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Tell her Congrats!

:)

Good news

I have a girlfriend here in Hampton,Iowa that has scheduled her TR

with Dr. Levin for the 29th of May. We started talking about doing

this 2 years ago and we both didn't think it wouldn't happen. But

now i have had mine and she is scheduled. I keep telling her to get

on to the message board that she would love all the info you all give

and the great woman on here. Just thought I'd let you know the news.

Hopefully she will log on soon!!

Robin

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Guest guest

Tell her Congrats!

:)

Good news

I have a girlfriend here in Hampton,Iowa that has scheduled her TR

with Dr. Levin for the 29th of May. We started talking about doing

this 2 years ago and we both didn't think it wouldn't happen. But

now i have had mine and she is scheduled. I keep telling her to get

on to the message board that she would love all the info you all give

and the great woman on here. Just thought I'd let you know the news.

Hopefully she will log on soon!!

Robin

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Share on other sites

Guest guest

Tell her Congrats!

:)

Good news

I have a girlfriend here in Hampton,Iowa that has scheduled her TR

with Dr. Levin for the 29th of May. We started talking about doing

this 2 years ago and we both didn't think it wouldn't happen. But

now i have had mine and she is scheduled. I keep telling her to get

on to the message board that she would love all the info you all give

and the great woman on here. Just thought I'd let you know the news.

Hopefully she will log on soon!!

Robin

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  • 8 months later...

Woo Hoo... Way to go girl... Glad your toasty... Take care, Carol

Re: GOOD NEWS

JUST WANTED TO LET YOU ALL KNOW MY HEATER IS WORKING AGAIN! YEA !! I CALLED THE GAS MAN WHEN HUBBY WAS OUT HEE HEE , IT WAS DUSTY CAUSE OF THE FIRES! GEZZS MEN! BUT NOW ONE BAD THING IM SICK GOING TO DR's TOMORROW YUCK! ALSO HEY I NEED A CHANGE IN MOVES TO LOL ! EXCEPT I WANT TO GO UP NORTH, I LIVE IN CALIFORNIA LOL , BEST WISHES SHIRLEY "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies

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Woo Hoo... Way to go girl... Glad your toasty... Take care, Carol

Re: GOOD NEWS

JUST WANTED TO LET YOU ALL KNOW MY HEATER IS WORKING AGAIN! YEA !! I CALLED THE GAS MAN WHEN HUBBY WAS OUT HEE HEE , IT WAS DUSTY CAUSE OF THE FIRES! GEZZS MEN! BUT NOW ONE BAD THING IM SICK GOING TO DR's TOMORROW YUCK! ALSO HEY I NEED A CHANGE IN MOVES TO LOL ! EXCEPT I WANT TO GO UP NORTH, I LIVE IN CALIFORNIA LOL , BEST WISHES SHIRLEY "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies

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Woo Hoo... Way to go girl... Glad your toasty... Take care, Carol

Re: GOOD NEWS

JUST WANTED TO LET YOU ALL KNOW MY HEATER IS WORKING AGAIN! YEA !! I CALLED THE GAS MAN WHEN HUBBY WAS OUT HEE HEE , IT WAS DUSTY CAUSE OF THE FIRES! GEZZS MEN! BUT NOW ONE BAD THING IM SICK GOING TO DR's TOMORROW YUCK! ALSO HEY I NEED A CHANGE IN MOVES TO LOL ! EXCEPT I WANT TO GO UP NORTH, I LIVE IN CALIFORNIA LOL , BEST WISHES SHIRLEY "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies

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  • 2 years later...
Guest guest

Finally!!!! We have

appointments with Children’s in Pittsburg

and Dr. Slivka’s at UPMC. We will be seen on August 23rd.

Wowzers, when you get it going you really get it going. Rob took care of

this!!

On a less than

positive note, Noah is having an IBD flare. I don’t know how

serious or really what to do. I guess I will just see how today

goes. For those of you who don’t know…my marriage have been…stressed

for the last two years. This weekend I finally made the decision to file

for divorce and I told Noah yesterday. I think that might have brought on

the flare. LOTS of loose stool. So, Rob did stay here last night

and for now we are moving him into the basement. My other son Aidan was

less than pleased too. Rob is trying to keep things together now after

two years of not really putting any effort in.

For all you strong

prayers out there, please pray for our family. I really have no idea what

will happen next and what is best…but something HAS to change.

Love to you all,

www.caringbridge.org/visit/noahwmartens

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  • 2 months later...

Dave,Thank you for posting this great news to the group. I want everyone to know how hard you worked and how much effort you put into this.You are a bright light for all of us !!!Thank you , thank you.LeeDear All;I have the great honor of announcing that the 'PSC Partners Seeking a Cure' foundation board has decided to fund the STOPSC (https://web.emmes.com/study/psc/index.html) registry at the level of $20,000 this year, with the promise of $20,000 next year, subject to adequate progress. The 'PSC Partners Seeking a Cure' foundation board has also decided to fund a research prize in the amount of $1,000 - $3,000 per year, to be presented annually at the AASLD meeting. The prize would be for best PSC research presented at the annual meeting. This idea is currently being presented on our behalf, by Dr. Greg Gores, to the AASLD governing board. . 

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Dave,Thank you for posting this great news to the group. I want everyone to know how hard you worked and how much effort you put into this.You are a bright light for all of us !!!Thank you , thank you.LeeDear All;I have the great honor of announcing that the 'PSC Partners Seeking a Cure' foundation board has decided to fund the STOPSC (https://web.emmes.com/study/psc/index.html) registry at the level of $20,000 this year, with the promise of $20,000 next year, subject to adequate progress. The 'PSC Partners Seeking a Cure' foundation board has also decided to fund a research prize in the amount of $1,000 - $3,000 per year, to be presented annually at the AASLD meeting. The prize would be for best PSC research presented at the annual meeting. This idea is currently being presented on our behalf, by Dr. Greg Gores, to the AASLD governing board. . 

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Dave,Thank you for posting this great news to the group. I want everyone to know how hard you worked and how much effort you put into this.You are a bright light for all of us !!!Thank you , thank you.LeeDear All;I have the great honor of announcing that the 'PSC Partners Seeking a Cure' foundation board has decided to fund the STOPSC (https://web.emmes.com/study/psc/index.html) registry at the level of $20,000 this year, with the promise of $20,000 next year, subject to adequate progress. The 'PSC Partners Seeking a Cure' foundation board has also decided to fund a research prize in the amount of $1,000 - $3,000 per year, to be presented annually at the AASLD meeting. The prize would be for best PSC research presented at the annual meeting. This idea is currently being presented on our behalf, by Dr. Greg Gores, to the AASLD governing board. . 

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