the Benedictine Sisters' very low gluten altar breads, thoughts requested

[Guest guest]

I've had three of the Benedictine Sisters' very low gluten altar

breads now, and I'm quite conflicted about the whole thing.

First one:

I ate it on a Wednesday morning and didn't get that " I've Been

Glutened " sickness right away. I was optimistic. But Wednesday night

through Thursday I had a belly ache and nausea. On Friday my daughter

was sick with a " barf bug " , so I thought my nausea and belly pain were

perhaps a mild form of the barf bug.

Second one:

I ate it on a Sunday morning, after it was consecrated and become

Host, at Mass. I did not get that " I've Been Glutened " sickness right

away. Sunday afternoon we had a restaurant meal. Sunday evening and

Monday I had nausea and stomach pain. I thought I was accidentally

glutened at the restaurant.

Third one:

It was this recent Sunday at Mass. I did not get that " I've Been

Glutened " sickness right away. I had GF breakfast and GF dinner at

home. Sunday night I got the big D. Monday I spent with pain and

nausea. Couldn't even eat dinner on Monday night. Today I'm feeling

better.

I REALLY REALLY hate to think that the very low gluten altar breads

are causing me problems. But it seems like a strange coincidence,

tempting me to think that it's beyond coincidence and possibly

causality, that I've been sick each time I've had a very low gluten

altar bread.

It's a different kind of sickness than I'm using to having, though.

And that's what is so doggone confusing about the whole thing!

If I got that " OH NO THERE'S GLUTEN IN HERE " immediate pain and 'back

door explosions', then I could understand the connection more easily.

But I don't get that immediate pain and D.

I seem to have a long-delay and then pain and nausea, and maybe D.

This is so different from my normal GOT-GLUTENED M.O. that I'm tempted

to keep on trying the Benedictine Sisters' very low gluten altar breads.

But if pain and nausea are nature's little 'red light', trying to tell

me to stop, then I should heed that red light and stop.

I'm SO CONFLICTED!

And if it turns out that I can't tolerate the very low gluten altar

breads, then I have very little option left for Communion because I

can't handle wine either.

Sigh....

All thoughts welcomed.

Esther in RI

[Guest guest]

Ester, Sorry to hear about your problems with the wafers. I'm new at this, so have little to offer, but so far the two times I got gluten it took 12 hours for a reaction. I'm glad I didn't realize that I was eating gluten until I got sick and looked back. I know this is so important to you. I've been just taking wine but that doesn't sound like an option for you (not even the tiniest sip, though?). I'm wondering if it would help you set it aside for awhile and wait until you are feeling great until you try again. It is possible that you could still be harboring a stomach bug. Another thought, if it turns out you can't handle the wafer, what about a small portion of the wafer no more than once a week. And if that is a problem, how about a small portion once a month? I know we shouldn't eat anything that makes us sick, but again this is a very important issue and I

for one couldn't face never taking communion. -esther_p210 wrote: I've had three of the Benedictine Sisters' very low gluten altarbreads now, and I'm quite conflicted about the whole thing.First one: I ate it on a Wednesday morning and didn't get that "I've BeenGlutened" sickness right away. I was optimistic. But Wednesday nightthrough Thursday I had a belly ache and nausea. On Friday my daughterwas sick with a "barf bug", so I thought my nausea and belly pain wereperhaps a mild form of the barf bug.Second one:I ate it on a Sunday morning, after it was consecrated and becomeHost, at Mass. I did not get that "I've Been Glutened" sickness rightaway. Sunday afternoon we had a restaurant meal. Sunday evening andMonday I had

nausea and stomach pain. I thought I was accidentallyglutened at the restaurant.Third one:It was this recent Sunday at Mass. I did not get that "I've BeenGlutened" sickness right away. I had GF breakfast and GF dinner athome. Sunday night I got the big D. Monday I spent with pain andnausea. Couldn't even eat dinner on Monday night. Today I'm feelingbetter. I REALLY REALLY hate to think that the very low gluten altar breadsare causing me problems. But it seems like a strange coincidence,tempting me to think that it's beyond coincidence and possiblycausality, that I've been sick each time I've had a very low glutenaltar bread.It's a different kind of sickness than I'm using to having, though.And that's what is so doggone confusing about the whole thing!If I got that "OH NO THERE'S GLUTEN IN HERE" immediate pain and 'backdoor explosions', then I could understand the connection more easily.But I

don't get that immediate pain and D.I seem to have a long-delay and then pain and nausea, and maybe D. This is so different from my normal GOT-GLUTENED M.O. that I'm temptedto keep on trying the Benedictine Sisters' very low gluten altar breads. But if pain and nausea are nature's little 'red light', trying to tellme to stop, then I should heed that red light and stop.I'm SO CONFLICTED!And if it turns out that I can't tolerate the very low gluten altarbreads, then I have very little option left for Communion because Ican't handle wine either.Sigh....All thoughts welcomed.Esther in RI

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[Guest guest]

Esther,

On the celiac listserv today was a long summary of posts from folks

who use the low gluten hosts. If you're not on that list yet, perhaps

you can find it in the archives:

http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?LIST=CELIAC

It sounds like your priest is much more accomadating than mine. 18

months ago and 1 new pastor later, the parish still doesn't feel a

need to address Communion for celiacs.

Maureen

>

>

>

> I've had three of the Benedictine Sisters' very low gluten altar

> breads now, and I'm quite conflicted about the whole thing.

>

> First one:

> I ate it on a Wednesday morning and didn't get that " I've Been

> Glutened " sickness right away. I was optimistic. But Wednesday night

> through Thursday I had a belly ache and nausea. On Friday my daughter

> was sick with a " barf bug " , so I thought my nausea and belly pain were

> perhaps a mild form of the barf bug.

>

> Second one:

> I ate it on a Sunday morning, after it was consecrated and become

> Host, at Mass. I did not get that " I've Been Glutened " sickness right

> away. Sunday afternoon we had a restaurant meal. Sunday evening and

> Monday I had nausea and stomach pain. I thought I was accidentally

> glutened at the restaurant.

>

> Third one:

> It was this recent Sunday at Mass. I did not get that " I've Been

> Glutened " sickness right away. I had GF breakfast and GF dinner at

> home. Sunday night I got the big D. Monday I spent with pain and

> nausea. Couldn't even eat dinner on Monday night. Today I'm feeling

> better.

>

> I REALLY REALLY hate to think that the very low gluten altar breads

> are causing me problems. But it seems like a strange coincidence,

> tempting me to think that it's beyond coincidence and possibly

> causality, that I've been sick each time I've had a very low gluten

> altar bread.

>

> It's a different kind of sickness than I'm using to having, though.

> And that's what is so doggone confusing about the whole thing!

>

> If I got that " OH NO THERE'S GLUTEN IN HERE " immediate pain and 'back

> door explosions', then I could understand the connection more easily.

>

> But I don't get that immediate pain and D.

> I seem to have a long-delay and then pain and nausea, and maybe D.

>

> This is so different from my normal GOT-GLUTENED M.O. that I'm tempted

> to keep on trying the Benedictine Sisters' very low gluten altar

breads.

>

> But if pain and nausea are nature's little 'red light', trying to tell

> me to stop, then I should heed that red light and stop.

>

> I'm SO CONFLICTED!

>

> And if it turns out that I can't tolerate the very low gluten altar

> breads, then I have very little option left for Communion because I

> can't handle wine either.

>

> Sigh....

>

> All thoughts welcomed.

>

> Esther in RI

>

[Guest guest]

Esther,

On the celiac listserv today was a long summary of posts from folks

who use the low gluten hosts. If you're not on that list yet, perhaps

you can find it in the archives:

http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?LIST=CELIAC

It sounds like your priest is much more accomadating than mine. 18

months ago and 1 new pastor later, the parish still doesn't feel a

need to address Communion for celiacs.

Maureen

>

>

>

> I've had three of the Benedictine Sisters' very low gluten altar

> breads now, and I'm quite conflicted about the whole thing.

>

> First one:

> I ate it on a Wednesday morning and didn't get that " I've Been

> Glutened " sickness right away. I was optimistic. But Wednesday night

> through Thursday I had a belly ache and nausea. On Friday my daughter

> was sick with a " barf bug " , so I thought my nausea and belly pain were

> perhaps a mild form of the barf bug.

>

> Second one:

> I ate it on a Sunday morning, after it was consecrated and become

> Host, at Mass. I did not get that " I've Been Glutened " sickness right

> away. Sunday afternoon we had a restaurant meal. Sunday evening and

> Monday I had nausea and stomach pain. I thought I was accidentally

> glutened at the restaurant.

>

> Third one:

> It was this recent Sunday at Mass. I did not get that " I've Been

> Glutened " sickness right away. I had GF breakfast and GF dinner at

> home. Sunday night I got the big D. Monday I spent with pain and

> nausea. Couldn't even eat dinner on Monday night. Today I'm feeling

> better.

>

> I REALLY REALLY hate to think that the very low gluten altar breads

> are causing me problems. But it seems like a strange coincidence,

> tempting me to think that it's beyond coincidence and possibly

> causality, that I've been sick each time I've had a very low gluten

> altar bread.

>

> It's a different kind of sickness than I'm using to having, though.

> And that's what is so doggone confusing about the whole thing!

>

> If I got that " OH NO THERE'S GLUTEN IN HERE " immediate pain and 'back

> door explosions', then I could understand the connection more easily.

>

> But I don't get that immediate pain and D.

> I seem to have a long-delay and then pain and nausea, and maybe D.

>

> This is so different from my normal GOT-GLUTENED M.O. that I'm tempted

> to keep on trying the Benedictine Sisters' very low gluten altar

breads.

>

> But if pain and nausea are nature's little 'red light', trying to tell

> me to stop, then I should heed that red light and stop.

>

> I'm SO CONFLICTED!

>

> And if it turns out that I can't tolerate the very low gluten altar

> breads, then I have very little option left for Communion because I

> can't handle wine either.

>

> Sigh....

>

> All thoughts welcomed.

>

> Esther in RI

>

[Guest guest]

Esther,

On the celiac listserv today was a long summary of posts from folks

who use the low gluten hosts. If you're not on that list yet, perhaps

you can find it in the archives:

http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?LIST=CELIAC

It sounds like your priest is much more accomadating than mine. 18

months ago and 1 new pastor later, the parish still doesn't feel a

need to address Communion for celiacs.

Maureen

>

>

>

> I've had three of the Benedictine Sisters' very low gluten altar

> breads now, and I'm quite conflicted about the whole thing.

>

> First one:

> I ate it on a Wednesday morning and didn't get that " I've Been

> Glutened " sickness right away. I was optimistic. But Wednesday night

> through Thursday I had a belly ache and nausea. On Friday my daughter

> was sick with a " barf bug " , so I thought my nausea and belly pain were

> perhaps a mild form of the barf bug.

>

> Second one:

> I ate it on a Sunday morning, after it was consecrated and become

> Host, at Mass. I did not get that " I've Been Glutened " sickness right

> away. Sunday afternoon we had a restaurant meal. Sunday evening and

> Monday I had nausea and stomach pain. I thought I was accidentally

> glutened at the restaurant.

>

> Third one:

> It was this recent Sunday at Mass. I did not get that " I've Been

> Glutened " sickness right away. I had GF breakfast and GF dinner at

> home. Sunday night I got the big D. Monday I spent with pain and

> nausea. Couldn't even eat dinner on Monday night. Today I'm feeling

> better.

>

> I REALLY REALLY hate to think that the very low gluten altar breads

> are causing me problems. But it seems like a strange coincidence,

> tempting me to think that it's beyond coincidence and possibly

> causality, that I've been sick each time I've had a very low gluten

> altar bread.

>

> It's a different kind of sickness than I'm using to having, though.

> And that's what is so doggone confusing about the whole thing!

>

> If I got that " OH NO THERE'S GLUTEN IN HERE " immediate pain and 'back

> door explosions', then I could understand the connection more easily.

>

> But I don't get that immediate pain and D.

> I seem to have a long-delay and then pain and nausea, and maybe D.

>

> This is so different from my normal GOT-GLUTENED M.O. that I'm tempted

> to keep on trying the Benedictine Sisters' very low gluten altar

breads.

>

> But if pain and nausea are nature's little 'red light', trying to tell

> me to stop, then I should heed that red light and stop.

>

> I'm SO CONFLICTED!

>

> And if it turns out that I can't tolerate the very low gluten altar

> breads, then I have very little option left for Communion because I

> can't handle wine either.

>

> Sigh....

>

> All thoughts welcomed.

>

> Esther in RI

>

[Guest guest]

I wonder if you could do a " blind test. " This may sound sort of silly, but if

it were me, I

would want to eliminate even my knowing that I might have eaten something bad.

I have

not seen the wafers, but could you have maybe two rice crackers and two

non-blessed

wafers and have a trusted friend keep them separate. Maybe crush them up so you

would

not be able to tell with your tongue which it was. Then feed you one a week and

keep

track of which it was but not tell you until the end of the test. If you react

on the two

wafers and have nothing with the two rice crackers, I would think it would be

just too

strange a coincidence that you happened to eat other gluten only on the two

wafer test

days. Wouldn't solve the problem of not getting communion if you do react, but

might

bring you closer to knowing if you are reacting to the wafers.

I hope this doesn't sound like I am turning this into a game. I can tell this

is very

important to you and think how devastated my mom would be if she suddenly could

not

take communion - honsetly, this is exactly what I would do if I were in your

situation. I

like to take all possibly " it's all in my head " factors out of matters of my

gut. I think it is

that I have been told so many times that it is my imagination and I want to

prove that it is

not.

[Guest guest]

I wonder if you could do a " blind test. " This may sound sort of silly, but if

it were me, I

would want to eliminate even my knowing that I might have eaten something bad.

I have

not seen the wafers, but could you have maybe two rice crackers and two

non-blessed

wafers and have a trusted friend keep them separate. Maybe crush them up so you

would

not be able to tell with your tongue which it was. Then feed you one a week and

keep

track of which it was but not tell you until the end of the test. If you react

on the two

wafers and have nothing with the two rice crackers, I would think it would be

just too

strange a coincidence that you happened to eat other gluten only on the two

wafer test

days. Wouldn't solve the problem of not getting communion if you do react, but

might

bring you closer to knowing if you are reacting to the wafers.

I hope this doesn't sound like I am turning this into a game. I can tell this

is very

important to you and think how devastated my mom would be if she suddenly could

not

take communion - honsetly, this is exactly what I would do if I were in your

situation. I

like to take all possibly " it's all in my head " factors out of matters of my

gut. I think it is

that I have been told so many times that it is my imagination and I want to

prove that it is

not.

[Guest guest]

This is good plan. Thank you for thinking it out for me. I was

thinking " I wish I had a double-blind kind of test for this " , but

didn't know how to go about doing it. Yes, enlisting a friend's help

and a pack of non-consecrated altar breads will be what it takes to

make a double-blind test! THANK YOU!

Meanwhile, I'm going to try a very small piece and see if that works.

My pastor is very sensitive to this whole issue and is willing to do

whatever it takes to help me. Bless him. He's a sweetie.

>

> I wonder if you could do a " blind test. " This may sound sort of

silly, but if it were me, I

> would want to eliminate even my knowing that I might have eaten

something bad. I have

> not seen the wafers, but could you have maybe two rice crackers and

two non-blessed

> wafers and have a trusted friend keep them separate. Maybe crush

them up so you would

> not be able to tell with your tongue which it was. Then feed you

one a week and keep

> track of which it was but not tell you until the end of the test.

If you react on the two

> wafers and have nothing with the two rice crackers, I would think it

would be just too

> strange a coincidence that you happened to eat other gluten only on

the two wafer test

> days. Wouldn't solve the problem of not getting communion if you do

react, but might

> bring you closer to knowing if you are reacting to the wafers.

>

> I hope this doesn't sound like I am turning this into a game. I can

tell this is very

> important to you and think how devastated my mom would be if she

suddenly could not

> take communion - honsetly, this is exactly what I would do if I were

in your situation. I

> like to take all possibly " it's all in my head " factors out of

matters of my gut. I think it is

> that I have been told so many times that it is my imagination and I

want to prove that it is

> not.

>

[Guest guest]

Esther,I just can't believe what a long road this has been for you, getting to celebrate communion without being sick! I am thrilled for you that you finally got to do it on Sunday! Hooray!!!Dana, Gloriously GFesther_p210 wrote: > > If you are willing to try it again, I would absolutely not > eat anywhere but at home before and after taking the Host. I'm happy to report that on Sunday, 1/5, Father gave me 1/4 of a Benedictine Sisters' very low gluten Host... AND... I have been FINE! Now that I'm reading all the Mc's notes, I wonder if the fries had gotten me and I didn't know it. I've been in the habit of having McD's once in a while, when

my littles have been particularly well behaved. I'll get them Happy Meals with apples and then one order of fries. And I've split the fries up to 6 ways. So... I've had a few McD's fries in the last few months. But the timing seems "off", so I don't know. But meanwhile, I've had Communion once now without any problems! SO HAPPY!!! Esther in RI

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[Guest guest]

Esther,I just can't believe what a long road this has been for you, getting to celebrate communion without being sick! I am thrilled for you that you finally got to do it on Sunday! Hooray!!!Dana, Gloriously GFesther_p210 wrote: > > If you are willing to try it again, I would absolutely not > eat anywhere but at home before and after taking the Host. I'm happy to report that on Sunday, 1/5, Father gave me 1/4 of a Benedictine Sisters' very low gluten Host... AND... I have been FINE! Now that I'm reading all the Mc's notes, I wonder if the fries had gotten me and I didn't know it. I've been in the habit of having McD's once in a while, when

my littles have been particularly well behaved. I'll get them Happy Meals with apples and then one order of fries. And I've split the fries up to 6 ways. So... I've had a few McD's fries in the last few months. But the timing seems "off", so I don't know. But meanwhile, I've had Communion once now without any problems! SO HAPPY!!! Esther in RI

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