Re: Banding a Child with Achondroplasia (Dwarfism)

[Guest guest]

Welcome Jh,

I am CarolG from over on the CT board, glad you came over here.. I

know we had a mom who was in the same situation as you, I hope they

will see your post and get back to you. In the meantime your consult

should answer your questions and hopefully you will be able to get

him in a band soon.

CAROLG

> >

> > Hi,

> > Welcome to the group! Banding doesn't cause other problems, that

is,

> > w/an experienced orthotist. I would in your case however only use

> > Cranial Technologies, they are the leaders in treating babies

> > w/plagio. If anyone has treated a baby w/both Achondroplasia and

> > plagio it's them.

> > http://www.cranialtech.com

> > Where are you located? Cranial Tech offers free evaluations, they

> will

> > give you an honest opinion on whether or not your baby would

> benefit

> > from a DOCband.

> > As for you doctors telling you it will correct on it's own. Why

> don't

> > you tell them you'd like that in writting? I'd bet you anything

you

> > wouldn't get it in writting! Most babies w/plagio DO NOT round

out

> on

> > their own! It makes me so mad that doctors are still telling

parents

> > that when it's so clearly not so. Like you said the window of

> > opportunity to correct plagio isn't a big one.

> > How old is your baby? Let us know what you decide.

> > Take care,

> >

> > -- In Plagiocephaly , " rjsh939 " <rjsh939@y...>

wrote:

> > >

> > > Has anyone banded a child with Achondroplasia? What issues or

> > > complications did you have? We are on the fence on whether to

> band or

> > > not. Our child's doctors have said that the head will correct

> and we

> > > shouldn't worry, but with a short window of opportunity, we

don't

> want

> > > to wait until it's too late to find out it didn't correct. On

> the

> > > other hand, we don't want to band our child and then cause

other

> > > problems. PLEASE HELP!

> > >

> >

>

>

>

>

>

>

>

> For more plagio info

[Guest guest]

Welcome Jh,

I am CarolG from over on the CT board, glad you came over here.. I

know we had a mom who was in the same situation as you, I hope they

will see your post and get back to you. In the meantime your consult

should answer your questions and hopefully you will be able to get

him in a band soon.

CAROLG

> >

> > Hi,

> > Welcome to the group! Banding doesn't cause other problems, that

is,

> > w/an experienced orthotist. I would in your case however only use

> > Cranial Technologies, they are the leaders in treating babies

> > w/plagio. If anyone has treated a baby w/both Achondroplasia and

> > plagio it's them.

> > http://www.cranialtech.com

> > Where are you located? Cranial Tech offers free evaluations, they

> will

> > give you an honest opinion on whether or not your baby would

> benefit

> > from a DOCband.

> > As for you doctors telling you it will correct on it's own. Why

> don't

> > you tell them you'd like that in writting? I'd bet you anything

you

> > wouldn't get it in writting! Most babies w/plagio DO NOT round

out

> on

> > their own! It makes me so mad that doctors are still telling

parents

> > that when it's so clearly not so. Like you said the window of

> > opportunity to correct plagio isn't a big one.

> > How old is your baby? Let us know what you decide.

> > Take care,

> >

> > -- In Plagiocephaly , " rjsh939 " <rjsh939@y...>

wrote:

> > >

> > > Has anyone banded a child with Achondroplasia? What issues or

> > > complications did you have? We are on the fence on whether to

> band or

> > > not. Our child's doctors have said that the head will correct

> and we

> > > shouldn't worry, but with a short window of opportunity, we

don't

> want

> > > to wait until it's too late to find out it didn't correct. On

> the

> > > other hand, we don't want to band our child and then cause

other

> > > problems. PLEASE HELP!

> > >

> >

>

>

>

>

>

>

>

> For more plagio info