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Guys at my christmas ev dinner i was playing with the kids, and of the

boys pointed at me and siad i looked funny i asked what did he mean and

he gesured to my face. i have enough problems being stared why make fun

of me? :(

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do you have facial palsy i dotn have it so y i ask is coz when i look at

pics of soem of the chargers with it thiers they can look diffferent to a

normal person would like to my way no normal person would of sen a person

with a droopy facer so to them its odd but to us chargers its nromal get it

thats jsut my idea of it

>

> Guys at my christmas ev dinner i was playing with the kids, and of the

> boys pointed at me and siad i looked funny i asked what did he mean and

> he gesured to my face. i have enough problems being stared why make fun

> of me? :(

>

>

>

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I am so sorry that he hurt your feelings. Please try not to let them someone

make you feel bad. I Know it must be hard but try to remember to just be proud

of yourself for all you have accomplished. The strength inside of all CHARGERS

is so incredible and awesome. Have a wonderful and peaceful Christmas.

I have a problem.

Guys at my christmas ev dinner i was playing with the kids, and of the

boys pointed at me and siad i looked funny i asked what did he mean and

he gesured to my face. i have enough problems being stared why make fun

of me? :(

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I don't know, but please don't take it too hard. Everyone is differnet. No

one is exactly the same! That's what makes us all special. People can be mean,

and it's usually because they don't feel very good about themselves.

chrystal

chrystine-14 mos. CHaRGE

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Hi Maddie,

Sorry to hear about how the boy hurt you but he probably didn't mean to

(especially if he was really young) - it might have just been the first time

he'd seen someone who had any type of facial difference and it blurted out

of him. Know that you are strong, brave, and beautiful - I haven't met a

person with CHARGE yet who wasn't!

Happy Holidays Maddie & much love from Canada,

Weir & family

www.chargesyndrome.info

>

> Guys at my christmas ev dinner i was playing with the kids, and of the

> boys pointed at me and siad i looked funny i asked what did he mean and

> he gesured to my face. i have enough problems being stared why make fun

> of me? :(

>

>

>

--

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

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Thanks guys to be honest i doubt the kid was even brought up right

and yes ellen i do have facel palsy.

> >

> > Guys at my christmas ev dinner i was playing with the kids, and

of the

> > boys pointed at me and siad i looked funny i asked what did he

mean and

> > he gesured to my face. i have enough problems being stared why

make fun

> > of me? :(

> >

> >

> >

>

>

>

> --

> " It is far better to grasp the universe as it really is than to

persist in

> delusion, however satisfying and reassuring. " --Carl Sagan

>

>

>

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Hi guys!

Well, I didn't really have that problem with my face. My g tube attracts a lot

of attention from the kids at the Boys and Girls Club. I think it was my trache,

not the button, that scared people away, lol lol lol lol lol If you don't know

what that is like, imagine a vacuumm cleaner going on suddenly, then turning

off, then on again over and over next to you, lol There is one little kid who

thinks that my voice is funny. Sure, he doesn't understand what I am saying. But

you know what? Right now there is a 99% probability that all my words will be

understood. Oh, if I talk too fast at the CHARGE conference, let me know. Back

then CHARGE was a peer repelant. Now it is a.........magnet? Dunno. lol lol lol

It attracts little kids, but it teens sympathize a little when they first meet

me. Afterwards they see it normal and ignore the CHARGE part. I guess in my case

it is hidden that well. Well, I digress. Basically you ignore that person. I did

it with that kid. Ignored him. Try not to let that kid hurt your feelings. If it

is a little kid, understand that they don't know better. Back then I used to

stare at people in wheelchairs or missing limbs. Now I don't do that anymore cuz

I grew up. If I am looking directly at a CHARGEr........it could be love if it

is a girl. A guy.........there is something on his face, lol lol Well, gotta go.

My food is ready. See ya!

CHARGE 17 (Can't wait till '07! WHOO HOO!)

Re: I have a problem.

I don't know, but please don't take it too hard. Everyone is differnet. No

one is exactly the same! That's what makes us all special. People can be mean,

and it's usually because they don't feel very good about themselves.

chrystal

chrystine-14 mos. CHaRGE

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Hi Maddie,

I realize the kids response was hurtful to you. However if you take

a step back, they did not sound like they were making fun of you. It

sounds more like they were being children without rules of social

politeness. It is their way of saying " you're different, why? " A

kind response can be the difference between their acceptance of

differences and their leaning towards teasing. If they get a rise,

they may try it again but if they get a kind explanation, they may

see you as kind.

My daughter is often stared at. I continue to believe that she is

fitting in more, but then some kid stares! I want to yell, " Stop

staring!!!!! " but then I'd hope they would just ask so I could

explain. Then maybe they will realize they were being rude.

Sometimes kids just don't know better and they need the kindness of

others to point them in the right direction.

Love,

Colleen Feather

>

> Guys at my christmas ev dinner i was playing with the kids, and of

the

> boys pointed at me and siad i looked funny i asked what did he mean

and

> he gesured to my face. i have enough problems being stared why make

fun

> of me? :(

>

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Share on other sites

Maddie, Even though i haven't seen a pic of you i'm sure you are a

beautiful girl. Kids don't understand how to be decreet.( I'm still teaching

my 9 and 8 yr olds) I'm sure when he is older he will know, not to just

look at the outa beaty of some one but the inside beauty as well. I have

seen sooo much love and understanding from all the CHARGERS here on the

list. More than some people i know that aren't as unique as you guys. Keep

smiling and know with in your self that you ARE beautiful and that's all

that matters. Raine.xx I hope your chrissie day was great too!

>

>Reply-To: CHARGE

>To: CHARGE

>Subject: I have a problem.

>Date: Mon, 25 Dec 2006 08:14:15 -0000

>

>Guys at my christmas ev dinner i was playing with the kids, and of the

>boys pointed at me and siad i looked funny i asked what did he mean and

>he gesured to my face. i have enough problems being stared why make fun

>of me? :(

>

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>

> Guys at my christmas ev dinner i was playing with the kids, and of

the

> boys pointed at me and siad i looked funny i asked what did he mean

and

> he gesured to my face. i have enough problems being stared why make

fun

> of me? :(

>

Sweetie dont let it worry you. God made you special and thats all that

counts!

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I am so sorry hun!! If he was a young child I have learned they say

things because they don't know not too, I have a friend who is over

weight and my oldest asked when he was younger why she was so big and

we were so skinny.

Its hard and I hope you don't take it to heart to much.

Hugs,

Crystal mom to (10), (3), and Eva (20 month old CHARGEr)

wife to Dan in Illinois

>

> Guys at my christmas ev dinner i was playing with the kids, and of

the

> boys pointed at me and siad i looked funny i asked what did he mean

and

> he gesured to my face. i have enough problems being stared why make

fun

> of me? :(

>

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