for Tami re: hormone levels

[Guest guest]

Hollis,

Yeah, I did get the ovaries removed. I was

put on Premarin initially. I started to have problems

last year around feb/march with hormones. I was put on

that little pill you insert in your vagina. I cant

remember the name, but I had a severe allergic

reaction. After that they put me on a vaginal ring. I

dont remember that name either lol My memory has

gotten much worse. I couldnt stand the pain that the

ring caused so I started to go through Pete and he

started compounding. I ended up with only estradiol in

a capsule and I became even allergic to that. What was

happening is that I was allergic to hormones period. I

did not have this problem before and I knew I better

find out whats causing this becouse I cant go the rest

of my life with hormones. I went to a allery dr. and

he just tested me for pollin ect... I did research

upon research and figured since I also had the

Glabrata yeast problem in my mouth and vagina. I also

have sores and the biopsy came back pityrosporum

folliculitis which is a over growth of yeast in the

hair follicule. I thought well I probably have

systemic yeast becouse one of the symptoms was

allergies and white blotches which I had. Well no drs.

believed me. It wasnt till Dr. Metzger when I finally

got my stool tested. Yep I had an over growth of

glabrata in the intestines. After I started treatment

for that I was able to compounded E and when I got a

little better I could use Estrace. So I use the E & T

topically along with Estrace vaginally a couple of

times a week. Im also trying the atropin/ket/bio

suppositories again since doing the Bv treatment. I

also you the Baclofen/Elavil. I only have 1 vagina so

I have to try and work all that in. Becouse of the

suppositories I did get to a point in June and July

where I could have and enjoy sex. I ended up with BV

and it threw everything out of wack. Ive since been

trying to get back to that place of being able to have

and enjoy sex again. I still continued to have all my

other pain, but that annoying burning and vaginal pain

did go away for a couple of months. I do get Medicare

and Medicade. Becouse Medicare picked up the

prescription coverage im able to get my meds. through

Pete covered. Prior to Jan. when medicade covered my

prescription I had to pay for anything compounded or

through Pete.

I see Dr. Punch tomorrow and I'll ask her to add

Estrogen in a pill form, but as far as getting my

hormones checked im sure she will say no. She may not

even give me Estrace and a E pill? I'll try to tell

her, will see what happens. I do have 2 more apts.

with 2 other obgyns I see incase one says no I go to

the next lol If all 3 say no I dont know what I can

do? I tried looking for a Lyme specialist in the

yellow pages, but there isnt any/ Do you know what

kind of dr. who would be a Lyme specialist like maybe

a Allergy dr.? I called the 2 rheumatologist offices

they had in the yellow pages. One didnt take my

insurance and the other one said they dont give apt.

till they give the dr. my problems and then they will

call me back to tell me if he will take me as a

patient or not. Can you believe that? I told them I

wanted to be checked for fibromyalgia and I have

arthritis in my knees, hips and elbow and I wanted to

know what kind it is. It's spreading pretty fast. It

started at the end of winter with one knee and it's

just going from joint to joint. I'll let ya know what

she says about the hormones when I get back tomorrow.

Kind Regards, Tami

--- Zdamask@... wrote:

> In a message dated 8/21/2006 4:44:20 AM Eastern

> Daylight Time,

> tamiwillgetbtr@... writes:

>

>

> > They all said " Well of course your low

> > you had a hystorectomy "

>

> Tami,

>

> If your doctors truly does not grasp that anyone

> who's

> had a hysterectomy, even if the ovaries were not

> removed (were they?), MUST have hormone replacement,

> then you must find a doctor who does.

>

> I can't remember. . . Do you receive Medicare

> benefits thru

> Social Security Disability Insurance, as well as

> Michigan

> Medicaid? I have both Medicare and, as secondary

> coverage, state Medicaid, and have had no trouble

> having

> ob/gyn stuff covered. I think i remember you talking

> about

> your new Part D Medicare coverage. If you do have

> that,

> then you have the means to get what you need. But

> YOU

> have to be the one to find a decent doctor willing

> to do

> the testing and write the Rx's. I know you've had a

> long

> series of bad experiences with doctors. . . and it

> sucks

> (we've all been there), but it's just not going to

> happen

> unless you're persistant and insistant and MAKE it

> happen.

>

> I couln't agree more with what Dusty wrote to you

> about

> the crucial need to get proper systemic hormone

> replacement.

> The lack of proper hormone levels could have a whole

> lot to

> do with the symptoms you're experiencing. You MAY

> have

> Lyme; you MAY have some form of arthritis. You MAY

> have

> some other condition. But you can be assured that

> with

> a hysterectomy and no hormone replacement, you

> definitely

> DO have hormone imbalances that really, really need

> to be

> properly addressed. And that means more than using

> some

> topical E & T.

>

> Hollis

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Not much to add but just to add how much I also agree with Hollis & Dusty for you Tami needing systemic hormone replacement. Hope you fight and argue hon to be tested and to be put on some HRT replacement. (by the way not only the E but T as well since being on E alone further depletes the testosterone). Good luck Tami

Dee~

[Guest guest]

Maybe

Tami, if the doc balks, you should repeat that you have no ovaries and a no

uterus and you have been without systemic estrogen since (since when –

shortly after your surgery or whenever?).

Ask the doc what

possible concerns he/she could have for testing and then prescribing systemic

estrogen replacement for your (pills, patches or troches- which are under the

tongue thingy’s that melt there) are what you are interested

in. Once you listen to the docs concerns – if you still want

the systemic estrogen then tell the doc that you are willing to ACCEPT the risks

in order to see if you can get well enough to live a healthy happy life.

Dusty

Re: for Tami re:

hormone levels

Hollis,

Yeah, I did get the ovaries removed. I was

put on Premarin initially. I started to have problems

last year around feb/march with hormones. I was put on

that little pill you insert in your vagina. I cant

remember the name, but I had a severe allergic

reaction. After that they put me on a vaginal ring. I

dont remember that name either lol My memory has

gotten much worse. I couldnt stand the pain that the

ring caused so I started to go through Pete and he

started compounding. I ended up with only estradiol in

a capsule and I became even allergic to that. What was

happening is that I was allergic to hormones period. I

did not have this problem before and I knew I better

find out whats causing this becouse I cant go the rest

of my life with hormones. I went to a allery dr. and

he just tested me for pollin ect... I did research

upon research and figured since I also had the

Glabrata yeast problem in my mouth and vagina. I also

have sores and the biopsy came back pityrosporum

folliculitis which is a over growth of yeast in the

hair follicule. I thought well I probably have

systemic yeast becouse one of the symptoms was

allergies and white blotches which I had. Well no drs.

believed me. It wasnt till Dr. Metzger when I finally

got my stool tested. Yep I had an over growth of

glabrata in the intestines. After I started treatment

for that I was able to compounded E and when I got a

little better I could use Estrace. So I use the E & T

topically along with Estrace vaginally a couple of

times a week. Im also trying the atropin/ket/bio

suppositories again since doing the Bv treatment. I

also you the Baclofen/Elavil. I only have 1 vagina so

I have to try and work all that in. Becouse of the

suppositories I did get to a point in June and July

where I could have and enjoy sex. I ended up with BV

and it threw everything out of wack. Ive since been

trying to get back to that place of being able to have

and enjoy sex again. I still continued to have all my

other pain, but that annoying burning and vaginal pain

did go away for a couple of months. I do get Medicare

and Medicade. Becouse Medicare picked up the

prescription coverage im able to get my meds. through

Pete covered. Prior to Jan. when medicade covered my

prescription I had to pay for anything compounded or

through Pete.

I see Dr. Punch tomorrow and I'll ask her to add

Estrogen in a pill form, but as far as getting my

hormones checked im sure she will say no. She may not

even give me Estrace and a E pill? I'll try to tell

her, will see what happens. I do have 2 more apts.

with 2 other obgyns I see incase one says no I go to

the next lol If all 3 say no I dont know what I can

do? I tried looking for a Lyme specialist in the

yellow pages, but there isnt any/ Do you know what

kind of dr. who would be a Lyme specialist like maybe

a Allergy dr.? I called the 2 rheumatologist offices

they had in the yellow pages. One didnt take my

insurance and the other one said they dont give apt.

till they give the dr. my problems and then they will

call me back to tell me if he will take me as a

patient or not. Can you believe that? I told them I

wanted to be checked for fibromyalgia and I have

arthritis in my knees, hips and elbow and I wanted to

know what kind it is. It's spreading pretty fast. It

started at the end of winter with one knee and it's

just going from joint to joint. I'll let ya know what

she says about the hormones when I get back tomorrow.

Kind Regards, Tami

--- Zdamaskwmconnect

wrote:

> In a message dated 8/21/2006 4:44:20 AM Eastern

> Daylight Time,

> tamiwillgetbtr

writes:

>

>

> > They all said " Well of course your low

> > you had a hystorectomy "

>

> Tami,

>

> If your doctors truly does not grasp that anyone

> who's

> had a hysterectomy, even if the ovaries were not

> removed (were they?), MUST have hormone replacement,

> then you must find a doctor who does.

>

> I can't remember. . . Do you receive Medicare

> benefits thru

> Social Security Disability Insurance, as well as

> Michigan

> Medicaid? I have both Medicare and, as secondary

> coverage, state Medicaid, and have had no trouble

> having

> ob/gyn stuff covered. I think i remember you talking

> about

> your new Part D Medicare coverage. If you do have

> that,

> then you have the means to get what you need. But

> YOU

> have to be the one to find a decent doctor willing

> to do

> the testing and write the Rx's. I know you've had a

> long

> series of bad experiences with doctors. . . and it

> sucks

> (we've all been there), but it's just not going to

> happen

> unless you're persistant and insistant and MAKE it

> happen.

>

> I couln't agree more with what Dusty wrote to you

> about

> the crucial need to get proper systemic hormone

> replacement.

> The lack of proper hormone levels could have a whole

> lot to

> do with the symptoms you're experiencing. You MAY

> have

> Lyme; you MAY have some form of arthritis. You MAY

> have

> some other condition. But you can be assured that

> with

> a hysterectomy and no hormone replacement, you

> definitely

> DO have hormone imbalances that really, really need

> to be

> properly addressed. And that means more than using

> some

> topical E & T.

>

> Hollis

>

>

>

>

>

>

__________________________________________________

[Guest guest]

HI Everyone... Maybe we need to back up a bit with Tami and her systemic hormones (myself included) *smile*

HI Hon.... after seeing you write this...

''After I started treatment for that I was able to compounded E and when I got a little better I could use Estrace. So I use the E & T topically along with Estrace vaginally a couple of times a week.''

So it DOES seem you are using Estrace 'systemically' hon. By using it inside of the vagina twice a week is exactly what would be prescribed for someone who wanted to use it systemically for their HRT replacement as well as for the vulvar area.

In fact using the E cream that way *intravaginally* is probably a bit more potent than the pills, or oral (depending on strength) but far less than the patch or Estring or even the Vagifem.

So my deepest apologys' hon.. I thought like some others that you were only using it topically. That should be enough for you. But as I've also mentioned I would consider adding the T too systemically, and even that can be used on the arms and legs for systemic absorption or sublingual form.

BUT If you are not on that intravaginal E use now? .. I stick to the original thought hon with how you definitely need something for your whole body. *smile*..

Hang in there

hugs

Dee~

[Guest guest]

So it DOES seem you are using Estrace 'systemically' hon. By using it inside of the vagina twice a week is exactly what would be prescribed for someone who wanted to use it systemically for their HRT replacement as well as for the vulvar area.

Ah, the eagle-eyed Dee strikes again! I missed that, forgetting that Estrace

does work systemically. . . .

But, Tami, you still need to get your levels tested so you know if they're sufficient!

Hollis

[Guest guest]

Ditto

to Dee and Hollis and to repeat that a 35 yr old woman with no uterus and no

ovaries should be tested at a minimum, once a year. My 42 yr old

neighbor – same scenario. She uses Troches (under the tongue) and

she is tested every 6 months and sooner if there is a problem perceived by her.

Dusty

for Tami re:

hormone levels

In a message dated

8/23/2006 2:54:20 AM Eastern Daylight Time, dtrollcboss writes:

So it DOES seem you are using Estrace 'systemically' hon. By using it

inside of the vagina twice a week is exactly what would be prescribed for

someone who wanted to use it systemically for their HRT replacement as well as

for the vulvar area.

Ah, the eagle-eyed Dee strikes again! I missed that, forgetting that

Estrace

does work systemically. . . .

But, Tami, you still need to get your levels tested so you know if they're

sufficient!

Hollis

[Guest guest]

Hello,

I forgot to tell Dee in my last post that along

with the E & T Topically compounded through Pete I

also use Estrace vaginally. I did get oral Estrodial

0.5% along with the topical and vaginal. She didnt

give me the script to get my levels tested. She said

they where already tested and im fine. When I come

back in 3 months after being on the oral she will test

my levels than. Hek, im surprised she added oral E lol

I really didnt think I'd get it *smile* Thanks ladies

for all your posts. I think it did help me get the

oral E. Im wondering though if it's too much?

Kind Regards, Tami

--- Dusty wrote:

> Ditto to Dee and Hollis and to repeat that a 35 yr

> old woman with no uterus

> and no ovaries should be tested at a minimum, once a

> year. My 42 yr old

> neighbor - same scenario. She uses Troches (under

> the tongue) and she is

> tested every 6 months and sooner if there is a

> problem perceived by her.

>

>

>

> Dusty

>

>

>

> for Tami re: hormone levels

>

>

>

> In a message dated 8/23/2006 2:54:20 AM Eastern

> Daylight Time,

> dtroll@... writes:

>

>

>

>

> So it DOES seem you are using Estrace 'systemically'

> hon. By using it

> inside of the vagina twice a week is exactly what

> would be prescribed for

> someone who wanted to use it systemically for their

> HRT replacement as well

> as for the vulvar area.

>

>

>

> Ah, the eagle-eyed Dee strikes again! I missed

> that, forgetting that

> Estrace

> does work systemically. . . .

>

> But, Tami, you still need to get your levels tested

> so you know if they're

> sufficient!

>

> Hollis

>

>

>

>

__________________________________________________

[Guest guest]

I’m

keeping my fingers and toes crossed for ya, Tami.

Dusty

for Tami re: hormone levels

>

>

>

> In a message dated 8/23/2006 2:54:20 AM Eastern

> Daylight Time,

> dtrollcboss writes:

>

>

>

>

> So it DOES seem you are using Estrace 'systemically'

> hon. By using it

> inside of the vagina twice a week is exactly what

> would be prescribed for

> someone who wanted to use it systemically for their

> HRT replacement as well

> as for the vulvar area.

>

>

>

> Ah, the eagle-eyed Dee strikes again! I missed

> that, forgetting that

> Estrace

> does work systemically. . . .

>

> But, Tami, you still need to get your levels tested

> so you know if they're

> sufficient!

>

> Hollis

>

>

>

>

__________________________________________________

[Guest guest]

Tami - How are you feeling on your oral meds? I know its way too soon, but I'm just curious for you.

Dusty

-----Original Message-----From: VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of Tami SchneiderSent: Thursday, August 24, 2006 5:02 PMTo: VulvarDisorders Subject: RE: for Tami re: hormone levels

Hello,I forgot to tell Dee in my last post that alongwith the E & T Topically compounded through Pete Ialso use Estrace vaginally. I did get oral Estrodial0.5% along with the topical and vaginal. She didntgive me the script to get my levels tested. She saidthey where already tested and im fine. When I comeback in 3 months after being on the oral she will testmy levels than. Hek, im surprised she added oral E lolI really didnt think I'd get it *smile* Thanks ladiesfor all your posts. I think it did help me get theoral E. Im wondering though if it's too much? Kind Regards, Tami--- Dusty <dustybrookehurst (DOT) net> wrote:

..

[Guest guest]

Dusty,

Im working my way down the emails *smile* I

wanted to tell you that I did clear up that bout of

B.V and im back on the suppositories and im burn free

again. I knew something was wrong when I quit

responding. Im currently waiting to see a Lyme

specialist at the end of the month. In the mean time I

asked my family care Dr. to please start me on

treatment for the Lyme. I got Doxy. and I was able to

take a day and a half worth and I got 2 good days

relief ( symptoms lessened). I had severe acid reflux

though and abdominal pain from it so I couldnt

continue. I asked my family care dr. to call me in

something else because I wanted to see if im truely

responding to the antibiotic or was it just a

coincidence. He called me in Amoxicillin and Ive been

on it a few days and im comfortable. He still deny's I

have Lyme and says maybe I responded to the antibiotic

because I have I.C I was tested 5 years ago, I know I

could have gotten it since then, but all my symptoms

are managable with my pain meds. Prior I was suffering

terrible now Ive been running from morning till night

catching up on house work, school shopping, and arons

and im comfortable. I do have chronic low back, low

abdomin, right leg, right arm pain. My knees have some

type of arthritis in the last year and those are

bothersome, but Im comfortable. I cant see I.C

effecting all that. When I see this Lyme specialist im

going to get another test, but in the mean time im

comfortable. Oh Yeah the hormones? I really dont

notice anything yet. Ive only been responding to the

antibiotic and those suppositories. Thanks for your

concern and I will talk to you soon my friend.

Kind Regards, Tami

--- Dusty wrote:

> Tami - How are you feeling on your oral meds? I

> know its way too soon, but

> I'm just curious for you.

>

> Dusty

>

> RE: for Tami re: hormone levels

>

>

>

> Hello,

> I forgot to tell Dee in my last post that along

> with the E & T Topically compounded through Pete I

> also use Estrace vaginally. I did get oral Estrodial

> 0.5% along with the topical and vaginal. She didnt

> give me the script to get my levels tested. She said

> they where already tested and im fine. When I come

> back in 3 months after being on the oral she will

> test

> my levels than. Hek, im surprised she added oral E

> lol

> I really didnt think I'd get it *smile* Thanks

> ladies

> for all your posts. I think it did help me get the

> oral E. Im wondering though if it's too much?

> Kind Regards, Tami

>

> --- Dusty <dustybrookehurst (DOT)

> <mailto:dusty%40brookehurst.net> net>

> wrote:

>

>

> Recent Activity

>

> *

>

> 10

> New

>

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>

[Guest guest]

I'm really glad you are feeling some relief Tami. That's a good thing.

But, How do you know it isn't the hormones making you feel better and not the antibiotic? Plenty of energy is a sign of increased estrogen availability. When I started using estrogen, it was the very first benefit I noticed - increased energy.

Whatever it is - its a good thing

Regards

Dusty

-----Original Message-----From: VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of Tami SchneiderSent: Sunday, September 10, 2006 12:33 AMTo: VulvarDisorders Subject: RE: for Tami re: hormone levels

Dusty,Im working my way down the emails *smile* Iwanted to tell you that I did clear up that bout ofB.V and im back on the suppositories and im burn freeagain. I knew something was wrong when I quitresponding. Im currently waiting to see a Lymespecialist at the end of the month. In the mean time Iasked my family care Dr. to please start me ontreatment for the Lyme. I got Doxy. and I was able totake a day and a half worth and I got 2 good daysrelief ( symptoms lessened). I had severe acid refluxthough and abdominal pain from it so I couldntcontinue. I asked my family care dr. to call me insomething else because I wanted to see if im truelyresponding to the antibiotic or was it just acoincidence. He called me in Amoxicillin and Ive beenon it a few days and im comfortable. He still deny's Ihave Lyme and says maybe I responded to the antibioticbecause I have I.C I was tested 5 years ago, I know Icould have gotten it since then, but all my symptomsare managable with my pain meds. Prior I was sufferingterrible now Ive been running from morning till nightcatching up on house work, school shopping, and aronsand im comfortable. I do have chronic low back, lowabdomin, right leg, right arm pain. My knees have sometype of arthritis in the last year and those arebothersome, but Im comfortable. I cant see I.Ceffecting all that. When I see this Lyme specialist imgoing to get another test, but in the mean time imcomfortable. Oh Yeah the hormones? I really dontnotice anything yet. Ive only been responding to theantibiotic and those suppositories. Thanks for yourconcern and I will talk to you soon my friend.Kind Regards, Tami

..