Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Hello My name is Pucci and I am a graduate student at SUNY Brockport in NY. I am currently completing my master thesis on CHARGE syndrome and balance related issues that these children may face. I am looking for any willing volunteers to participate in my study. Your participation would include completing a survey, and then sending it back to me either via email or mail. If you have a child with CHARGE syndrome and are willing to participate in this study please contact me via email with your: Name Address Email State whether you would like a electronic copy of survey or by mail I would appreciate any feedback that you have to share. Together I hope that we can educate professionals how to make these children suceed in our gymnasium! Sincerely, Pucci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 , Is this survey for US families only? Weir Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 , There is already a study being done by Jim Thelin and his students. He teaches in Tennessee. You can get in touch with him at jim@.... Not only is he the Vice President of the CHARGE Foundation, he is a specialist who has been studying our children for years and years and years. He has my respect and admiration. That doesn't come easy! Bonnie, mom to a 23, Patty CHARGE 21, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 yes i second lisa question and can chargers do it to im a charger and theres a few on the lsit who might want to ellen in aus > > , > > There is already a study being done by Jim Thelin and his students. He > teaches in Tennessee. You can get in touch with him at > jim@.... > Not only is he the Vice President of the CHARGE Foundation, he is a > specialist > who has been studying our children for years and years and years. > > He has my respect and admiration. That doesn't come easy! > > > > Bonnie, mom to a 23, Patty CHARGE 21, and wife to > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 -About the CHARGE survey participation, YES anyone in or outside the united states may take part in it. Also, sure if you an adult living with CHARGE I would welcome your feedback! Please forward mailing address and email to me. Thanks so much, Pucci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 k count me in im ellen.howe@... > > -About the CHARGE survey participation, YES anyone in or outside the > united states > may take part in it. Also, sure if you an adult living with CHARGE I would > welcome your > feedback! > > Please forward mailing address and email to me. > > > Thanks so much, > Pucci > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 , I will answer you here on the listserv rather than to your regular email address; each time I tried to reach you before to tell you I would participate, the email came back to me. So here's mine: Weir 57 Meadowbank Avenue Saint , NB E2K2C7 Canada Weir Home: lisaweir@... Work: lisa.weir@... Phone: Web: http://ca.geocities.com/weirfamilyrogers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 , On a very unrelated subject... I noticed you are from St. NB. I had a pen pal/family friend from there for many years. Just curious if you knew her or her family (Her madien name was Jocelyn Mac she had two brothers (one was named the other brothers name I just can't think of at the moment.) The parents were and Eddie? I do not know her married name I lost touch when we became teenagers. I know it is probably not likely but sometimes I have found it to be " a small world " . - (wife to Pat & mom to two terrific children, 5 1/2 & 21 months CHARGE) Re: CHARGE SURVEY > , I will answer you here on the listserv rather than to your > regular email address; each time I tried to reach you before to tell you I > would participate, the email came back to me. So here's mine: > Weir > 57 Meadowbank Avenue > Saint , NB > E2K2C7 > Canada > > > > > Weir > Home: lisaweir@... > Work: lisa.weir@... > Phone: > Web: http://ca.geocities.com/weirfamilyrogers > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 , We would be interested in taking a part of your survey. Please send the information to: Mr. Tim Fellows 51 East 100 North Preston, Idaho 83263-1327. We would be happy to help you with your project. Tim Fellows fellows@... > >Reply-To: CHARGE >To: <CHARGE > >Subject: RE: CHARGE SURVEY >Date: Fri, 20 Jan 2006 08:11:51 -0500 > >-About the CHARGE survey participation, YES anyone in or outside the united >states >may take part in it. Also, sure if you an adult living with CHARGE I would >welcome your >feedback! > >Please forward mailing address and email to me. > > >Thanks so much, > Pucci > > > Quote Link to comment Share on other sites More sharing options...
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