Guest guest Posted July 12, 2006 Report Share Posted July 12, 2006 Amen to that! I wish I'd had a lot more sound advice about the constipating effects of the meds, as well (especially, in my case, the anti-nausea meds). In some ways, that caused more trouble than the chemo! Go figure. Advice to those in chemo -- drink LOTS and lots and lots of water! P.S. Therese, I'm in Ohio, too. I'm near Cleveland, where are you? --- therese1000 wrote: > Hi all, I'm not a regular poster but as my surgery > grows closer I'm > becoming a bit more nervous. I finished my > neoadjuvant chemo to shrink > the tumor on 6/13/06. My major side effects were a > very painful rectal > fissure, which I am still treating, and shingles. I > am scheduled for a > lumpectomy with sentinel node biopsy next Thursday. > I also signed the > consent for a full axillary dissection if necessary. > The surgery is a > big deal for me because the most invasive surgery > I've had thus far is > the insertion of my port. I've been on vacation > last week and this > week, and this week has been especially relaxing. I > was told that I > have a 50/50 chance of my nodes being positive, and > if they are I have > to get a round of Taxol. I just wish that the > oncology nurses had > warned me how terribly constipating chemo could be > and the importance > of adding a lot of extra fiber to your diet, and so > many of my side > effects could have been eliminated. I had > Adriamycin and Cytoxan, and > received Neupogen injections and am still receiving > Procrit. I lost so > much blood from the rectal bleeding that I almost > needed a blood > transfusion. I am absolutely AMAZED by the cost of > this treatment thus > far!!! I just thought I would check in and say hi. > I still read many > posts but lurk more than anything. This group is > certainly an > excellent source of support!! Thanks everyone! > Therese in Ohio > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 Hi Therese, I am sorry to hear you have had so many problems. Its normal to be nervous. Why not ask the dr for something to help you with your nerves. I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com Angel Feather Loomer www.angelfeatherloomer.blogspot.com Surgery is 7/20 Hi all, I'm not a regular poster but as my surgery grows closer I'm becoming a bit more nervous. I finished my neoadjuvant chemo to shrink the tumor on 6/13/06. My major side effects were a very painful rectal fissure, which I am still treating, and shingles. I am scheduled for a lumpectomy with sentinel node biopsy next Thursday. I also signed the consent for a full axillary dissection if necessary. The surgery is a big deal for me because the most invasive surgery I've had thus far is the insertion of my port. I've been on vacation last week and this week, and this week has been especially relaxing. I was told that I have a 50/50 chance of my nodes being positive, and if they are I have to get a round of Taxol. I just wish that the oncology nurses had warned me how terribly constipating chemo could be and the importance of adding a lot of extra fiber to your diet, and so many of my side effects could have been eliminated. I had Adriamycin and Cytoxan, and received Neupogen injections and am still receiving Procrit. I lost so much blood from the rectal bleeding that I almost needed a blood transfusion. I am absolutely AMAZED by the cost of this treatment thus far!!! I just thought I would check in and say hi. I still read many posts but lurk more than anything. This group is certainly an excellent source of support!! Thanks everyone! Therese in Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 Hi Therese, I am sorry to hear you have had so many problems. Its normal to be nervous. Why not ask the dr for something to help you with your nerves. I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com Angel Feather Loomer www.angelfeatherloomer.blogspot.com Surgery is 7/20 Hi all, I'm not a regular poster but as my surgery grows closer I'm becoming a bit more nervous. I finished my neoadjuvant chemo to shrink the tumor on 6/13/06. My major side effects were a very painful rectal fissure, which I am still treating, and shingles. I am scheduled for a lumpectomy with sentinel node biopsy next Thursday. I also signed the consent for a full axillary dissection if necessary. The surgery is a big deal for me because the most invasive surgery I've had thus far is the insertion of my port. I've been on vacation last week and this week, and this week has been especially relaxing. I was told that I have a 50/50 chance of my nodes being positive, and if they are I have to get a round of Taxol. I just wish that the oncology nurses had warned me how terribly constipating chemo could be and the importance of adding a lot of extra fiber to your diet, and so many of my side effects could have been eliminated. I had Adriamycin and Cytoxan, and received Neupogen injections and am still receiving Procrit. I lost so much blood from the rectal bleeding that I almost needed a blood transfusion. I am absolutely AMAZED by the cost of this treatment thus far!!! I just thought I would check in and say hi. I still read many posts but lurk more than anything. This group is certainly an excellent source of support!! Thanks everyone! Therese in Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 Hi, Therese - Good luck with your surgery on 20 July. Mine was on 8 May, and although it was a complete mastectomy I've healed well and had no lasting problems. I had 5 positive out of 15 nodes, and I'm having radiotherapy now. I had neoadjuvant chemo too, and the constipation was awful. Eventually my oncologist had me stay in hospital overnight, to have enemas (yuk) and laxatives, and that fixed me temporarily. But he sent me home with a big bottle of Lactulose - http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a682338.html - and that was really useful. Advice to those in chemo - drink lots of fluid, and take a laxative for two days before and five days after each treatment. And ask your doctor for help before it gets serious. Margery. ============================================ margery@... in North Herts, UK ============================================ > Surgery is 7/20 > > Hi all, I'm not a regular poster but as my surgery grows closer I'm > becoming a bit more nervous. I finished my neoadjuvant chemo > to shrink > the tumor on 6/13/06. My major side effects were a very > painful rectal > fissure, which I am still treating, and shingles. I am > scheduled for a > lumpectomy with sentinel node biopsy next Thursday. I also > signed the > consent for a full axillary dissection if necessary. The > surgery is a > big deal for me because the most invasive surgery I've had > thus far is > the insertion of my port. I've been on vacation last week and this > week, and this week has been especially relaxing. I was told that I > have a 50/50 chance of my nodes being positive, and if they > are I have > to get a round of Taxol. I just wish that the oncology nurses had > warned me how terribly constipating chemo could be and the importance > of adding a lot of extra fiber to your diet, and so many of my side > effects could have been eliminated. I had Adriamycin and > Cytoxan, and > received Neupogen injections and am still receiving Procrit. > I lost so > much blood from the rectal bleeding that I almost needed a blood > transfusion. I am absolutely AMAZED by the cost of this > treatment thus > far!!! I just thought I would check in and say hi. I still > read many > posts but lurk more than anything. This group is certainly an > excellent source of support!! Thanks everyone! Therese in Ohio > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 Hi, Therese - Good luck with your surgery on 20 July. Mine was on 8 May, and although it was a complete mastectomy I've healed well and had no lasting problems. I had 5 positive out of 15 nodes, and I'm having radiotherapy now. I had neoadjuvant chemo too, and the constipation was awful. Eventually my oncologist had me stay in hospital overnight, to have enemas (yuk) and laxatives, and that fixed me temporarily. But he sent me home with a big bottle of Lactulose - http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a682338.html - and that was really useful. Advice to those in chemo - drink lots of fluid, and take a laxative for two days before and five days after each treatment. And ask your doctor for help before it gets serious. Margery. ============================================ margery@... in North Herts, UK ============================================ > Surgery is 7/20 > > Hi all, I'm not a regular poster but as my surgery grows closer I'm > becoming a bit more nervous. I finished my neoadjuvant chemo > to shrink > the tumor on 6/13/06. My major side effects were a very > painful rectal > fissure, which I am still treating, and shingles. I am > scheduled for a > lumpectomy with sentinel node biopsy next Thursday. I also > signed the > consent for a full axillary dissection if necessary. The > surgery is a > big deal for me because the most invasive surgery I've had > thus far is > the insertion of my port. I've been on vacation last week and this > week, and this week has been especially relaxing. I was told that I > have a 50/50 chance of my nodes being positive, and if they > are I have > to get a round of Taxol. I just wish that the oncology nurses had > warned me how terribly constipating chemo could be and the importance > of adding a lot of extra fiber to your diet, and so many of my side > effects could have been eliminated. I had Adriamycin and > Cytoxan, and > received Neupogen injections and am still receiving Procrit. > I lost so > much blood from the rectal bleeding that I almost needed a blood > transfusion. I am absolutely AMAZED by the cost of this > treatment thus > far!!! I just thought I would check in and say hi. I still > read many > posts but lurk more than anything. This group is certainly an > excellent source of support!! Thanks everyone! Therese in Ohio > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 Hi, Therese - Good luck with your surgery on 20 July. Mine was on 8 May, and although it was a complete mastectomy I've healed well and had no lasting problems. I had 5 positive out of 15 nodes, and I'm having radiotherapy now. I had neoadjuvant chemo too, and the constipation was awful. Eventually my oncologist had me stay in hospital overnight, to have enemas (yuk) and laxatives, and that fixed me temporarily. But he sent me home with a big bottle of Lactulose - http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a682338.html - and that was really useful. Advice to those in chemo - drink lots of fluid, and take a laxative for two days before and five days after each treatment. And ask your doctor for help before it gets serious. Margery. ============================================ margery@... in North Herts, UK ============================================ > Surgery is 7/20 > > Hi all, I'm not a regular poster but as my surgery grows closer I'm > becoming a bit more nervous. I finished my neoadjuvant chemo > to shrink > the tumor on 6/13/06. My major side effects were a very > painful rectal > fissure, which I am still treating, and shingles. I am > scheduled for a > lumpectomy with sentinel node biopsy next Thursday. I also > signed the > consent for a full axillary dissection if necessary. The > surgery is a > big deal for me because the most invasive surgery I've had > thus far is > the insertion of my port. I've been on vacation last week and this > week, and this week has been especially relaxing. I was told that I > have a 50/50 chance of my nodes being positive, and if they > are I have > to get a round of Taxol. I just wish that the oncology nurses had > warned me how terribly constipating chemo could be and the importance > of adding a lot of extra fiber to your diet, and so many of my side > effects could have been eliminated. I had Adriamycin and > Cytoxan, and > received Neupogen injections and am still receiving Procrit. > I lost so > much blood from the rectal bleeding that I almost needed a blood > transfusion. I am absolutely AMAZED by the cost of this > treatment thus > far!!! I just thought I would check in and say hi. I still > read many > posts but lurk more than anything. This group is certainly an > excellent source of support!! Thanks everyone! Therese in Ohio > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 Hi , I'm right outside Toledo. It was the Compazine that constipated me so badly!! Therese > > Amen to that! I wish I'd had a lot more sound advice > about the constipating effects of the meds, as well > (especially, in my case, the anti-nausea meds). In Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 YES!! I had forgotten, it was the compazine that did me in, too! Why don't they advertise that problem with it???? It could save a lot of women a LOT of unnecessary aggravation! Well, I'm in Oberlin, so I guess I " m about an hour east of you. I'm in the Cleveland network (University Hospitals), you're probably in a different group. ALL YOU WOMEN TAKING COMPAZINE, TAKE NOTE: IT IS HORRIBLY TERRIBLY PAINFULLY CONSTIPATING SO TAKE PRO-ACTIVE MEASURES AGAINST THESE SIDE EFFECTS!!!!!!!!!!! --- therese1000 wrote: > Hi , > > I'm right outside Toledo. > > It was the Compazine that constipated me so badly!! > > Therese > > > > > > Amen to that! I wish I'd had a lot more sound > advice > > about the constipating effects of the meds, as > well > > (especially, in my case, the anti-nausea meds). > In > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2006 Report Share Posted July 13, 2006 YES!! I had forgotten, it was the compazine that did me in, too! Why don't they advertise that problem with it???? It could save a lot of women a LOT of unnecessary aggravation! Well, I'm in Oberlin, so I guess I " m about an hour east of you. I'm in the Cleveland network (University Hospitals), you're probably in a different group. ALL YOU WOMEN TAKING COMPAZINE, TAKE NOTE: IT IS HORRIBLY TERRIBLY PAINFULLY CONSTIPATING SO TAKE PRO-ACTIVE MEASURES AGAINST THESE SIDE EFFECTS!!!!!!!!!!! --- therese1000 wrote: > Hi , > > I'm right outside Toledo. > > It was the Compazine that constipated me so badly!! > > Therese > > > > > > Amen to that! I wish I'd had a lot more sound > advice > > about the constipating effects of the meds, as > well > > (especially, in my case, the anti-nausea meds). > In > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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