Re: 's home

[Guest guest]

Tell welcome home--and I'm glad she had a good time. I would LOVE to

have the chance to do that--my father-in-law lives in Germany right now (near

Kaiserslautern, I believe) as he is in the Army. He was going to fly a

there next summer for a month, and take her all over Europe, but now he may not

be able to, as they are closing, if not the whole base, at least his division,

and so he may not be there then. a is really disappointed!!

, mom to Codybug (pwcf, 5-1/2), a (wocf, 12-1/2) and DJ (wocf, 7)

smichelle15@...

's home

Hi everyone,

Sorry I did not have a chance to write sooner. got home from her trip

to Europe on Tuesday night. The first thing she wanted was to stop at 7-11 to

get a slurpee. She loves slurpees and gets one about every day.(she missed

them!) She had a great time in Europe, with the possible exception of Paris.

She brought home t-shirts and a teddy bear, a beer glass and a couple of shot

glasses (my son has a thing for shot glasses). OH yes and don't let me forget,

the Mozart's Balls(it is candy!)She is doing Ok , she has just been pretty

tired. I called about her surgery (sinus and a bronch) and it has to be

recheduled. We got a change in insurance starting July 1 and I didn't have the

cards until about the 12th, so I called the doc's offices and they have to

resubmit the paperwork to get the authorization. Aren't HMO's fun?

Anyway, they told us to go ahead with the Tobi and they still want to do the

bronch. I was wondering if we should hold the tobi until after the bronch and

then they could tell better what organisms she is growing. But they didn't want

us to, so we will start it today. Would have last night but she went in her

room at about 8:00 pm and never came out, checked on her at 9:00 and she was

asleep. So I decided to let it go last night. She was also starting to cough a

little yesterday so hopefully the tobi will help that.

Well I guess that's about it from here. My mother-in-law is here for the

weekend, it was her birthday yesterday. Nick is doing fine.

take care everybody!

love,

[Guest guest]

,

I don't know as much about cf as you, but when Eilish has a bronc. of which

she's had many we are to stop ALL antibiotics for two weeks before hand to

show what really is growing there and not have any masked.

I'm glad she had a great time. Why didn't she like Paris? I'd love to go

to Egypt always have wanted to but I realise its quite dangerous there.

's home

> Hi everyone,

> Sorry I did not have a chance to write sooner. got home from her

trip to Europe on Tuesday night. The first thing she wanted was to stop at

7-11 to get a slurpee. She loves slurpees and gets one about every day.(she

missed them!) She had a great time in Europe, with the possible exception

of Paris. She brought home t-shirts and a teddy bear, a beer glass and a

couple of shot glasses (my son has a thing for shot glasses). OH yes and

don't let me forget, the Mozart's Balls(it is candy!)She is doing Ok , she

has just been pretty tired. I called about her surgery (sinus and a bronch)

and it has to be recheduled. We got a change in insurance starting July 1

and I didn't have the cards until about the 12th, so I called the doc's

offices and they have to resubmit the paperwork to get the authorization.

Aren't HMO's fun?

>

> Anyway, they told us to go ahead with the Tobi and they still want to do

the bronch. I was wondering if we should hold the tobi until after the

bronch and then they could tell better what organisms she is growing. But

they didn't want us to, so we will start it today. Would have last night

but she went in her room at about 8:00 pm and never came out, checked on her

at 9:00 and she was asleep. So I decided to let it go last night. She was

also starting to cough a little yesterday so hopefully the tobi will help

that.

>

> Well I guess that's about it from here. My mother-in-law is here for the

weekend, it was her birthday yesterday. Nick is doing fine.

> take care everybody!

>

> love,

>

>

>

>

>

[Guest guest]

Thanks , I will tell her, Still days behind on email here. Oh

well. I am about to go to bed here. It is 2:30 am!

love,

M

Mom of Nick age 19 nocf

and age 17 wcf

PS I want to go too, now I am the only one in my family who hasn't seen

Europe!

[Guest guest]

Hi ,

That is why I asked about holding off on the tobi but they said do it so we

are. I am not sure why she didn't like Paris, she said it was smelly and

dirty and the people were rude, plus it was hot and the hotel had of all

things RATS!! ick..

NO offence to anyone out there who is French.

love,

M

mom of Nick, age 19 no cf

and age 17 wcf

[Guest guest]

That was exactly my opinion. I did like the Moulin Rouge. I think the

folks are

rude....I was there for some time so it wasn't just a tourist thingy. I was

even disappointed in the museums. cold-dirty & not the least bit as I

expected....BUT I was raised in the Mellon Art Gallery in Wash.D.C.-now

known as the sonian.

Oh,even the boat trip was sooooooo smelly as we went thru Paris. I don't

mean any offense either. It was really that way. I am sure most folks live

out in the countryside ---which is beautiful. we drove all thru that. I had

driven over from Germany. Now that is a beautiful --clean country. I loved

that, stayed 2 months.Even those I don't speak the languages over there ALL

were speaking English to me to make me feel welcome. Very nice. My daughter

lived there 4 years so I went over each year & stayed 2 months each time.

Nice , huh:):) is one smart classy gal, :):) I am glad she is

back tho & into her routine. take care .Wish I could get to see you in San

this year. Carol Weber is coming ,as is her daughter....maybe others

who live closer might be too. You could check with CFRI on who has

registered & on scholarships for hotel.....LOVE YA !

LOVE & HUGS, GrandmomBEV

Re: 's home

Hi ,

That is why I asked about holding off on the tobi but they said do it so we

are. I am not sure why she didn't like Paris, she said it was smelly and

dirty and the people were rude, plus it was hot and the hotel had of all

things RATS!! ick..

NO offence to anyone out there who is French.

love,

M

mom of Nick, age 19 no cf

and age 17 wcf

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

Hi ,

I'm sorry to hear isn't feeling well. Shantell's not

either. She's on Zithromax and starting to recover. I'm supposed to

leave next Wednesday for vacation and I'm scared to leave her here. Her

brother is here though. Anyway, I hope she gets her sinus problem taken

care of soon!

FG, mom of Shantell

Re: 's

home

Thanks , I will tell her, Still days behind on email

here. Oh

well. I am about to go to bed here. It is 2:30

am!

love,

M

Mom of Nick age 19 nocf

and age 17 wcf

PS I want to go too, now I am the only one in my family who hasn't

seen

Europe!

[Guest guest]

Thanks, F-G,

Sorry I got really behind on email. is doing pretty well now. I

just wish they would get together and get the sinus surgery and the bronch

scheduled. I have been calling every day and haven't gotten to speak to

anyone, our regular cf nurse is on sick leave. I really have no idea what's

wrong with her.

Anyway, thanks and I hope to hear from you, are you gone to Alaska yet? I

hope Shantell is feeling better as well.

love,

M

[Guest guest]

Hi M,

I read about a new drug for sinus infections called GATIFLOXACIN (Teqin)

and it is supposed to be the latest for nose/upper respiratory infections.

Shantell has an appointment this morning with the sinus doctor. I hope

they can help her, I hate to leave while she's not feeling great. Makes me

really nervous. Glad to hear is doing alright too. The sinus

stuff really bugs me because there's not a whole lot you can do and she's a bear

with the headaches!

FG, mom of Shantell

Re: 's

home

Thanks, F-G,

Sorry I got really behind on email. is doing pretty well

now. I

just wish they would get together and get the sinus surgery and the

bronch

scheduled. I have been calling every day and haven't gotten to

speak to

anyone, our regular cf nurse is on sick leave. I really have no

idea what's

wrong with her.

Anyway, thanks and I hope to hear from you, are you gone to Alaska

yet? I

hope Shantell is feeling better as well.

love,

M

[Guest guest]

In a message dated 7/31/01 3:33:27 AM Central Daylight Time,

morey@... writes:

<< Thanks, F-G,

Sorry I got really behind on email. is doing pretty well now. I

just wish they would get together and get the sinus surgery and the bronch

scheduled. I have been calling every day and haven't gotten to speak to

anyone, our regular cf nurse is on sick leave. I really have no idea what's

wrong with her.

Anyway, thanks and I hope to hear from you, are you gone to Alaska yet? I

hope Shantell is feeling better as well.

love,

M >>

,

We just went through this last Friday. It is such a relieve now that it is

behind us except we have to go in this Friday for them to clean out her nose.

She will have to be put under for this procedure. But figure this should be

nothing compared to the polyps being remove and the bronchoscope. We are

still waiting for the results of the bronc. We are hoping to hear before end

of the week. Deb

[Guest guest]

Hi Deb, Thanks for the reply. I hope your daughter is feeling better by now.

They have never done 2 surgeries like that for . They did take her

back to surgery once when she had stents and once when she had a

Caldwell-Luc to take out the packing. The ENT said she didn't want

to hate her, and after she said the packing was quite stuck in there so I

was really glad she decided to put her under again for that.

Anywa, we are still waiting and now it is looking like it may not get done

until school starts in Sept. I'd really like to get it done before that so

I guess I will be calling again next week. I really hate that.

Thanks again,

love,

M

mom of Nick age 19 nocf

and age 17 wcf

PS: Jen I don't think I will be able to make the chat tonite, but could you

post the addy anyway, in case I can, or maybe some others need it.