Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Dear , Let's don't go there- I'll bet anything that the alk phos is elevated for some silly reason, which it can and does do. I've seen many patients who have it for no good reason. It's good that they will repeat it though. Hang in there- never apologise for freaking out. That's why the group is here. Ali Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Just an update on my medical stuff, it now seems to be possibly entering the realm of this group. My alkaline phosphatase was elevated last week. They just called me today with the results. We are redoing the test Feb. 7. I have not heard of many within families having bile duct issues. Just kind of freaking out. Thanks for letting me vent. Mom of Noah (8) UC, PSC, Osteopenia (1-4 lumbar vertebrae)--(also mom of Zoe (12) and Aidan (4)) -Recycle Yourself Become an Organ Donor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Alkaline Phosphatase is a highly variable lab value that can be elevated for any number of reasons. In the absence of other LFT's also being elevated it is not something I would lose a lot of sleep over and is not even always related to the liver. It is quite possible that when you are retested that value will have significantly changed for the better. in Seattle UC 1991, PSC 2001 > > > > Just an update on my medical stuff, it now seems to be possibly entering the > realm of this group. My alkaline phosphatase was elevated last week. They > just called me today with the results. We are redoing the test Feb. 7. I > have not heard of many within families having bile duct issues. Just kind > of freaking out. > > Thanks for letting me vent. > > > > > > Mom of Noah (8) UC, PSC, Osteopenia (1-4 lumbar vertebrae)--(also mom of Zoe > (12) and Aidan (4)) > > -Recycle Yourself > > Become an Organ Donor > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Don't panic yet .There are other reasons that this value could be elevated.Let us know what your physician has to say. LeeJust an update on my medical stuff, it now seems to be possibly entering the realm of this group. My alkaline phosphatase was elevated last week. They just called me today with the results. We are redoing the test Feb. 7. I have not heard of many within families having bile duct issues. Just kind of freaking out.Thanks for letting me vent. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Okay, I just remember when Noah was diagnosed the ALP was elevated and they were saying that it meant more for an adult because there was no bone growth going on, but that it could be elevated in a child under normal circumstances. I am sure it is nothing. I just am worried about the weird symptoms…extreme fatigue and pins and needles of the hands and feet. While I wish I had something to treat…I was thinking more along the lines of fibromyalgia symptoms that are new. Thank you all for listening and holding my hand as I freak. I will be okay. They wanted me to have the blood tests earlier, but this was the first I could get in. I am thinking of taking the tests somewhere else to get it done ASAP. Give Life! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Just an update on my medical stuff, it now seems to be possibly entering the realm of this group. My alkaline phosphatase was elevated last week. Thanks for letting me vent. hi , I am sorry that you have to worry about this stuff too, I have similar concerns for myself and have been ignoring treatments/testing for my self and concentrating on my son. All of my LFTs were elevated pretty siginifigantly a few years ago, and my liver biopsy was inconclusive, but my GI sent me to a hepatologist. The hepatologist reviewed by biopsy slide with a pathologist and said I have good news for you- it doesn't look like you need a liver transplant at this point. I was thinking what !!??? My GI never said anything about that being a possibility. I was instructed to repeat LFT every month, and they stabilized after @ a year, and then told to have them done every 6 months. I haven't done that though..my bad...The next GI that I saw was a JERK and very dismissive, even when I told him my main concern was trying to help in my son's diagnosis with more info on me (I never got an actual diagnosis..) Only my ALT has been consistantly elevated and my latest liver biopsy showed some abnormalities but nothing 'diagnostic' I bled quite a bit after the biopsy and it HURT !!! but apparently the bleeding started encapsulating per the emergency CT scan I had afterwards. My syptoms are extreme fatigue, achiness, itching, IBD (per colonoscopy) tingling in hands and feet, fogginess sometimes...but everything seems to get dismissed as 'well you have triplets and a son with serious medical issues' and they don't investigate further. Very frustrating for me and I would guess you feel the same way. I know my son's elevated alk phos has at times been dismissed as from bone growth too, but he hasn't grown at all in over a year..hmm... Sorry to be so long winded, just wanted you to know that you are not alone and I understand your concerns. Please let me know what is happening with you. Lori lucky mom blessed with wonderfully wild 9 year old triplets www.caringbridge.org/visit/braden Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 , I am so sorry to hear that you even have to contemplate bile duct issues of ANY type!!! You have more than your fair share taking care of and advocating for your children (not just Noah). Please know that I will be praying that all is well on Feb. 7, and that there is some extenuating circumstance that created the problem and it has resolved itself. Big hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Everyone joins you in wishing there were an effective medical treatment for the underlying disease called PSC. Failing that, not having things to treat is a good thing, because it says the liver is still managing to do its job within reason Best jd, 45 UC 1973, Jpouch 2000, Chronic Pouchitis 2001, PSC 2004, Stage 3 Southern, IL krmpotich@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Thanks . You are in my thoughts. I hope you are getting the rest needed. I was glad to read your post with the doctor’s thoughts on why things were going the way they are. It is one of those…okay…I cannot change it…so let’s make the best out of it. I think the thing that pissed me off the most about hearing ALP being the elevated one was that I think what if Noah needs a liver…lobe or whatever. I want to be able to do that for him hoping to keep him from getting too sick. I KNOW you can understand. So, I have picked myself up off the self-pity (Noah pity) floor and I will deal with anything that comes. Maybe if I look headlong into the beast…(LOST reference again…sorry) it will turn and leave me alone. Sounds like a plan, right? Love ya’ lots, P.S. Please do not ever think that we don’t enjoy seeing you around here…you have so much to offer and I second ’s thoughts. Give Life! Quote Link to comment Share on other sites More sharing options...
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