Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 Hi Sandi, sorry to read that you feel pain constantly :-(. To answer your question, my pain feels similar to someone sticking a needle or rubbing salt on an open wound (only upon touch). I can deal with the physical pain, as I can avoid touching the area altogether which I should be thankfull for. However, I do feel intensely depressed and have noticed a drastic shift in my day to day activities since I found out I had this problem; especially when I'm around my husband who I've been married to for 5 years and have been dating for 3 years prior to getting married (I've yet to consumate my marriage ... I find that doctors are extremely ignorant and impatient around my concerns. Often I leave their office with tears in my eyes. One would think that with so much knowledge and technology these doctors could find a cure by now. Sorry I'm just bitter at the whole medical system since I turned to these doctors for help and they have made my situation worse (bad surgergical experience). I've been reading through people's posts here and I am finding strength through each and every post, not to mention great advice! Things that I will be doing soon are: 1) shop for white, all cotton underwear 2) rinse with water rather than just wiping 3) sidz (spelling?) baths nightly 4) make sure the area is relaxed (i've noticed that I'm tense in that area at all times) 5) wax rather than shave the area (to avoid irritation) Thanks to all your posts since they are helping me come out and face/be proactive about my condition as opposed to just running away from it and ignoring the fact that I have it. PS. Does anyone in the Toronto area know any good PT practioners? (I only found out about it recently (thanks Sandi for the suggestion!) love, Whitelotus (Toronto) > > Hi, > > Can you describe your pain? I have horrific burning 24/7 for 10 years that has totally disabled me. Is your pain constant or only with touch? I know it is a terrible problem even for those with pain only with sex. However if I could live my life normally except for sex I would be ecstatic. > > If your pain is with sex only then I would concentrate on PT. I think PT can really help you. > > Best wishes, > > Sandi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 Hi, If you notice that you are tensed down there then I think PT may very well help you. Please go to www.pelvicpainrehab.com and email stephanie and liz and ask them if they know of anyone in Toronto. If you husband is a star then maybe you could go somewhere to have PT and they can train him. My husband was my best therapist and it brought us closer together. He knows that he has to do PT on me if he wants to get laid, and it has worked out well. love, Molly I will also see what I can find for you in Toronto. Are you anywhere near Rochester, NY? by any chance? There is a PT in upstate NY who sees a lot of patients from Canada. Don't let it be daunting. If you can go to a GOOD one with your husband then you can be self sufficient except for checking in on your progress.whitelotus_111 wrote: Hi Sandi, sorry to read that you feel pain constantly :-(. To answeryour question, my pain feels similar to someone sticking a needle orrubbing salt on an open wound (only upon touch). I can deal with thephysical pain, as Ican avoid touching the area altogether which I should be thankfullfor. However, I do feel intensely depressed and have noticed a drasticshift in my day to day activities since I found out I had thisproblem; especially when I'm around my husband who I've been marriedto for 5 years and have been dating for 3 years prior to gettingmarried (I've yet to consumate my marriage ... I find that doctorsare extremely ignorant and impatient around my concerns. Often I leavetheir office with tears in my eyes. One would think that with so muchknowledge and technology these doctors could find a cure by now. SorryI'm just bitter at the whole medical system since I turned to thesedoctors for help and they have made my situation worse (badsurgergical experience).I've been reading through people's posts here and I am findingstrength through each and every post, not to mention great advice!Things that I will be doing soon are:1) shop for white, all cotton underwear2) rinse with water rather than just wiping3) sidz (spelling?) baths nightly4) make sure the area is relaxed (i've noticed that I'm tense in thatarea at all times)5) wax rather than shave the area (to avoid irritation)Thanks to all your posts since they are helping me come out andface/be proactive about my condition as opposed to just running awayfrom it and ignoring the fact that I have it. PS. Does anyone in the Toronto area know any good PT practioners? (Ionly found out about it recently (thanks Sandi for the suggestion!)love,Whitelotus (Toronto)>> Hi,> > Can you describe your pain? I have horrific burning 24/7 for 10years that has totally disabled me. Is your pain constant or onlywith touch? I know it is a terrible problem even for those with painonly with sex. However if I could live my life normally except forsex I would be ecstatic. > > If your pain is with sex only then I would concentrate on PT. Ithink PT can really help you.> > Best wishes,> > Sandi> Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 Hi, If you notice that you are tensed down there then I think PT may very well help you. Please go to www.pelvicpainrehab.com and email stephanie and liz and ask them if they know of anyone in Toronto. If you husband is a star then maybe you could go somewhere to have PT and they can train him. My husband was my best therapist and it brought us closer together. He knows that he has to do PT on me if he wants to get laid, and it has worked out well. love, Molly I will also see what I can find for you in Toronto. Are you anywhere near Rochester, NY? by any chance? There is a PT in upstate NY who sees a lot of patients from Canada. Don't let it be daunting. If you can go to a GOOD one with your husband then you can be self sufficient except for checking in on your progress.whitelotus_111 wrote: Hi Sandi, sorry to read that you feel pain constantly :-(. To answeryour question, my pain feels similar to someone sticking a needle orrubbing salt on an open wound (only upon touch). I can deal with thephysical pain, as Ican avoid touching the area altogether which I should be thankfullfor. However, I do feel intensely depressed and have noticed a drasticshift in my day to day activities since I found out I had thisproblem; especially when I'm around my husband who I've been marriedto for 5 years and have been dating for 3 years prior to gettingmarried (I've yet to consumate my marriage ... I find that doctorsare extremely ignorant and impatient around my concerns. Often I leavetheir office with tears in my eyes. One would think that with so muchknowledge and technology these doctors could find a cure by now. SorryI'm just bitter at the whole medical system since I turned to thesedoctors for help and they have made my situation worse (badsurgergical experience).I've been reading through people's posts here and I am findingstrength through each and every post, not to mention great advice!Things that I will be doing soon are:1) shop for white, all cotton underwear2) rinse with water rather than just wiping3) sidz (spelling?) baths nightly4) make sure the area is relaxed (i've noticed that I'm tense in thatarea at all times)5) wax rather than shave the area (to avoid irritation)Thanks to all your posts since they are helping me come out andface/be proactive about my condition as opposed to just running awayfrom it and ignoring the fact that I have it. PS. Does anyone in the Toronto area know any good PT practioners? (Ionly found out about it recently (thanks Sandi for the suggestion!)love,Whitelotus (Toronto)>> Hi,> > Can you describe your pain? I have horrific burning 24/7 for 10years that has totally disabled me. Is your pain constant or onlywith touch? I know it is a terrible problem even for those with painonly with sex. However if I could live my life normally except forsex I would be ecstatic. > > If your pain is with sex only then I would concentrate on PT. Ithink PT can really help you.> > Best wishes,> > Sandi> Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 Hi, If you notice that you are tensed down there then I think PT may very well help you. Please go to www.pelvicpainrehab.com and email stephanie and liz and ask them if they know of anyone in Toronto. If you husband is a star then maybe you could go somewhere to have PT and they can train him. My husband was my best therapist and it brought us closer together. He knows that he has to do PT on me if he wants to get laid, and it has worked out well. love, Molly I will also see what I can find for you in Toronto. Are you anywhere near Rochester, NY? by any chance? There is a PT in upstate NY who sees a lot of patients from Canada. Don't let it be daunting. If you can go to a GOOD one with your husband then you can be self sufficient except for checking in on your progress. Also find Rhonda Kotarinos and email her and ask her if she has trained anyone in your area. She is in Chicago.whitelotus_111 wrote: Hi Sandi, sorry to read that you feel pain constantly :-(. To answeryour question, my pain feels similar to someone sticking a needle orrubbing salt on an open wound (only upon touch). I can deal with thephysical pain, as Ican avoid touching the area altogether which I should be thankfullfor. However, I do feel intensely depressed and have noticed a drasticshift in my day to day activities since I found out I had thisproblem; especially when I'm around my husband who I've been marriedto for 5 years and have been dating for 3 years prior to gettingmarried (I've yet to consumate my marriage ... I find that doctorsare extremely ignorant and impatient around my concerns. Often I leavetheir office with tears in my eyes. One would think that with so muchknowledge and technology these doctors could find a cure by now. SorryI'm just bitter at the whole medical system since I turned to thesedoctors for help and they have made my situation worse (badsurgergical experience).I've been reading through people's posts here and I am findingstrength through each and every post, not to mention great advice!Things that I will be doing soon are:1) shop for white, all cotton underwear2) rinse with water rather than just wiping3) sidz (spelling?) baths nightly4) make sure the area is relaxed (i've noticed that I'm tense in thatarea at all times)5) wax rather than shave the area (to avoid irritation)Thanks to all your posts since they are helping me come out andface/be proactive about my condition as opposed to just running awayfrom it and ignoring the fact that I have it. PS. Does anyone in the Toronto area know any good PT practioners? (Ionly found out about it recently (thanks Sandi for the suggestion!)love,Whitelotus (Toronto)>> Hi,> > Can you describe your pain? I have horrific burning 24/7 for 10years that has totally disabled me. Is your pain constant or onlywith touch? I know it is a terrible problem even for those with painonly with sex. However if I could live my life normally except forsex I would be ecstatic. > > If your pain is with sex only then I would concentrate on PT. Ithink PT can really help you.> > Best wishes,> > Sandi> Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 I have also found that wiping with a damp tissue (I use kleenex) instead of toilet paper makes a big difference. Ora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 I have also found that wiping with a damp tissue (I use kleenex) instead of toilet paper makes a big difference. Ora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 I have also found that wiping with a damp tissue (I use kleenex) instead of toilet paper makes a big difference. Ora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 Who's in Toronto? I'm also from Toronto - and I'm seeing a PT in Oakville who's a pelvic pain specialist So far they've really been helping me (I have vestibulitis). Whomever is in Toronto, I'm here if you want to talk and compare notes - --- molly ring wrote: > Hi, If you notice that you are tensed down there > then I think PT may very well help you. Please go > to www.pelvicpainrehab.com and email stephanie and > liz and ask them if they know of anyone in Toronto. > If you husband is a star then maybe you could go > somewhere to have PT and they can train him. My > husband was my best therapist and it brought us > closer together. He knows that he has to do PT on > me if he wants to get laid, and it has worked out > well. > > love, Molly > > I will also see what I can find for you in > Toronto. Are you anywhere near Rochester, NY? by > any chance? There is a PT in upstate NY who sees a > lot of patients from Canada. Don't let it be > daunting. If you can go to a GOOD one with your > husband then you can be self sufficient except for > checking in on your progress. > > whitelotus_111 wrote: > Hi Sandi, sorry to read that you feel pain > constantly :-(. To answer > your question, my pain feels similar to someone > sticking a needle or > rubbing salt on an open wound (only upon touch). I > can deal with the > physical pain, as I > can avoid touching the area altogether which I > should be thankfull > for. However, I do feel intensely depressed and have > noticed a drastic > shift in my day to day activities since I found out > I had this > problem; especially when I'm around my husband who > I've been married > to for 5 years and have been dating for 3 years > prior to getting > married (I've yet to consumate my marriage ... I > find that doctors > are extremely ignorant and impatient around my > concerns. Often I leave > their office with tears in my eyes. One would think > that with so much > knowledge and technology these doctors could find a > cure by now. Sorry > I'm just bitter at the whole medical system since I > turned to these > doctors for help and they have made my situation > worse (bad > surgergical experience). > I've been reading through people's posts here and I > am finding > strength through each and every post, not to mention > great advice! > Things that I will be doing soon are: > 1) shop for white, all cotton underwear > 2) rinse with water rather than just wiping > 3) sidz (spelling?) baths nightly > 4) make sure the area is relaxed (i've noticed that > I'm tense in that > area at all times) > 5) wax rather than shave the area (to avoid > irritation) > > Thanks to all your posts since they are helping me > come out and > face/be proactive about my condition as opposed to > just running away > from it and ignoring the fact that I have it. > > PS. Does anyone in the Toronto area know any good PT > practioners? (I > only found out about it recently (thanks Sandi for > the suggestion!) > > love, > Whitelotus (Toronto) > > > > > > Hi, > > > > Can you describe your pain? I have horrific > burning 24/7 for 10 > years that has totally disabled me. Is your pain > constant or only > with touch? I know it is a terrible problem even for > those with pain > only with sex. However if I could live my life > normally except for > sex I would be ecstatic. > > > > If your pain is with sex only then I would > concentrate on PT. I > think PT can really help you. > > > > Best wishes, > > > > Sandi > > > > > > > > > --------------------------------- > Talk is cheap. Use Yahoo! Messenger to make > PC-to-Phone calls. Great rates starting at 1¢/min. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 I see a PT in Ottawa. Her name is Caroline . Stacie Neely wrote: Who's in Toronto?I'm also from Toronto - and I'm seeing a PT inOakville who's a pelvic pain specialist :)So far they've really been helping me (I havevestibulitis).Whomever is in Toronto, I'm here if you want to talkand compare notes ---- molly ring <mering00> wrote:> Hi, If you notice that you are tensed down there> then I think PT may very well help you. Please go> to www.pelvicpainrehab.com and email stephanie and> liz and ask them if they know of anyone in Toronto. > If you husband is a star then maybe you could go> somewhere to have PT and they can train him. My> husband was my best therapist and it brought us> closer together. He knows that he has to do PT on> me if he wants to get laid, and it has worked out> well.> > love, Molly> > I will also see what I can find for you in> Toronto. Are you anywhere near Rochester, NY? by> any chance? There is a PT in upstate NY who sees a> lot of patients from Canada. Don't let it be> daunting. If you can go to a GOOD one with your> husband then you can be self sufficient except for> checking in on your progress.> > whitelotus_111 <whitelotus_111yahoo (DOT) ca> wrote:> Hi Sandi, sorry to read that you feel pain> constantly :-(. To answer> your question, my pain feels similar to someone> sticking a needle or> rubbing salt on an open wound (only upon touch). I> can deal with the> physical pain, as I> can avoid touching the area altogether which I> should be thankfull> for. However, I do feel intensely depressed and have> noticed a drastic> shift in my day to day activities since I found out> I had this> problem; especially when I'm around my husband who> I've been married> to for 5 years and have been dating for 3 years> prior to getting> married (I've yet to consumate my marriage ... I> find that doctors> are extremely ignorant and impatient around my> concerns. Often I leave> their office with tears in my eyes. One would think> that with so much> knowledge and technology these doctors could find a> cure by now. Sorry> I'm just bitter at the whole medical system since I> turned to these> doctors for help and they have made my situation> worse (bad> surgergical experience).> I've been reading through people's posts here and I> am finding> strength through each and every post, not to mention> great advice!> Things that I will be doing soon are:> 1) shop for white, all cotton underwear> 2) rinse with water rather than just wiping> 3) sidz (spelling?) baths nightly> 4) make sure the area is relaxed (i've noticed that> I'm tense in that> area at all times)> 5) wax rather than shave the area (to avoid> irritation)> > Thanks to all your posts since they are helping me> come out and> face/be proactive about my condition as opposed to> just running away> from it and ignoring the fact that I have it. > > PS. Does anyone in the Toronto area know any good PT> practioners? (I> only found out about it recently (thanks Sandi for> the suggestion!)> > love,> Whitelotus (Toronto)> > > >> > Hi,> > > > Can you describe your pain? I have horrific> burning 24/7 for 10> years that has totally disabled me. Is your pain> constant or only> with touch? I know it is a terrible problem even for> those with pain> only with sex. However if I could live my life> normally except for> sex I would be ecstatic. > > > > If your pain is with sex only then I would> concentrate on PT. I> think PT can really help you.> > > > Best wishes,> > > > Sandi> >> > > > > > > ---------------------------------> Talk is cheap. Use Yahoo! Messenger to make> PC-to-Phone calls. Great rates starting at 1¢/min.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
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