Re: new and nervous mom in NC

January 17, 2006

,

That is one great NP! It's not uncommon for doctors to shrug off our

concerns.

You may want to consider getting a free evaluation from CT. They can

take pictures of Aria as well as measurements. That way you can go

back in a few weeks to see if repositioning is working. I wish I had

known to do this with DS. I would have loved to see how much had had

improved before banding.

DS was severe. He was banded from 5-8 mo and got full correction.

Good luck with the respositioning. Check out the repo HQ in the files

section.

Mom to Dane 4 yo and Cece 12 mo (DOC Grads)

January 17, 2006

,

That is one great NP! It's not uncommon for doctors to shrug off our

concerns.

You may want to consider getting a free evaluation from CT. They can

take pictures of Aria as well as measurements. That way you can go

back in a few weeks to see if repositioning is working. I wish I had

known to do this with DS. I would have loved to see how much had had

improved before banding.

DS was severe. He was banded from 5-8 mo and got full correction.

Good luck with the respositioning. Check out the repo HQ in the files

section.

Mom to Dane 4 yo and Cece 12 mo (DOC Grads)

January 17, 2006

,How lucky you are to have an informed pediatrician. Aria is at a great age to start treatment. I see that you already have the CT brochure, have you used the assessment charts on thier website to make a guess at severity? Repo is difficult and does not work completely on every baby, especially the severe, and the babies with torticollis. Which brings me to my next question. Has she been diagnosed with torticollis? It sounds as if she has it, when you describe the preference to look in one direction and always ending up with the head turned the same way. If the plagio is severe it can also be a muscle imbalance from being stuck on the flat spot. Both require stretches and sometimes physical therapy to correct. Toricollis can also make facial and ear asymmetry worse, so it should be resolved to recieve the best correction with the plagio. I think that your NP is on top of things and taking the right steps. Try the repo until the 4 month check and see what the NP thinks. You might; just because it takes a bit of time to go through the insurance process, go ahead and make an appointment with CT for a free evaluation. That way you can always start things rolling and if the NP says go ahead you will be ready. They will also send a report to your NP so she can make her reccommendations having the facts in front of her. Here is a link to my son's website, he was treated for severe inutero plagio at CT in Virginia. It takes you through the whole process and also goes into info on the associated risks that can go along with plagio, such as TMJ, developemental delays,etc.. It has many pictures and even shows the casting process. My Banded Baby . I hope this has helped and let us know about the tort and severity if you can. Welcome to our group. CAROLG >> hi everyone. i'm so glad i found this group. i'm a first time mom and> my daughter Aria is 3 months old and we live in Charlotte, NC. at both> her 1 month and 2 months check up visits, the Dr (well, actually NP)> pointed out what i had been noticing already, that the back of Aria's> head is flat and it's more mushed on one side. she seems to always> want to turn her head to the right and lay on the right, etc. she's> capable of turning to the left but for some reason really prefers to> look right almost all the time. so not only is her head flat on the> back, but also lop-sided. i hate it b/c she's so dang cute from the> front but when you look at her from the side or back it seems so out> of whack. i'm sure you moms can relate! anyway, so the NP said to try> repositioning and that we'll take another look at it at her 4 month> checkup and talk more about the options at that time. she also gave me> a Cranial Tech brochure just to let me know what direction we may be> going in, so of course i've been looking up a lot of info on plagio> and bands which is how i found this group. so... so far no band for us> but i'm thinking she will end up needing one because i'm not seeing a> lot of progress and repositioning is not working too well, she is so> wiggly and i've tried propping things to make her turn to the left and> somehow she always ends up getting them out of her way or moved> somewhere they shouldn't be. it's really frustrating b/c i feel like i> should be doing more to try to reposition but i don't think it would> be enough to "heal" it anyway. > sorry for the long post, just wanted to introduce myself and give a> quick summary of our situation. i have a feeling i will be posting> more in here when i have more questions once we talk to doctors more> about this.> > ----------------------------> in NC> mommy to Aria, born 10/19/05>

January 17, 2006

,How lucky you are to have an informed pediatrician. Aria is at a great age to start treatment. I see that you already have the CT brochure, have you used the assessment charts on thier website to make a guess at severity? Repo is difficult and does not work completely on every baby, especially the severe, and the babies with torticollis. Which brings me to my next question. Has she been diagnosed with torticollis? It sounds as if she has it, when you describe the preference to look in one direction and always ending up with the head turned the same way. If the plagio is severe it can also be a muscle imbalance from being stuck on the flat spot. Both require stretches and sometimes physical therapy to correct. Toricollis can also make facial and ear asymmetry worse, so it should be resolved to recieve the best correction with the plagio. I think that your NP is on top of things and taking the right steps. Try the repo until the 4 month check and see what the NP thinks. You might; just because it takes a bit of time to go through the insurance process, go ahead and make an appointment with CT for a free evaluation. That way you can always start things rolling and if the NP says go ahead you will be ready. They will also send a report to your NP so she can make her reccommendations having the facts in front of her. Here is a link to my son's website, he was treated for severe inutero plagio at CT in Virginia. It takes you through the whole process and also goes into info on the associated risks that can go along with plagio, such as TMJ, developemental delays,etc.. It has many pictures and even shows the casting process. My Banded Baby . I hope this has helped and let us know about the tort and severity if you can. Welcome to our group. CAROLG >> hi everyone. i'm so glad i found this group. i'm a first time mom and> my daughter Aria is 3 months old and we live in Charlotte, NC. at both> her 1 month and 2 months check up visits, the Dr (well, actually NP)> pointed out what i had been noticing already, that the back of Aria's> head is flat and it's more mushed on one side. she seems to always> want to turn her head to the right and lay on the right, etc. she's> capable of turning to the left but for some reason really prefers to> look right almost all the time. so not only is her head flat on the> back, but also lop-sided. i hate it b/c she's so dang cute from the> front but when you look at her from the side or back it seems so out> of whack. i'm sure you moms can relate! anyway, so the NP said to try> repositioning and that we'll take another look at it at her 4 month> checkup and talk more about the options at that time. she also gave me> a Cranial Tech brochure just to let me know what direction we may be> going in, so of course i've been looking up a lot of info on plagio> and bands which is how i found this group. so... so far no band for us> but i'm thinking she will end up needing one because i'm not seeing a> lot of progress and repositioning is not working too well, she is so> wiggly and i've tried propping things to make her turn to the left and> somehow she always ends up getting them out of her way or moved> somewhere they shouldn't be. it's really frustrating b/c i feel like i> should be doing more to try to reposition but i don't think it would> be enough to "heal" it anyway. > sorry for the long post, just wanted to introduce myself and give a> quick summary of our situation. i have a feeling i will be posting> more in here when i have more questions once we talk to doctors more> about this.> > ----------------------------> in NC> mommy to Aria, born 10/19/05>

January 17, 2006

Welcome ,

I am also in NC in the Charlotte area and my was banded at

CT in November. He is now 10 months old, was almost 8 months at

banding. He was diagnosed with brachycephaly at 4 months. We tried

repo, but to no avail. I would definetly continue the repo and see

where it gets you. Many people have had a lot of success with it.

The people at CT in Charlotte are wonderful to work with and very

helpful with repo suggestions and stetching exercises. My son was not

ever diagnosed with torticollis, but had a few tighter muscles in his

neck and across his shoulder. I hope that everything goes well and if

you have any questions about the Charlotte CT feel free to email me

directly. samantha1@...

10 months (in 1 week)

DOC band 11/16/05

Charlotte, NC

>

> hi everyone. i'm so glad i found this group. i'm a first time mom and

> my daughter Aria is 3 months old and we live in Charlotte, NC. at both

> her 1 month and 2 months check up visits, the Dr (well, actually NP)

> pointed out what i had been noticing already, that the back of Aria's

> head is flat and it's more mushed on one side. she seems to always

> want to turn her head to the right and lay on the right, etc. she's

> capable of turning to the left but for some reason really prefers to

> look right almost all the time. so not only is her head flat on the

> back, but also lop-sided. i hate it b/c she's so dang cute from the

> front but when you look at her from the side or back it seems so out

> of whack. i'm sure you moms can relate! anyway, so the NP said to try

> repositioning and that we'll take another look at it at her 4 month

> checkup and talk more about the options at that time. she also gave me

> a Cranial Tech brochure just to let me know what direction we may be

> going in, so of course i've been looking up a lot of info on plagio

> and bands which is how i found this group. so... so far no band for us

> but i'm thinking she will end up needing one because i'm not seeing a

> lot of progress and repositioning is not working too well, she is so

> wiggly and i've tried propping things to make her turn to the left and

> somehow she always ends up getting them out of her way or moved

> somewhere they shouldn't be. it's really frustrating b/c i feel like i

> should be doing more to try to reposition but i don't think it would

> be enough to " heal " it anyway.

> sorry for the long post, just wanted to introduce myself and give a

> quick summary of our situation. i have a feeling i will be posting

> more in here when i have more questions once we talk to doctors more

> about this.

>

> ----------------------------

> in NC

> mommy to Aria, born 10/19/05

>

January 17, 2006