Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 1. My daughter is 27 years old and on the diet for 2 1/2 years. The diet has reduced her seizures about 80% and she is off of medications. She is alert and her seizures are very short and she recovers immediately. She seems to be more aware and has changed considerably while on the diet. 2. BHB is a blood ketone monitor. Usually the monitor is free, but the ketone strips are expensive. Check with a diabetes clinic as they are usually the same monitor. Most people use urine sticks to check ketone levels. Yes, there are lots of problems with the diet! But it is worth it! Good luck, Bill breda.kavcic wrote: > Hello ! > > I am Rado PINTAR and my wife is Breda KAVCIC. We have doughter Maruša. > She is 15 an she has Lenoux Gaustat sindrom. She started with epilepsy > at 1st year. > > We are from Slovenia in Europe. We are one of the first family with kid > on the keto diet in Slovenia. We are on the diet two months and we have > lot of problems. Se we have lot of questions. > > Let we start with them: > > 1. Does somebody have expirence with adoult keto kid > (age 15 or something like that) ? > > 2. What is BHB monitor, where we can get it and how much it cost ? > > Rado > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 1. My daughter is 27 years old and on the diet for 2 1/2 years. The diet has reduced her seizures about 80% and she is off of medications. She is alert and her seizures are very short and she recovers immediately. She seems to be more aware and has changed considerably while on the diet. 2. BHB is a blood ketone monitor. Usually the monitor is free, but the ketone strips are expensive. Check with a diabetes clinic as they are usually the same monitor. Most people use urine sticks to check ketone levels. Yes, there are lots of problems with the diet! But it is worth it! Good luck, Bill breda.kavcic wrote: > Hello ! > > I am Rado PINTAR and my wife is Breda KAVCIC. We have doughter Maruša. > She is 15 an she has Lenoux Gaustat sindrom. She started with epilepsy > at 1st year. > > We are from Slovenia in Europe. We are one of the first family with kid > on the keto diet in Slovenia. We are on the diet two months and we have > lot of problems. Se we have lot of questions. > > Let we start with them: > > 1. Does somebody have expirence with adoult keto kid > (age 15 or something like that) ? > > 2. What is BHB monitor, where we can get it and how much it cost ? > > Rado > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 1. My daughter is 27 years old and on the diet for 2 1/2 years. The diet has reduced her seizures about 80% and she is off of medications. She is alert and her seizures are very short and she recovers immediately. She seems to be more aware and has changed considerably while on the diet. 2. BHB is a blood ketone monitor. Usually the monitor is free, but the ketone strips are expensive. Check with a diabetes clinic as they are usually the same monitor. Most people use urine sticks to check ketone levels. Yes, there are lots of problems with the diet! But it is worth it! Good luck, Bill breda.kavcic wrote: > Hello ! > > I am Rado PINTAR and my wife is Breda KAVCIC. We have doughter Maruša. > She is 15 an she has Lenoux Gaustat sindrom. She started with epilepsy > at 1st year. > > We are from Slovenia in Europe. We are one of the first family with kid > on the keto diet in Slovenia. We are on the diet two months and we have > lot of problems. Se we have lot of questions. > > Let we start with them: > > 1. Does somebody have expirence with adoult keto kid > (age 15 or something like that) ? > > 2. What is BHB monitor, where we can get it and how much it cost ? > > Rado > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 Rado, My daughter is 18 has LGS and has been on the diet for 14 months. I don't have a doctor here in Australia to help me with the diet so I am doing it without help. We are proof it can be done without experienced doctors and dieticians but it has been hard work. I owe a lot of thanks to this group for the support they have given me. We have had a lot of success with seizure control, alertness and general good health.We do not use a BHB monitor. We made a lot of adjustments to the diet in the first months and I am still finetuning as we go along. Don't give up. Leita. > Hello ! > > I am Rado PINTAR and my wife is Breda KAVCIC. We have doughter Maruša. > She is 15 an she has Lenoux Gaustat sindrom. She started with epilepsy > at 1st year. > > We are from Slovenia in Europe. We are one of the first family with kid > on the keto diet in Slovenia. We are on the diet two months and we have > lot of problems. Se we have lot of questions. > > Let we start with them: > > 1. Does somebody have expirence with adoult keto kid > (age 15 or something like that) ? > > 2. What is BHB monitor, where we can get it and how much it cost ? > > Rado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 Rado, My daughter is 18 has LGS and has been on the diet for 14 months. I don't have a doctor here in Australia to help me with the diet so I am doing it without help. We are proof it can be done without experienced doctors and dieticians but it has been hard work. I owe a lot of thanks to this group for the support they have given me. We have had a lot of success with seizure control, alertness and general good health.We do not use a BHB monitor. We made a lot of adjustments to the diet in the first months and I am still finetuning as we go along. Don't give up. Leita. > Hello ! > > I am Rado PINTAR and my wife is Breda KAVCIC. We have doughter Maruša. > She is 15 an she has Lenoux Gaustat sindrom. She started with epilepsy > at 1st year. > > We are from Slovenia in Europe. We are one of the first family with kid > on the keto diet in Slovenia. We are on the diet two months and we have > lot of problems. Se we have lot of questions. > > Let we start with them: > > 1. Does somebody have expirence with adoult keto kid > (age 15 or something like that) ? > > 2. What is BHB monitor, where we can get it and how much it cost ? > > Rado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 I am A-. I think according to the blood type diet I am supposed to eat a lot of grains:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 I am type O+ as well. Message: 14 Date: Tue, 17 Jan 2006 04:10:27 -0000 Subject: blood types Hello, i was just wondering what every ones blood types were. my friend who is studing nutriton said that the blood type o does not tolerate gluten or dairy very well. i am type O+. i was just wondering if this could be a factor with celiacs. I was just interested in how many of us had type o . thanks cm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 My daughter who has celiac is B- Beth in Arizona > > > Date: 2006/01/17 Tue AM 09:47:32 EST > To: SillyYaks > Subject: Re: Digest Number 1436 > > I am type O+ as well. Message: 14 Date: Tue, 17 Jan 2006 04:10:27 -0000 Subject: blood types Hello, i was just wondering what every ones blood types were. my friend who is studing nutriton said that the blood type o does not tolerate gluten or dairy very well. i am type O+. i was just wondering if this could be a factor with celiacs. I was just interested in how many of us had type o . thanks cm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 My daughter who has celiac is B- Beth in Arizona > > > Date: 2006/01/17 Tue AM 09:47:32 EST > To: SillyYaks > Subject: Re: Digest Number 1436 > > Error copying stream Quote Link to comment Share on other sites More sharing options...
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