Guest guest Posted March 22, 2002 Report Share Posted March 22, 2002 Hi Cara, Just wanted to say welcome to our group! Your son sounds very similar to many of the children on this list. So many of the things you describe sound like symptoms of mito. Has had a muscle biopsy? A fresh muscle biopsy is probably the next step for you to get a firm diagnosis. I live in the Chicago area, presumably not too terribly far from you. There is an actual UMDF support group in Wisconsin, if you're interested in attending their meetings. Take care! Lori and ( 2 1/2, complex I and IV) intro !Warning: this is rather long - 16 paragraphs! ;> I have posted a few times, so I guess it is time to introduce myself. My husband, and I have two children, Angelina (10) and (8). Angelina is healthy and wonderful as long as she stays away from food dyes and additives, which cause her personality to become quite beligerent. There are also some foods, like bananas, that she cannot eat unless they are organic - then there is no reaction. was fine until he had an adverse vaccine reaction at 14 mos. of age. Before then he reached all developmental milestones and followed his sister and did everything she did. He started having ear infections right after his second set of shots at 4 mos., but was still cognitively and socially normal. Less than one hour after the fourth set of shots at age 14 mos. he could not be woken for over 20 hours. Very lethargic and unresponsive. When he did wake up, he was not the same baby. Did not want anything to do with his sister, would not eat meats, did not play, made no sounds, did not move much, could not sleep but about 5-6 hours in a 24 hour period. He was very well behaved and loved to be held, but was not progressing. Over the next few years, I dragged him to many physicians. It took 2.5 years to get the diagnosis of autism as he is connected to his family and does not have sensory issues as is thought to be typical in autism. He is always referred to as an atypical case. Around the age of 2 he started to have chronic diarrhea. It would 'blowout' and be all out the diaper and up his back, just a mess, three times a day. eventually his bm's were a tan color. After 1.5 yr. they firmed up a bit and were still quite soft, but not blowing out anymore. This continues today, even though he has been on the autism gluten-free, casein-free diet for 4 .5 years, as well as avoiding the dyes, additives, etc. (which bring on seizure-like activity). When he was 3 he started to not want to walk anymore. And he developed an odd gait. Would not lift his arms up anymore. Only likes quiet play, nothing physical at all. The other autistic kids in his class were breaking out of their houses and climbing on top of the frig and I could not get off the couch. Over time this developed into peripheral neuropathy, where he would drag his right foot and slowly walk, making sure each step was planted just-ever-so. When he first developed this he could not talk as he did not talk until he was 4.5. Once he did start talking he would tell me his hands and feet were on fire. At age 6.5 he developed a winged scapula and muscular dystrophy was suspected, but his CK, CPK? was fine. It has not been ruled out. We are currently still testing for things, biopsy not done yet. He was saying Ma, Da, and such before 14. mos. but after the adverse reaction, nothing. Until he went on a supplement called Sphingolin, myelin basic protein. In four days he started talking in 3-4 word sentences. He started going down stairs on his feet instead of his bottom. He tested positive for antibodies against myelin basic protein, this was an experimental test/tx from a researcher (in autism) at the U of Michigan. His eyes were extremely sensitive to light and extremely dilated. He seemed to either be having seizures or migraines. He would also run fevers of 106 without any other signs of illness. He was more lethargic, but cognitively much less autistic during these fevers. There have been a number of times I felt we were going to lose him, even though he was not crashing out. Doctors were of little help. At the library I found a book and learned about autism. Thanks to the internet I have learned much about 'autism' and have pushed for a number of lab tests for my child. He has been in several autism based studies. He is always an odd one and his chemisty never matches the majority of test results. But nothing is so flagrant that any particular disease is apparent. No one is sure how the myelin antibodies in blood is related to myelin in the brain. We have not done MRI, spinal tap, etc. as we know from EEG's that he does not do well with anesthesia (neither do I). His Tumor Necrosis Factor cytokine is very low. Some amino acid imbalances. Pyruvate is slightly elevated. He tests low in carnitine, total and free. His EEG showed spikes in the midline and slow areas on both sides. His liver enzymes were elevated so we did not use any med. At this time he went on carnitine and his EEG improved much, as well as the headaches and dilated pupils became normal. He has also had several bouts of tachycardia and a couple of times complained of chest pain. He remains on L-carnitine only. Next week during spring break we will be starting the mito cocktail. Last week they found a mtDNA mutation. It is considered secondary to LHON. So they assume there is another mutation, as not only is he autistic, but myself and mother and grandmother have all the other symptoms of LHON - heart issues, headches, muscle issues, and has these and also some sort of glucose snafu. My grandmother was diagnosed with macular degeneration which can be mistaken for LHON. She has not had any genetic or metabolic testing. I have always had alot of visual glitches but have not lost my vision (LHON is loss of central vision mainly). seems to see well but does have some glitches and is an auditory learner. I go down next week to get testing done on myself. My daughter has been in visual therapy for some time now, before we knew any of this. Sje and I both have large optic nerves/disks. He also did not gain any weight for three+ years and at times was as skinny as kids who are starving with all of his ribs showing, no meat on legs, etc. After being on carnitine 6 months he started to gain and now weighs 69, where he was at 52 for all those years before. His shoe size went up half a size also. He remains less meaty in his shoulder and upper arm area than is expected. He is very bright and sweet. He loves to build Lego's (way above age group at this). Loves dinosaurs, ancient Egypt, wooly mammoths. He prefers computer and drawing to anything gross motor. He wants to do the scooter like the other kids, but wants me to pull him while he stands on it and just rides. Last year he could finally get the bike pedals all the way around, but does not care to ride. There are alot of pieces of the puzzle falling into place from comparing what I have been reading about mito and my 's clinical picture and some of his testing. I don't know what his future holds, but up to now we have been extremely lucky. I hate writing these histories as there is so much to put in and hard to keep it linear. Also, my firstborn died at age 3 from atypical(that word again!) hypoplastic left heart syndrome. I could always feel my own heart beat from the time I was a small child. I started taking CoQ10 1.5 yr. ago and it has completely taken care of it. Makes me wonder if his heart defects were mito related. cara Wisconsin Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2002 Report Share Posted March 23, 2002 Cara: Though we have written some privately I wanted to welcome you to the mito list. I was touched by your story of stephen. It sounds like you have been on quite a quest in search of help and answers for him and he is lucky to have you. anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2002 Report Share Posted March 23, 2002 Cara: Though we have written some privately I wanted to welcome you to the mito list. I was touched by your story of stephen. It sounds like you have been on quite a quest in search of help and answers for him and he is lucky to have you. anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2002 Report Share Posted March 23, 2002 Cara: Though we have written some privately I wanted to welcome you to the mito list. I was touched by your story of stephen. It sounds like you have been on quite a quest in search of help and answers for him and he is lucky to have you. anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2002 Report Share Posted March 23, 2002 Cara, You sound like you have had a long journey! My third child has autism spectrum disorder (probably other things going on as well) and has responded really well to the drug risperdal as he is extremely violent. Anyway - I have often wondered reading all of these posts whether there is a link between autism and mito disease. My youngest died last year from cardiomyopathy (he had hypoplastic left and right heart which is the closest we can come to describing what was wrong with his heart). The geneticist says no but I'm not convinced. Keep up the good work. Special children need special parents. Donna (mum to Lochie 7/20/00 - 7/20/01) intro !Warning: this is rather long - 16 paragraphs! ;> I have posted a few times, so I guess it is time to introduce myself. My husband, and I have two children, Angelina (10) and (8). Angelina is healthy and wonderful as long as she stays away from food dyes and additives, which cause her personality to become quite beligerent. There are also some foods, like bananas, that she cannot eat unless they are organic - then there is no reaction. was fine until he had an adverse vaccine reaction at 14 mos. of age. Before then he reached all developmental milestones and followed his sister and did everything she did. He started having ear infections right after his second set of shots at 4 mos., but was still cognitively and socially normal. Less than one hour after the fourth set of shots at age 14 mos. he could not be woken for over 20 hours. Very lethargic and unresponsive. When he did wake up, he was not the same baby. Did not want anything to do with his sister, would not eat meats, did not play, made no sounds, did not move much, could not sleep but about 5-6 hours in a 24 hour period. He was very well behaved and loved to be held, but was not progressing. Over the next few years, I dragged him to many physicians. It took 2.5 years to get the diagnosis of autism as he is connected to his family and does not have sensory issues as is thought to be typical in autism. He is always referred to as an atypical case. Around the age of 2 he started to have chronic diarrhea. It would 'blowout' and be all out the diaper and up his back, just a mess, three times a day. eventually his bm's were a tan color. After 1.5 yr. they firmed up a bit and were still quite soft, but not blowing out anymore. This continues today, even though he has been on the autism gluten-free, casein-free diet for 4 .5 years, as well as avoiding the dyes, additives, etc. (which bring on seizure-like activity). When he was 3 he started to not want to walk anymore. And he developed an odd gait. Would not lift his arms up anymore. Only likes quiet play, nothing physical at all. The other autistic kids in his class were breaking out of their houses and climbing on top of the frig and I could not get off the couch. Over time this developed into peripheral neuropathy, where he would drag his right foot and slowly walk, making sure each step was planted just-ever-so. When he first developed this he could not talk as he did not talk until he was 4.5. Once he did start talking he would tell me his hands and feet were on fire. At age 6.5 he developed a winged scapula and muscular dystrophy was suspected, but his CK, CPK? was fine. It has not been ruled out. We are currently still testing for things, biopsy not done yet. He was saying Ma, Da, and such before 14. mos. but after the adverse reaction, nothing. Until he went on a supplement called Sphingolin, myelin basic protein. In four days he started talking in 3-4 word sentences. He started going down stairs on his feet instead of his bottom. He tested positive for antibodies against myelin basic protein, this was an experimental test/tx from a researcher (in autism) at the U of Michigan. His eyes were extremely sensitive to light and extremely dilated. He seemed to either be having seizures or migraines. He would also run fevers of 106 without any other signs of illness. He was more lethargic, but cognitively much less autistic during these fevers. There have been a number of times I felt we were going to lose him, even though he was not crashing out. Doctors were of little help. At the library I found a book and learned about autism. Thanks to the internet I have learned much about 'autism' and have pushed for a number of lab tests for my child. He has been in several autism based studies. He is always an odd one and his chemisty never matches the majority of test results. But nothing is so flagrant that any particular disease is apparent. No one is sure how the myelin antibodies in blood is related to myelin in the brain. We have not done MRI, spinal tap, etc. as we know from EEG's that he does not do well with anesthesia (neither do I). His Tumor Necrosis Factor cytokine is very low. Some amino acid imbalances. Pyruvate is slightly elevated. He tests low in carnitine, total and free. His EEG showed spikes in the midline and slow areas on both sides. His liver enzymes were elevated so we did not use any med. At this time he went on carnitine and his EEG improved much, as well as the headaches and dilated pupils became normal. He has also had several bouts of tachycardia and a couple of times complained of chest pain. He remains on L-carnitine only. Next week during spring break we will be starting the mito cocktail. Last week they found a mtDNA mutation. It is considered secondary to LHON. So they assume there is another mutation, as not only is he autistic, but myself and mother and grandmother have all the other symptoms of LHON - heart issues, headches, muscle issues, and has these and also some sort of glucose snafu. My grandmother was diagnosed with macular degeneration which can be mistaken for LHON. She has not had any genetic or metabolic testing. I have always had alot of visual glitches but have not lost my vision (LHON is loss of central vision mainly). seems to see well but does have some glitches and is an auditory learner. I go down next week to get testing done on myself. My daughter has been in visual therapy for some time now, before we knew any of this. Sje and I both have large optic nerves/disks. He also did not gain any weight for three+ years and at times was as skinny as kids who are starving with all of his ribs showing, no meat on legs, etc. After being on carnitine 6 months he started to gain and now weighs 69, where he was at 52 for all those years before. His shoe size went up half a size also. He remains less meaty in his shoulder and upper arm area than is expected. He is very bright and sweet. He loves to build Lego's (way above age group at this). Loves dinosaurs, ancient Egypt, wooly mammoths. He prefers computer and drawing to anything gross motor. He wants to do the scooter like the other kids, but wants me to pull him while he stands on it and just rides. Last year he could finally get the bike pedals all the way around, but does not care to ride. There are alot of pieces of the puzzle falling into place from comparing what I have been reading about mito and my 's clinical picture and some of his testing. I don't know what his future holds, but up to now we have been extremely lucky. I hate writing these histories as there is so much to put in and hard to keep it linear. Also, my firstborn died at age 3 from atypical(that word again!) hypoplastic left heart syndrome. I could always feel my own heart beat from the time I was a small child. I started taking CoQ10 1.5 yr. ago and it has completely taken care of it. Makes me wonder if his heart defects were mito related. cara Wisconsin Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2002 Report Share Posted March 23, 2002 Donna, I am not convinced there is no connection either. They don't know what causes the heart defects so how can they say what it is or isn't. As a child I could always feel my heart beat and could not run or I would feel like I was going to pass out. Then I had a child withheart defects. Then around the time (my autistic/mito child) 'became autistic' they tried to tell me I had mitral valve problems. I could be wrong but I don't believe they prescribe CoQ10 for MVP. But CoQ10 completly takes away my heart problems. I can no longer sit and count beats and no more pain, either. My child with the heart problems was also sent in for eye exam as they felt there was something wrong. But they didn't try very hard to figure it out. A routine exam was thought to be fine and that was the end of that. And I knew even less then in order to ask for more thorough testing. His heart problems were more pressing anyway. I've tried to interest the doctor in all these connections, but as all of you are aware, curiousity is not a strong suit of most doctors. cara intro !Warning: this is rather long - 16 paragraphs! ;> I have posted a few times, so I guess it is time to introduce myself. My husband, and I have two children, Angelina (10) and (8). Angelina is healthy and wonderful as long as she stays away from food dyes and additives, which cause her personality to become quite beligerent. There are also some foods, like bananas, that she cannot eat unless they are organic - then there is no reaction. was fine until he had an adverse vaccine reaction at 14 mos. of age. Before then he reached all developmental milestones and followed his sister and did everything she did. He started having ear infections right after his second set of shots at 4 mos., but was still cognitively and socially normal. Less than one hour after the fourth set of shots at age 14 mos. he could not be woken for over 20 hours. Very lethargic and unresponsive. When he did wake up, he was not the same baby. Did not want anything to do with his sister, would not eat meats, did not play, made no sounds, did not move much, could not sleep but about 5-6 hours in a 24 hour period. He was very well behaved and loved to be held, but was not progressing. Over the next few years, I dragged him to many physicians. It took 2.5 years to get the diagnosis of autism as he is connected to his family and does not have sensory issues as is thought to be typical in autism. He is always referred to as an atypical case. Around the age of 2 he started to have chronic diarrhea. It would 'blowout' and be all out the diaper and up his back, just a mess, three times a day. eventually his bm's were a tan color. After 1.5 yr. they firmed up a bit and were still quite soft, but not blowing out anymore. This continues today, even though he has been on the autism gluten-free, casein-free diet for 4 .5 years, as well as avoiding the dyes, additives, etc. (which bring on seizure-like activity). When he was 3 he started to not want to walk anymore. And he developed an odd gait. Would not lift his arms up anymore. Only likes quiet play, nothing physical at all. The other autistic kids in his class were breaking out of their houses and climbing on top of the frig and I could not get off the couch. Over time this developed into peripheral neuropathy, where he would drag his right foot and slowly walk, making sure each step was planted just-ever-so. When he first developed this he could not talk as he did not talk until he was 4.5. Once he did start talking he would tell me his hands and feet were on fire. At age 6.5 he developed a winged scapula and muscular dystrophy was suspected, but his CK, CPK? was fine. It has not been ruled out. We are currently still testing for things, biopsy not done yet. He was saying Ma, Da, and such before 14. mos. but after the adverse reaction, nothing. Until he went on a supplement called Sphingolin, myelin basic protein. In four days he started talking in 3-4 word sentences. He started going down stairs on his feet instead of his bottom. He tested positive for antibodies against myelin basic protein, this was an experimental test/tx from a researcher (in autism) at the U of Michigan. His eyes were extremely sensitive to light and extremely dilated. He seemed to either be having seizures or migraines. He would also run fevers of 106 without any other signs of illness. He was more lethargic, but cognitively much less autistic during these fevers. There have been a number of times I felt we were going to lose him, even though he was not crashing out. Doctors were of little help. At the library I found a book and learned about autism. Thanks to the internet I have learned much about 'autism' and have pushed for a number of lab tests for my child. He has been in several autism based studies. He is always an odd one and his chemisty never matches the majority of test results. But nothing is so flagrant that any particular disease is apparent. No one is sure how the myelin antibodies in blood is related to myelin in the brain. We have not done MRI, spinal tap, etc. as we know from EEG's that he does not do well with anesthesia (neither do I). His Tumor Necrosis Factor cytokine is very low. Some amino acid imbalances. Pyruvate is slightly elevated. He tests low in carnitine, total and free. His EEG showed spikes in the midline and slow areas on both sides. His liver enzymes were elevated so we did not use any med. At this time he went on carnitine and his EEG improved much, as well as the headaches and dilated pupils became normal. He has also had several bouts of tachycardia and a couple of times complained of chest pain. He remains on L-carnitine only. Next week during spring break we will be starting the mito cocktail. Last week they found a mtDNA mutation. It is considered secondary to LHON. So they assume there is another mutation, as not only is he autistic, but myself and mother and grandmother have all the other symptoms of LHON - heart issues, headches, muscle issues, and has these and also some sort of glucose snafu. My grandmother was diagnosed with macular degeneration which can be mistaken for LHON. She has not had any genetic or metabolic testing. I have always had alot of visual glitches but have not lost my vision (LHON is loss of central vision mainly). seems to see well but does have some glitches and is an auditory learner. I go down next week to get testing done on myself. My daughter has been in visual therapy for some time now, before we knew any of this. Sje and I both have large optic nerves/disks. He also did not gain any weight for three+ years and at times was as skinny as kids who are starving with all of his ribs showing, no meat on legs, etc. After being on carnitine 6 months he started to gain and now weighs 69, where he was at 52 for all those years before. His shoe size went up half a size also. He remains less meaty in his shoulder and upper arm area than is expected. He is very bright and sweet. He loves to build Lego's (way above age group at this). Loves dinosaurs, ancient Egypt, wooly mammoths. He prefers computer and drawing to anything gross motor. He wants to do the scooter like the other kids, but wants me to pull him while he stands on it and just rides. Last year he could finally get the bike pedals all the way around, but does not care to ride. There are alot of pieces of the puzzle falling into place from comparing what I have been reading about mito and my 's clinical picture and some of his testing. I don't know what his future holds, but up to now we have been extremely lucky. I hate writing these histories as there is so much to put in and hard to keep it linear. Also, my firstborn died at age 3 from atypical(that word again!) hypoplastic left heart syndrome. I could always feel my own heart beat from the time I was a small child. I started taking CoQ10 1.5 yr. ago and it has completely taken care of it. Makes me wonder if his heart defects were mito related. cara Wisconsin Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2002 Report Share Posted March 25, 2002 Cara, So true about the doctors! Anyway - with all the posts I read I am totally convinced that something is connected in some way! I wish someone would take the initiative and do some research - if only I was a doctor! If anyone knows of any studies I would love to read them. Donna. intro !Warning: this is rather long - 16 paragraphs! ;> I have posted a few times, so I guess it is time to introduce myself. My husband, and I have two children, Angelina (10) and (8). Angelina is healthy and wonderful as long as she stays away from food dyes and additives, which cause her personality to become quite beligerent. There are also some foods, like bananas, that she cannot eat unless they are organic - then there is no reaction. was fine until he had an adverse vaccine reaction at 14 mos. of age. Before then he reached all developmental milestones and followed his sister and did everything she did. He started having ear infections right after his second set of shots at 4 mos., but was still cognitively and socially normal. Less than one hour after the fourth set of shots at age 14 mos. he could not be woken for over 20 hours. Very lethargic and unresponsive. When he did wake up, he was not the same baby. Did not want anything to do with his sister, would not eat meats, did not play, made no sounds, did not move much, could not sleep but about 5-6 hours in a 24 hour period. He was very well behaved and loved to be held, but was not progressing. Over the next few years, I dragged him to many physicians. It took 2.5 years to get the diagnosis of autism as he is connected to his family and does not have sensory issues as is thought to be typical in autism. He is always referred to as an atypical case. Around the age of 2 he started to have chronic diarrhea. It would 'blowout' and be all out the diaper and up his back, just a mess, three times a day. eventually his bm's were a tan color. After 1.5 yr. they firmed up a bit and were still quite soft, but not blowing out anymore. This continues today, even though he has been on the autism gluten-free, casein-free diet for 4 .5 years, as well as avoiding the dyes, additives, etc. (which bring on seizure-like activity). When he was 3 he started to not want to walk anymore. And he developed an odd gait. Would not lift his arms up anymore. Only likes quiet play, nothing physical at all. The other autistic kids in his class were breaking out of their houses and climbing on top of the frig and I could not get off the couch. Over time this developed into peripheral neuropathy, where he would drag his right foot and slowly walk, making sure each step was planted just-ever-so. When he first developed this he could not talk as he did not talk until he was 4.5. Once he did start talking he would tell me his hands and feet were on fire. At age 6.5 he developed a winged scapula and muscular dystrophy was suspected, but his CK, CPK? was fine. It has not been ruled out. We are currently still testing for things, biopsy not done yet. He was saying Ma, Da, and such before 14. mos. but after the adverse reaction, nothing. Until he went on a supplement called Sphingolin, myelin basic protein. In four days he started talking in 3-4 word sentences. He started going down stairs on his feet instead of his bottom. He tested positive for antibodies against myelin basic protein, this was an experimental test/tx from a researcher (in autism) at the U of Michigan. His eyes were extremely sensitive to light and extremely dilated. He seemed to either be having seizures or migraines. He would also run fevers of 106 without any other signs of illness. He was more lethargic, but cognitively much less autistic during these fevers. There have been a number of times I felt we were going to lose him, even though he was not crashing out. Doctors were of little help. At the library I found a book and learned about autism. Thanks to the internet I have learned much about 'autism' and have pushed for a number of lab tests for my child. He has been in several autism based studies. He is always an odd one and his chemisty never matches the majority of test results. But nothing is so flagrant that any particular disease is apparent. No one is sure how the myelin antibodies in blood is related to myelin in the brain. We have not done MRI, spinal tap, etc. as we know from EEG's that he does not do well with anesthesia (neither do I). His Tumor Necrosis Factor cytokine is very low. Some amino acid imbalances. Pyruvate is slightly elevated. He tests low in carnitine, total and free. His EEG showed spikes in the midline and slow areas on both sides. His liver enzymes were elevated so we did not use any med. At this time he went on carnitine and his EEG improved much, as well as the headaches and dilated pupils became normal. He has also had several bouts of tachycardia and a couple of times complained of chest pain. He remains on L-carnitine only. Next week during spring break we will be starting the mito cocktail. Last week they found a mtDNA mutation. It is considered secondary to LHON. So they assume there is another mutation, as not only is he autistic, but myself and mother and grandmother have all the other symptoms of LHON - heart issues, headches, muscle issues, and has these and also some sort of glucose snafu. My grandmother was diagnosed with macular degeneration which can be mistaken for LHON. She has not had any genetic or metabolic testing. I have always had alot of visual glitches but have not lost my vision (LHON is loss of central vision mainly). seems to see well but does have some glitches and is an auditory learner. I go down next week to get testing done on myself. My daughter has been in visual therapy for some time now, before we knew any of this. Sje and I both have large optic nerves/disks. He also did not gain any weight for three+ years and at times was as skinny as kids who are starving with all of his ribs showing, no meat on legs, etc. After being on carnitine 6 months he started to gain and now weighs 69, where he was at 52 for all those years before. His shoe size went up half a size also. He remains less meaty in his shoulder and upper arm area than is expected. He is very bright and sweet. He loves to build Lego's (way above age group at this). Loves dinosaurs, ancient Egypt, wooly mammoths. He prefers computer and drawing to anything gross motor. He wants to do the scooter like the other kids, but wants me to pull him while he stands on it and just rides. Last year he could finally get the bike pedals all the way around, but does not care to ride. There are alot of pieces of the puzzle falling into place from comparing what I have been reading about mito and my 's clinical picture and some of his testing. I don't know what his future holds, but up to now we have been extremely lucky. I hate writing these histories as there is so much to put in and hard to keep it linear. Also, my firstborn died at age 3 from atypical(that word again!) hypoplastic left heart syndrome. I could always feel my own heart beat from the time I was a small child. I started taking CoQ10 1.5 yr. ago and it has completely taken care of it. Makes me wonder if his heart defects were mito related. cara Wisconsin Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2003 Report Share Posted November 2, 2003 Hi, My name is Crystal. I am the 27 yr old mother of 1. I have been happily married for 4 1/2 yrs. After the birth of my daughter in 2001 I was diagnosed with a kidney disease. I also have Hypothyroidism. I am currently at my heaviest of 365 pds. I am 5'9. I am scheduled for Lap RNY on 11/17/03 with Dr Drake Bellanger in Baton Rouge, La at Vista Medical Center. I have BC/BS of AL PPO Insurance. I was wondering if anyone has used this dr or hospital or has this insurance. Also any advice for a PreOpper!! Thanks Crystal Quote Link to comment Share on other sites More sharing options...
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