Re: I have fibromyalgia but not hypothyroidism

[Guest guest]

Hi Lynn, I hope you can get effective treatment for it. I can only speak for myself and that is to say that I have arthritis, osteoporosis and scoliosis. I was on mega doses of pain killers and muscle relaxants. I have been hypo/Hashi's for 13 years and on thyroxine( but still with every single symptom)

In desperation I switched to Armour and I am completely off the muscle relaxants and off one of the painkillers. I am still taking another slow release one, but hey if I have to keep taking that one, I don't mind...............before just on that one I would have been in agony. I was also told I had fibro.

Good luck with your treatment, remember we are always here if you need us!.....................Meleese in Oz xxx

----- Original Message -----

From: chitchatt2006

Hi all, Well, I'm now confident my doctor was right last week about saying Ihave Fibromyalgia and not hypothyroidism. I've had a lot offrustration and anger with this diagnosis and I think it was becausethey hypothyroidism is easier to control than the Fibro would be. Idon't want Fibro. But I've got it. That's that. Now what swung my very opinionated mind? I just got off the phone witha very experienced and aged surgeon whose entire female half of hisfamily has had thyroid disease of various types. Many MANY women inhis family. He treats with Armour when nothing else works. In fact,his own daughter is on Armour because she ( a nurse) went throughThyroid storm, then chose of her own free will knowing theconsequences - chose to have RAI. He found her numbers afterwards wereall over the board. So, he said let's try Amour for you. She has beenwell regulated ever since. So he discussed my symptoms and my diagnosis. And the muslce pain, themuscle twitches and the joint soreness should not be part ofhypothyroidism. If you do experience these things, I suggest you toolook outside of hypothyroidism and see if there isn't something elsecausing these pains and twitches. For me, it is the Fibromyalgia. Yes,we are going to watch my other numbers - but it isn't the hypo that isgetting me right now - it is Fibromyalgia causing all my brain fog, mytiredness, my inability to exercise, etc etc. They do share manysymptoms. I thought I would share this because I don't want everyone to feelthat hypothyroidism is the only diagnosis that explains all thesymptoms we encounter. I think it is too easy to dump everything onhypothyroidism as a diagnosis. I did that- and I was mistaken. If this gets someone angry - so be it. If this makes you feel I'mwrong, that's okay. But I've got to get on with treating this Fibronow - so I guess I'll have to put my heart into that finally andforget about barking up the tree of hypothyroidism when that is notcurrently a problem of mine. Hugs to all, -Lynn

[Guest guest]

Hi Lynn, I have read somewhere that fibro and thyroid are friends and flock together in alot of people..I have Gd ..hashi's and nodule and I really think I have fibro too.....but not diagnosed.......all of it sucks lol..good luck Lhynnchitchatt2006 wrote: Hi all, Well, I'm now confident my doctor was right last week about saying Ihave Fibromyalgia and not hypothyroidism. I've had a lot offrustration and anger with this diagnosis and I think it was becausethey hypothyroidism is easier to control than the Fibro would be. Idon't want Fibro. But I've got it. That's that. Now what swung my very opinionated mind? I just got off the phone witha very experienced and aged surgeon whose entire female half of hisfamily has had thyroid

disease of various types. Many MANY women inhis family. He treats with Armour when nothing else works. In fact,his own daughter is on Armour because she ( a nurse) went throughThyroid storm, then chose of her own free will knowing theconsequences - chose to have RAI. He found her numbers afterwards wereall over the board. So, he said let's try Amour for you. She has beenwell regulated ever since. So he discussed my symptoms and my diagnosis. And the muslce pain, themuscle twitches and the joint soreness should not be part ofhypothyroidism. If you do experience these things, I suggest you toolook outside of hypothyroidism and see if there isn't something elsecausing these pains and twitches. For me, it is the Fibromyalgia. Yes,we are going to watch my other numbers - but it isn't the hypo that isgetting me right now - it is Fibromyalgia causing all my brain fog, mytiredness, my inability to exercise, etc etc. They

do share manysymptoms. I thought I would share this because I don't want everyone to feelthat hypothyroidism is the only diagnosis that explains all thesymptoms we encounter. I think it is too easy to dump everything onhypothyroidism as a diagnosis. I did that- and I was mistaken. If this gets someone angry - so be it. If this makes you feel I'mwrong, that's okay. But I've got to get on with treating this Fibronow - so I guess I'll have to put my heart into that finally andforget about barking up the tree of hypothyroidism when that is notcurrently a problem of mine. Hugs to all, -Lynn

[Guest guest]

Hi there,

I suppose I should keep my mouth shut here - being a new girl on the site,

and all that - but I just can't ! Fibro and CFS do not exist. They are

ailments 'inveted' by endos to explain why synthetic hormones do not work

for a lot of people, and they appeared around the time that synthetics and

THS tests were first introduced. This isn't just my opinion, it is also the

opinion of many eminent doctors, including Dr. C. Lowe (check him out

on Shomon's site). I'm sorry, too, if this upsets anyone, but it really

is my bête noir, because if one accepts the diagnosis of fibor or CFS, one

is not going to get the thyroid treatment that is going to make one better.

Please excuse this out-burst, but please don't ignore it.

Lili

>

>Reply-To: The_Thyroid_Support_Group

>To: The_Thyroid_Support_Group

>Subject: Re: I have fibromyalgia but not

>hypothyroidism

>Date: Tue, 23 May 2006 09:11:07 -0700 (PDT)

>

>Hi Lynn,

>

> I have read somewhere that fibro and thyroid are friends and flock

>together in alot of people..I have Gd ..hashi's and nodule and I really

>think I have fibro too.....but not diagnosed.......all of it sucks

>lol..good luck

> Lhynn

>chitchatt2006 wrote:

> Hi all,

>

>Well, I'm now confident my doctor was right last week about saying I

>have Fibromyalgia and not hypothyroidism. I've had a lot of

>frustration and anger with this diagnosis and I think it was because

>they hypothyroidism is easier to control than the Fibro would be. I

>don't want Fibro. But I've got it. That's that.

>

>Now what swung my very opinionated mind? I just got off the phone with

>a very experienced and aged surgeon whose entire female half of his

>family has had thyroid disease of various types. Many MANY women in

>his family. He treats with Armour when nothing else works. In fact,

>his own daughter is on Armour because she ( a nurse) went through

>Thyroid storm, then chose of her own free will knowing the

>consequences - chose to have RAI. He found her numbers afterwards were

>all over the board. So, he said let's try Amour for you. She has been

>well regulated ever since.

>

>So he discussed my symptoms and my diagnosis. And the muslce pain, the

>muscle twitches and the joint soreness should not be part of

>hypothyroidism. If you do experience these things, I suggest you too

>look outside of hypothyroidism and see if there isn't something else

>causing these pains and twitches. For me, it is the Fibromyalgia. Yes,

>we are going to watch my other numbers - but it isn't the hypo that is

>getting me right now - it is Fibromyalgia causing all my brain fog, my

>tiredness, my inability to exercise, etc etc. They do share many

>symptoms.

>

>I thought I would share this because I don't want everyone to feel

>that hypothyroidism is the only diagnosis that explains all the

>symptoms we encounter. I think it is too easy to dump everything on

>hypothyroidism as a diagnosis. I did that- and I was mistaken.

>

>If this gets someone angry - so be it. If this makes you feel I'm

>wrong, that's okay. But I've got to get on with treating this Fibro

>now - so I guess I'll have to put my heart into that finally and

>forget about barking up the tree of hypothyroidism when that is not

>currently a problem of mine.

>

>Hugs to all,

>-Lynn

>

>

>

>

>

>

>

>

[Guest guest]

I don't even know what to say anymore. I am just plain sick of it all.

Who really knows anything about anything anymore? None of the doctors

can agree - none of the people with the illnesses can agree. So who

knows? I give up.

> > Hi all,

> >

> >Well, I'm now confident my doctor was right last week about saying I

> >have Fibromyalgia and not hypothyroidism. I've had a lot of

> >frustration and anger with this diagnosis and I think it was because

> >they hypothyroidism is easier to control than the Fibro would be. I

> >don't want Fibro. But I've got it. That's that.

> >

> >Now what swung my very opinionated mind? I just got off the phone with

> >a very experienced and aged surgeon whose entire female half of his

> >family has had thyroid disease of various types. Many MANY women in

> >his family. He treats with Armour when nothing else works. In fact,

> >his own daughter is on Armour because she ( a nurse) went through

> >Thyroid storm, then chose of her own free will knowing the

> >consequences - chose to have RAI. He found her numbers afterwards were

> >all over the board. So, he said let's try Amour for you. She has been

> >well regulated ever since.

> >

> >So he discussed my symptoms and my diagnosis. And the muslce pain, the

> >muscle twitches and the joint soreness should not be part of

> >hypothyroidism. If you do experience these things, I suggest you too

> >look outside of hypothyroidism and see if there isn't something else

> >causing these pains and twitches. For me, it is the Fibromyalgia. Yes,

> >we are going to watch my other numbers - but it isn't the hypo that is

> >getting me right now - it is Fibromyalgia causing all my brain fog, my

> >tiredness, my inability to exercise, etc etc. They do share many

> >symptoms.

> >

> >I thought I would share this because I don't want everyone to feel

> >that hypothyroidism is the only diagnosis that explains all the

> >symptoms we encounter. I think it is too easy to dump everything on

> >hypothyroidism as a diagnosis. I did that- and I was mistaken.

> >

> >If this gets someone angry - so be it. If this makes you feel I'm

> >wrong, that's okay. But I've got to get on with treating this Fibro

> >now - so I guess I'll have to put my heart into that finally and

> >forget about barking up the tree of hypothyroidism when that is not

> >currently a problem of mine.

> >

> >Hugs to all,

> >-Lynn

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I'm sorry to be so witchy - but I think I've hit the end of my limit

on how much back and forth I can take on what exactly is or isn't

wrong with me. One of the things my doctor chided me on in that

appointment over a week ago was that it was foolish of me to try to

self diagnose because I couldn't see the forest for the trees and got

to fixed on one diagnosis. I felt about an inch tall. Now this guy

today - who knows hypothyroidism tells me that the first guy was right

- and this is an ELDERLY doctor who DOES prescribe armour. He said

it's great stuff - but it won't help you, you have a different

disease. So I don't know. Why try? I read the stuff that Dr. Lowe

wrote about how 90% of Fibromyalgia patients respond to an overload

dose of T3 - because many of them are thyroid hormone resistent

meaning their thyroid tests show euthroid. But I can't prove that to

my doctors - they won't listen to that. And how do I know what is

right? Sorry - I'm just so confused and discouraged I could spit at

someone.

Meleese - you asked about my tests. I posted the whole lot right here:

http://www.turnkeydesign.net/thyroid.html

(Note that about 6 weeks earlier my TSH was 2.74 at a free clinic)

My temperatures suck eggs - they're normally 97.8 to 98.0 all the

time. I can get up to 98.4 but not often. I sometimes drop as low as

97.2 mostly before bed and upon waking up.

Sorry but I'm in a bad mood. I " m sick of getting no where and sick of

having no money to get anyone to do anything.

Sorry

Lynn

> > > Hi all,

> > >

> > >Well, I'm now confident my doctor was right last week about

saying I

> > >have Fibromyalgia and not hypothyroidism. I've had a lot of

> > >frustration and anger with this diagnosis and I think it was

because

> > >they hypothyroidism is easier to control than the Fibro would be. I

> > >don't want Fibro. But I've got it. That's that.

> > >

> > >Now what swung my very opinionated mind? I just got off the

phone with

> > >a very experienced and aged surgeon whose entire female half of his

> > >family has had thyroid disease of various types. Many MANY women in

> > >his family. He treats with Armour when nothing else works. In fact,

> > >his own daughter is on Armour because she ( a nurse) went through

> > >Thyroid storm, then chose of her own free will knowing the

> > >consequences - chose to have RAI. He found her numbers

afterwards were

> > >all over the board. So, he said let's try Amour for you. She

has been

> > >well regulated ever since.

> > >

> > >So he discussed my symptoms and my diagnosis. And the muslce

pain, the

> > >muscle twitches and the joint soreness should not be part of

> > >hypothyroidism. If you do experience these things, I suggest

you too

> > >look outside of hypothyroidism and see if there isn't something

else

> > >causing these pains and twitches. For me, it is the

Fibromyalgia. Yes,

> > >we are going to watch my other numbers - but it isn't the hypo

that is

> > >getting me right now - it is Fibromyalgia causing all my brain

fog, my

> > >tiredness, my inability to exercise, etc etc. They do share many

> > >symptoms.

> > >

> > >I thought I would share this because I don't want everyone to feel

> > >that hypothyroidism is the only diagnosis that explains all the

> > >symptoms we encounter. I think it is too easy to dump everything on

> > >hypothyroidism as a diagnosis. I did that- and I was mistaken.

> > >

> > >If this gets someone angry - so be it. If this makes you feel I'm

> > >wrong, that's okay. But I've got to get on with treating this Fibro

> > >now - so I guess I'll have to put my heart into that finally and

> > >forget about barking up the tree of hypothyroidism when that is not

> > >currently a problem of mine.

> > >

> > >Hugs to all,

> > >-Lynn

>

[Guest guest]

I know its hard to find a good Dr. I have had 28 years in the

wilderness myself. But want to let you know that my new Dr treats all

her patients with TSH >2 as HypoT , and prescribes T3, T4 combo or

Armour ......

Don't give up. Fibro is 'not' nice. And you may be sitting very close

to the cure .....

Jane

> > > > Hi all,

> > > >

> > > >Well, I'm now confident my doctor was right last week about

> saying I

> > > >have Fibromyalgia and not hypothyroidism. I've had a lot of

> > > >frustration and anger with this diagnosis and I think it was

> because

> > > >they hypothyroidism is easier to control than the Fibro would

be. I

> > > >don't want Fibro. But I've got it. That's that.

> > > >

> > > >Now what swung my very opinionated mind? I just got off the

> phone with

> > > >a very experienced and aged surgeon whose entire female half

of his

> > > >family has had thyroid disease of various types. Many MANY

women in

> > > >his family. He treats with Armour when nothing else works. In

fact,

> > > >his own daughter is on Armour because she ( a nurse) went through

> > > >Thyroid storm, then chose of her own free will knowing the

> > > >consequences - chose to have RAI. He found her numbers

> afterwards were

> > > >all over the board. So, he said let's try Amour for you. She

> has been

> > > >well regulated ever since.

> > > >

> > > >So he discussed my symptoms and my diagnosis. And the muslce

> pain, the

> > > >muscle twitches and the joint soreness should not be part of

> > > >hypothyroidism. If you do experience these things, I suggest

> you too

> > > >look outside of hypothyroidism and see if there isn't something

> else

> > > >causing these pains and twitches. For me, it is the

> Fibromyalgia. Yes,

> > > >we are going to watch my other numbers - but it isn't the hypo

> that is

> > > >getting me right now - it is Fibromyalgia causing all my brain

> fog, my

> > > >tiredness, my inability to exercise, etc etc. They do share many

> > > >symptoms.

> > > >

> > > >I thought I would share this because I don't want everyone to

feel

> > > >that hypothyroidism is the only diagnosis that explains all the

> > > >symptoms we encounter. I think it is too easy to dump

everything on

> > > >hypothyroidism as a diagnosis. I did that- and I was mistaken.

> > > >

> > > >If this gets someone angry - so be it. If this makes you feel I'm

> > > >wrong, that's okay. But I've got to get on with treating this

Fibro

> > > >now - so I guess I'll have to put my heart into that finally and

> > > >forget about barking up the tree of hypothyroidism when that

is not

> > > >currently a problem of mine.

> > > >

> > > >Hugs to all,

> > > >-Lynn

> >

>

[Guest guest]

Thanks Jane,

I am sorry (to everyone) that I'm just such a pain today. I'm just

worn out I guess. I wish I felt like there was some chance. I'll never

find a doc like you did, Jane.

-Lynn

> > > > > Hi all,

> > > > >

> > > > >Well, I'm now confident my doctor was right last week about

> > saying I

> > > > >have Fibromyalgia and not hypothyroidism. I've had a lot of

> > > > >frustration and anger with this diagnosis and I think it was

> > because

> > > > >they hypothyroidism is easier to control than the Fibro would

> be. I

> > > > >don't want Fibro. But I've got it. That's that.

> > > > >

> > > > >Now what swung my very opinionated mind? I just got off the

> > phone with

> > > > >a very experienced and aged surgeon whose entire female half

> of his

> > > > >family has had thyroid disease of various types. Many MANY

> women in

> > > > >his family. He treats with Armour when nothing else works. In

> fact,

> > > > >his own daughter is on Armour because she ( a nurse) went

through

> > > > >Thyroid storm, then chose of her own free will knowing the

> > > > >consequences - chose to have RAI. He found her numbers

> > afterwards were

> > > > >all over the board. So, he said let's try Amour for you. She

> > has been

> > > > >well regulated ever since.

> > > > >

> > > > >So he discussed my symptoms and my diagnosis. And the muslce

> > pain, the

> > > > >muscle twitches and the joint soreness should not be part of

> > > > >hypothyroidism. If you do experience these things, I suggest

> > you too

> > > > >look outside of hypothyroidism and see if there isn't something

> > else

> > > > >causing these pains and twitches. For me, it is the

> > Fibromyalgia. Yes,

> > > > >we are going to watch my other numbers - but it isn't the hypo

> > that is

> > > > >getting me right now - it is Fibromyalgia causing all my brain

> > fog, my

> > > > >tiredness, my inability to exercise, etc etc. They do share

many

> > > > >symptoms.

> > > > >

> > > > >I thought I would share this because I don't want everyone to

> feel

> > > > >that hypothyroidism is the only diagnosis that explains all the

> > > > >symptoms we encounter. I think it is too easy to dump

> everything on

> > > > >hypothyroidism as a diagnosis. I did that- and I was mistaken.

> > > > >

> > > > >If this gets someone angry - so be it. If this makes you

feel I'm

> > > > >wrong, that's okay. But I've got to get on with treating this

> Fibro

> > > > >now - so I guess I'll have to put my heart into that

finally and

> > > > >forget about barking up the tree of hypothyroidism when that

> is not

> > > > >currently a problem of mine.

> > > > >

> > > > >Hugs to all,

> > > > >-Lynn

> > >

> >

>

[Guest guest]

-We all have days like that.You might find a good Dr. Is this link of

any use to you ? This is how I found my Dr. On the LHS link under

referrals.

http://www.acnem.org/opening_material/opening_page_with_contents.htm

Jane

-- In The_Thyroid_Support_Group , " chitchatt2006 "

wrote:

>

> Thanks Jane,

> I am sorry (to everyone) that I'm just such a pain today. I'm just

> worn out I guess. I wish I felt like there was some chance. I'll never

> find a doc like you did, Jane.

> -Lynn

>

>

> > > > > > Hi all,

> > > > > >

> > > > > >Well, I'm now confident my doctor was right last week about

> > > saying I

> > > > > >have Fibromyalgia and not hypothyroidism. I've had a lot of

> > > > > >frustration and anger with this diagnosis and I think it was

> > > because

> > > > > >they hypothyroidism is easier to control than the Fibro would

> > be. I

> > > > > >don't want Fibro. But I've got it. That's that.

> > > > > >

> > > > > >Now what swung my very opinionated mind? I just got off the

> > > phone with

> > > > > >a very experienced and aged surgeon whose entire female half

> > of his

> > > > > >family has had thyroid disease of various types. Many MANY

> > women in

> > > > > >his family. He treats with Armour when nothing else works. In

> > fact,

> > > > > >his own daughter is on Armour because she ( a nurse) went

> through

> > > > > >Thyroid storm, then chose of her own free will knowing the

> > > > > >consequences - chose to have RAI. He found her numbers

> > > afterwards were

> > > > > >all over the board. So, he said let's try Amour for you. She

> > > has been

> > > > > >well regulated ever since.

> > > > > >

> > > > > >So he discussed my symptoms and my diagnosis. And the muslce

> > > pain, the

> > > > > >muscle twitches and the joint soreness should not be part of

> > > > > >hypothyroidism. If you do experience these things, I suggest

> > > you too

> > > > > >look outside of hypothyroidism and see if there isn't

something

> > > else

> > > > > >causing these pains and twitches. For me, it is the

> > > Fibromyalgia. Yes,

> > > > > >we are going to watch my other numbers - but it isn't the

hypo

> > > that is

> > > > > >getting me right now - it is Fibromyalgia causing all my

brain

> > > fog, my

> > > > > >tiredness, my inability to exercise, etc etc. They do share

> many

> > > > > >symptoms.

> > > > > >

> > > > > >I thought I would share this because I don't want everyone to

> > feel

> > > > > >that hypothyroidism is the only diagnosis that explains

all the

> > > > > >symptoms we encounter. I think it is too easy to dump

> > everything on

> > > > > >hypothyroidism as a diagnosis. I did that- and I was

mistaken.

> > > > > >

> > > > > >If this gets someone angry - so be it. If this makes you

> feel I'm

> > > > > >wrong, that's okay. But I've got to get on with treating this

> > Fibro

> > > > > >now - so I guess I'll have to put my heart into that

> finally and

> > > > > >forget about barking up the tree of hypothyroidism when that

> > is not

> > > > > >currently a problem of mine.

> > > > > >

> > > > > >Hugs to all,

> > > > > >-Lynn

> > > >

> > >

> >

>

[Guest guest]

LILI , You are right. It is an autoimmune thig and if you have hashi which is an autoimmune thing you are more than likely to get another like fibro or arthritis or diabetes. I have read that over and over again. Tinaliliane wise wrote: Hi

there,I suppose I should keep my mouth shut here - being a new girl on the site, and all that - but I just can't ! Fibro and CFS do not exist. They are ailments 'inveted' by endos to explain why synthetic hormones do not work for a lot of people, and they appeared around the time that synthetics and THS tests were first introduced. This isn't just my opinion, it is also the opinion of many eminent doctors, including Dr. C. Lowe (check him out on Shomon's site). I'm sorry, too, if this upsets anyone, but it really is my bête noir, because if one accepts the diagnosis of fibor or CFS, one is not going to get the thyroid treatment that is going to make one better. Please excuse this out-burst, but please don't ignore it.Lili>From: LHYNN NEVAREZ >Reply-To: The_Thyroid_Support_Group >To: The_Thyroid_Support_Group >Subject: Re:

I have fibromyalgia but not >hypothyroidism>Date: Tue, 23 May 2006 09:11:07 -0700 (PDT)>>Hi Lynn,>> I have read somewhere that fibro and thyroid are friends and flock >together in alot of people..I have Gd ..hashi's and nodule and I really >think I have fibro too.....but not diagnosed.......all of it sucks >lol..good luck> Lhynn>chitchatt2006 wrote:> Hi all,>>Well, I'm now confident my doctor was right last week about saying I>have Fibromyalgia and not hypothyroidism. I've had a lot of>frustration and anger with this diagnosis and I think it was because>they hypothyroidism is easier to control than the Fibro would be. I>don't want Fibro. But I've got it. That's that.>>Now what swung my very opinionated mind? I just got off the phone with>a very experienced and aged surgeon

whose entire female half of his>family has had thyroid disease of various types. Many MANY women in>his family. He treats with Armour when nothing else works. In fact,>his own daughter is on Armour because she ( a nurse) went through>Thyroid storm, then chose of her own free will knowing the>consequences - chose to have RAI. He found her numbers afterwards were>all over the board. So, he said let's try Amour for you. She has been>well regulated ever since.>>So he discussed my symptoms and my diagnosis. And the muslce pain, the>muscle twitches and the joint soreness should not be part of>hypothyroidism. If you do experience these things, I suggest you too>look outside of hypothyroidism and see if there isn't something else>causing these pains and twitches. For me, it is the Fibromyalgia. Yes,>we are going to watch my other numbers - but it isn't the hypo that is>getting

me right now - it is Fibromyalgia causing all my brain fog, my>tiredness, my inability to exercise, etc etc. They do share many>symptoms.>>I thought I would share this because I don't want everyone to feel>that hypothyroidism is the only diagnosis that explains all the>symptoms we encounter. I think it is too easy to dump everything on>hypothyroidism as a diagnosis. I did that- and I was mistaken.>>If this gets someone angry - so be it. If this makes you feel I'm>wrong, that's okay. But I've got to get on with treating this Fibro>now - so I guess I'll have to put my heart into that finally and>forget about barking up the tree of hypothyroidism when that is not>currently a problem of mine.>>Hugs to all,>-Lynn>>>>>>>>Yahoo! Groups

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