/Melita/etc

[Guest guest]

Let's start with the blueberry pie. Actually this was supposedly a fresh bakery

pie but I was just

quoting the label. I do know that frozen blueberries can be tough but I use

them without that

toughness to make sauce for pancakes etc.

Melita, I'm delighted for you that you are improved so much. But just being

able to raise your head

and do some resistance with your biceps doesn't really mean that you're ready

for work--or at least

it doesn't seem so to me--course maybe it depends on what your job is.

Let me tell you this--I am 5 years down the road from my diagnosis, currently at

7 mg of pred and my

morning of volunteering in the office of our church's clothing bank where we

regularly see 17-20

groups in 2 hours time just really takes a toll on me!!! Course I love to talk

but it's the activity

of getting the files out etc etc and constant " brainwork " I think that takes its

toll. We have no

machines---meaning no computer--but I can't imagine putting 4 drawers full of

client intake sheets

onto a computer either. Biggest machines are the scissors and stapler and maybe

date stamp. Anyway

I have to still recuperate Wed p.m. and Thursdays from this.

Really think about this okay. You're still decreasing on the pred and there

will be days you'll

feel rotten from just that. Exercise still isn't recommended until your CPK's

are normal and stay

normal for a while.

On the privacy issue medical info should not be given to non-medical receivers

without express

consent of the patient---not just a notification given.

I'll tell you this, listen up dears, lawmakers will say whatever they think a

particular group they

are addressing wants to hear. We heard that directly with one of our state

lawmakers regarding

royalties on oil/gas payments. Oil companies are trying to make the royalty

interest (not the

owners' royalty but the surface owners royalty) pay for processing their

product. That is not what

the contracts say and it was oil people who tried to push such a bill through

our state legislature

and then....when royalty owners (the dragons, so to speak) got wind of this oh

how the lawmaker's

tune did change!! And one senator had the stupidity to say he voted for the

bill even though he had

no information about it.

Okay, down girl.

Lelia

[Guest guest]

Lelia....

I agree with what you said about the lawmakers... First, I think a lot

of them have been in there way to long, know all the nooks and crannies,

know who to call and who not to call when a favor is needed, and it's

only when push comes to shove that they stand up and do the right

thing.... if no one sounds off... they do what's right for them! I

think we all would die if we really knew what went on. I say get rid of

them all and put Yail tribe in there...

Just my little ole opinion....

Vicki

Running for office in 2020