflication. Everyone's different in a way. So your knowledge and participation is important. You'll be fine. As Tyler of Areosmith said " Get a Grip " . Rich O I am getting so desperate now that i am thinking off taking the sotalol again to hopefully ease these palpiations and hopefully get some sleep. The other option i was considering was a trip to the er again as i am really concerned and i am not due to see the cardiologist until JUne 8th. Please could anybody help and give me some advice is this normal for somebody with my condition and not on any medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Hi All I am new to the group. I have had afib for about four months now. I was on sotalol but came off it as i didnt feel myself. After coming off sotalol i had a massive afib episode which sent me to the er for the fourth time. I was told to start taking propafonol 450 mg when i had an afib episode. I am also now taking celexa 10mg for my depression and anxiety caused by afib. The only problem is over the last two weeks i have been haveing an increasing amont of palpiations some in the day but mostly in the night. The only way i can seem to go to sleep is sitting upright if i lie down then my heart starts palpitating really bad. Also when i get up in the mornings my heart is beating really fast but regular. I am getting so desperate now that i am thinking off taking the sotalol again to hopefully ease these palpiations and hopefully get some sleep. The other option i was considering was a trip to the er again as i am really concerned and i am not due to see the cardiologist until JUne 8th. Please could anybody help and give me some advice is this normal for somebody with my condition and not on any medication. Thanks Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Hi Steve Try to remain calm, I have had Afib for four years and I am still here to tell the tale, I was on sotalol as the first drug I was given, it did not suit me either. Although afib symptoms are not good it is possible to survive with them. Rich has given excellent advice, I would also add try to get a holter 24 hr monitor that will give a good indication as to what is going on. The echocardiogram will give information as to what condition your heart is in, in my case I have a strong healthy heart with no structural problems. Once that is established then the EP should be the next stage. Hope this helps ine Re: Increased palpitations HELP In a message dated 4/22/2006 9:36:11 AM Eastern Standard Time, steven.jones15@... writes: Steve, Try and catch your breath. You've heard of a man without a country? Your a man without a plan. Hang in there, things will be fine. You and two and half million people in the US have the same problem. AF. Your not alone. Also, be careful on self medicating. Eliminating or altering dosages with a Doctors ok is fine. Without a Doctor's ok, your could get in trouble. Be cool. I would suggest you call your cardiologist and insist to see him sooner or who else can he refer you to. Ask him if he can get you into an EP (electrophysiologist) who is a cardiologist who is a specialist in heart arrhythmia's. A heart electrician. AF is an electrical problem in the heart. The point is to insist for help now, not June 8th. You want a heart work up. 1. Stress test. 2. Echocardiogram 3. EKG 4. Blood tests 5. Cardio MRI (possibly) 6. TEE (trans esophagal echocardiogram) (possibly) 7. What are my options in dealing with AF. Drug therapy, Ablation, Mini Maze, Maze. Learn all you can about AF, so you can participate in the decisions. AF is a personal, kind of custom tailored afflication. Everyone's different in a way. So your knowledge and participation is important. You'll be fine. As Tyler of Areosmith said " Get a Grip " . Rich O I am getting so desperate now that i am thinking off taking the sotalol again to hopefully ease these palpiations and hopefully get some sleep. The other option i was considering was a trip to the er again as i am really concerned and i am not due to see the cardiologist until JUne 8th. Please could anybody help and give me some advice is this normal for somebody with my condition and not on any medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 > > , If I were you, I would call my cardiologist now and explain what is happening. If you took yourself off of the sotalol you need to tell him. Your palpitations could be afib. I have had afib for 3 1/2 years and every time I have palpitations I am in afib. You also need to know that afib affects each one of in a somewhat different way. That is why it is important to have a cardio you can work with. Hope this helps. Earl Hi All > > I am new to the group. I have had afib for about four months now. I > was on sotalol but came off it as i didnt feel myself. After coming > off sotalol i had a massive afib episode which sent me to the er for > the fourth time. I was told to start taking propafonol 450 mg when i > had an afib episode. I am also now taking celexa 10mg for my > depression and anxiety caused by afib. > > The only problem is over the last two weeks i have been haveing an > increasing amont of palpiations some in the day but mostly in the > night. The only way i can seem to go to sleep is sitting upright if i > lie down then my heart starts palpitating really bad. Also when i get > up in the mornings my heart is beating really fast but regular. I am > getting so desperate now that i am thinking off taking the sotalol > again to hopefully ease these palpiations and hopefully get some sleep. > > The other option i was considering was a trip to the er again as i am > really concerned and i am not due to see the cardiologist until JUne > 8th. Please could anybody help and give me some advice is this normal > for somebody with my condition and not on any medication. > > Thanks Steve > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Re: Increased palpitations HELP Hi all Thanks for all the advice. I am trying my best to cope with the situation but am finding it really hard. At least the support of the group is getting me through it. I was trying my best to cope with the situation drug free but if this get worst i will have to go back. I have had a echo and the structure of my heart is fine. I have also given up smoking drinking alcohol and gone on a low fat diet. Which i can tell you all i have found really hard as i was a heavy drinker and smoker. thanks again Steve Hi Steve Maybe it is not a good idea to try to give up everything at once, you will find it extremely difficult and possible end up failing. I would try to concentrate on one thing at a time and probably smoking would be a good place to start. I wish you every success ine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Steve, If you're really interested in eating healthy. I would suggest eating only organic meat, poultry and eggs. I went completely organic and went from AFIB 2 out of 3 days to about once a week. check this out-- http://www.freewebs.com/lasalocid/ http://www.mindfully.org/Food/Eggs-Drug-ResiduesUK18jan02.htm This all happened in the UK, but we have no watchdog group in the US doing this kind of testing. Our legal maximum residue limit (MRL) is 300 PPB. Many countries do not allow Lasalocid at all, like Japan, and most of Europe. Jim Showker > Hi all > > Thanks for all the advice. I am trying my best to cope with the > situation but am finding it really hard. At least the support of the > group is getting me through it. I was trying my best to cope with > the situation drug free but if this get worst i will have to go > back. I have had a echo and the structure of my heart is fine. I > have also given up smoking drinking alcohol and gone on a low fat > diet. Which i can tell you all i have found really hard as i was a > heavy drinker and smoker. > > thanks again > > Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2006 Report Share Posted April 23, 2006 Jim This is REALLY interesting. I always eat organic eggs and as much organic meat as I can afford but often eat non organic chicken. I will have to be strict and monitor any change! Thanks Sue > > Steve, If you're really interested in eating healthy. I would suggest eating > only organic meat, poultry and eggs. I went completely organic and went > from AFIB 2 out of 3 days to about once a week. check this out-- > > http://www.freewebs.com/lasalocid/ > > http://www.mindfully.org/Food/Eggs-Drug-ResiduesUK18jan02.htm > > This all happened in the UK, but we have no watchdog group in the US doing > this kind of testing. Our legal maximum residue limit (MRL) is 300 PPB. > Many countries do not allow Lasalocid at all, like Japan, and most of > Europe. > > Jim Showker > > > > Hi all > > > > Thanks for all the advice. I am trying my best to cope with the > > situation but am finding it really hard. At least the support of the > > group is getting me through it. I was trying my best to cope with > > the situation drug free but if this get worst i will have to go > > back. I have had a echo and the structure of my heart is fine. I > > have also given up smoking drinking alcohol and gone on a low fat > > diet. Which i can tell you all i have found really hard as i was a > > heavy drinker and smoker. > > > > thanks again > > > > Steve > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 Hi All Thank you all so much again for your support and help. I went to the doctors this morning after another rough night of no sleep. It seems that just as i am getting relaxed and ready to sleep i start having missed heart beats which seem like i am going to go into afib but without the fast heart rate. This seems to be getting worse. Anyway the GP has taken me off the celexa just in case this is causing problems. I asked about a beta Blocker but he wasnt willing to prescribe any to me. His advice to me was that if i have it again to go to the emergency room and see if they can help. He has also said that he will phone the cardioligist up for me today to get an earlier appointment the only problem is i will have to pay £100 becuase i will have to go private and not on the NHS but i supose its worth. I think it really sucks that to get an appoinment on the nhs takes 2.5 months but to go private and pay takes less than a week seeing the same cardiologist. Steve > > > > Re: Increased palpitations HELP > > Hi all > > Thanks for all the advice. I am trying my best to cope with the > situation but am finding it really hard. At least the support of the > group is getting me through it. I was trying my best to cope with > the situation drug free but if this get worst i will have to go > back. I have had a echo and the structure of my heart is fine. I > have also given up smoking drinking alcohol and gone on a low fat > diet. Which i can tell you all i have found really hard as i was a > heavy drinker and smoker. > > thanks again > > Steve > > Hi Steve > > Maybe it is not a good idea to try to give up everything at once, you > will find it extremely difficult and possible end up failing. I would > try to concentrate on one thing at a time and probably smoking would be > a good place to start. I wish you every success > > ine > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 Hey Steve, Sorry to hear the troubles you are having. I am relatively new to a-fib, but I do get the palpitations(with no increase in heart rate) mostly at night as I am falling asleep or I wake with them. Something that may offer a little help is sleeping in different positions...see what difference it makes. It can't hurt. I now always sleep on my right side because I the palpitations 95% of the time while sleeping on the left side or my back. Rob steven317828 steven.jones15@...> wrote: Hi All Thank you all so much again for your support and help. I went to the doctors this morning after another rough night of no sleep. It seems that just as i am getting relaxed and ready to sleep i start having missed heart beats which seem like i am going to go into afib but without the fast heart rate. This seems to be getting worse. Anyway the GP has taken me off the celexa just in case this is causing problems. I asked about a beta Blocker but he wasnt willing to prescribe any to me. His advice to me was that if i have it again to go to the emergency room and see if they can help. He has also said that he will phone the cardioligist up for me today to get an earlier appointment the only problem is i will have to pay £100 becuase i will have to go private and not on the NHS but i supose its worth. I think it really sucks that to get an appoinment on the nhs takes 2.5 months but to go private and pay takes less than a week seeing the same cardiologist. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Steve if you can get to the ER whilst in AF, there is a chance they will put you on a beta blocker until you can see the cardio. That is what happened to me. They need to establish that you don't have an underlying heart problem before they prescribe them. Sue > > > > > > > > Re: Increased palpitations HELP > > > > Hi all > > > > Thanks for all the advice. I am trying my best to cope with the > > situation but am finding it really hard. At least the support of > the > > group is getting me through it. I was trying my best to cope with > > the situation drug free but if this get worst i will have to go > > back. I have had a echo and the structure of my heart is fine. I > > have also given up smoking drinking alcohol and gone on a low fat > > diet. Which i can tell you all i have found really hard as i was a > > heavy drinker and smoker. > > > > thanks again > > > > Steve > > > > Hi Steve > > > > Maybe it is not a good idea to try to give up everything at once, > you > > will find it extremely difficult and possible end up failing. I > would > > try to concentrate on one thing at a time and probably smoking > would be > > a good place to start. I wish you every success > > > > ine > > > Quote Link to comment Share on other sites More sharing options...
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