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Hi Debbie,

I don't know that depression is related to chiari, but it makes sense to me

that we get depressed because of chronic pain and illness. Unfortunately

many of us seem to feel better for a few months and then something happens

that starts the return of symptoms.

This can be to several things such as a dura leak and buildup of scar

tissue.

Hope this helps soemwhat,

Cherry [alabama]

----- Original Message -----

been doing

> splendidly until about a month ago. Suddenly, he said

> his skull felt " weird " and " tingly\

> been getting headaches again and numbness in his arm

> and hand. He is also being seen for depression and

> possibly he is bipolar.

..

>

> My question is, can his body reject the surgery or can

> the surgery have come 'undone'?

Can the depression and ACM be connected in

> some way?

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  • 3 weeks later...

Ruth,

Those exact words are what the first nsg I saw told me. That some people

have ACM all their lives and would not know it other than a chance finding

like your son's. The only reason I was told I needed surgery was for the

horrible symptoms I've experienced. I think that any good nsg will tell you

it is better to leave well enough alone.

I am praying for your son's continued freedom from suffering in this

matter.

Sincerely,

Cheryl Sousa

a question

> Is it possible to have ACM and lead a normal healthy life with out any

of

> theses thing happen that all of you are talking about ??? my son is 12 and

> they are saying they just happened to find this with the Mri they gave him

> and say its nothing to worry about... they said he will have an Mri every

6

> mos to make sure everything stays the same???? can any one anserw this

> question

> Ruth

>

>

>

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In a message dated 1/9/2002 3:11:21 PM Eastern Standard Time,

PackerGalForReal@... writes:

> Is it possible to have ACM and lead a normal healthy life with out any of

> theses thing happen that all of you are talking about ???

I have had Chiari since birth which I am 18 now and have been fine.Although I

am in a wheelchair because of Spina Bifida, but I live a normal life.My

Chiari is 17mm, so it is kinda bad, but it hasn't bothered me until just

lately, but I'm not doing surgery right now.

Summer

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Hi Ruth and Gang,

If this is just a by chance find (If it were my

child) I would consult with a NS or another NS. This

happened to my 5 year old (we had her checked when I

found out I had it - to confirm it was not congenatial

<long story- some other time maybe>) My NS (Rosner)

said she had it and recommended we see a Pedi NS ...

so we did. She did not even have any kind of

malformation. She was absolutely fine. So I would

consult someone else. Just to be safe.

From what I understand (from my Bro-in-law - a

dr of Pathologology) people go thru life without

symptoms and die and never know they have anything

wrong with them. They can life very healthy, very

productive and busy lives. (with no problems)

in SC

--- PackerGalForReal@... wrote:

> Is it possible to have ACM and lead a normal

> healthy life with out any of

> theses thing happen that all of you are talking

> about ??? my son is 12 and

> they are saying they just happened to find this with

> the Mri they gave him

> and say its nothing to worry about... they said he

> will have an Mri every 6

> mos to make sure everything stays the same???? can

> any one anserw this

> question

> Ruth

>

>

> [Non-text portions of this message have been

> removed]

>

>

> Help section: http://www.yahoogroups.com/help/

>

> NOTE: NCC refers to posts with No Chiari Content

>

> To Unsubscribe Yourself:

> chiari-unsubscribeYahoogroups

>

> WACMA Home: www.pressenter.com/~wacma

>

> WACMA List: www.eGroups.com/group/chiari

>

>

>

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I had Chiari and BI all my life ....I was diagnosed at 39 almost by

chance....no real symptoms. Life was good before and will be good as soon

as I finish recovering......

A nurse asked me today how I was and I responded: " well, lighter without the

halo but really tired of braces and wanting my life back " her eyes grew two

sizes bigger and she said: " Alba, you are walking, you are alive "

One forgets how bad it could have been .....in the waiting room there were

so many patients with walker, wheel chair, with tremors ....I know I am

lucky but I guess not having had symptoms has made the whole thing look a

bit different

No complains...I AM GRATEFUL

Alba

Re: a question

In a message dated 1/9/2002 3:11:21 PM Eastern Standard Time,

PackerGalForReal@... writes:

> Is it possible to have ACM and lead a normal healthy life with out any

of

> theses thing happen that all of you are talking about ???

I have had Chiari since birth which I am 18 now and have been fine.Although

I

am in a wheelchair because of Spina Bifida, but I live a normal life.My

Chiari is 17mm, so it is kinda bad, but it hasn't bothered me until just

lately, but I'm not doing surgery right now.

Summer

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