Update on being frustrated!

[Guest guest]

Hello everyone,

Unfortunatly, my frustration has not subsided. Quite the contrary I

feel like it's escaladed. We're going back in today for the 4th time

this week. We went on Tuesday to fix the modification done on

Monday, the ortho pulled the cheekbone piece out so it wasn't

pressing so hard on her cheekbone/sideburn area. I thought he had

pulled it out too far because it looked like it was hardly touching

but he assured me that it was ok because that is the side of her

face that needs to fill out anyway. He also shaved some of the extra

piece of foam out of the back part which helped with her angry eye

problem. Got home with the band on took it off of her to check her

out she had a pretty good sized red spot on the back of her head

which took several hours to fade away. So we went in the next day,

Wednesday, this time my dh came with us. We were there for 2 hours.

He would put the band on her head, take it off and look at her head

then go make a modification. Then we would wait a little bit put it

back on for a little bit then take it off look again make more

modifications, etc... we went home after a few modifications and

waiting till the next day to try it on her (Thursday). Put it on her

Thur for about an hour and took it off and there was a pink spot in

the same area which again took a couple hours to go away. I've

emailed Hicks with pics and permission to speak to our ortho

but he's out of the office until Tuesday next week, just my luck. I

called the ortho yesterday and actually spoke to him and told him

how frustrated I am with this whole thing. I told him at this point

we feel like we need a new band because so many modifications have

been made to it, we've deviated from the original pretty far. He

disagreed and told me that it would be up to him if we did a new

band and that he doesn't feel it's necessary and that that is rare

to do. He said that he hasn't done that many modification and they

have been minor, I reminded him that we've been there 3 times so far

this week. I told him that I've been talking to people on this board

and that we feel like we're at his mercy and I told him " no offense,

that sucks " . We only have what people tell us is right. Anyhow,

we're going in again this morning at 11:00 to talk more about

everything and he said that he was going to buff that back part more

to make it so she doesn't get a red/pink spot. The buffed part in

the back feels funny to me too, like it's a fairly good sized dip in

the inside of the band. If ultimatly the shape of the inside of the

band is supposed to end up being the shape of her head, I don't want

her to have a fairly good sized bump from the fairly good sized dip

in the inside of the band. ARGGGGGGGGGGGGGGGGG! I havn't been able

to sleep well at all, my nerves are shot, I feel like the stress

from this is affecting my relationship with my dh (I havn't been

very affectionate). Geez I just pray that today goes well. Wish me

luck everyone.

Camerin

Lorelei (STARband 1/5/06)

[Guest guest]

Hello everyone,

Unfortunatly, my frustration has not subsided. Quite the contrary I

feel like it's escaladed. We're going back in today for the 4th time

this week. We went on Tuesday to fix the modification done on

Monday, the ortho pulled the cheekbone piece out so it wasn't

pressing so hard on her cheekbone/sideburn area. I thought he had

pulled it out too far because it looked like it was hardly touching

but he assured me that it was ok because that is the side of her

face that needs to fill out anyway. He also shaved some of the extra

piece of foam out of the back part which helped with her angry eye

problem. Got home with the band on took it off of her to check her

out she had a pretty good sized red spot on the back of her head

which took several hours to fade away. So we went in the next day,

Wednesday, this time my dh came with us. We were there for 2 hours.

He would put the band on her head, take it off and look at her head

then go make a modification. Then we would wait a little bit put it

back on for a little bit then take it off look again make more

modifications, etc... we went home after a few modifications and

waiting till the next day to try it on her (Thursday). Put it on her

Thur for about an hour and took it off and there was a pink spot in

the same area which again took a couple hours to go away. I've

emailed Hicks with pics and permission to speak to our ortho

but he's out of the office until Tuesday next week, just my luck. I

called the ortho yesterday and actually spoke to him and told him

how frustrated I am with this whole thing. I told him at this point

we feel like we need a new band because so many modifications have

been made to it, we've deviated from the original pretty far. He

disagreed and told me that it would be up to him if we did a new

band and that he doesn't feel it's necessary and that that is rare

to do. He said that he hasn't done that many modification and they

have been minor, I reminded him that we've been there 3 times so far

this week. I told him that I've been talking to people on this board

and that we feel like we're at his mercy and I told him " no offense,

that sucks " . We only have what people tell us is right. Anyhow,

we're going in again this morning at 11:00 to talk more about

everything and he said that he was going to buff that back part more

to make it so she doesn't get a red/pink spot. The buffed part in

the back feels funny to me too, like it's a fairly good sized dip in

the inside of the band. If ultimatly the shape of the inside of the

band is supposed to end up being the shape of her head, I don't want

her to have a fairly good sized bump from the fairly good sized dip

in the inside of the band. ARGGGGGGGGGGGGGGGGG! I havn't been able

to sleep well at all, my nerves are shot, I feel like the stress

from this is affecting my relationship with my dh (I havn't been

very affectionate). Geez I just pray that today goes well. Wish me

luck everyone.

Camerin

Lorelei (STARband 1/5/06)

[Guest guest]

Camerin,I'm waving a RED flag here! This sounds like a concerning situation. Nothing gets added to DOC Bands except moleskin for sensitive skin. Perhaps some other STARbands will help you. Check out "Getting a Good Fit" in the files section. How many bands has your ortho done? I assume you've checked out his references. It sounds as if your daughter's band has really been modified. It probably is quite a different fit from the original scan or mold of her head. She probably does need a new band (maybe ortho too). She's lost a chunk of correction time with the ill fitting band too.If you don't find resolution to your issues, consider filing a complaint with the FDA. Click here. The product code for bands is MVA. Also follow up with an email to your US Representative. This is a very important part because they can be essential to getting things worked out! Click here to email your Rep. You can also ask for a Congressional investigation into why the FDA didn't conduct clinical trials on all the bands. Good luck. I hope everything works out for you. It is a shame that this stuff continues to happen especially with FDA regulated products.Mom to Dane (4 yo) and Cecelia (12 mo) DOC Grads

[Guest guest]

Camerin,I'm waving a RED flag here! This sounds like a concerning situation. Nothing gets added to DOC Bands except moleskin for sensitive skin. Perhaps some other STARbands will help you. Check out "Getting a Good Fit" in the files section. How many bands has your ortho done? I assume you've checked out his references. It sounds as if your daughter's band has really been modified. It probably is quite a different fit from the original scan or mold of her head. She probably does need a new band (maybe ortho too). She's lost a chunk of correction time with the ill fitting band too.If you don't find resolution to your issues, consider filing a complaint with the FDA. Click here. The product code for bands is MVA. Also follow up with an email to your US Representative. This is a very important part because they can be essential to getting things worked out! Click here to email your Rep. You can also ask for a Congressional investigation into why the FDA didn't conduct clinical trials on all the bands. Good luck. I hope everything works out for you. It is a shame that this stuff continues to happen especially with FDA regulated products.Mom to Dane (4 yo) and Cecelia (12 mo) DOC Grads

[Guest guest]

Camerin,

How did your 4th visit go??? I hope it went well or she was

rescanned/casted for a new band. It's a tricky science and I wish

orthos didn't take it so personal. Of course I guess if they botch

it then they have to pay for the new one - yikes. I think you are

doing a great job making your concerns known in a polite and

professional manner. I hope the ortho treats you with the same

respect.

na, 2 1/2 yrs, DOC Grad, Tort Resolved

Kiersten, 7 1/2 months, DOC 1/10/06, Tort

www.thefilyaws.com

--- In Plagiocephaly , " camerin21 " <camerin21@y...>

wrote:

>

> Hello everyone,

> Unfortunatly, my frustration has not subsided. Quite the contrary I

> feel like it's escaladed. We're going back in today for the 4th

time

> this week. We went on Tuesday to fix the modification done on

> Monday, the ortho pulled the cheekbone piece out so it wasn't

> pressing so hard on her cheekbone/sideburn area. I thought he had

> pulled it out too far because it looked like it was hardly touching

> but he assured me that it was ok because that is the side of her

> face that needs to fill out anyway. He also shaved some of the

extra

> piece of foam out of the back part which helped with her angry eye

> problem. Got home with the band on took it off of her to check her

> out she had a pretty good sized red spot on the back of her head

> which took several hours to fade away. So we went in the next day,

> Wednesday, this time my dh came with us. We were there for 2 hours.

> He would put the band on her head, take it off and look at her head

> then go make a modification. Then we would wait a little bit put it

> back on for a little bit then take it off look again make more

> modifications, etc... we went home after a few modifications and

> waiting till the next day to try it on her (Thursday). Put it on

her

> Thur for about an hour and took it off and there was a pink spot in

> the same area which again took a couple hours to go away. I've

> emailed Hicks with pics and permission to speak to our ortho

> but he's out of the office until Tuesday next week, just my luck. I

> called the ortho yesterday and actually spoke to him and told him

> how frustrated I am with this whole thing. I told him at this point

> we feel like we need a new band because so many modifications have

> been made to it, we've deviated from the original pretty far. He

> disagreed and told me that it would be up to him if we did a new

> band and that he doesn't feel it's necessary and that that is rare

> to do. He said that he hasn't done that many modification and they

> have been minor, I reminded him that we've been there 3 times so

far

> this week. I told him that I've been talking to people on this

board

> and that we feel like we're at his mercy and I told him " no

offense,

> that sucks " . We only have what people tell us is right. Anyhow,

> we're going in again this morning at 11:00 to talk more about

> everything and he said that he was going to buff that back part

more

> to make it so she doesn't get a red/pink spot. The buffed part in

> the back feels funny to me too, like it's a fairly good sized dip

in

> the inside of the band. If ultimatly the shape of the inside of the

> band is supposed to end up being the shape of her head, I don't

want

> her to have a fairly good sized bump from the fairly good sized dip

> in the inside of the band. ARGGGGGGGGGGGGGGGGG! I havn't been able

> to sleep well at all, my nerves are shot, I feel like the stress

> from this is affecting my relationship with my dh (I havn't been

> very affectionate). Geez I just pray that today goes well. Wish me

> luck everyone.

>

> Camerin

> Lorelei (STARband 1/5/06)

>

[Guest guest]

Camerin,

How did your 4th visit go??? I hope it went well or she was

rescanned/casted for a new band. It's a tricky science and I wish

orthos didn't take it so personal. Of course I guess if they botch

it then they have to pay for the new one - yikes. I think you are

doing a great job making your concerns known in a polite and

professional manner. I hope the ortho treats you with the same

respect.

na, 2 1/2 yrs, DOC Grad, Tort Resolved

Kiersten, 7 1/2 months, DOC 1/10/06, Tort

www.thefilyaws.com

--- In Plagiocephaly , " camerin21 " <camerin21@y...>

wrote:

>

> Hello everyone,

> Unfortunatly, my frustration has not subsided. Quite the contrary I

> feel like it's escaladed. We're going back in today for the 4th

time

> this week. We went on Tuesday to fix the modification done on

> Monday, the ortho pulled the cheekbone piece out so it wasn't

> pressing so hard on her cheekbone/sideburn area. I thought he had

> pulled it out too far because it looked like it was hardly touching

> but he assured me that it was ok because that is the side of her

> face that needs to fill out anyway. He also shaved some of the

extra

> piece of foam out of the back part which helped with her angry eye

> problem. Got home with the band on took it off of her to check her

> out she had a pretty good sized red spot on the back of her head

> which took several hours to fade away. So we went in the next day,

> Wednesday, this time my dh came with us. We were there for 2 hours.

> He would put the band on her head, take it off and look at her head

> then go make a modification. Then we would wait a little bit put it

> back on for a little bit then take it off look again make more

> modifications, etc... we went home after a few modifications and

> waiting till the next day to try it on her (Thursday). Put it on

her

> Thur for about an hour and took it off and there was a pink spot in

> the same area which again took a couple hours to go away. I've

> emailed Hicks with pics and permission to speak to our ortho

> but he's out of the office until Tuesday next week, just my luck. I

> called the ortho yesterday and actually spoke to him and told him

> how frustrated I am with this whole thing. I told him at this point

> we feel like we need a new band because so many modifications have

> been made to it, we've deviated from the original pretty far. He

> disagreed and told me that it would be up to him if we did a new

> band and that he doesn't feel it's necessary and that that is rare

> to do. He said that he hasn't done that many modification and they

> have been minor, I reminded him that we've been there 3 times so

far

> this week. I told him that I've been talking to people on this

board

> and that we feel like we're at his mercy and I told him " no

offense,

> that sucks " . We only have what people tell us is right. Anyhow,

> we're going in again this morning at 11:00 to talk more about

> everything and he said that he was going to buff that back part

more

> to make it so she doesn't get a red/pink spot. The buffed part in

> the back feels funny to me too, like it's a fairly good sized dip

in

> the inside of the band. If ultimatly the shape of the inside of the

> band is supposed to end up being the shape of her head, I don't

want

> her to have a fairly good sized bump from the fairly good sized dip

> in the inside of the band. ARGGGGGGGGGGGGGGGGG! I havn't been able

> to sleep well at all, my nerves are shot, I feel like the stress

> from this is affecting my relationship with my dh (I havn't been

> very affectionate). Geez I just pray that today goes well. Wish me

> luck everyone.

>

> Camerin

> Lorelei (STARband 1/5/06)

>

[Guest guest]

Camerin,

I was so hoping that this would just be one of times when it was a

couple adjustments at the start and you would be good to go, but I

guess not. I am really concerned about this ortho's experience. What

happened today?

CAROLG

--- In Plagiocephaly , " camerin21 " <camerin21@y...>

wrote:

>

> Hello everyone,

> Unfortunatly, my frustration has not subsided. Quite the contrary I

> feel like it's escaladed. We're going back in today for the 4th time

> this week. We went on Tuesday to fix the modification done on

> Monday, the ortho pulled the cheekbone piece out so it wasn't

> pressing so hard on her cheekbone/sideburn area. I thought he had

> pulled it out too far because it looked like it was hardly touching

> but he assured me that it was ok because that is the side of her

> face that needs to fill out anyway. He also shaved some of the extra

> piece of foam out of the back part which helped with her angry eye

> problem. Got home with the band on took it off of her to check her

> out she had a pretty good sized red spot on the back of her head

> which took several hours to fade away. So we went in the next day,

> Wednesday, this time my dh came with us. We were there for 2 hours.

> He would put the band on her head, take it off and look at her head

> then go make a modification. Then we would wait a little bit put it

> back on for a little bit then take it off look again make more

> modifications, etc... we went home after a few modifications and

> waiting till the next day to try it on her (Thursday). Put it on her

> Thur for about an hour and took it off and there was a pink spot in

> the same area which again took a couple hours to go away. I've

> emailed Hicks with pics and permission to speak to our ortho

> but he's out of the office until Tuesday next week, just my luck. I

> called the ortho yesterday and actually spoke to him and told him

> how frustrated I am with this whole thing. I told him at this point

> we feel like we need a new band because so many modifications have

> been made to it, we've deviated from the original pretty far. He

> disagreed and told me that it would be up to him if we did a new

> band and that he doesn't feel it's necessary and that that is rare

> to do. He said that he hasn't done that many modification and they

> have been minor, I reminded him that we've been there 3 times so far

> this week. I told him that I've been talking to people on this board

> and that we feel like we're at his mercy and I told him " no offense,

> that sucks " . We only have what people tell us is right. Anyhow,

> we're going in again this morning at 11:00 to talk more about

> everything and he said that he was going to buff that back part more

> to make it so she doesn't get a red/pink spot. The buffed part in

> the back feels funny to me too, like it's a fairly good sized dip in

> the inside of the band. If ultimatly the shape of the inside of the

> band is supposed to end up being the shape of her head, I don't want

> her to have a fairly good sized bump from the fairly good sized dip

> in the inside of the band. ARGGGGGGGGGGGGGGGGG! I havn't been able

> to sleep well at all, my nerves are shot, I feel like the stress

> from this is affecting my relationship with my dh (I havn't been

> very affectionate). Geez I just pray that today goes well. Wish me

> luck everyone.

>

> Camerin

> Lorelei (STARband 1/5/06)

>

[Guest guest]

Camerin,

I was so hoping that this would just be one of times when it was a

couple adjustments at the start and you would be good to go, but I

guess not. I am really concerned about this ortho's experience. What

happened today?

CAROLG

--- In Plagiocephaly , " camerin21 " <camerin21@y...>

wrote:

>

> Hello everyone,

> Unfortunatly, my frustration has not subsided. Quite the contrary I

> feel like it's escaladed. We're going back in today for the 4th time

> this week. We went on Tuesday to fix the modification done on

> Monday, the ortho pulled the cheekbone piece out so it wasn't

> pressing so hard on her cheekbone/sideburn area. I thought he had

> pulled it out too far because it looked like it was hardly touching

> but he assured me that it was ok because that is the side of her

> face that needs to fill out anyway. He also shaved some of the extra

> piece of foam out of the back part which helped with her angry eye

> problem. Got home with the band on took it off of her to check her

> out she had a pretty good sized red spot on the back of her head

> which took several hours to fade away. So we went in the next day,

> Wednesday, this time my dh came with us. We were there for 2 hours.

> He would put the band on her head, take it off and look at her head

> then go make a modification. Then we would wait a little bit put it

> back on for a little bit then take it off look again make more

> modifications, etc... we went home after a few modifications and

> waiting till the next day to try it on her (Thursday). Put it on her

> Thur for about an hour and took it off and there was a pink spot in

> the same area which again took a couple hours to go away. I've

> emailed Hicks with pics and permission to speak to our ortho

> but he's out of the office until Tuesday next week, just my luck. I

> called the ortho yesterday and actually spoke to him and told him

> how frustrated I am with this whole thing. I told him at this point

> we feel like we need a new band because so many modifications have

> been made to it, we've deviated from the original pretty far. He

> disagreed and told me that it would be up to him if we did a new

> band and that he doesn't feel it's necessary and that that is rare

> to do. He said that he hasn't done that many modification and they

> have been minor, I reminded him that we've been there 3 times so far

> this week. I told him that I've been talking to people on this board

> and that we feel like we're at his mercy and I told him " no offense,

> that sucks " . We only have what people tell us is right. Anyhow,

> we're going in again this morning at 11:00 to talk more about

> everything and he said that he was going to buff that back part more

> to make it so she doesn't get a red/pink spot. The buffed part in

> the back feels funny to me too, like it's a fairly good sized dip in

> the inside of the band. If ultimatly the shape of the inside of the

> band is supposed to end up being the shape of her head, I don't want

> her to have a fairly good sized bump from the fairly good sized dip

> in the inside of the band. ARGGGGGGGGGGGGGGGGG! I havn't been able

> to sleep well at all, my nerves are shot, I feel like the stress

> from this is affecting my relationship with my dh (I havn't been

> very affectionate). Geez I just pray that today goes well. Wish me

> luck everyone.

>

> Camerin

> Lorelei (STARband 1/5/06)

>

[Guest guest]

Camerin,

I'm with , waving my own red flag! I'm sorry your baby is going

through this. Do you know if your ortho has any experience treating

plagio babies?

>

>

>

> Camerin,

>

> I'm waving a RED flag here! This sounds like a concerning

situation.

>

> Nothing gets added to DOC Bands except moleskin for sensitive skin.

Perhaps some other STARbands will help you. Check out " Getting a

Good Fit " in the files section. How many bands has your ortho done?

I assume you've checked out his references.

>

> It sounds as if your daughter's band has really been modified. It

probably is quite a different fit from the original scan or mold of

her head. She probably does need a new band (maybe ortho too).

She's lost a chunk of correction time with the ill fitting band too.

>

> If you don't find resolution to your issues, consider filing a

complaint with the FDA. Click here. The product code for bands is

MVA. Also follow up with an email to your US Representative. This

is a very important part because they can be essential to getting

things worked out! Click here to email your Rep. You can also ask for

a Congressional investigation into why the FDA didn't conduct clinical

trials on all the bands.

>

> Good luck. I hope everything works out for you. It is a shame that

this stuff continues to happen especially with FDA regulated products.

>

>

>

> Mom to Dane (4 yo) and Cecelia (12 mo) DOC Grads

>

[Guest guest]

Camerin,

I'm with , waving my own red flag! I'm sorry your baby is going

through this. Do you know if your ortho has any experience treating

plagio babies?

>

>

>

> Camerin,

>

> I'm waving a RED flag here! This sounds like a concerning

situation.

>

> Nothing gets added to DOC Bands except moleskin for sensitive skin.

Perhaps some other STARbands will help you. Check out " Getting a

Good Fit " in the files section. How many bands has your ortho done?

I assume you've checked out his references.

>

> It sounds as if your daughter's band has really been modified. It

probably is quite a different fit from the original scan or mold of

her head. She probably does need a new band (maybe ortho too).

She's lost a chunk of correction time with the ill fitting band too.

>

> If you don't find resolution to your issues, consider filing a

complaint with the FDA. Click here. The product code for bands is

MVA. Also follow up with an email to your US Representative. This

is a very important part because they can be essential to getting

things worked out! Click here to email your Rep. You can also ask for

a Congressional investigation into why the FDA didn't conduct clinical

trials on all the bands.

>

> Good luck. I hope everything works out for you. It is a shame that

this stuff continues to happen especially with FDA regulated products.

>

>

>

> Mom to Dane (4 yo) and Cecelia (12 mo) DOC Grads

>