Guest guest Posted March 9, 2003 Report Share Posted March 9, 2003 Janet, I too had papillary and hashi's, problems with my voice and salivary glands, etc. it has been 20 years since my first dx and even though i have had waxing and waning times of not so great health, i have lived a happy and full life. My son is raised, i have worked in construction and forestry as well as teaching and management over the intervening years and returned to college at the age of 38. I still lose my voice if i strain my voice too much and will never be a professional singer, but i still love to sing and play guitar. I have had dental problems over the years, possibly because of the salivary damage,and have several crowns, but no removable plates. It took about 6 months for me to feel comfortable with my voice and the pain to subside to a background level. The biggest mistake/regret/whatever was not following up on a yearly checkup, but that was also a life choice. i was without insurance for several years and just considered the cancer as the status quo. It is something you need to be somewhat diligent about and one of your challenges over your life will be to find a doctor that is knowledgeable about this particular form of cancer. Janet, there are alot of us in this sisterhood/brotherhood that are here to share with.... good luck KimMarie > My name is Janet and 4 mos. ago I was diagnosed with Thyroid Cancer. My thyroid was totally removed > with 2 malignant masses in it. The follow up scan showed there was still some remaining tissue left and > last month I had the I-131 Radioactive thyroid ablation. The follow up scan showed no evidence of thyroid > tissue left. I also found out after I had my surgery, that I had also had Hashimoto's thyroiditis. I never > knew it. My voice is still affected by the surgery and also the radiation and my salivary glands still hurt > and I was wondering if this will heal up and go away. I also worry that the radiation will cause other > problems. Is there anyone out there they has the same concerns or has experienced these problems > also? I am also experiencing irregular heart beats and palpitations. The doctor believes this may be > caused by the thyroid also. Does it ever end????? > > Your friend, > Janet > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2003 Report Share Posted March 9, 2003 Dear KimMarie, Thank you so much for responding to my e-mail and for sharing what you have experienced. I definetly need to get an oncologist for following-up. The radiation doctor just wanted me to live my life and come back in a year for another scan. I don't feel comfortable with that. Especially since I have had some complications with my voice and salivary glands/irregular heart beats. I just wish I could get the fear of cancer out of my mind. It is like a burgular that has broken into my house and intruded. How did you get beyond worrying? I am trying to hold onto my faith in all of this. Thank you for your encouraging words! Janet Re: Hello Janet, I too had papillary and hashi's, problems with my voice and salivary glands, etc. it has been 20 years since my first dx and even though i have had waxing and waning times of not so great health, i have lived a happy and full life. My son is raised, i have worked in construction and forestry as well as teaching and management over the intervening years and returned to college at the age of 38. I still lose my voice if i strain my voice too much and will never be a professional singer, but i still love to sing and play guitar. I have had dental problems over the years, possibly because of the salivary damage,and have several crowns, but no removable plates. It took about 6 months for me to feel comfortable with my voice and the pain to subside to a background level. The biggest mistake/regret/whatever was not following up on a yearly checkup, but that was also a life choice. i was without insurance for several years and just considered the cancer as the status quo. It is something you need to be somewhat diligent about and one of your challenges over your life will be to find a doctor that is knowledgeable about this particular form of cancer. Janet, there are alot of us in this sisterhood/brotherhood that are here to share with.... good luck KimMarie > My name is Janet and 4 mos. ago I was diagnosed with Thyroid Cancer. My thyroid was totally removed > with 2 malignant masses in it. The follow up scan showed there was still some remaining tissue left and > last month I had the I-131 Radioactive thyroid ablation. The follow up scan showed no evidence of thyroid > tissue left. I also found out after I had my surgery, that I had also had Hashimoto's thyroiditis. I never > knew it. My voice is still affected by the surgery and also the radiation and my salivary glands still hurt > and I was wondering if this will heal up and go away. I also worry that the radiation will cause other > problems. Is there anyone out there they has the same concerns or has experienced these problems > also? I am also experiencing irregular heart beats and palpitations. The doctor believes this may be > caused by the thyroid also. Does it ever end????? > > Your friend, > Janet > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2003 Report Share Posted March 11, 2003 Hi Alisa, Thank you__I will see if I can get my hands on my reports. I looked in the phone book today and I found only 3 Endo doctors. I live in ton, SC. I would be willing to travel if I have to. We have a medical university here__Do you think that would be a good choice??????? I am feeling very frustrated with all of this right now__also my husband just had quadruple bypass surgery. The last four months have been very stressful. You all have been very enlighting, helpful and encouraging! Thanks again, Janet Re: Hello Hi, Janet - > How do I get my hands on all my lab reports? Just ask :-). Sometimes hospitals charge for copies of reports, but the doctors get them, so I'd ask your doctor. What I do now is ask my doctor to write " copy to patient " on my lab slips, and they send the results to me. And you want to know ALL the numbers, rather than relying on a doctor to say " it's normal " - cause " normal " isn't always right for thycans. > What are TG Antibodies? has a great explanation here: http://groups.yahoo.com/group/Thyca/message/22049 > How do I get that checked. It's a blood test, and they do at the same time they test your TG and TSH levels. > I was told when took my thyroid out, that is > when they found out I had Hashimoto's Thyroiditis. That was the > last I heard of it, no one has mentioned it to me again. Is this > something I need to stay on top of also? Just something to keep in the back of your mind :-). It means they may do more other types of tests (like ultrasounds or scans), rather than relying as much on the TG levels. > Ahhhhh! I wish the doctors would tell me these things! I know, it is very frustrating. The first step is to get to the RIGHT doctor - Find an endocrinologist who is familiar with thyca. If you tell us where you live, someone here may be able to give you a name of someone in your area. [from another one of your posts] > Do you think I need an Oncologist also to follow up with the cancer > part of this? No, you don't. That seems weird, I know - the first thing my family said to me when I told them I might have thyroid cancer is that I should see an oncologist. But oncologists aren't the specialists who deal with this cancer, which has very different treatment than other ones - it's the endocrinologist, who'll coordinate with the nuclear med docs when scans are needed. The endo follows us for the rest of our lives, regulating our meds and coordinating tests (ultrasounds, bloodwork, scans). Cheers, Alisa Currently - TSH 0.09, 140mcg Levoxyl 2/15/2002: Nodule found 2/27/2002: FNA 3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!! 4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos 5/28/2002: 100 mCi RAI 12/16/02: WBS (5 mCi): clean scan - no thyroid tissue in body!!! Age: 49 -- Location: near Seattle WA --- Check out my posts: Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472 My LID - http://groups.yahoo.com/group/Thyca/message/15872 My RAI - http://groups.yahoo.com/group/Thyca/message/15873 LID stuff - http://groups.yahoo.com/group/Thyca/message/25430 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2003 Report Share Posted April 28, 2003 hello sorry dont speak spanish but would like to stay in touch . jason x __________________________________________________ Yahoo! Plus For a better Internet experience http://www.yahoo.co.uk/btoffer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 Hi Kim, Welcome to one of the most supportive weight loss groups on the web. Please let us know how we can help you get to your goals! Take care! Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 Well, if you already lost 27 pounds, you must be doing something right! Good Job! How did you lose those pounds, and what about your weight loss plan are you finding difficult to stick with? This group is very supportive, and hopefully we can help you find the strength to keep going, and maybe offer some advice on changes you can make to help things along. ~Jette~ in NC Start Date 4/7/2003 SW-285/CW-252/MG-250/FG-160 " When the pain of staying the same is greater than the pain to change... it is time to change " Hello > Hi, > My name is Kim and I am looking for sme help trying to loss weight.I > started back in Jan. and have lost 27 lbs. to date. But it is > beginning to be about the hardest thing I have ever tried.I would > like to know what works for you and what doesnt? I will have to walk > the football field with my son and husband (who are both fit) on Nov. > 7th senior night. My son says I like fine and he doesnt care but I do > I want him to be proud of me and I want the picture that will be in > the local paper to show a nice looking mom not a two legged cow. > Sorry so long. > I look forward to making new friends and to getting help on making a > new me. > > Kim > 227/220/140 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 kim. that is the common falicy that no one can be proud of a heavier person. you know, that weight loss already should make you proud. you did that, not anyone else. i have only been here a little time, and these people here are great. they are so supportive and concerned about everyone. it is nice. so jump right in and start being proud of yourself.... nancy > Hi, > My name is Kim and I am looking for sme help trying to loss weight.I > started back in Jan. and have lost 27 lbs. to date. But it is > beginning to be about the hardest thing I have ever tried.I would > like to know what works for you and what doesnt? I will have to walk > the football field with my son and husband (who are both fit) on Nov. > 7th senior night. My son says I like fine and he doesnt care but I do > I want him to be proud of me and I want the picture that will be in > the local paper to show a nice looking mom not a two legged cow. > Sorry so long. > I look forward to making new friends and to getting help on making a > new me. > > Kim > 227/220/140 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 I just wanted to introduce myself, I am Jeanne,I live in Kent,,England. I have an underactive thyroid and have had this for many years...I found this group by accident but I am so pleased I did , I have been reading through the posts and found them very informative....I agree you don't claim to be doctors but you are very knowledgeable and I think when you have been through these things you learn so much...just wanted to say Hello and thankyou for this group...Jeanne When you arise in the morning, think of what a precious privilege it is to be alive -- to breathe, to think, to enjoy, to love." Marcus Aurelius Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Might be a bit of an exaggeration.. but he must have noticed the difference in you... that has to say something about learning more about what is doing on and being persistent in getting proper care.... Topper () On Wed, 10 May 2006 14:29:38 -0700 (PDT) writes: Hello Jeanne,I live in Suffolk, nice to see you here. I too am HypoT and have had a bit of a battle to getmy medication raised to a level that allows me to feel'normal'. I must have reached the 'normal' level as aneighbour of mine told me this funny little anecdote;He has been feeling ill for several years and hasrecently been diagnosed as hypothyroid. After 4 monthson 25mcg of thyroxine he told the nurse at ourdoctor's practice that he wasn't happy, still felt illand wanted "some of that stuff that ison.... she is skipping around like a spring chicken".I think his description is a bit of an exageration butI do feel better than I have for years.Hope you get the help you need here. Quote Link to comment Share on other sites More sharing options...
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