Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 I don't know how everybody on this list can sound so jolly. I keep reaching the end of my rope and climbing back up... just to slide down to the end again. I've only had cu for 5 months. My docs say I have a servere case. I don't if it's true. Right now I have what I call a mild outbreak with about 40 wheals. (sp?) I get an outbreak twice a day every day ... in the morning and night. I can't work and I'm trying to cope but am discouragted. I was hospitalized last week.. for something they think is unrelated. My potasium dipped to dangerously low levels. They say it's not related to the way I eat, but they have no idea why it happened, nor did they give me any adivce on how to avoid it in the future. Has anyone else had a potasium problem with CU ??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 Hi Sorry to hear you're feeling low. I think we all go in and out of feeling like that.........hope the joking around doesn't bother you - it's a bit like working in a hospital; you get your laughs where you can or you'd go nuts. By the way, I had a viral illness (??) of some kind a couple of years ago that made me feel dizzy for weeks and because I do work in a hospital (!) they checked me out thoroughly. My potassium levels were low, too, at that point (but not dangerously low) and I had to drink horrid potassium supplements for a couple of days. When the level was checked again it was back to normal. I was told your potassium level can drop if you are stressed. ?? Probably not in your case but I wanted to mention that I have had a slight problem with it. Best wishes, Carol Losing it ... > > I don't know how everybody on this list can sound so jolly. > I keep reaching the end of my rope and climbing back up... > just to slide down to the end again. > > I've only had cu for 5 months. My docs say I have a servere > case. I don't if it's true. Right now I have what I > call a mild outbreak with about 40 wheals. (sp?) > > I get an outbreak twice a day every day ... in the morning and > night. I can't work and I'm trying to cope but am > discouragted. > > I was hospitalized last week.. for something they think is unrelated. > My potasium dipped to dangerously low levels. They say > it's not related to the way I eat, but they have no idea why it > happened, nor did they give me any adivce on how to avoid it > in the future. > > Has anyone else had a potasium problem with CU ??? > > > > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > urticaria-unsubscribeegroups > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Information provided in this forum is not to be taken as medical advice. Always consult your health professional before trying anything new. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 HI LESLIE,I HAVE ALSO HAD HIVES FOR FIVE MONTHS AND AT THE BEGINNING WITH ALL MY BLOOD WORK I WAS TOLD MY POTASSIUM IS EXTREMELY LOW . I WAS PUT ON POTASSIUM PILLS BUT AM AFRAID TO TAKE THEM FOR FEAR I MIGHT BE ALLERGIC TO THEM. I HAD ALL MY BLOOD WORK RETESTED AND IT SAID MY POTASSIUM WAS FINE. I AM LIKE SOME OF THE OTHERS, I HAD A BAD CAVITIE FILLED AFTER MY DENTIST X-RAYED AND FELT IT HAD NOTHING TO DO WITH MY HIVES, AND FOR 11 DAYS AFTER I WAS HIVE FREE, I HAVE HAD SOME SMALL OUTBREAKS IN THE PAST ABOUT WEEK, THE MOST BEING ABOUT10-15 HIVES . I AM GOING TO ASK FOR AN ANTIBIOTIC TO SEE IF THE ROOT WAS BADLY INFECTED BECAUSE I HAD SUCH A GOOD STRETCH AFTER THE MEDICATED FILLING. SORRY TO GO ON SO LONG, BYE TAMMY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 Good Morning .. Carol certainly said it perfectly: " Sorry to hear you're feeling low. I think we all go in and out of feeling like that.........hope the joking around doesn't bother you - it's a bit like working in a hospital; you get your laughs where you can or you'd go nuts. " I wish so much that I were truly light-hearted and could outline a path to " sounding jolly " amid so much suffering. Even in lots of my humor I can see the pain - but when I can accomplish it, which is not as often as I would like, it is more creative and satisfying to me than crying and screaming. Like the riddle I wrote yesterday. It is filled with my loneliness, disappointment and deep deep sadness. However, it was FUN TO DO - it took a lot of time to think it out, to size the letters, to choose the colors - and look at the great answers I got!!!! If I had cried my eyes out instead, I just would have felt even more wretched, plus I would have had swollen eyes. But, of course, when I am in the middle of severe swelling and pain and itching it is a lot harder and sometimes impossible for me to kid around. If I were in the situation you describe, I may not be able to laugh too much. If you access past posts, you can see that almost everyone has had days when it was only possible to cry or scream. This site gives hope: you may gather information that will help you improve/gain some control over the CU!!!! Best wishes, Tree Losing it ... > > I don't know how everybody on this list can sound so jolly. > I keep reaching the end of my rope and climbing back up... > just to slide down to the end again. > > I've only had cu for 5 months. My docs say I have a servere > case. I don't if it's true. Right now I have what I > call a mild outbreak with about 40 wheals. (sp?) > > I get an outbreak twice a day every day ... in the morning and > night. I can't work and I'm trying to cope but am > discouragted. > > I was hospitalized last week.. for something they think is unrelated. > My potasium dipped to dangerously low levels. They say > it's not related to the way I eat, but they have no idea why it > happened, nor did they give me any adivce on how to avoid it > in the future. > > Has anyone else had a potasium problem with CU ??? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 At 06:54 AM 10/13/2001 +0000, you wrote: I don't know how everybody on this list can sound so jolly. I keep reaching the end of my rope and climbing back up... just to slide down to the end again. I'm sorry you've not been feeling well, and I wish with all my heart I could tell you how to keep your spirits up, how to find laughter, or how to cope with all this misery,or how to keep your hopes up that it will one day go away. I don't even have so much as the smallest hint of comfort for you, but we've got this list and a flock of people that totally understand the insanity of all this discomfort and confusion and all I can say is we are here if you need us. Cara, Cara's Poetry Cove http://www.snowcrest.net/cara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 Hi , I too break out twice a day! In the morning and at night also!! Are you on any meds? I haven't read any of the other e-mails yet, been away for the day and just catching up. I used to break out REAL bad, now i'm on Zyrtec twice a day and 150 Zantac twice a day and now my doc just ordered Zyrtec-D, which has helped my breathing tremendously. I still hive but nothing like I used to. It will be a year next month that this has started. Please tell me more about how you break out. I thought I was the only one! Steroids (prednisone) never worked for me either. Take care and i'm hoping you feel better real soon, Ann >From: leslie77@... >Reply-To: urticaria >To: urticaria >Subject: Losing it ... >Date: Sat, 13 Oct 2001 06:54:23 -0000 > > >I don't know how everybody on this list can sound so jolly. >I keep reaching the end of my rope and climbing back up... >just to slide down to the end again. > >I've only had cu for 5 months. My docs say I have a servere >case. I don't if it's true. Right now I have what I >call a mild outbreak with about 40 wheals. (sp?) > >I get an outbreak twice a day every day ... in the morning and >night. I can't work and I'm trying to cope but am >discouragted. > >I was hospitalized last week.. for something they think is unrelated. >My potasium dipped to dangerously low levels. They say >it's not related to the way I eat, but they have no idea why it >happened, nor did they give me any adivce on how to avoid it >in the future. > >Has anyone else had a potasium problem with CU ??? > > > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 Hi , I too break out twice a day! In the morning and at night also!! Are you on any meds? I haven't read any of the other e-mails yet, been away for the day and just catching up. I used to break out REAL bad, now i'm on Zyrtec twice a day and 150 Zantac twice a day and now my doc just ordered Zyrtec-D, which has helped my breathing tremendously. I still hive but nothing like I used to. It will be a year next month that this has started. Please tell me more about how you break out. I thought I was the only one! Steroids (prednisone) never worked for me either. Take care and i'm hoping you feel better real soon, Ann >From: leslie77@... >Reply-To: urticaria >To: urticaria >Subject: Losing it ... >Date: Sat, 13 Oct 2001 06:54:23 -0000 > > >I don't know how everybody on this list can sound so jolly. >I keep reaching the end of my rope and climbing back up... >just to slide down to the end again. > >I've only had cu for 5 months. My docs say I have a servere >case. I don't if it's true. Right now I have what I >call a mild outbreak with about 40 wheals. (sp?) > >I get an outbreak twice a day every day ... in the morning and >night. I can't work and I'm trying to cope but am >discouragted. > >I was hospitalized last week.. for something they think is unrelated. >My potasium dipped to dangerously low levels. They say >it's not related to the way I eat, but they have no idea why it >happened, nor did they give me any adivce on how to avoid it >in the future. > >Has anyone else had a potasium problem with CU ??? > > > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 Hi and welcome, . As so many have already said, I'm sorry you are feeling so lousy right now. We can all relate - this disease is a series of ups and downs. When I first started this nearly 14 years ago, I was covered in hives every day, head to toe, all day long. I was also going into anaphylatic shock on a regular basis, sometimes even several times a day. We finally got things under control with high dosage, long term prednisone. Unfortunately, no one remembered to tell me to take extra calcium and potassium with pred, and I went into hypocalcemia (dangerously low calcium levels). I am not familiar with the meds you are on, but is there any chance your low potassium levels could be a side effect of your meds? Or have you recently been on prednisone or other corticosteroid? Just a thought... Anyhow, once you get to know this disease a little better, and understand how it affects you, you will become more comfortable in dealing with it. I've found that fear is my worst enemy, often worsening my symptoms. Life does go on, and I'm determined to live it as normally as I can, regardless. Some people do go into spontaneous remissions, some even find the root cause, so there is hope. This group is a God-send for many of us. Ask questions, read all you can. Knowledge is power. Hang in there. Air hugs, Jackie Life is tough, but I'm tougher. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 Hi and welcome, . As so many have already said, I'm sorry you are feeling so lousy right now. We can all relate - this disease is a series of ups and downs. When I first started this nearly 14 years ago, I was covered in hives every day, head to toe, all day long. I was also going into anaphylatic shock on a regular basis, sometimes even several times a day. We finally got things under control with high dosage, long term prednisone. Unfortunately, no one remembered to tell me to take extra calcium and potassium with pred, and I went into hypocalcemia (dangerously low calcium levels). I am not familiar with the meds you are on, but is there any chance your low potassium levels could be a side effect of your meds? Or have you recently been on prednisone or other corticosteroid? Just a thought... Anyhow, once you get to know this disease a little better, and understand how it affects you, you will become more comfortable in dealing with it. I've found that fear is my worst enemy, often worsening my symptoms. Life does go on, and I'm determined to live it as normally as I can, regardless. Some people do go into spontaneous remissions, some even find the root cause, so there is hope. This group is a God-send for many of us. Ask questions, read all you can. Knowledge is power. Hang in there. Air hugs, Jackie Life is tough, but I'm tougher. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 Hi and welcome, . As so many have already said, I'm sorry you are feeling so lousy right now. We can all relate - this disease is a series of ups and downs. When I first started this nearly 14 years ago, I was covered in hives every day, head to toe, all day long. I was also going into anaphylatic shock on a regular basis, sometimes even several times a day. We finally got things under control with high dosage, long term prednisone. Unfortunately, no one remembered to tell me to take extra calcium and potassium with pred, and I went into hypocalcemia (dangerously low calcium levels). I am not familiar with the meds you are on, but is there any chance your low potassium levels could be a side effect of your meds? Or have you recently been on prednisone or other corticosteroid? Just a thought... Anyhow, once you get to know this disease a little better, and understand how it affects you, you will become more comfortable in dealing with it. I've found that fear is my worst enemy, often worsening my symptoms. Life does go on, and I'm determined to live it as normally as I can, regardless. Some people do go into spontaneous remissions, some even find the root cause, so there is hope. This group is a God-send for many of us. Ask questions, read all you can. Knowledge is power. Hang in there. Air hugs, Jackie Life is tough, but I'm tougher. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
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