Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Michele, I think Dylan always has sinus congestion. He very rarely has anything come out his nose. He also gets eye drainage. Doing the x-rays to rule it out seems a bit much and I would hate to just keep him on antibiotics. It worries my, because he often needs input around his left (good) eye, so I know it bothers him. I am just not sure what to do about it. Kim > Hi! > Well, Aubrie's got a sinus infection. There was no sign of anything until > her eyes began oozing pus the other night. Around 5pm, one started oozing. > I kept wiping and cleaning it as it just oozed out as fast as I could watch. > Then at 6, she was tired and ready for bed (usual bedtime is 7:30 - yes, I > know we are blessed!). In the am, both eyes had been oozing. I was > concerned about pink eye - but it wasn't that. Just tons of sinus drainage. > > > > > Good news is that we've managed thus far with our typical winter congestion > without getting ear infections! But is there anything to be concerned about > when her sinus gunk drains out in her eyes like this? Yuck! My guess is > that her sinuses are small or somehow anatomically different enough that > they are the perfect harbor for germs so she gets congested and infected > rather regularly with the cold weather. But there is no sign of anything - > no coughing, running nose, etc. It's all stuck up there and coming out her > eyes! Earlier in the season, she had sinus congestion and tons of nasal > discharge. That was preceded by a few weeks of being sort of " out of it " > and " not with the program " at school and needing her hearing aids turned up. > We didn't realize it was all due to congestion until the drainage started. > > > > I also have sinus problems and can get a sinus infection with no drainage > whatsoever - so I do understand that part. But I just wonder what to do to > keep her healthy when I can't tell something's wrong. Now she is hearing > fine even with this congestion so it must be plugging up a different area. > > > > Then it brings me to the question of further palate surgery. If she had the > pharyngeal flap or sphincter surgery, would she be able to breath when she's > congested?? Eegads. I am so confused. So thanks for letting me get my > thoughts out here. Next step is to call all the specialists involved in > this palate decision, plus the eye dr, and make sure there's nothing more I > should be doing or thinking about. > > > > Michele W > Aubrie's mom 8 yrs > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 I'm no help here, but we do have ear infection--in the beginnings of one --on the ever lovely ammox. tim has the ear infection--liam croup, he got cough meds though. hoping they can go to school in the am as I am to sub. I'm still coughing and feeling sinusie. does it ever end? eye drainage > Hi! > Well, Aubrie's got a sinus infection. There was no sign of anything until > her eyes began oozing pus the other night. Around 5pm, one started > oozing. > I kept wiping and cleaning it as it just oozed out as fast as I could > watch. > Then at 6, she was tired and ready for bed (usual bedtime is 7:30 - yes, I > know we are blessed!). In the am, both eyes had been oozing. I was > concerned about pink eye - but it wasn't that. Just tons of sinus > drainage. > > > > > Good news is that we've managed thus far with our typical winter > congestion > without getting ear infections! But is there anything to be concerned > about > when her sinus gunk drains out in her eyes like this? Yuck! My guess is > that her sinuses are small or somehow anatomically different enough that > they are the perfect harbor for germs so she gets congested and infected > rather regularly with the cold weather. But there is no sign of > anything - > no coughing, running nose, etc. It's all stuck up there and coming out > her > eyes! Earlier in the season, she had sinus congestion and tons of nasal > discharge. That was preceded by a few weeks of being sort of " out of it " > and " not with the program " at school and needing her hearing aids turned > up. > We didn't realize it was all due to congestion until the drainage started. > > > > I also have sinus problems and can get a sinus infection with no drainage > whatsoever - so I do understand that part. But I just wonder what to do > to > keep her healthy when I can't tell something's wrong. Now she is hearing > fine even with this congestion so it must be plugging up a different area. > > > > Then it brings me to the question of further palate surgery. If she had > the > pharyngeal flap or sphincter surgery, would she be able to breath when > she's > congested?? Eegads. I am so confused. So thanks for letting me get my > thoughts out here. Next step is to call all the specialists involved in > this palate decision, plus the eye dr, and make sure there's nothing more > I > should be doing or thinking about. > > > > Michele W > Aubrie's mom 8 yrs > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 That's where we are too. We know it's there. We are doing all we probably can do. So is there a need to do an xray or CT to confirm what we think we know? Would more detailed info of the exact nature of the congestion change anything? At least it helps to know another kid deals with the same stuff. Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 I am glad she doesnt have pink eye, we have had it here with my oldest and its not fun!! I hope you all feel better soon!! Crystal and Eva (8 month charger) > > Hi! > Well, Aubrie's got a sinus infection. There was no sign of anything until > her eyes began oozing pus the other night. Around 5pm, one started oozing. > I kept wiping and cleaning it as it just oozed out as fast as I could watch. > Then at 6, she was tired and ready for bed (usual bedtime is 7:30 - yes, I > know we are blessed!). In the am, both eyes had been oozing. I was > concerned about pink eye - but it wasn't that. Just tons of sinus drainage. > > > > > Good news is that we've managed thus far with our typical winter congestion > without getting ear infections! But is there anything to be concerned about > when her sinus gunk drains out in her eyes like this? Yuck! My guess is > that her sinuses are small or somehow anatomically different enough that > they are the perfect harbor for germs so she gets congested and infected > rather regularly with the cold weather. But there is no sign of anything - > no coughing, running nose, etc. It's all stuck up there and coming out her > eyes! Earlier in the season, she had sinus congestion and tons of nasal > discharge. That was preceded by a few weeks of being sort of " out of it " > and " not with the program " at school and needing her hearing aids turned up. > We didn't realize it was all due to congestion until the drainage started. > > > > I also have sinus problems and can get a sinus infection with no drainage > whatsoever - so I do understand that part. But I just wonder what to do to > keep her healthy when I can't tell something's wrong. Now she is hearing > fine even with this congestion so it must be plugging up a different area. > > > > Then it brings me to the question of further palate surgery. If she had the > pharyngeal flap or sphincter surgery, would she be able to breath when she's > congested?? Eegads. I am so confused. So thanks for letting me get my > thoughts out here. Next step is to call all the specialists involved in > this palate decision, plus the eye dr, and make sure there's nothing more I > should be doing or thinking about. > > > > Michele W > Aubrie's mom 8 yrs > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 I need to get more Xlear Nasal Wash - I ran out and let it slide this past year and just need to get it back in the routine. I am sure it helps. Does Aubrie still use it? Kim > That's where we are too. We know it's there. We are doing all we probably > can do. So is there a need to do an xray or CT to confirm what we think we > know? Would more detailed info of the exact nature of the congestion change > anything? At least it helps to know another kid deals with the same stuff. > > Michele W > > > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada > information and membership, please visit http://www.chargesyndrome.ca or email > info@... . > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 No-- We got out of the routine as well. She really hates it, so it's hard to make her use it on a regular basis " just to be safe " . The poor kid has to go thru so much that I hate to hit her with too much on a daily prophylactic basis. I'm sure it would help tho. I'll have to think that one thru again. Thanks for the reminder. Michele W Re: eye drainage I need to get more Xlear Nasal Wash - I ran out and let it slide this past year and just need to get it back in the routine. I am sure it helps. Does Aubrie still use it? Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Dylan used to laugh with it. Who knows how he will be now that he is bigger. Kim > No-- We got out of the routine as well. She really hates it, so it's hard > to make her use it on a regular basis " just to be safe " . The poor kid has > to go thru so much that I hate to hit her with too much on a daily > prophylactic basis. I'm sure it would help tho. I'll have to think that > one thru again. Thanks for the reminder. > > Michele W > > Re: eye drainage > > I need to get more Xlear Nasal Wash - I ran out and let it slide this past > year and just need to get it back in the routine. I am sure it helps. Does > Aubrie still use it? Kim > > > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada > information and membership, please visit http://www.chargesyndrome.ca or email > info@... . > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 What do you do with the nasal wash? Max too has eye drainage right now...but not signs of a cold otherwise. And we have been in and out of the doctors so much this past week already with a stomach virus that I hate to bother the doc one more time if this is nothing. Kim Lauger wrote: Dylan used to laugh with it. Who knows how he will be now that he is bigger. Kim > No-- We got out of the routine as well. She really hates it, so it's hard > to make her use it on a regular basis " just to be safe " . The poor kid has > to go thru so much that I hate to hit her with too much on a daily > prophylactic basis. I'm sure it would help tho. I'll have to think that > one thru again. Thanks for the reminder. > > Michele W > > Re: eye drainage > > I need to get more Xlear Nasal Wash - I ran out and let it slide this past > year and just need to get it back in the routine. I am sure it helps. Does > Aubrie still use it? Kim > > > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada > information and membership, please visit http://www.chargesyndrome.ca or email > info@... . > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Amy- The Xlear nasal spray has Xylitol in it. It's been shown to kill bacteria in the sinuses and Eustachian tubes thereby reducing infection. Xylitol is a natural sugar derivative. The way it works, if I remember right, is something like this: The bacteria that naturally live in the sinuses eat the xylitol cuz they want sugar. They can't metabolize it like regular sugar. So they get little bacterial indigestion. They can't hold on to the membranes so they are more easily passed out of the body. They can't multiply and grow so they don't reproduce and cause infection. Our kids have smaller and different anatomies and so often they get more of these infections cuz they have the perfect little nooks and crannies for the bacteria to thrive. So the theory is that the Xylitol spray can help reduce the ability of the bacteria to thrive there. If you google it, you'll find the research and the websites to order it. Michele W Aubrie's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 very interesting....will check it out! Suzanne Holman, MAEd Leadership and Life Exuberance Coach toll free How exuberant are you about your life and work? http://www.suzanneholman.com Exuberance E-Course Now Available To You At NO Cost! Includes a fr*e assessment to find out how you measure up! Check here for fr*e teleclasses I'm teaching now! http://tinyurl.com/9wm2w RE: eye drainage Amy- The Xlear nasal spray has Xylitol in it. It's been shown to kill bacteria in the sinuses and Eustachian tubes thereby reducing infection. Xylitol is a natural sugar derivative. The way it works, if I remember right, is something like this: The bacteria that naturally live in the sinuses eat the xylitol cuz they want sugar. They can't metabolize it like regular sugar. So they get little bacterial indigestion. They can't hold on to the membranes so they are more easily passed out of the body. They can't multiply and grow so they don't reproduce and cause infection. Our kids have smaller and different anatomies and so often they get more of these infections cuz they have the perfect little nooks and crannies for the bacteria to thrive. So the theory is that the Xylitol spray can help reduce the ability of the bacteria to thrive there. If you google it, you'll find the research and the websites to order it. Michele W Aubrie's mom Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada information and membership, please visit http://www.chargesyndrome.ca or email info@... . 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 I am sure this helped Dylan when he was having lots of sinus infections and I did not want to use never ending antibiotics. Kim > Amy- > The Xlear nasal spray has Xylitol in it. It's been shown to kill bacteria > in the sinuses and Eustachian tubes thereby reducing infection. Xylitol is > a natural sugar derivative. The way it works, if I remember right, is > something like this: The bacteria that naturally live in the sinuses eat > the xylitol cuz they want sugar. They can't metabolize it like regular > sugar. So they get little bacterial indigestion. They can't hold on to the > membranes so they are more easily passed out of the body. They can't > multiply and grow so they don't reproduce and cause infection. > > Our kids have smaller and different anatomies and so often they get more of > these infections cuz they have the perfect little nooks and crannies for the > bacteria to thrive. So the theory is that the Xylitol spray can help reduce > the ability of the bacteria to thrive there. > > If you google it, you'll find the research and the websites to order it. > > Michele W > Aubrie's mom > > > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada > information and membership, please visit http://www.chargesyndrome.ca or email > info@... . > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
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