Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 We went for Leahs exit photos and casting yesterday. It was very nerve wracking. Seeing as the first casting went pretty good I didnt expect total chaos from leah during the second! She wouldnt take the bottle and had a meltdown until I sang her nursery rhymes. Talk about embarrassing (I cant sing)! Not to mention I was about to have a breakdown myself and my mom must have heard it in my voice cause shes like dont start crying lynn! So anyways we all made it through and she was smiling for bath time. I am a little upset as I hadnt expected Leahs orthoist not to be there. Not saying the other is not as good, just for the last visit and goodbye, you would like to have the orthoist thats been with you for 3 months. I also just realized that I forgot to ask for measurements Now what? Is there a way to get the measurements at home, from pediatricians office? Or is it not the same? I know numbers are just numbers but I save alot for Leah, for her baby book and I had just wanted to include before and after data. They gave me Leahs entry mold and they said a copy of the exit one would be sent to me. I think that is pretty neat! They also e- mailed me the side by side before and after photos. Sometimes I see a big difference sometimes I see small difference. At any rate I do not regret my decision. I do wonder if a second band would have been something to think about? Oh well. Leah had PT today and PT suggested that she come twice a week instead of once as Leah is still not moving as much as you would expect. She is still scoring low in gross motor, although not quite as low as when she was tested the first time at 4 months of age. Also I showed her the videos of Leah doing the head shaking, the rocking and the birdy flying things she does. She says the rocking while sitting and birdy flying are normal things babies do, when testing limits and when they get excited. The head thing she says should be " investigated " a little more. She also agreed that it couldnt hurt to talk to the EI coordinator about possibly having OT come in and evaluate Leah for sensory issues. But also to bring all this up and show the pediatrician. So I called Leahs ped and got her in for her 9 month check up and to address some of the concerns. After the appt on friday I need to call EI and go from there. I am feeling overwhelmed a little, nervous and helpless! I wish I could do more in general. I feel like I have done something wrong or I am not doing enough. Her tort is going to be a long battle even though it wasnt considered that severe. Where to others it seems she has full rom and doesnt have much issues with the tort, in actuality she does. She has learned now how to compensate for it. She pulls her right shoulder back when looking right, to prevent stretching the muscle too much. When you take a naked picture you can see how high the right shoulder is, compared to the left. The facial and head asymmetry is most likely more obvious because tort. Even though I am constantly stretching her an dhave been for months and months. Am I doing this wrong? Should I do more? Is this normal? I am sorry I am so stressed. I am sure we all have these times. Its good to have a place to vent where everyones been there at some point, in some way. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 We went for Leahs exit photos and casting yesterday. It was very nerve wracking. Seeing as the first casting went pretty good I didnt expect total chaos from leah during the second! She wouldnt take the bottle and had a meltdown until I sang her nursery rhymes. Talk about embarrassing (I cant sing)! Not to mention I was about to have a breakdown myself and my mom must have heard it in my voice cause shes like dont start crying lynn! So anyways we all made it through and she was smiling for bath time. I am a little upset as I hadnt expected Leahs orthoist not to be there. Not saying the other is not as good, just for the last visit and goodbye, you would like to have the orthoist thats been with you for 3 months. I also just realized that I forgot to ask for measurements Now what? Is there a way to get the measurements at home, from pediatricians office? Or is it not the same? I know numbers are just numbers but I save alot for Leah, for her baby book and I had just wanted to include before and after data. They gave me Leahs entry mold and they said a copy of the exit one would be sent to me. I think that is pretty neat! They also e- mailed me the side by side before and after photos. Sometimes I see a big difference sometimes I see small difference. At any rate I do not regret my decision. I do wonder if a second band would have been something to think about? Oh well. Leah had PT today and PT suggested that she come twice a week instead of once as Leah is still not moving as much as you would expect. She is still scoring low in gross motor, although not quite as low as when she was tested the first time at 4 months of age. Also I showed her the videos of Leah doing the head shaking, the rocking and the birdy flying things she does. She says the rocking while sitting and birdy flying are normal things babies do, when testing limits and when they get excited. The head thing she says should be " investigated " a little more. She also agreed that it couldnt hurt to talk to the EI coordinator about possibly having OT come in and evaluate Leah for sensory issues. But also to bring all this up and show the pediatrician. So I called Leahs ped and got her in for her 9 month check up and to address some of the concerns. After the appt on friday I need to call EI and go from there. I am feeling overwhelmed a little, nervous and helpless! I wish I could do more in general. I feel like I have done something wrong or I am not doing enough. Her tort is going to be a long battle even though it wasnt considered that severe. Where to others it seems she has full rom and doesnt have much issues with the tort, in actuality she does. She has learned now how to compensate for it. She pulls her right shoulder back when looking right, to prevent stretching the muscle too much. When you take a naked picture you can see how high the right shoulder is, compared to the left. The facial and head asymmetry is most likely more obvious because tort. Even though I am constantly stretching her an dhave been for months and months. Am I doing this wrong? Should I do more? Is this normal? I am sorry I am so stressed. I am sure we all have these times. Its good to have a place to vent where everyones been there at some point, in some way. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Hi, I'm happy to hear the exit casting is behind you. :-) I think going to PT twice a week is a great thing. Is the PT addressing her tort also? If not she should be. I think it's sweet that you sang her nursery rhymes, what an awesome Mommy. Let us know what your ped says about everything. Yes, it can be very overwhelming at times. Don't worry things have a way of falling into place. You're doing all you can right now, you're doing the best you can for Leah!!!! > > We went for Leahs exit photos and casting yesterday. It was very > nerve wracking. Seeing as the first casting went pretty good I > didnt expect total chaos from leah during the second! She wouldnt > take the bottle and had a meltdown until I sang her nursery rhymes. > Talk about embarrassing (I cant sing)! Not to mention I was about > to have a breakdown myself and my mom must have heard it in my voice > cause shes like dont start crying lynn! So anyways we all made it > through and she was smiling for bath time. > > I am a little upset as I hadnt expected Leahs orthoist not to be > there. Not saying the other is not as good, just for the last visit > and goodbye, you would like to have the orthoist thats been with you > for 3 months. I also just realized that I forgot to ask for > measurements Now what? Is there a way to get the measurements > at home, from pediatricians office? Or is it not the same? I know > numbers are just numbers but I save alot for Leah, for her baby book > and I had just wanted to include before and after data. > > They gave me Leahs entry mold and they said a copy of the exit one > would be sent to me. I think that is pretty neat! They also e- > mailed me the side by side before and after photos. Sometimes I see > a big difference sometimes I see small difference. At any rate I do > not regret my decision. I do wonder if a second band would have > been something to think about? Oh well. > > Leah had PT today and PT suggested that she come twice a week > instead of once as Leah is still not moving as much as you would > expect. She is still scoring low in gross motor, although not quite > as low as when she was tested the first time at 4 months of age. > Also I showed her the videos of Leah doing the head shaking, the > rocking and the birdy flying things she does. She says the rocking > while sitting and birdy flying are normal things babies do, when > testing limits and when they get excited. The head thing she says > should be " investigated " a little more. She also agreed that it > couldnt hurt to talk to the EI coordinator about possibly having OT > come in and evaluate Leah for sensory issues. But also to bring all > this up and show the pediatrician. So I called Leahs ped and got > her in for her 9 month check up and to address some of the > concerns. After the appt on friday I need to call EI and go from > there. I am feeling overwhelmed a little, nervous and helpless! I > wish I could do more in general. I feel like I have done something > wrong or I am not doing enough. > > Her tort is going to be a long battle even though it wasnt > considered that severe. Where to others it seems she has full rom > and doesnt have much issues with the tort, in actuality she does. > She has learned now how to compensate for it. She pulls her right > shoulder back when looking right, to prevent stretching the muscle > too much. When you take a naked picture you can see how high the > right shoulder is, compared to the left. The facial and head > asymmetry is most likely more obvious because tort. Even though I > am constantly stretching her an dhave been for months and months. > Am I doing this wrong? Should I do more? Is this normal? > > I am sorry I am so stressed. I am sure we all have these times. > Its good to have a place to vent where everyones been there at some > point, in some way. Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Hi, I'm happy to hear the exit casting is behind you. :-) I think going to PT twice a week is a great thing. Is the PT addressing her tort also? If not she should be. I think it's sweet that you sang her nursery rhymes, what an awesome Mommy. Let us know what your ped says about everything. Yes, it can be very overwhelming at times. Don't worry things have a way of falling into place. You're doing all you can right now, you're doing the best you can for Leah!!!! > > We went for Leahs exit photos and casting yesterday. It was very > nerve wracking. Seeing as the first casting went pretty good I > didnt expect total chaos from leah during the second! She wouldnt > take the bottle and had a meltdown until I sang her nursery rhymes. > Talk about embarrassing (I cant sing)! Not to mention I was about > to have a breakdown myself and my mom must have heard it in my voice > cause shes like dont start crying lynn! So anyways we all made it > through and she was smiling for bath time. > > I am a little upset as I hadnt expected Leahs orthoist not to be > there. Not saying the other is not as good, just for the last visit > and goodbye, you would like to have the orthoist thats been with you > for 3 months. I also just realized that I forgot to ask for > measurements Now what? Is there a way to get the measurements > at home, from pediatricians office? Or is it not the same? I know > numbers are just numbers but I save alot for Leah, for her baby book > and I had just wanted to include before and after data. > > They gave me Leahs entry mold and they said a copy of the exit one > would be sent to me. I think that is pretty neat! They also e- > mailed me the side by side before and after photos. Sometimes I see > a big difference sometimes I see small difference. At any rate I do > not regret my decision. I do wonder if a second band would have > been something to think about? Oh well. > > Leah had PT today and PT suggested that she come twice a week > instead of once as Leah is still not moving as much as you would > expect. She is still scoring low in gross motor, although not quite > as low as when she was tested the first time at 4 months of age. > Also I showed her the videos of Leah doing the head shaking, the > rocking and the birdy flying things she does. She says the rocking > while sitting and birdy flying are normal things babies do, when > testing limits and when they get excited. The head thing she says > should be " investigated " a little more. She also agreed that it > couldnt hurt to talk to the EI coordinator about possibly having OT > come in and evaluate Leah for sensory issues. But also to bring all > this up and show the pediatrician. So I called Leahs ped and got > her in for her 9 month check up and to address some of the > concerns. After the appt on friday I need to call EI and go from > there. I am feeling overwhelmed a little, nervous and helpless! I > wish I could do more in general. I feel like I have done something > wrong or I am not doing enough. > > Her tort is going to be a long battle even though it wasnt > considered that severe. Where to others it seems she has full rom > and doesnt have much issues with the tort, in actuality she does. > She has learned now how to compensate for it. She pulls her right > shoulder back when looking right, to prevent stretching the muscle > too much. When you take a naked picture you can see how high the > right shoulder is, compared to the left. The facial and head > asymmetry is most likely more obvious because tort. Even though I > am constantly stretching her an dhave been for months and months. > Am I doing this wrong? Should I do more? Is this normal? > > I am sorry I am so stressed. I am sure we all have these times. > Its good to have a place to vent where everyones been there at some > point, in some way. Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 , I have a hard time singing anywhere! Cece's PT tried to get me to sing for her casting. I tried but I let them take the lead. We ended up singing 100 bottles of beer on the wall. I even emailed her that night to apologize for my awful singing We are having a similar battle with Cece's tort. Dane's wasn't nearly as challenging as his was not congenital. I was not expecting this sort of fight. She's been in PT since she was 2 months old. I thought for sure it would have been resolved by now. Nope. It keeps rearing it's ugly head! Don't worry about the measurements! Lots of people don't get them at all. They really are more for insurance purposes. The headsicles will be a great thing to show her in the future. I know what you mean about being overwhelmed with all kinds of appointments, etc. Cece has a couple other problems that we are looking on taking care of too. Sometimes it feels like I'm going to trip. I just keep reminding myself how well EI works. I'd much rather run a sprint now to take care of these things than a marathon later down the road. At least now you don't have those monstrous drives! Mom to Dane 4 yo and Cecelia 12 mo (DOC Grads) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 , I have a hard time singing anywhere! Cece's PT tried to get me to sing for her casting. I tried but I let them take the lead. We ended up singing 100 bottles of beer on the wall. I even emailed her that night to apologize for my awful singing We are having a similar battle with Cece's tort. Dane's wasn't nearly as challenging as his was not congenital. I was not expecting this sort of fight. She's been in PT since she was 2 months old. I thought for sure it would have been resolved by now. Nope. It keeps rearing it's ugly head! Don't worry about the measurements! Lots of people don't get them at all. They really are more for insurance purposes. The headsicles will be a great thing to show her in the future. I know what you mean about being overwhelmed with all kinds of appointments, etc. Cece has a couple other problems that we are looking on taking care of too. Sometimes it feels like I'm going to trip. I just keep reminding myself how well EI works. I'd much rather run a sprint now to take care of these things than a marathon later down the road. At least now you don't have those monstrous drives! Mom to Dane 4 yo and Cecelia 12 mo (DOC Grads) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 , At times, I share your anxiety and guilt. It can sneak up and knock the best of us over even on our best days. You didn't do anything wrong and you took immediate action as soon as you could. (You were on the ball long before I put the pieces of my puzzle together.) Take comfort that you're doing all that you can for your daughter. She will know how much you love her. I bet your orthotist would let you come back in for final meausurements if the trip isn't too much of a hassle for you. When I get nervous, I just feel like running to exhaustion. Usually though I opt for unhealthy snacks instead. Liliana's in PT through EI as well. It's helping a lot but I still wish we didn't have to do it. It cycles back to the " what did I do wrong thing " but I recognize that Liliana would be further delayed if I just continued to let her sit on the floor all day lacking motivation to move anywhere. She seemed so content, I didn't think that was indicative of problems. BTW: I can't carry a note either! I sing my heart out to my daughter at home and in the car, and not knowing any better, she likes it! But I clam up at her CST sessions and anywhere else public. My attempt to sing didn't help one bit at either of her two castings. Try to ease up on yourself and take care of yourself too. ~ > > We went for Leahs exit photos and casting yesterday. It was very > nerve wracking. Seeing as the first casting went pretty good I > didnt expect total chaos from leah during the second! She wouldnt > take the bottle and had a meltdown until I sang her nursery rhymes. > Talk about embarrassing (I cant sing)! Not to mention I was about > to have a breakdown myself and my mom must have heard it in my voice > cause shes like dont start crying lynn! So anyways we all made it > through and she was smiling for bath time. > > I am a little upset as I hadnt expected Leahs orthoist not to be > there. Not saying the other is not as good, just for the last visit > and goodbye, you would like to have the orthoist thats been with you > for 3 months. I also just realized that I forgot to ask for > measurements Now what? Is there a way to get the measurements > at home, from pediatricians office? Or is it not the same? I know > numbers are just numbers but I save alot for Leah, for her baby book > and I had just wanted to include before and after data. > > They gave me Leahs entry mold and they said a copy of the exit one > would be sent to me. I think that is pretty neat! They also e- > mailed me the side by side before and after photos. Sometimes I see > a big difference sometimes I see small difference. At any rate I do > not regret my decision. I do wonder if a second band would have > been something to think about? Oh well. > > Leah had PT today and PT suggested that she come twice a week > instead of once as Leah is still not moving as much as you would > expect. She is still scoring low in gross motor, although not quite > as low as when she was tested the first time at 4 months of age. > Also I showed her the videos of Leah doing the head shaking, the > rocking and the birdy flying things she does. She says the rocking > while sitting and birdy flying are normal things babies do, when > testing limits and when they get excited. The head thing she says > should be " investigated " a little more. She also agreed that it > couldnt hurt to talk to the EI coordinator about possibly having OT > come in and evaluate Leah for sensory issues. But also to bring all > this up and show the pediatrician. So I called Leahs ped and got > her in for her 9 month check up and to address some of the > concerns. After the appt on friday I need to call EI and go from > there. I am feeling overwhelmed a little, nervous and helpless! I > wish I could do more in general. I feel like I have done something > wrong or I am not doing enough. > > Her tort is going to be a long battle even though it wasnt > considered that severe. Where to others it seems she has full rom > and doesnt have much issues with the tort, in actuality she does. > She has learned now how to compensate for it. She pulls her right > shoulder back when looking right, to prevent stretching the muscle > too much. When you take a naked picture you can see how high the > right shoulder is, compared to the left. The facial and head > asymmetry is most likely more obvious because tort. Even though I > am constantly stretching her an dhave been for months and months. > Am I doing this wrong? Should I do more? Is this normal? > > I am sorry I am so stressed. I am sure we all have these times. > Its good to have a place to vent where everyones been there at some > point, in some way. Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 , At times, I share your anxiety and guilt. It can sneak up and knock the best of us over even on our best days. You didn't do anything wrong and you took immediate action as soon as you could. (You were on the ball long before I put the pieces of my puzzle together.) Take comfort that you're doing all that you can for your daughter. She will know how much you love her. I bet your orthotist would let you come back in for final meausurements if the trip isn't too much of a hassle for you. When I get nervous, I just feel like running to exhaustion. Usually though I opt for unhealthy snacks instead. Liliana's in PT through EI as well. It's helping a lot but I still wish we didn't have to do it. It cycles back to the " what did I do wrong thing " but I recognize that Liliana would be further delayed if I just continued to let her sit on the floor all day lacking motivation to move anywhere. She seemed so content, I didn't think that was indicative of problems. BTW: I can't carry a note either! I sing my heart out to my daughter at home and in the car, and not knowing any better, she likes it! But I clam up at her CST sessions and anywhere else public. My attempt to sing didn't help one bit at either of her two castings. Try to ease up on yourself and take care of yourself too. ~ > > We went for Leahs exit photos and casting yesterday. It was very > nerve wracking. Seeing as the first casting went pretty good I > didnt expect total chaos from leah during the second! She wouldnt > take the bottle and had a meltdown until I sang her nursery rhymes. > Talk about embarrassing (I cant sing)! Not to mention I was about > to have a breakdown myself and my mom must have heard it in my voice > cause shes like dont start crying lynn! So anyways we all made it > through and she was smiling for bath time. > > I am a little upset as I hadnt expected Leahs orthoist not to be > there. Not saying the other is not as good, just for the last visit > and goodbye, you would like to have the orthoist thats been with you > for 3 months. I also just realized that I forgot to ask for > measurements Now what? Is there a way to get the measurements > at home, from pediatricians office? Or is it not the same? I know > numbers are just numbers but I save alot for Leah, for her baby book > and I had just wanted to include before and after data. > > They gave me Leahs entry mold and they said a copy of the exit one > would be sent to me. I think that is pretty neat! They also e- > mailed me the side by side before and after photos. Sometimes I see > a big difference sometimes I see small difference. At any rate I do > not regret my decision. I do wonder if a second band would have > been something to think about? Oh well. > > Leah had PT today and PT suggested that she come twice a week > instead of once as Leah is still not moving as much as you would > expect. She is still scoring low in gross motor, although not quite > as low as when she was tested the first time at 4 months of age. > Also I showed her the videos of Leah doing the head shaking, the > rocking and the birdy flying things she does. She says the rocking > while sitting and birdy flying are normal things babies do, when > testing limits and when they get excited. The head thing she says > should be " investigated " a little more. She also agreed that it > couldnt hurt to talk to the EI coordinator about possibly having OT > come in and evaluate Leah for sensory issues. But also to bring all > this up and show the pediatrician. So I called Leahs ped and got > her in for her 9 month check up and to address some of the > concerns. After the appt on friday I need to call EI and go from > there. I am feeling overwhelmed a little, nervous and helpless! I > wish I could do more in general. I feel like I have done something > wrong or I am not doing enough. > > Her tort is going to be a long battle even though it wasnt > considered that severe. Where to others it seems she has full rom > and doesnt have much issues with the tort, in actuality she does. > She has learned now how to compensate for it. She pulls her right > shoulder back when looking right, to prevent stretching the muscle > too much. When you take a naked picture you can see how high the > right shoulder is, compared to the left. The facial and head > asymmetry is most likely more obvious because tort. Even though I > am constantly stretching her an dhave been for months and months. > Am I doing this wrong? Should I do more? Is this normal? > > I am sorry I am so stressed. I am sure we all have these times. > Its good to have a place to vent where everyones been there at some > point, in some way. Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 Thank you for the support. > > We went for Leahs exit photos and casting yesterday. It was very > nerve wracking. Seeing as the first casting went pretty good I > didnt expect total chaos from leah during the second! She wouldnt > take the bottle and had a meltdown until I sang her nursery rhymes. > Talk about embarrassing (I cant sing)! Not to mention I was about > to have a breakdown myself and my mom must have heard it in my voice > cause shes like dont start crying lynn! So anyways we all made it > through and she was smiling for bath time. > > I am a little upset as I hadnt expected Leahs orthoist not to be > there. Not saying the other is not as good, just for the last visit > and goodbye, you would like to have the orthoist thats been with you > for 3 months. I also just realized that I forgot to ask for > measurements Now what? Is there a way to get the measurements > at home, from pediatricians office? Or is it not the same? I know > numbers are just numbers but I save alot for Leah, for her baby book > and I had just wanted to include before and after data. > > They gave me Leahs entry mold and they said a copy of the exit one > would be sent to me. I think that is pretty neat! They also e- > mailed me the side by side before and after photos. Sometimes I see > a big difference sometimes I see small difference. At any rate I do > not regret my decision. I do wonder if a second band would have > been something to think about? Oh well. > > Leah had PT today and PT suggested that she come twice a week > instead of once as Leah is still not moving as much as you would > expect. She is still scoring low in gross motor, although not quite > as low as when she was tested the first time at 4 months of age. > Also I showed her the videos of Leah doing the head shaking, the > rocking and the birdy flying things she does. She says the rocking > while sitting and birdy flying are normal things babies do, when > testing limits and when they get excited. The head thing she says > should be " investigated " a little more. She also agreed that it > couldnt hurt to talk to the EI coordinator about possibly having OT > come in and evaluate Leah for sensory issues. But also to bring all > this up and show the pediatrician. So I called Leahs ped and got > her in for her 9 month check up and to address some of the > concerns. After the appt on friday I need to call EI and go from > there. I am feeling overwhelmed a little, nervous and helpless! I > wish I could do more in general. I feel like I have done something > wrong or I am not doing enough. > > Her tort is going to be a long battle even though it wasnt > considered that severe. Where to others it seems she has full rom > and doesnt have much issues with the tort, in actuality she does. > She has learned now how to compensate for it. She pulls her right > shoulder back when looking right, to prevent stretching the muscle > too much. When you take a naked picture you can see how high the > right shoulder is, compared to the left. The facial and head > asymmetry is most likely more obvious because tort. Even though I > am constantly stretching her an dhave been for months and months. > Am I doing this wrong? Should I do more? Is this normal? > > I am sorry I am so stressed. I am sure we all have these times. > Its good to have a place to vent where everyones been there at some > point, in some way. Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 Thank you for the support. > > We went for Leahs exit photos and casting yesterday. It was very > nerve wracking. Seeing as the first casting went pretty good I > didnt expect total chaos from leah during the second! She wouldnt > take the bottle and had a meltdown until I sang her nursery rhymes. > Talk about embarrassing (I cant sing)! Not to mention I was about > to have a breakdown myself and my mom must have heard it in my voice > cause shes like dont start crying lynn! So anyways we all made it > through and she was smiling for bath time. > > I am a little upset as I hadnt expected Leahs orthoist not to be > there. Not saying the other is not as good, just for the last visit > and goodbye, you would like to have the orthoist thats been with you > for 3 months. I also just realized that I forgot to ask for > measurements Now what? Is there a way to get the measurements > at home, from pediatricians office? Or is it not the same? I know > numbers are just numbers but I save alot for Leah, for her baby book > and I had just wanted to include before and after data. > > They gave me Leahs entry mold and they said a copy of the exit one > would be sent to me. I think that is pretty neat! They also e- > mailed me the side by side before and after photos. Sometimes I see > a big difference sometimes I see small difference. At any rate I do > not regret my decision. I do wonder if a second band would have > been something to think about? Oh well. > > Leah had PT today and PT suggested that she come twice a week > instead of once as Leah is still not moving as much as you would > expect. She is still scoring low in gross motor, although not quite > as low as when she was tested the first time at 4 months of age. > Also I showed her the videos of Leah doing the head shaking, the > rocking and the birdy flying things she does. She says the rocking > while sitting and birdy flying are normal things babies do, when > testing limits and when they get excited. The head thing she says > should be " investigated " a little more. She also agreed that it > couldnt hurt to talk to the EI coordinator about possibly having OT > come in and evaluate Leah for sensory issues. But also to bring all > this up and show the pediatrician. So I called Leahs ped and got > her in for her 9 month check up and to address some of the > concerns. After the appt on friday I need to call EI and go from > there. I am feeling overwhelmed a little, nervous and helpless! I > wish I could do more in general. I feel like I have done something > wrong or I am not doing enough. > > Her tort is going to be a long battle even though it wasnt > considered that severe. Where to others it seems she has full rom > and doesnt have much issues with the tort, in actuality she does. > She has learned now how to compensate for it. She pulls her right > shoulder back when looking right, to prevent stretching the muscle > too much. When you take a naked picture you can see how high the > right shoulder is, compared to the left. The facial and head > asymmetry is most likely more obvious because tort. Even though I > am constantly stretching her an dhave been for months and months. > Am I doing this wrong? Should I do more? Is this normal? > > I am sorry I am so stressed. I am sure we all have these times. > Its good to have a place to vent where everyones been there at some > point, in some way. Thanks, > Quote Link to comment Share on other sites More sharing options...
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