Guest guest Posted June 22, 2001 Report Share Posted June 22, 2001 I take prozac weekly, and it seems to 'help' a tiny bit, not hinder or flare up the fibro. As for your poll, been there done them all and at one point in my life was on high doses! unfortunately!lol Dont know if it caused my cfs,fms, or just added to it? hugs, Dawn > Thanks Pamm for the reply sorry mods and co-mods for the signature. I keep > get this list mixed up with others. Please don't kick me i need you guys. > Paxil helped me so much but it knocked me on my butt. Can't get up and > napped every day. Now I'm taking Prozac again, but I'm concerned. I read > it can flare fibromyalgia. Any of you read or know that? > > Also, I recently read that serotonin re-uptakes (you know what I mean) the > SSRIs they CAUSE Fibromylagia. So I want to take a poll. How many of you > were taking Paxil, Prozac and their brothers and sisters (hee hee) before > this fibro stuff came up???? > > #1 - me > #2 > #3 > #4 > > ???Geez how many of us are on here? > > p.s. I think sitting right here is my MAIN problem with posture,e tc. Been > sitting as a secretary for 24 years. How bout you all? Accidents? Stress? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2001 Report Share Posted June 22, 2001 I was taking Klonopin before I was diagnosed with fibro but I know now that It had been around for about 10 years. Went from doctor to doctor trying to find out what was wrong with me. I had a very bad fall while in Austin and driving home was h***. I couldn't get out of bed for 3 days. Went to my new Primary Physician and he immediately diagnosed fibro and sent me to a rheumatologist. I have depression and that was why I was taking Trofranil and Klonopin. Take care, Irene > > Also, I recently read that serotonin re-uptakes (you know what I > mean) the > > SSRIs they CAUSE Fibromyalgia. So I want to take a poll. How many > of you > > were taking Paxil, Prozac and their brothers and sisters (hee hee) > before > > this fibro stuff came up???? > > > > #1 - me > > #2 > > #3 > > #4 > > > > ???Geez how many of us are on here? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2001 Report Share Posted June 22, 2001 I was taking Klonopin before I was diagnosed with fibro but I know now that It had been around for about 10 years. Went from doctor to doctor trying to find out what was wrong with me. I had a very bad fall while in Austin and driving home was h***. I couldn't get out of bed for 3 days. Went to my new Primary Physician and he immediately diagnosed fibro and sent me to a rheumatologist. I have depression and that was why I was taking Trofranil and Klonopin. Take care, Irene > > Also, I recently read that serotonin re-uptakes (you know what I > mean) the > > SSRIs they CAUSE Fibromyalgia. So I want to take a poll. How many > of you > > were taking Paxil, Prozac and their brothers and sisters (hee hee) > before > > this fibro stuff came up???? > > > > #1 - me > > #2 > > #3 > > #4 > > > > ???Geez how many of us are on here? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2001 Report Share Posted June 22, 2001 I was taking Klonopin before I was diagnosed with fibro but I know now that It had been around for about 10 years. Went from doctor to doctor trying to find out what was wrong with me. I had a very bad fall while in Austin and driving home was h***. I couldn't get out of bed for 3 days. Went to my new Primary Physician and he immediately diagnosed fibro and sent me to a rheumatologist. I have depression and that was why I was taking Trofranil and Klonopin. Take care, Irene > > Also, I recently read that serotonin re-uptakes (you know what I > mean) the > > SSRIs they CAUSE Fibromyalgia. So I want to take a poll. How many > of you > > were taking Paxil, Prozac and their brothers and sisters (hee hee) > before > > this fibro stuff came up???? > > > > #1 - me > > #2 > > #3 > > #4 > > > > ???Geez how many of us are on here? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Hi, I am on the duragesic patch and they consider that a narcotic pain killer and it has done wonders for me. I can go about my daily life with out pain. I was worried about having that " high " you get from most narcotics, but I have not had that with these meds. Now that the pain cycle is broken I think I will be able to better manage my pain. I guess things are going to work differntly for differnt people. Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Jeane, I think you are 100% correct not enough is known about this disease to tell anything really. Plus what may work for one person, may not work for another. We are all different. Wish there was some miraculous cure for this stuff. Huggzz Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Jeane, I think you are 100% correct not enough is known about this disease to tell anything really. Plus what may work for one person, may not work for another. We are all different. Wish there was some miraculous cure for this stuff. Huggzz Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Jeane, I think you are 100% correct not enough is known about this disease to tell anything really. Plus what may work for one person, may not work for another. We are all different. Wish there was some miraculous cure for this stuff. Huggzz Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 I am going to be sure and ask my doc about that patch. Do you know anywhere online where they may have information on that patch by chance? Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 I am going to be sure and ask my doc about that patch. Do you know anywhere online where they may have information on that patch by chance? Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 I am going to be sure and ask my doc about that patch. Do you know anywhere online where they may have information on that patch by chance? Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 If you take narcotics for legitimate pain, you won't get high off of them. Rhonda Re: meds > Hi, > > I am on the duragesic patch and they consider that a narcotic pain killer and it has done wonders for me. I can go about my daily life with out pain. I was worried about having that " high " you get from most narcotics, but I have not had that with these meds. Now that the pain cycle is broken I think I will be able to better manage my pain. > > I guess things are going to work differntly for differnt people. > > Joan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 I take Ibuprofen, not for the fibro pain, but for the tendonitis/bursitis pain that often accompanies fibro. It works for my feet, knees, elbows and shoulders, but it doesn't work for the fibro pain alone. Joanne --- Jeane wrote: > Last week I went to an FMS support group, let > by an nurse practitioner who > had just returned from an FMS research > conference. She talked a lot about > drugs for/not for FMS. One thing she was very > adamant about: stay away > from Vioxx and Celebrex. Also, analgesics > (spelling?) like aspirin and > ibuprophin, and narcotic pain killers DON'T > work for FMS. They may appear > to work because they help secondary pain, but > they don't work on the FMS pain. > > Well, this is what she said. However, I HAVE > found enough relief from > ibuprophin to make it worth taking, especially > at night to help me > sleep. Personally, I think we all know so very > little about FMS that > nothing can be ruled out and nothing can be > said to definitely work. It's > all a stupid crap shoot with us who suffer from > FMS in the middle. > > Jeane, who will continue taking her ibuprophin > as long as it gives her some > relief! > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 http://md.essortment.com/duragesicpainp_ralo.htm -----Original Message----- From: Allicia21@... I am going to be sure and ask my doc about that patch. Do you know anywhere online where they may have information on that patch by chance? Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 http://md.essortment.com/duragesicpainp_ralo.htm -----Original Message----- From: Allicia21@... I am going to be sure and ask my doc about that patch. Do you know anywhere online where they may have information on that patch by chance? Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 http://md.essortment.com/duragesicpainp_ralo.htm -----Original Message----- From: Allicia21@... I am going to be sure and ask my doc about that patch. Do you know anywhere online where they may have information on that patch by chance? Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 thanks for the information on that patch. Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 thanks for the information on that patch. Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 thanks for the information on that patch. Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 Hi Jeane and everyone, I am currently taking narcotic (opioid) pain meds after exhausting every other medication, including all of those you mentioned, and I can assure you that they do wonders for severe cases of FMS pain, not just for me but for many others also. I was very hesitant at first to take them, but educated myself of the pros and cons. I feel as though I have my life back, after cowering under the covers in tears most evenings. (There is a wonderful group called " The American Society for Action on Pain " or ASAP that is working to help people with chronic pain get the pain relief they so desperately need. You can get some info here: http://www.druglibrary.org/schaffer/asap/ ) Although I know no single medication is for everyone, it has been a godsend for me. Though there will eventually be a physical dependence taking them long term, this is not the same as addiction. Many drugs induce dependence: antidepressants, blood pressure medications, insulin, etc.; addiction only applies if a person is seeking them for NON medical reasons, such as getting high. You will not get that high if you are taking them for legitimate pain, and you are not an addict if you depend on them to have some semblance of a life! It is a societal prejudice that narcotics are inherently " bad " , when in fact, they are often far less damaging than OTC preparations used long term. Acetaminophen (Tylenol) comes immediately to mind, in high doses that FMS pain requires, it can destroy your liver! Most of the narcotic's side effects are merely nuisances, and usually disappear over time. One of the preeminent FMS specialists, Dr Devin Starlanyl, who has also written " the book " on FMS , has this to say: " I am not advocating opioids as the first method of pain control, or as the singular method of pain control. When other options have failed, medical literature documents that opioids, in conjunction with a thorough pain control program including bodywork, mindwork and life style adjustment, are a logical and humane option in the treatment of severe FMS and CMP. The rest of this section will be from medical journal articles. For more information on this subject, see " The Fibromyalgia Advocate " . And further: The treatment of non-cancer pain with opioids may work for patients who don't gain sufficient reduction of pain by other therapies (Dertwinkel, Wiebalck, Zenz et al.1996). Opioids may be the only hope of relief to many people with chronic pain ( and Baranowski). 1997). Higher levels of opioid use are not associated with higher levels of disability or depression (Ciccone, Just, Bandilla, et al. 2000). Chronic opioid use at the proper dosage, tailored to patients' need and tolerance, did not significantly impair perception, cognition, coordination, and behavior. (Galski, and Ehle, 2000). From a purely pharmacological point of view, opioids have perhaps the best side effect profile of any drugs we have available form pain (Horning, 1997). Unlike the chemically dependent patient whose function is impaired by medications, the chronic pain patient's level of function may improve with proper use of medications, including opioids (Seas and , 1993). Addictive behaviors aren't common in chronic pain patients (Fishbain, Rosomoff and Rosomoff, 1992). This is just a small sample, but my point is that opioids are definitely a viable option if your current pain relief has been unsatisfactory, and we shouldn't " fear " them. Because of the prejudice against them, good luck in trying to get a compassionate doctor to prescribe them if you have the need, this is what the ASAP mission is about. Through the press we hear about how many addicts die using drugs illegally, but no one mentions how many people take their own lives in desperation because of unrelenting pain and suffering with no where to turn, under treated by the medical profession for fear of repercussions. Opioids have been around for thousands of years, compliments of naturess own poppy, and their track record is well proven. Instead we are pushed to ingest these new, very EXPENSIVE drugs that turn out to be lethal in some instances, and at the very least, don't work! IMHO, aspirin is as effective as most of them, only it doesn't cost a month's salary. (You know the drug companies are making a hefty profit off of us when you see their ads everywhere, and tons of samples at the doc's.) Okay, I will get off my soapbox now and return you to your regularly scheduled programming. Char CT Last week I went to an FMS support group, let by an nurse practitioner who had just returned from an FMS research conference. She talked a lot about drugs for/not for FMS. One thing she was very adamant about: stay away from Vioxx and Celebrex. Also, analgesics (spelling?) like aspirin and ibuprophin, and narcotic pain killers DON'T work for FMS. They may appear to work because they help secondary pain, but they don't work on the FMS pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 Hi Jeane and everyone, I am currently taking narcotic (opioid) pain meds after exhausting every other medication, including all of those you mentioned, and I can assure you that they do wonders for severe cases of FMS pain, not just for me but for many others also. I was very hesitant at first to take them, but educated myself of the pros and cons. I feel as though I have my life back, after cowering under the covers in tears most evenings. (There is a wonderful group called " The American Society for Action on Pain " or ASAP that is working to help people with chronic pain get the pain relief they so desperately need. You can get some info here: http://www.druglibrary.org/schaffer/asap/ ) Although I know no single medication is for everyone, it has been a godsend for me. Though there will eventually be a physical dependence taking them long term, this is not the same as addiction. Many drugs induce dependence: antidepressants, blood pressure medications, insulin, etc.; addiction only applies if a person is seeking them for NON medical reasons, such as getting high. You will not get that high if you are taking them for legitimate pain, and you are not an addict if you depend on them to have some semblance of a life! It is a societal prejudice that narcotics are inherently " bad " , when in fact, they are often far less damaging than OTC preparations used long term. Acetaminophen (Tylenol) comes immediately to mind, in high doses that FMS pain requires, it can destroy your liver! Most of the narcotic's side effects are merely nuisances, and usually disappear over time. One of the preeminent FMS specialists, Dr Devin Starlanyl, who has also written " the book " on FMS , has this to say: " I am not advocating opioids as the first method of pain control, or as the singular method of pain control. When other options have failed, medical literature documents that opioids, in conjunction with a thorough pain control program including bodywork, mindwork and life style adjustment, are a logical and humane option in the treatment of severe FMS and CMP. The rest of this section will be from medical journal articles. For more information on this subject, see " The Fibromyalgia Advocate " . And further: The treatment of non-cancer pain with opioids may work for patients who don't gain sufficient reduction of pain by other therapies (Dertwinkel, Wiebalck, Zenz et al.1996). Opioids may be the only hope of relief to many people with chronic pain ( and Baranowski). 1997). Higher levels of opioid use are not associated with higher levels of disability or depression (Ciccone, Just, Bandilla, et al. 2000). Chronic opioid use at the proper dosage, tailored to patients' need and tolerance, did not significantly impair perception, cognition, coordination, and behavior. (Galski, and Ehle, 2000). From a purely pharmacological point of view, opioids have perhaps the best side effect profile of any drugs we have available form pain (Horning, 1997). Unlike the chemically dependent patient whose function is impaired by medications, the chronic pain patient's level of function may improve with proper use of medications, including opioids (Seas and , 1993). Addictive behaviors aren't common in chronic pain patients (Fishbain, Rosomoff and Rosomoff, 1992). This is just a small sample, but my point is that opioids are definitely a viable option if your current pain relief has been unsatisfactory, and we shouldn't " fear " them. Because of the prejudice against them, good luck in trying to get a compassionate doctor to prescribe them if you have the need, this is what the ASAP mission is about. Through the press we hear about how many addicts die using drugs illegally, but no one mentions how many people take their own lives in desperation because of unrelenting pain and suffering with no where to turn, under treated by the medical profession for fear of repercussions. Opioids have been around for thousands of years, compliments of naturess own poppy, and their track record is well proven. Instead we are pushed to ingest these new, very EXPENSIVE drugs that turn out to be lethal in some instances, and at the very least, don't work! IMHO, aspirin is as effective as most of them, only it doesn't cost a month's salary. (You know the drug companies are making a hefty profit off of us when you see their ads everywhere, and tons of samples at the doc's.) Okay, I will get off my soapbox now and return you to your regularly scheduled programming. Char CT Last week I went to an FMS support group, let by an nurse practitioner who had just returned from an FMS research conference. She talked a lot about drugs for/not for FMS. One thing she was very adamant about: stay away from Vioxx and Celebrex. Also, analgesics (spelling?) like aspirin and ibuprophin, and narcotic pain killers DON'T work for FMS. They may appear to work because they help secondary pain, but they don't work on the FMS pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 Hi Jeane and everyone, I am currently taking narcotic (opioid) pain meds after exhausting every other medication, including all of those you mentioned, and I can assure you that they do wonders for severe cases of FMS pain, not just for me but for many others also. I was very hesitant at first to take them, but educated myself of the pros and cons. I feel as though I have my life back, after cowering under the covers in tears most evenings. (There is a wonderful group called " The American Society for Action on Pain " or ASAP that is working to help people with chronic pain get the pain relief they so desperately need. You can get some info here: http://www.druglibrary.org/schaffer/asap/ ) Although I know no single medication is for everyone, it has been a godsend for me. Though there will eventually be a physical dependence taking them long term, this is not the same as addiction. Many drugs induce dependence: antidepressants, blood pressure medications, insulin, etc.; addiction only applies if a person is seeking them for NON medical reasons, such as getting high. You will not get that high if you are taking them for legitimate pain, and you are not an addict if you depend on them to have some semblance of a life! It is a societal prejudice that narcotics are inherently " bad " , when in fact, they are often far less damaging than OTC preparations used long term. Acetaminophen (Tylenol) comes immediately to mind, in high doses that FMS pain requires, it can destroy your liver! Most of the narcotic's side effects are merely nuisances, and usually disappear over time. One of the preeminent FMS specialists, Dr Devin Starlanyl, who has also written " the book " on FMS , has this to say: " I am not advocating opioids as the first method of pain control, or as the singular method of pain control. When other options have failed, medical literature documents that opioids, in conjunction with a thorough pain control program including bodywork, mindwork and life style adjustment, are a logical and humane option in the treatment of severe FMS and CMP. The rest of this section will be from medical journal articles. For more information on this subject, see " The Fibromyalgia Advocate " . And further: The treatment of non-cancer pain with opioids may work for patients who don't gain sufficient reduction of pain by other therapies (Dertwinkel, Wiebalck, Zenz et al.1996). Opioids may be the only hope of relief to many people with chronic pain ( and Baranowski). 1997). Higher levels of opioid use are not associated with higher levels of disability or depression (Ciccone, Just, Bandilla, et al. 2000). Chronic opioid use at the proper dosage, tailored to patients' need and tolerance, did not significantly impair perception, cognition, coordination, and behavior. (Galski, and Ehle, 2000). From a purely pharmacological point of view, opioids have perhaps the best side effect profile of any drugs we have available form pain (Horning, 1997). Unlike the chemically dependent patient whose function is impaired by medications, the chronic pain patient's level of function may improve with proper use of medications, including opioids (Seas and , 1993). Addictive behaviors aren't common in chronic pain patients (Fishbain, Rosomoff and Rosomoff, 1992). This is just a small sample, but my point is that opioids are definitely a viable option if your current pain relief has been unsatisfactory, and we shouldn't " fear " them. Because of the prejudice against them, good luck in trying to get a compassionate doctor to prescribe them if you have the need, this is what the ASAP mission is about. Through the press we hear about how many addicts die using drugs illegally, but no one mentions how many people take their own lives in desperation because of unrelenting pain and suffering with no where to turn, under treated by the medical profession for fear of repercussions. Opioids have been around for thousands of years, compliments of naturess own poppy, and their track record is well proven. Instead we are pushed to ingest these new, very EXPENSIVE drugs that turn out to be lethal in some instances, and at the very least, don't work! IMHO, aspirin is as effective as most of them, only it doesn't cost a month's salary. (You know the drug companies are making a hefty profit off of us when you see their ads everywhere, and tons of samples at the doc's.) Okay, I will get off my soapbox now and return you to your regularly scheduled programming. Char CT Last week I went to an FMS support group, let by an nurse practitioner who had just returned from an FMS research conference. She talked a lot about drugs for/not for FMS. One thing she was very adamant about: stay away from Vioxx and Celebrex. Also, analgesics (spelling?) like aspirin and ibuprophin, and narcotic pain killers DON'T work for FMS. They may appear to work because they help secondary pain, but they don't work on the FMS pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 if you go to Yahoo and search for duragesic patch in quotes then it will bring up their web site. Don't be freaked when it says that it is used for the treatment of cancer pain. Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 if you go to Yahoo and search for duragesic patch in quotes then it will bring up their web site. Don't be freaked when it says that it is used for the treatment of cancer pain. Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 lol...thanks for warning me..I Probably would of thought..man this has to be the wrong thing...lol Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.