Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 Barbara, Have you had a bone density test? I know osteoporosis can be painful and bone loss can be an issue with PSC and long-term steroid use. Just a thought. Mom of Noah (8) UC, PSC, osteopenia ‘05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 Thanks I have been diagnosed with osteopenia and have a bone density scan scheduled for the near future. I guess I didn't realize it was painful. I guess I am learning how much fun this disease is every day. I have had 30 years of attacks and feel so sad that your child has had to endure so much. Its always ok for parents but I can't stand when my children are sick and in pain. I will keep your son in my prayers. Barbara Doyle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Barbara, Thankfully Noah has not had any “bone pain,” whatever that would be…I just know I have read/heard somewhere that that can be a sign or symptom of osteoporosis. I am sorry you are in pain at all. Isn’t this disease grand? Good luck on your upcoming bone density scan. Let us know how it goes. Thank you for the prayers…right back at ya’! I have been diagnosed with osteopenia and have a bone density scan scheduled for the near future. I guess I didn't realize it was painful. I guess I am learning how much fun this disease is every day. I have had 30 years of attacks and feel so sad that your child has had to endure so much. Its always ok for parents but I can't stand when my children are sick and in pain. I will keep your son in my prayers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 This should be easily recognized by your latest lab results. I had severe pain in my big toes in 2004, and the doc said he was sure it was gout, but it would take withdrawing fluid (and crystals) off the joint to know for sure. The problem was, he wouldn't be able to treat it because of the condition of my liver so he recommended not putting myself through the pain. I, of course, couldn't have agreed more! I still have pain in my big toes, but it isn't nearly as painful as it once was and I just live with it. This post made me question though, how does one tell just from a lab test? What lab, specifically? I'm curious. (MO)PSC & UC '84, chronic pancreatitis '97, listed for tx 06/05for details see www.caringbridge.org/visit/melaniejs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Not sure if this helps, but it may be Gout related. Since being diagnosed with PSC 9 years ago, I have had more and more bouts with gout where uric (sp?) acid crystals form in the joints and cause severe pain. I get it mostly in my large toe and ankle, but occasionally in my wrist. The pain is similar to a severely sprained ankle. This should be easily recognized by your latest lab results. > > Barbara, > > Thankfully Noah has not had any " bone pain, " whatever that would be.I just > know I have read/heard somewhere that that can be a sign or symptom of > osteoporosis. I am sorry you are in pain at all. Isn't this disease grand? > Good luck on your upcoming bone density scan. Let us know how it goes. > > Thank you for the prayers.right back at ya'! > > > > > > > > > > I have been diagnosed with osteopenia and have a bone density scan scheduled > for the near future. I guess I didn't realize it was painful. I guess I am > learning how much fun this disease is every day. I have had 30 years of > attacks and feel so sad that your child has had to endure so much. Its > always ok for parents but I can't stand when my children are sick and in > pain. I will keep your son in my prayers. > > > > > > > <http://www.pscpartners.org/> http://www.pscpartners.org/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2006 Report Share Posted May 5, 2006 Barb There is a non arthritic for of muscle inflammation associated with UC and IBD. I can be very nasty. Best jd, 45 UC 1973, Jpouch 2000, Chronic Pouchitis 2001, PSC 2004, Stage 3 Southern, IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 -----Original Message----- Barb There is a non arthritic for of muscle inflammation associated with UC and IBD. I can be very nasty. I’m guessing here that you’re not speaking to me, so this answer must be for either Barbara in UK or another Barbara. Had to laugh at your second line…..I seriously doubt you have a nasty bone in your body! Thanks for the unintended TGIS J Barb in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 -----Original Message----- Barb There is a non arthritic for of muscle inflammation associated with UC and IBD. I can be very nasty. I’m guessing here that you’re not speaking to me, so this answer must be for either Barbara in UK or another Barbara. Had to laugh at your second line…..I seriously doubt you have a nasty bone in your body! Thanks for the unintended TGIS J Barb in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Barb You're right, hopefully on both counts! Bestjd, 45 UC 1973, Jpouch 2000, Chronic Pouchitis 2001, PSC 2004, Stage 3Southern, IL Quote Link to comment Share on other sites More sharing options...
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