Re: I'm torn-whose opinion should I trust more?

[Guest guest]

Bobbi,

It must be very frustrating and confusing with all of the mixed

messages you are getting. My opinion would be just keep it on until

April 5th. It won't hurt anything. See what your ortho says at your

next appt. and also let them know what her cranial facial specialist

told you. Like told you definatly go with your gut instinct

and what you feel is best for Kaitlyn. Good luck!

Isabelle 7 mos STARband 1/31/06

>

> Ok I took Kaitlyn for her helmet adjustment last Thursday, he said

> her head looks really good to come back in a month (April 5th)for

a

> rescan and we'll see if she needs the helmet longer or if it'll be

> off for good well then on Friday she had her 4 month follow up

visit

> with her cranial facial specialist/plastic surgeon, I had her

helmet

> off when he walked in the room because I knew he'd want to see her

> head, well the FIRST thing he noticed was her torticollis was

back,

> not bad but that she had a slight tilt still and then he looked at

> her head and said how much better it looked than when he had saw

her

> 4 months prior to that and said he didn't need to see her back

again

> UNLESS I wanted him to take another look at her well I then said

to

> him just out of curiousity, I said if this was the FIRST time you

> seen Kaitlyns head would you suggest a helmet for her (at her

first

> visit he said YES and that she definitely needed one) and he said

> nope, he said her head looks just fine now, she'll have no

problems

> or like " deformaties " when she gets older, so great news! Ok

parts

> of me wants to call up her orthotist and let him know what the

> specialist said and maybe try and get her in sooner for a rescan

and

> maybe get the helmet off sooner than we figured yet another part

of

> me just says oh wait til April 5th and see what happens, I just

want

> this journey to be over with, she has been thru so much in the 10

1/2

> months she's been here with us (she was born a preemie) so do I

trust

> her specialists opinion verses her orthotist? I mean aren't

cranial

> facial specialists/plastic surgeons more familiar with heads than

an

> orthotist? UGH I'm so torn and don't know what to do! Ok so her

> specialist noticed her tilt so I called up Kaitlyns physical

> therapist (her tort WAS resolved yet I know it can come back-she

was

> last seen in December by her) and explained it to her how he

noticed

> it had came back and should I bring her back in to see her and she

> said I'd say no, just do the exercises at home for a month or so

and

> see how she does and bring her back in only if I felt I needed to

BUT

> she said email me some pictures of Kaitlyn so I can see if I can

see

> a tilt (her cranial facial specialist said pics are a good way to

> notice the tilt) ok so I did and she wrote me back and said......

>

> Thanks for the pictures-she's so cute! To be honest, I don't see

> much of a tilt! Her head actually looks great to me! Like I

said,

> try the stretches for a month or so then send me some more

pictures.

> Maybe it was just the day that Dr. Mann saw her or something.

Take

> care!

> Beth

>

>

> So I'm torn there to! One doc sees it and her therapist doesn't

and

> my husband and I don't notice it either so was she right in saying

> maybe it was just how Kaitlyn had her head that day, maybe she was

> looking at something with her head tilted?

>

> I just want what is best for Kaitlyn that's all! We are so happy

> with how her head looks now that if it was up to us we would take

the

> helmet off for good but we're not sure what to do, wait it out or

> take her in early? We don't see the tilt, neither does her

therapist

> yet Dr. Mann did, UGH LOL!!

>

> I have thought about making taking her in for a second opinion on

the

> tort and plag but I don't think there is anywhere else around here

> that deals with tort and plag so I'm kinda stuck between a rock

and a

> hard place, any suggestions and who would you trust more?

>

> Thanks, Bobbi

> Mommy to Kaitlyn , 10 1/2 months old

> Tort and plag-banded on 12-15-05

> Michigan

>

[Guest guest]

Bobbi,

It must be very frustrating and confusing with all of the mixed

messages you are getting. My opinion would be just keep it on until

April 5th. It won't hurt anything. See what your ortho says at your

next appt. and also let them know what her cranial facial specialist

told you. Like told you definatly go with your gut instinct

and what you feel is best for Kaitlyn. Good luck!

Isabelle 7 mos STARband 1/31/06

>

> Ok I took Kaitlyn for her helmet adjustment last Thursday, he said

> her head looks really good to come back in a month (April 5th)for

a

> rescan and we'll see if she needs the helmet longer or if it'll be

> off for good well then on Friday she had her 4 month follow up

visit

> with her cranial facial specialist/plastic surgeon, I had her

helmet

> off when he walked in the room because I knew he'd want to see her

> head, well the FIRST thing he noticed was her torticollis was

back,

> not bad but that she had a slight tilt still and then he looked at

> her head and said how much better it looked than when he had saw

her

> 4 months prior to that and said he didn't need to see her back

again

> UNLESS I wanted him to take another look at her well I then said

to

> him just out of curiousity, I said if this was the FIRST time you

> seen Kaitlyns head would you suggest a helmet for her (at her

first

> visit he said YES and that she definitely needed one) and he said

> nope, he said her head looks just fine now, she'll have no

problems

> or like " deformaties " when she gets older, so great news! Ok

parts

> of me wants to call up her orthotist and let him know what the

> specialist said and maybe try and get her in sooner for a rescan

and

> maybe get the helmet off sooner than we figured yet another part

of

> me just says oh wait til April 5th and see what happens, I just

want

> this journey to be over with, she has been thru so much in the 10

1/2

> months she's been here with us (she was born a preemie) so do I

trust

> her specialists opinion verses her orthotist? I mean aren't

cranial

> facial specialists/plastic surgeons more familiar with heads than

an

> orthotist? UGH I'm so torn and don't know what to do! Ok so her

> specialist noticed her tilt so I called up Kaitlyns physical

> therapist (her tort WAS resolved yet I know it can come back-she

was

> last seen in December by her) and explained it to her how he

noticed

> it had came back and should I bring her back in to see her and she

> said I'd say no, just do the exercises at home for a month or so

and

> see how she does and bring her back in only if I felt I needed to

BUT

> she said email me some pictures of Kaitlyn so I can see if I can

see

> a tilt (her cranial facial specialist said pics are a good way to

> notice the tilt) ok so I did and she wrote me back and said......

>

> Thanks for the pictures-she's so cute! To be honest, I don't see

> much of a tilt! Her head actually looks great to me! Like I

said,

> try the stretches for a month or so then send me some more

pictures.

> Maybe it was just the day that Dr. Mann saw her or something.

Take

> care!

> Beth

>

>

> So I'm torn there to! One doc sees it and her therapist doesn't

and

> my husband and I don't notice it either so was she right in saying

> maybe it was just how Kaitlyn had her head that day, maybe she was

> looking at something with her head tilted?

>

> I just want what is best for Kaitlyn that's all! We are so happy

> with how her head looks now that if it was up to us we would take

the

> helmet off for good but we're not sure what to do, wait it out or

> take her in early? We don't see the tilt, neither does her

therapist

> yet Dr. Mann did, UGH LOL!!

>

> I have thought about making taking her in for a second opinion on

the

> tort and plag but I don't think there is anywhere else around here

> that deals with tort and plag so I'm kinda stuck between a rock

and a

> hard place, any suggestions and who would you trust more?

>

> Thanks, Bobbi

> Mommy to Kaitlyn , 10 1/2 months old

> Tort and plag-banded on 12-15-05

> Michigan

>

[Guest guest]

Hi Bobbi,

I think you should keep her in her helmet until the 5th. You never

know you may just see more correction. Why stop now when there's a

chance for even more correction? The 4th will be here before you know it.

>

> Ok I took Kaitlyn for her helmet adjustment last Thursday, he said

> her head looks really good to come back in a month (April 5th)for a

> rescan and we'll see if she needs the helmet longer or if it'll be

> off for good well then on Friday she had her 4 month follow up visit

> with her cranial facial specialist/plastic surgeon, I had her helmet

> off when he walked in the room because I knew he'd want to see her

> head, well the FIRST thing he noticed was her torticollis was back,

> not bad but that she had a slight tilt still and then he looked at

> her head and said how much better it looked than when he had saw her

> 4 months prior to that and said he didn't need to see her back again

> UNLESS I wanted him to take another look at her well I then said to

> him just out of curiousity, I said if this was the FIRST time you

> seen Kaitlyns head would you suggest a helmet for her (at her first

> visit he said YES and that she definitely needed one) and he said

> nope, he said her head looks just fine now, she'll have no problems

> or like " deformaties " when she gets older, so great news! Ok parts

> of me wants to call up her orthotist and let him know what the

> specialist said and maybe try and get her in sooner for a rescan and

> maybe get the helmet off sooner than we figured yet another part of

> me just says oh wait til April 5th and see what happens, I just want

> this journey to be over with, she has been thru so much in the 10 1/2

> months she's been here with us (she was born a preemie) so do I trust

> her specialists opinion verses her orthotist? I mean aren't cranial

> facial specialists/plastic surgeons more familiar with heads than an

> orthotist? UGH I'm so torn and don't know what to do! Ok so her

> specialist noticed her tilt so I called up Kaitlyns physical

> therapist (her tort WAS resolved yet I know it can come back-she was

> last seen in December by her) and explained it to her how he noticed

> it had came back and should I bring her back in to see her and she

> said I'd say no, just do the exercises at home for a month or so and

> see how she does and bring her back in only if I felt I needed to BUT

> she said email me some pictures of Kaitlyn so I can see if I can see

> a tilt (her cranial facial specialist said pics are a good way to

> notice the tilt) ok so I did and she wrote me back and said......

>

> Thanks for the pictures-she's so cute! To be honest, I don't see

> much of a tilt! Her head actually looks great to me! Like I said,

> try the stretches for a month or so then send me some more pictures.

> Maybe it was just the day that Dr. Mann saw her or something. Take

> care!

> Beth

>

>

> So I'm torn there to! One doc sees it and her therapist doesn't and

> my husband and I don't notice it either so was she right in saying

> maybe it was just how Kaitlyn had her head that day, maybe she was

> looking at something with her head tilted?

>

> I just want what is best for Kaitlyn that's all! We are so happy

> with how her head looks now that if it was up to us we would take the

> helmet off for good but we're not sure what to do, wait it out or

> take her in early? We don't see the tilt, neither does her therapist

> yet Dr. Mann did, UGH LOL!!

>

> I have thought about making taking her in for a second opinion on the

> tort and plag but I don't think there is anywhere else around here

> that deals with tort and plag so I'm kinda stuck between a rock and a

> hard place, any suggestions and who would you trust more?

>

> Thanks, Bobbi

> Mommy to Kaitlyn , 10 1/2 months old

> Tort and plag-banded on 12-15-05

> Michigan

>

[Guest guest]

Hi Bobbi,

I think you should keep her in her helmet until the 5th. You never

know you may just see more correction. Why stop now when there's a

chance for even more correction? The 4th will be here before you know it.

>

> Ok I took Kaitlyn for her helmet adjustment last Thursday, he said

> her head looks really good to come back in a month (April 5th)for a

> rescan and we'll see if she needs the helmet longer or if it'll be

> off for good well then on Friday she had her 4 month follow up visit

> with her cranial facial specialist/plastic surgeon, I had her helmet

> off when he walked in the room because I knew he'd want to see her

> head, well the FIRST thing he noticed was her torticollis was back,

> not bad but that she had a slight tilt still and then he looked at

> her head and said how much better it looked than when he had saw her

> 4 months prior to that and said he didn't need to see her back again

> UNLESS I wanted him to take another look at her well I then said to

> him just out of curiousity, I said if this was the FIRST time you

> seen Kaitlyns head would you suggest a helmet for her (at her first

> visit he said YES and that she definitely needed one) and he said

> nope, he said her head looks just fine now, she'll have no problems

> or like " deformaties " when she gets older, so great news! Ok parts

> of me wants to call up her orthotist and let him know what the

> specialist said and maybe try and get her in sooner for a rescan and

> maybe get the helmet off sooner than we figured yet another part of

> me just says oh wait til April 5th and see what happens, I just want

> this journey to be over with, she has been thru so much in the 10 1/2

> months she's been here with us (she was born a preemie) so do I trust

> her specialists opinion verses her orthotist? I mean aren't cranial

> facial specialists/plastic surgeons more familiar with heads than an

> orthotist? UGH I'm so torn and don't know what to do! Ok so her

> specialist noticed her tilt so I called up Kaitlyns physical

> therapist (her tort WAS resolved yet I know it can come back-she was

> last seen in December by her) and explained it to her how he noticed

> it had came back and should I bring her back in to see her and she

> said I'd say no, just do the exercises at home for a month or so and

> see how she does and bring her back in only if I felt I needed to BUT

> she said email me some pictures of Kaitlyn so I can see if I can see

> a tilt (her cranial facial specialist said pics are a good way to

> notice the tilt) ok so I did and she wrote me back and said......

>

> Thanks for the pictures-she's so cute! To be honest, I don't see

> much of a tilt! Her head actually looks great to me! Like I said,

> try the stretches for a month or so then send me some more pictures.

> Maybe it was just the day that Dr. Mann saw her or something. Take

> care!

> Beth

>

>

> So I'm torn there to! One doc sees it and her therapist doesn't and

> my husband and I don't notice it either so was she right in saying

> maybe it was just how Kaitlyn had her head that day, maybe she was

> looking at something with her head tilted?

>

> I just want what is best for Kaitlyn that's all! We are so happy

> with how her head looks now that if it was up to us we would take the

> helmet off for good but we're not sure what to do, wait it out or

> take her in early? We don't see the tilt, neither does her therapist

> yet Dr. Mann did, UGH LOL!!

>

> I have thought about making taking her in for a second opinion on the

> tort and plag but I don't think there is anywhere else around here

> that deals with tort and plag so I'm kinda stuck between a rock and a

> hard place, any suggestions and who would you trust more?

>

> Thanks, Bobbi

> Mommy to Kaitlyn , 10 1/2 months old

> Tort and plag-banded on 12-15-05

> Michigan

>

[Guest guest]

Bobbi,

I know this is so stressful! If it were my child, I'd leave it on

until April 5th and you see the ortho-tell him what the Dr. said.

Honestly, April 5th isn't very far away-3 weeks! If Kaitlyn(great name

by the way!) isn't having problems, then just wait it out-it can only

be good for her head. Remember, if the Dr didn't take measurements

then he's looking at it SUBJECTIVELY. If you agree with him and her

head looks good to you, then discuss with the orth about graduating in

April. I would definitely keep at the excercises for the tort-if the

Dr. saw it then you need to keep at it...tort is NOT SUBJECTIVE, it

either is or it isn't present. Hope this is somewhat helpful...keep us

posted!

Bye, (Max DOCbanded 2/7)

>

> Ok I took Kaitlyn for her helmet adjustment last Thursday, he said

> her head looks really good to come back in a month (April 5th)for a

> rescan and we'll see if she needs the helmet longer or if it'll be

> off for good well then on Friday she had her 4 month follow up visit

> with her cranial facial specialist/plastic surgeon, I had her helmet

> off when he walked in the room because I knew he'd want to see her

> head, well the FIRST thing he noticed was her torticollis was back,

> not bad but that she had a slight tilt still and then he looked at

> her head and said how much better it looked than when he had saw her

> 4 months prior to that and said he didn't need to see her back again

> UNLESS I wanted him to take another look at her well I then said to

> him just out of curiousity, I said if this was the FIRST time you

> seen Kaitlyns head would you suggest a helmet for her (at her first

> visit he said YES and that she definitely needed one) and he said

> nope, he said her head looks just fine now, she'll have no problems

> or like " deformaties " when she gets older, so great news! Ok parts

> of me wants to call up her orthotist and let him know what the

> specialist said and maybe try and get her in sooner for a rescan and

> maybe get the helmet off sooner than we figured yet another part of

> me just says oh wait til April 5th and see what happens, I just want

> this journey to be over with, she has been thru so much in the 10 1/2

> months she's been here with us (she was born a preemie) so do I trust

> her specialists opinion verses her orthotist? I mean aren't cranial

> facial specialists/plastic surgeons more familiar with heads than an

> orthotist? UGH I'm so torn and don't know what to do! Ok so her

> specialist noticed her tilt so I called up Kaitlyns physical

> therapist (her tort WAS resolved yet I know it can come back-she was

> last seen in December by her) and explained it to her how he noticed

> it had came back and should I bring her back in to see her and she

> said I'd say no, just do the exercises at home for a month or so and

> see how she does and bring her back in only if I felt I needed to BUT

> she said email me some pictures of Kaitlyn so I can see if I can see

> a tilt (her cranial facial specialist said pics are a good way to

> notice the tilt) ok so I did and she wrote me back and said......

>

> Thanks for the pictures-she's so cute! To be honest, I don't see

> much of a tilt! Her head actually looks great to me! Like I said,

> try the stretches for a month or so then send me some more pictures.

> Maybe it was just the day that Dr. Mann saw her or something. Take

> care!

> Beth

>

>

> So I'm torn there to! One doc sees it and her therapist doesn't and

> my husband and I don't notice it either so was she right in saying

> maybe it was just how Kaitlyn had her head that day, maybe she was

> looking at something with her head tilted?

>

> I just want what is best for Kaitlyn that's all! We are so happy

> with how her head looks now that if it was up to us we would take the

> helmet off for good but we're not sure what to do, wait it out or

> take her in early? We don't see the tilt, neither does her therapist

> yet Dr. Mann did, UGH LOL!!

>

> I have thought about making taking her in for a second opinion on the

> tort and plag but I don't think there is anywhere else around here

> that deals with tort and plag so I'm kinda stuck between a rock and a

> hard place, any suggestions and who would you trust more?

>

> Thanks, Bobbi

> Mommy to Kaitlyn , 10 1/2 months old

> Tort and plag-banded on 12-15-05

> Michigan

>

[Guest guest]

Bobbi,

I know this is so stressful! If it were my child, I'd leave it on

until April 5th and you see the ortho-tell him what the Dr. said.

Honestly, April 5th isn't very far away-3 weeks! If Kaitlyn(great name

by the way!) isn't having problems, then just wait it out-it can only

be good for her head. Remember, if the Dr didn't take measurements

then he's looking at it SUBJECTIVELY. If you agree with him and her

head looks good to you, then discuss with the orth about graduating in

April. I would definitely keep at the excercises for the tort-if the

Dr. saw it then you need to keep at it...tort is NOT SUBJECTIVE, it

either is or it isn't present. Hope this is somewhat helpful...keep us

posted!

Bye, (Max DOCbanded 2/7)

>

> Ok I took Kaitlyn for her helmet adjustment last Thursday, he said

> her head looks really good to come back in a month (April 5th)for a

> rescan and we'll see if she needs the helmet longer or if it'll be

> off for good well then on Friday she had her 4 month follow up visit

> with her cranial facial specialist/plastic surgeon, I had her helmet

> off when he walked in the room because I knew he'd want to see her

> head, well the FIRST thing he noticed was her torticollis was back,

> not bad but that she had a slight tilt still and then he looked at

> her head and said how much better it looked than when he had saw her

> 4 months prior to that and said he didn't need to see her back again

> UNLESS I wanted him to take another look at her well I then said to

> him just out of curiousity, I said if this was the FIRST time you

> seen Kaitlyns head would you suggest a helmet for her (at her first

> visit he said YES and that she definitely needed one) and he said

> nope, he said her head looks just fine now, she'll have no problems

> or like " deformaties " when she gets older, so great news! Ok parts

> of me wants to call up her orthotist and let him know what the

> specialist said and maybe try and get her in sooner for a rescan and

> maybe get the helmet off sooner than we figured yet another part of

> me just says oh wait til April 5th and see what happens, I just want

> this journey to be over with, she has been thru so much in the 10 1/2

> months she's been here with us (she was born a preemie) so do I trust

> her specialists opinion verses her orthotist? I mean aren't cranial

> facial specialists/plastic surgeons more familiar with heads than an

> orthotist? UGH I'm so torn and don't know what to do! Ok so her

> specialist noticed her tilt so I called up Kaitlyns physical

> therapist (her tort WAS resolved yet I know it can come back-she was

> last seen in December by her) and explained it to her how he noticed

> it had came back and should I bring her back in to see her and she

> said I'd say no, just do the exercises at home for a month or so and

> see how she does and bring her back in only if I felt I needed to BUT

> she said email me some pictures of Kaitlyn so I can see if I can see

> a tilt (her cranial facial specialist said pics are a good way to

> notice the tilt) ok so I did and she wrote me back and said......

>

> Thanks for the pictures-she's so cute! To be honest, I don't see

> much of a tilt! Her head actually looks great to me! Like I said,

> try the stretches for a month or so then send me some more pictures.

> Maybe it was just the day that Dr. Mann saw her or something. Take

> care!

> Beth

>

>

> So I'm torn there to! One doc sees it and her therapist doesn't and

> my husband and I don't notice it either so was she right in saying

> maybe it was just how Kaitlyn had her head that day, maybe she was

> looking at something with her head tilted?

>

> I just want what is best for Kaitlyn that's all! We are so happy

> with how her head looks now that if it was up to us we would take the

> helmet off for good but we're not sure what to do, wait it out or

> take her in early? We don't see the tilt, neither does her therapist

> yet Dr. Mann did, UGH LOL!!

>

> I have thought about making taking her in for a second opinion on the

> tort and plag but I don't think there is anywhere else around here

> that deals with tort and plag so I'm kinda stuck between a rock and a

> hard place, any suggestions and who would you trust more?

>

> Thanks, Bobbi

> Mommy to Kaitlyn , 10 1/2 months old

> Tort and plag-banded on 12-15-05

> Michigan

>

[Guest guest]

Bobbi,

I would have to agree with everyone else and leave the helmet on

until April 5th. After Kaitlyn's rescan you can talk to your

orthotist and decide whether she should graduate or not. When

Sophie was fitted for her helmet we were told she would wear the

helmet 3 months. She ended up wearing it 4 1/2 months and I wished

we had more time. I know a few more weeks probably seems like

forever but if you can see even that much more correction, it'll be

worth it. Plus I would worry if her tort is regressing and she can

still wear that helmet to take it off at this point.

We are going to a PT in Grand Rapids that one of the other plagio

moms from this board told us about. Sophie still tilts her head to

the left and has low muscle tone. I heard from , the other

plagio mom and our pediatrician that this lady is awesome. I'll let

you know if she thinks she can help Sophie's tort.

Good luck in what you decide to do and let us know!

Sophie 18 1/2 months

Tort/Plagio

StarGrad 9/30/05

MI

>

> Ok I took Kaitlyn for her helmet adjustment last Thursday, he said

> her head looks really good to come back in a month (April 5th)for

a

> rescan and we'll see if she needs the helmet longer or if it'll be

> off for good well then on Friday she had her 4 month follow up

visit

> with her cranial facial specialist/plastic surgeon, I had her

helmet

> off when he walked in the room because I knew he'd want to see her

> head, well the FIRST thing he noticed was her torticollis was

back,

> not bad but that she had a slight tilt still and then he looked at

> her head and said how much better it looked than when he had saw

her

> 4 months prior to that and said he didn't need to see her back

again

> UNLESS I wanted him to take another look at her well I then said

to

> him just out of curiousity, I said if this was the FIRST time you

> seen Kaitlyns head would you suggest a helmet for her (at her

first

> visit he said YES and that she definitely needed one) and he said

> nope, he said her head looks just fine now, she'll have no

problems

> or like " deformaties " when she gets older, so great news! Ok

parts

> of me wants to call up her orthotist and let him know what the

> specialist said and maybe try and get her in sooner for a rescan

and

> maybe get the helmet off sooner than we figured yet another part

of

> me just says oh wait til April 5th and see what happens, I just

want

> this journey to be over with, she has been thru so much in the 10

1/2

> months she's been here with us (she was born a preemie) so do I

trust

> her specialists opinion verses her orthotist? I mean aren't

cranial

> facial specialists/plastic surgeons more familiar with heads than

an

> orthotist? UGH I'm so torn and don't know what to do! Ok so her

> specialist noticed her tilt so I called up Kaitlyns physical

> therapist (her tort WAS resolved yet I know it can come back-she

was

> last seen in December by her) and explained it to her how he

noticed

> it had came back and should I bring her back in to see her and she

> said I'd say no, just do the exercises at home for a month or so

and

> see how she does and bring her back in only if I felt I needed to

BUT

> she said email me some pictures of Kaitlyn so I can see if I can

see

> a tilt (her cranial facial specialist said pics are a good way to

> notice the tilt) ok so I did and she wrote me back and said......

>

> Thanks for the pictures-she's so cute! To be honest, I don't see

> much of a tilt! Her head actually looks great to me! Like I

said,

> try the stretches for a month or so then send me some more

pictures.

> Maybe it was just the day that Dr. Mann saw her or something.

Take

> care!

> Beth

>

>

> So I'm torn there to! One doc sees it and her therapist doesn't

and

> my husband and I don't notice it either so was she right in saying

> maybe it was just how Kaitlyn had her head that day, maybe she was

> looking at something with her head tilted?

>

> I just want what is best for Kaitlyn that's all! We are so happy

> with how her head looks now that if it was up to us we would take

the

> helmet off for good but we're not sure what to do, wait it out or

> take her in early? We don't see the tilt, neither does her

therapist

> yet Dr. Mann did, UGH LOL!!

>

> I have thought about making taking her in for a second opinion on

the

> tort and plag but I don't think there is anywhere else around here

> that deals with tort and plag so I'm kinda stuck between a rock

and a

> hard place, any suggestions and who would you trust more?

>

> Thanks, Bobbi

> Mommy to Kaitlyn , 10 1/2 months old

> Tort and plag-banded on 12-15-05

> Michigan

>

[Guest guest]

Bobbi,

I would have to agree with everyone else and leave the helmet on

until April 5th. After Kaitlyn's rescan you can talk to your

orthotist and decide whether she should graduate or not. When

Sophie was fitted for her helmet we were told she would wear the

helmet 3 months. She ended up wearing it 4 1/2 months and I wished

we had more time. I know a few more weeks probably seems like

forever but if you can see even that much more correction, it'll be

worth it. Plus I would worry if her tort is regressing and she can

still wear that helmet to take it off at this point.

We are going to a PT in Grand Rapids that one of the other plagio

moms from this board told us about. Sophie still tilts her head to

the left and has low muscle tone. I heard from , the other

plagio mom and our pediatrician that this lady is awesome. I'll let

you know if she thinks she can help Sophie's tort.

Good luck in what you decide to do and let us know!

Sophie 18 1/2 months

Tort/Plagio

StarGrad 9/30/05

MI

>

> Ok I took Kaitlyn for her helmet adjustment last Thursday, he said

> her head looks really good to come back in a month (April 5th)for

a

> rescan and we'll see if she needs the helmet longer or if it'll be

> off for good well then on Friday she had her 4 month follow up

visit

> with her cranial facial specialist/plastic surgeon, I had her

helmet

> off when he walked in the room because I knew he'd want to see her

> head, well the FIRST thing he noticed was her torticollis was

back,

> not bad but that she had a slight tilt still and then he looked at

> her head and said how much better it looked than when he had saw

her

> 4 months prior to that and said he didn't need to see her back

again

> UNLESS I wanted him to take another look at her well I then said

to

> him just out of curiousity, I said if this was the FIRST time you

> seen Kaitlyns head would you suggest a helmet for her (at her

first

> visit he said YES and that she definitely needed one) and he said

> nope, he said her head looks just fine now, she'll have no

problems

> or like " deformaties " when she gets older, so great news! Ok

parts

> of me wants to call up her orthotist and let him know what the

> specialist said and maybe try and get her in sooner for a rescan

and

> maybe get the helmet off sooner than we figured yet another part

of

> me just says oh wait til April 5th and see what happens, I just

want

> this journey to be over with, she has been thru so much in the 10

1/2

> months she's been here with us (she was born a preemie) so do I

trust

> her specialists opinion verses her orthotist? I mean aren't

cranial

> facial specialists/plastic surgeons more familiar with heads than

an

> orthotist? UGH I'm so torn and don't know what to do! Ok so her

> specialist noticed her tilt so I called up Kaitlyns physical

> therapist (her tort WAS resolved yet I know it can come back-she

was

> last seen in December by her) and explained it to her how he

noticed

> it had came back and should I bring her back in to see her and she

> said I'd say no, just do the exercises at home for a month or so

and

> see how she does and bring her back in only if I felt I needed to

BUT

> she said email me some pictures of Kaitlyn so I can see if I can

see

> a tilt (her cranial facial specialist said pics are a good way to

> notice the tilt) ok so I did and she wrote me back and said......

>

> Thanks for the pictures-she's so cute! To be honest, I don't see

> much of a tilt! Her head actually looks great to me! Like I

said,

> try the stretches for a month or so then send me some more

pictures.

> Maybe it was just the day that Dr. Mann saw her or something.

Take

> care!

> Beth

>

>

> So I'm torn there to! One doc sees it and her therapist doesn't

and

> my husband and I don't notice it either so was she right in saying

> maybe it was just how Kaitlyn had her head that day, maybe she was

> looking at something with her head tilted?

>

> I just want what is best for Kaitlyn that's all! We are so happy

> with how her head looks now that if it was up to us we would take

the

> helmet off for good but we're not sure what to do, wait it out or

> take her in early? We don't see the tilt, neither does her

therapist

> yet Dr. Mann did, UGH LOL!!

>

> I have thought about making taking her in for a second opinion on

the

> tort and plag but I don't think there is anywhere else around here

> that deals with tort and plag so I'm kinda stuck between a rock

and a

> hard place, any suggestions and who would you trust more?

>

> Thanks, Bobbi

> Mommy to Kaitlyn , 10 1/2 months old

> Tort and plag-banded on 12-15-05

> Michigan

>

[Guest guest]

Bobbi,

Well I don't see the harm in leaving the helmet on til April. This is

usually when the little fine tuning changes happen and they can make

a big difference, if that makes sense. At that appt. you can say you

are ready to be done if they want her to wear it more. As far as the

tilt goes, I have had times when I walk in and someone says, oh he's

tilting again and I never noticed it because I see him everday.

Remember too that stress causes the tilt to come back a bit, and if

this is a doctor she doesn't see often it is a stressful appointment

in new surroundings. When the PT who she sees alot comes around she

is not stressed so no tilt....make sense. Poor Dominick was tilting

up a storm when we had to go for his post op visit and the next day

you couldn't see it all.

CAROLG

>

> Ok I took Kaitlyn for her helmet adjustment last Thursday, he said

> her head looks really good to come back in a month (April 5th)for a

> rescan and we'll see if she needs the helmet longer or if it'll be

> off for good well then on Friday she had her 4 month follow up

visit

> with her cranial facial specialist/plastic surgeon, I had her

helmet

> off when he walked in the room because I knew he'd want to see her

> head, well the FIRST thing he noticed was her torticollis was back,

> not bad but that she had a slight tilt still and then he looked at

> her head and said how much better it looked than when he had saw

her

> 4 months prior to that and said he didn't need to see her back

again

> UNLESS I wanted him to take another look at her well I then said to

> him just out of curiousity, I said if this was the FIRST time you

> seen Kaitlyns head would you suggest a helmet for her (at her first

> visit he said YES and that she definitely needed one) and he said

> nope, he said her head looks just fine now, she'll have no problems

> or like " deformaties " when she gets older, so great news! Ok parts

> of me wants to call up her orthotist and let him know what the

> specialist said and maybe try and get her in sooner for a rescan

and

> maybe get the helmet off sooner than we figured yet another part of

> me just says oh wait til April 5th and see what happens, I just

want

> this journey to be over with, she has been thru so much in the 10

1/2

> months she's been here with us (she was born a preemie) so do I

trust

> her specialists opinion verses her orthotist? I mean aren't

cranial

> facial specialists/plastic surgeons more familiar with heads than

an

> orthotist? UGH I'm so torn and don't know what to do! Ok so her

> specialist noticed her tilt so I called up Kaitlyns physical

> therapist (her tort WAS resolved yet I know it can come back-she

was

> last seen in December by her) and explained it to her how he

noticed

> it had came back and should I bring her back in to see her and she

> said I'd say no, just do the exercises at home for a month or so

and

> see how she does and bring her back in only if I felt I needed to

BUT

> she said email me some pictures of Kaitlyn so I can see if I can

see

> a tilt (her cranial facial specialist said pics are a good way to

> notice the tilt) ok so I did and she wrote me back and said......

>

> Thanks for the pictures-she's so cute! To be honest, I don't see

> much of a tilt! Her head actually looks great to me! Like I said,

> try the stretches for a month or so then send me some more

pictures.

> Maybe it was just the day that Dr. Mann saw her or something. Take

> care!

> Beth

>

>

> So I'm torn there to! One doc sees it and her therapist doesn't

and

> my husband and I don't notice it either so was she right in saying

> maybe it was just how Kaitlyn had her head that day, maybe she was

> looking at something with her head tilted?

>

> I just want what is best for Kaitlyn that's all! We are so happy

> with how her head looks now that if it was up to us we would take

the

> helmet off for good but we're not sure what to do, wait it out or

> take her in early? We don't see the tilt, neither does her

therapist

> yet Dr. Mann did, UGH LOL!!

>

> I have thought about making taking her in for a second opinion on

the

> tort and plag but I don't think there is anywhere else around here

> that deals with tort and plag so I'm kinda stuck between a rock and

a

> hard place, any suggestions and who would you trust more?

>

> Thanks, Bobbi

> Mommy to Kaitlyn , 10 1/2 months old

> Tort and plag-banded on 12-15-05

> Michigan

>

[Guest guest]

Bobbi,

Well I don't see the harm in leaving the helmet on til April. This is

usually when the little fine tuning changes happen and they can make

a big difference, if that makes sense. At that appt. you can say you

are ready to be done if they want her to wear it more. As far as the

tilt goes, I have had times when I walk in and someone says, oh he's

tilting again and I never noticed it because I see him everday.

Remember too that stress causes the tilt to come back a bit, and if

this is a doctor she doesn't see often it is a stressful appointment

in new surroundings. When the PT who she sees alot comes around she

is not stressed so no tilt....make sense. Poor Dominick was tilting

up a storm when we had to go for his post op visit and the next day

you couldn't see it all.

CAROLG

>

> Ok I took Kaitlyn for her helmet adjustment last Thursday, he said

> her head looks really good to come back in a month (April 5th)for a

> rescan and we'll see if she needs the helmet longer or if it'll be

> off for good well then on Friday she had her 4 month follow up

visit

> with her cranial facial specialist/plastic surgeon, I had her

helmet

> off when he walked in the room because I knew he'd want to see her

> head, well the FIRST thing he noticed was her torticollis was back,

> not bad but that she had a slight tilt still and then he looked at

> her head and said how much better it looked than when he had saw

her

> 4 months prior to that and said he didn't need to see her back

again

> UNLESS I wanted him to take another look at her well I then said to

> him just out of curiousity, I said if this was the FIRST time you

> seen Kaitlyns head would you suggest a helmet for her (at her first

> visit he said YES and that she definitely needed one) and he said

> nope, he said her head looks just fine now, she'll have no problems

> or like " deformaties " when she gets older, so great news! Ok parts

> of me wants to call up her orthotist and let him know what the

> specialist said and maybe try and get her in sooner for a rescan

and

> maybe get the helmet off sooner than we figured yet another part of

> me just says oh wait til April 5th and see what happens, I just

want

> this journey to be over with, she has been thru so much in the 10

1/2

> months she's been here with us (she was born a preemie) so do I

trust

> her specialists opinion verses her orthotist? I mean aren't

cranial

> facial specialists/plastic surgeons more familiar with heads than

an

> orthotist? UGH I'm so torn and don't know what to do! Ok so her

> specialist noticed her tilt so I called up Kaitlyns physical

> therapist (her tort WAS resolved yet I know it can come back-she

was

> last seen in December by her) and explained it to her how he

noticed

> it had came back and should I bring her back in to see her and she

> said I'd say no, just do the exercises at home for a month or so

and

> see how she does and bring her back in only if I felt I needed to

BUT

> she said email me some pictures of Kaitlyn so I can see if I can

see

> a tilt (her cranial facial specialist said pics are a good way to

> notice the tilt) ok so I did and she wrote me back and said......

>

> Thanks for the pictures-she's so cute! To be honest, I don't see

> much of a tilt! Her head actually looks great to me! Like I said,

> try the stretches for a month or so then send me some more

pictures.

> Maybe it was just the day that Dr. Mann saw her or something. Take

> care!

> Beth

>

>

> So I'm torn there to! One doc sees it and her therapist doesn't

and

> my husband and I don't notice it either so was she right in saying

> maybe it was just how Kaitlyn had her head that day, maybe she was

> looking at something with her head tilted?

>

> I just want what is best for Kaitlyn that's all! We are so happy

> with how her head looks now that if it was up to us we would take

the

> helmet off for good but we're not sure what to do, wait it out or

> take her in early? We don't see the tilt, neither does her

therapist

> yet Dr. Mann did, UGH LOL!!

>

> I have thought about making taking her in for a second opinion on

the

> tort and plag but I don't think there is anywhere else around here

> that deals with tort and plag so I'm kinda stuck between a rock and

a

> hard place, any suggestions and who would you trust more?

>

> Thanks, Bobbi

> Mommy to Kaitlyn , 10 1/2 months old

> Tort and plag-banded on 12-15-05

> Michigan

>