Re: HIVES AND LUPUS

October 11, 2001

--

That's an interesting thought and question ... I wonder how many have had or do have other autoimmune-type illness/conditions ... I have had rheumatoid arthritis for about 15 years (not severe but have been on medication daily)

Barbara -- SoCal

After being on this site for quite a while now, I have not seen anyone say that they have lupus ~ that they have been diagnosed with it. Can hives appear with any autoimmune disease??

October 11, 2001

Hi LInda,

It's funny this question should come up b/c I just met w/my doc at Mayo

Clinic in August and had a full work up. I have CU as well as severe lung

problems and immune deficiency. Anyway, it is her opinion that *my* CU is a

byproduct of an autoimmune process going on.....and we've been looking at

lupus, crohn's and another disease called wegener's. It's very difficult to

diagnosis these illnesses, especially with all of hte immunosuppressives like

steroids many of us take. However, the ANA is a good place to start,

although that again is a lot of times positive in people who don't have

lupus. The sed rate is also a good indicator, it shows inflammation in the

body somewhere. Right now, my ANA is highly positive, my sed rate is

elevated, and my ANCA (related ot ana) is also positive. Things like anemia

also go along w/lupus al ot of times. THe best thign I think is to consult

w/a rheumatologist or immunologist who could evaluate you. Without more

symptoms though, a diagnosis is hard to pin down. My doc reminds me tha it

often takes years for the diseaes to emerge enough to get a good diagnosis.

Anyway, Ih ope this helps. Let me knwo if you want more info!

Sincerely,

Maddy

October 11, 2001

Hi ,

I'm sorry you are having a rough day. I have hives now for almost a year,

next month will make it the " official " year. They too are trying to

pinpoint my hives to an autoimmune disease. At first they thought it was

something called " Dermatomyositis " and then it was pointing more towards

lupus. I have had some blood levels that are abnormal: Betaglycoprotein

IgA & IgM were high, PTT-LA was a little elevated and the Anticardiolipin

was up. They put my on a baby aspirin daily, because the doc said I was

more at risk for blood clots, TIA and stroke, (how comforting) because my

blood is sticky. The doctor said I don't have any other symptoms to

support Lupus, but they will repeat the tests next month. I too am to the

point where I'm not sure I want to repeat these levels. I don't believe it's

Lupus.

You said your ANA was up one time and down the next? If I'm not mistaking,

I think various reasons would make this become elevated. Have you been able

to pinpoint anything that makes you hive? It is such a weird disease ! I

hope you find relief soon.

Take care, Ann

>From: winnieag@...

>Reply-To: urticaria

>To: urticaria

>Subject: HIVES AND LUPUS

>Date: Thu, 11 Oct 2001 22:42:52 -0000

>

>Hi all!

> I have asked this question before, but thought I'd try again ~

>really didn't get much of a response... I have had all types of

>hives (except cold urticaria) for 15 years. The allergy tests have

>come back with nothing! So, over the years, I have tried to

>eliminate things, add things, and have seen about 5 different kinds

>of doctors. I have been on Claritin in the AM to work and Atarax at

>night to sleep. There are days when I am almost clear. But most

>days, I have at least 10 or more hives on my in some shape or form.

>I get all kinds! In these past 15 years, the doctor and I have tried

>to get to the root of it all. He has taken blood work for all kinds

>of things. ONCE, my ANA was up (last year). The next time it was

>down and never showed anything in all the years before. He is

>checking for lupus or some other autoimmune disease. I get sick of

>him trying to " pin " it on something. Just say that it is idiopathic

>and be done with it! I really don't have signs of lupus, altho, I do

>have some joint aches. When my joints hurt, 9 times out of 10, a

>huge hive will appear there a day or so later. After being on this

>site for quite a while now, I have not seen anyone say that they have

>lupus ~ that they have been diagnosed with it. Can hives appear with

>any autoimmune disease?? I'm due for more blood work now, and I just

>don't want to do it. To tell you the truth, I couldn't handle having

>something else! Sorry, I'm a bit down today...

>

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October 11, 2001

Hi Barb,

I didn't realize you had rheumatoid arthritis. Isn't that supposed to be a

cause for hives? Maybe i'm thinking of something else. Hope you are doing

good with it and it's not effecting your life. Hives are enough to deal

with !!

Take care, Ann

>From: Barbie8051@...

>Reply-To: urticaria

>To: urticaria

>Subject: Re: HIVES AND LUPUS

>Date: Thu, 11 Oct 2001 19:20:45 EDT

>

> --

>

>That's an interesting thought and question ... I wonder how many have had

>or

>do have other autoimmune-type illness/conditions ... I have had

>rheumatoid

>arthritis for about 15 years (not severe but have been on medication daily)

>

>Barbara -- SoCal

>

>In a message dated 10/11/2001 3:47:12 PM Pacific Daylight Time,

>winnieag@... writes:

> > After being on this site for quite a while now, I have not seen anyone

>say

> > that they have lupus ~ that they have been diagnosed with it. Can hives

> > appear with

> >

>

_________________________________________________________________

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October 11, 2001

, I wish I had an answer but I think if someone sat down and read

through every single autoimmune disorder article there would be a vast

amount of information and probably not all the same. However, from the

limited understanding I have, I would think that just about any autoimmune

disorder would be enough to possibly start the hives. I am so sorry to hear

you are having a bad day. Please hang in there. Love, ~Alena's Mom

HIVES AND LUPUS

> Hi all!

> I have asked this question before, but thought I'd try again ~

> really didn't get much of a response... I have had all types of

> hives (except cold urticaria) for 15 years. The allergy tests have

> come back with nothing! So, over the years, I have tried to

> eliminate things, add things, and have seen about 5 different kinds

> of doctors. I have been on Claritin in the AM to work and Atarax at

> night to sleep. There are days when I am almost clear. But most

> days, I have at least 10 or more hives on my in some shape or form.

> I get all kinds! In these past 15 years, the doctor and I have tried

> to get to the root of it all. He has taken blood work for all kinds

> of things. ONCE, my ANA was up (last year). The next time it was

> down and never showed anything in all the years before. He is

> checking for lupus or some other autoimmune disease. I get sick of

> him trying to " pin " it on something. Just say that it is idiopathic

> and be done with it! I really don't have signs of lupus, altho, I do

> have some joint aches. When my joints hurt, 9 times out of 10, a

> huge hive will appear there a day or so later. After being on this

> site for quite a while now, I have not seen anyone say that they have

> lupus ~ that they have been diagnosed with it. Can hives appear with

> any autoimmune disease?? I'm due for more blood work now, and I just

> don't want to do it. To tell you the truth, I couldn't handle having

> something else! Sorry, I'm a bit down today...

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> If you do wish to unsubscribe then you can click on the following link:

> urticaria-unsubscribeegroups

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> This list is in the service of those who suffer from Chronic Urticaria

(hives). We strive to support and lift each other as a worldwide

cyber-family.

>

> We share whatever needs to be shared to help one another in our struggle

with Chronic Urticria. Information provided in this forum is not to be taken

as medical advice. Always consult your health professional before trying

anything new.

>

> Any posting that is off the main topic of Chronic Urticaria, we post with

a prefix of NCU -. This is done out of respect for those who do not wish to

read such postings.

>

October 11, 2001

For some reason, it is rather common for an individual to have multiple

autoimmune disorders. And in women that have had endometriosis, the odds of

them or their children having autoimmune problems skyrockets.

As for the lupus question, according to what my doctor told me years ago,

they do see some cases of chronic urticaria eventually turn into lupus. It's

like the CU is a precursor for it. I think we've seen maybe 2 (possibly 3)

people on this list that have developed lupus. Not something to lose sleep

over, certainly, but if your doctor feels that you should be checked

periodically for it, then maybe it's best to go along with that.

Air hugs,

Jackie

Life is tough, but I'm tougher.

----Original Message Follows----

Reply-To: urticaria

To: urticaria

Subject: Re: HIVES AND LUPUS

Date: Thu, 11 Oct 2001 19:33:48 -0400

Hi Barb,

I didn't realize you had rheumatoid arthritis. Isn't that supposed to be a

cause for hives? Maybe i'm thinking of something else. Hope you are doing

good with it and it's not effecting your life. Hives are enough to deal

with !!

Take care, Ann

>From: Barbie8051@...

>Reply-To: urticaria

>To: urticaria

>Subject: Re: HIVES AND LUPUS

>Date: Thu, 11 Oct 2001 19:20:45 EDT

>

> --

>

>That's an interesting thought and question ... I wonder how many have had

>or

>do have other autoimmune-type illness/conditions ... I have had

>rheumatoid

>arthritis for about 15 years (not severe but have been on medication

daily)

>

>Barbara -- SoCal

>

>In a message dated 10/11/2001 3:47:12 PM Pacific Daylight Time,

>winnieag@... writes:

> > After being on this site for quite a while now, I have not seen anyone

>say

> > that they have lupus ~ that they have been diagnosed with it. Can

hives

> > appear with

> >

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

If you do wish to unsubscribe then you can click on the following link:

urticaria-unsubscribeegroups

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

This list is in the service of those who suffer from Chronic Urticaria

(hives). We strive to support and lift each other as a worldwide

cyber-family.

We share whatever needs to be shared to help one another in our struggle

with Chronic Urticria. Information provided in this forum is not to be taken

as medical advice. Always consult your health professional before trying

anything new.

Any posting that is off the main topic of Chronic Urticaria, we post with a

prefix of NCU -. This is done out of respect for those who do not wish to

read such postings.

October 11, 2001

,

So sorry you are having a bad day...So many things ronight have

rung a bell with my sons CU...He had bad reaction to something

(probably bug spray) at the age of two...Had little blood platelet

looking spots all over his body, that started out as little red

dots and grew...They were not raised...But every joint in his body

swelled...He was always highly allergic to poison oak and

ivy...Just so many things over the years that seem to be connected

to the CU in some way...We have an abundance of people in my little

small town that have lupus..I know of 4 personally..I am going to

ask them if they have ever had any hives...Hope you have a better

day tomorrow..

Rita