Taxol... changes and update

[Guest guest]

Hi! Just an update. I went to my onc, talked to him about all my side effects. He was very understanding and basically said that the change to Taxotere was my decision. He said that I belong to the very few percentage of people who have strong reactions to Taxol and eventhough I would not be following established protocol, he is confortable with the change to Taxotere and if it makes me feel better, then I should follow my heart. Very nice of him, I must say. And new side effects, I guess, but since it is just one, no problem. I will be having it tomorrow and will be my last!! Now, this plus the other neuro drugs are really making me happy. hugs to all! __________________________________________________

[Guest guest]

Congratulations on finishing chemo today. I will continue to keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.comCinDWood Craftshttp://www.cindwoodcrafts.com

Taxol... changes and update

Hi!

Just an update. I went to my onc, talked to him about all my side effects.

He was very understanding and basically said that the change to Taxotere was my decision. He said that I belong to the very few percentage of people who have strong reactions to Taxol and eventhough I would not be following established protocol, he is confortable with the change to Taxotere and if it makes me feel better, then I should follow my heart. Very nice of him, I must say. And new side effects, I guess, but since it is just one, no problem.

I will be having it tomorrow and will be my last!! Now, this plus the other neuro drugs are really making me happy.

hugs to all!

__________________________________________________

[Guest guest]

Congratulations on finishing chemo today. I will continue to keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.comCinDWood Craftshttp://www.cindwoodcrafts.com

Taxol... changes and update

Hi!

Just an update. I went to my onc, talked to him about all my side effects.

He was very understanding and basically said that the change to Taxotere was my decision. He said that I belong to the very few percentage of people who have strong reactions to Taxol and eventhough I would not be following established protocol, he is confortable with the change to Taxotere and if it makes me feel better, then I should follow my heart. Very nice of him, I must say. And new side effects, I guess, but since it is just one, no problem.

I will be having it tomorrow and will be my last!! Now, this plus the other neuro drugs are really making me happy.

hugs to all!

__________________________________________________

[Guest guest]

Congratulations on finishing chemo today. I will continue to keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.comCinDWood Craftshttp://www.cindwoodcrafts.com

Taxol... changes and update

Hi!

Just an update. I went to my onc, talked to him about all my side effects.

He was very understanding and basically said that the change to Taxotere was my decision. He said that I belong to the very few percentage of people who have strong reactions to Taxol and eventhough I would not be following established protocol, he is confortable with the change to Taxotere and if it makes me feel better, then I should follow my heart. Very nice of him, I must say. And new side effects, I guess, but since it is just one, no problem.

I will be having it tomorrow and will be my last!! Now, this plus the other neuro drugs are really making me happy.

hugs to all!

__________________________________________________

[Guest guest]

Forgive me, but protocal schmotocal. We are all individuals and what

may be relevent for one is not necessasarily relevent for all. My

Onc, as I have said before, wanted to use AC chemo with Arimidex to

follow, for my stage 2 cancer. This is ?standard protocol?. However,

on further investigation he found that the chemo only increased my

disease free rate for 10 years by 2%, the Arimidex by 17% This was

according to a computer model he used which took into consideration my

individual set of circumstances. Forget the chemo, I'd rather be

working in my gardens, this summer, as opposed to having my head over

the toilet! 2% ain't worth it to me! I'll get more than that 2% out

of my gardens for one year.

Ruth

>

> Hi!

> Just an update. I went to my onc, talked to him about all my side

effects.

> He was very understanding and basically said that the change to

Taxotere was my decision. He said that I belong to the very few

percentage of people who have strong reactions to Taxol and eventhough

I would not be following established protocol, he is confortable with

the change to Taxotere and if it makes me feel better, then I should

follow my heart. Very nice of him, I must say. And new side effects, I

guess, but since it is just one, no problem.

> I will be having it tomorrow and will be my last!! Now, this plus

the other neuro drugs are really making me happy.

> hugs to all!

>

>

> __________________________________________________

>

[Guest guest]

Forgive me, but protocal schmotocal. We are all individuals and what

may be relevent for one is not necessasarily relevent for all. My

Onc, as I have said before, wanted to use AC chemo with Arimidex to

follow, for my stage 2 cancer. This is ?standard protocol?. However,

on further investigation he found that the chemo only increased my

disease free rate for 10 years by 2%, the Arimidex by 17% This was

according to a computer model he used which took into consideration my

individual set of circumstances. Forget the chemo, I'd rather be

working in my gardens, this summer, as opposed to having my head over

the toilet! 2% ain't worth it to me! I'll get more than that 2% out

of my gardens for one year.

Ruth

>

> Hi!

> Just an update. I went to my onc, talked to him about all my side

effects.

> He was very understanding and basically said that the change to

Taxotere was my decision. He said that I belong to the very few

percentage of people who have strong reactions to Taxol and eventhough

I would not be following established protocol, he is confortable with

the change to Taxotere and if it makes me feel better, then I should

follow my heart. Very nice of him, I must say. And new side effects, I

guess, but since it is just one, no problem.

> I will be having it tomorrow and will be my last!! Now, this plus

the other neuro drugs are really making me happy.

> hugs to all!

>

>

> __________________________________________________

>

[Guest guest]

Forgive me, but protocal schmotocal. We are all individuals and what

may be relevent for one is not necessasarily relevent for all. My

Onc, as I have said before, wanted to use AC chemo with Arimidex to

follow, for my stage 2 cancer. This is ?standard protocol?. However,

on further investigation he found that the chemo only increased my

disease free rate for 10 years by 2%, the Arimidex by 17% This was

according to a computer model he used which took into consideration my

individual set of circumstances. Forget the chemo, I'd rather be

working in my gardens, this summer, as opposed to having my head over

the toilet! 2% ain't worth it to me! I'll get more than that 2% out

of my gardens for one year.

Ruth

>

> Hi!

> Just an update. I went to my onc, talked to him about all my side

effects.

> He was very understanding and basically said that the change to

Taxotere was my decision. He said that I belong to the very few

percentage of people who have strong reactions to Taxol and eventhough

I would not be following established protocol, he is confortable with

the change to Taxotere and if it makes me feel better, then I should

follow my heart. Very nice of him, I must say. And new side effects, I

guess, but since it is just one, no problem.

> I will be having it tomorrow and will be my last!! Now, this plus

the other neuro drugs are really making me happy.

> hugs to all!

>

>

> __________________________________________________

>

[Guest guest]

I think what it all boils down to is doing what is best for us. We pay the doctors, technicians, consultants to give us their best information, but its up to us to make up our minds as to what treatment is for us. Even dh of 34 years will tell me its my decision. Certainly he hopes I'll do every thing I can to beat this, but its still up to me. Between the searching I do on the internet and what I have learned from all you, I feel confident that I can discuss my treatment and question when necessary what my onc advises. I have always felt they would do what I want, but they would want me to know why their insight might be different than me. I don't expect the medical people to be perfect, but I am confident in the doctors I have and that they are doing what's best. For me, for now, the treatment they have set out is not causing me undo stress, not yet, but if it gets to the point where its not worth it, then I will make that decision. We are all different, we all have different doctors, and procedures and as long as we are informed and a participant in our treatment... it is our decision. AND if a doctor doesn't treat me as a decision making part of the plan, he probably wouldn't be my doctor any longer.

We know losing control to breast cancer is very hard. When we take control of our treatment, we gain some of that back. I want to be involved even if breast cancer has the control. For me, that works.

Barb

Re: Taxol... changes and update

Forgive me, but protocal schmotocal. We are all individuals and whatmay be relevent for one is not necessasarily relevent for all. MyOnc, as I have said before, wanted to use AC chemo with Arimidex tofollow, for my stage 2 cancer. This is ?standard protocol?. However,on further investigation he found that the chemo only increased mydisease free rate for 10 years by 2%, the Arimidex by 17% This wasaccording to a computer model he used which took into consideration myindividual set of circumstances. Forget the chemo, I'd rather beworking in my gardens, this summer, as opposed to having my head overthe toilet! 2% ain't worth it to me! I'll get more than that 2% outof my gardens for one year.Ruth>> Hi!> Just an update. I went to my onc, talked to him about all my sideeffects.> He was very understanding and basically said that the change toTaxotere was my decision. He said that I belong to the very fewpercentage of people who have strong reactions to Taxol and eventhoughI would not be following established protocol, he is confortable withthe change to Taxotere and if it makes me feel better, then I shouldfollow my heart. Very nice of him, I must say. And new side effects, Iguess, but since it is just one, no problem. > I will be having it tomorrow and will be my last!! Now, this plusthe other neuro drugs are really making me happy.> hugs to all!> > > __________________________________________________>

[Guest guest]

You are absolutely right, Barb.

I will soon be confronted with the choice on hormonal therapy. My onc has

already suggested that instead of Tamoxifen, I do a more aggressive treatment

with aromatase inhibitors, since I am menopausal. Well, I am not menopausal, I

am chemopausal and I did make this point very clear to him. I still have hopes

on getting pregnant and I will not let them take this away from me. But, one

step at a time, right? I still have to go through readiotherapy and when I come

back I will discuss the next steps with the onc. I will probably go on with the

treatment and after 2 years I will discuss this again with him. We'll see.

Hugs

Barb Roy wrote:

I think what it all boils down to is doing what is best for us. We

pay the doctors, technicians, consultants to give us their best information, but

its up to us to make up our minds as to what treatment is for us. Even dh of 34

years will tell me its my decision. Certainly he hopes I'll do every thing I can

to beat this, but its still up to me. Between the searching I do on the internet

and what I have learned from all you, I feel confident that I can discuss my

treatment and question when necessary what my onc advises. I have always felt

they would do what I want, but they would want me to know why their insight

might be different than me. I don't expect the medical people to be perfect, but

I am confident in the doctors I have and that they are doing what's best. For

me, for now, the treatment they have set out is not causing me undo stress, not

yet, but if it gets to the point where its not worth it, then I will make that

decision. We are all different, we

all have different doctors, and procedures and as long as we are informed and a

participant in our treatment... it is our decision. AND if a doctor doesn't

treat me as a decision making part of the plan, he probably wouldn't be my

doctor any longer.

We know losing control to breast cancer is very hard. When we take control of

our treatment, we gain some of that back. I want to be involved even if breast

cancer has the control. For me, that works.

Barb

Re: Taxol... changes and update

Forgive me, but protocal schmotocal. We are all individuals and what

may be relevent for one is not necessasarily relevent for all. My

Onc, as I have said before, wanted to use AC chemo with Arimidex to

follow, for my stage 2 cancer. This is ?standard protocol?. However,

on further investigation he found that the chemo only increased my

disease free rate for 10 years by 2%, the Arimidex by 17% This was

according to a computer model he used which took into consideration my

individual set of circumstances. Forget the chemo, I'd rather be

working in my gardens, this summer, as opposed to having my head over

the toilet! 2% ain't worth it to me! I'll get more than that 2% out

of my gardens for one year.

Ruth

>

> Hi!

> Just an update. I went to my onc, talked to him about all my side

effects.

> He was very understanding and basically said that the change to

Taxotere was my decision. He said that I belong to the very few

percentage of people who have strong reactions to Taxol and eventhough

I would not be following established protocol, he is confortable with

the change to Taxotere and if it makes me feel better, then I should

follow my heart. Very nice of him, I must say. And new side effects, I

guess, but since it is just one, no problem.

> I will be having it tomorrow and will be my last!! Now, this plus

the other neuro drugs are really making me happy.

> hugs to all!

>

>

> __________________________________________________

>