Re: Another one of those slaps in the face.

January 8, 2003

Sara

They have color and cut and paste. We might talk about a story but her

tell me about it? Not going to happen. TOTALLY. That's not appropriate for

a child like ours. DO the best you can.

What's the worst that can happen? Are they doing to put a mark on his perm.

record? Smirk. Hugs

January 8, 2003

Sara

They have color and cut and paste. We might talk about a story but her

tell me about it? Not going to happen. TOTALLY. That's not appropriate for

a child like ours. DO the best you can.

What's the worst that can happen? Are they doing to put a mark on his perm.

record? Smirk. Hugs

January 8, 2003

Holy Moses Batman, not even my 8 year old could do that. Trust me this child

can't remember one second to the next and if I was suppose to have do that,

well You know, not in a million years

Re: Another one of those slaps in the face.

> 's ST at school does group activities with the kids. Today she

sent

> home a paper about the book they had read (The Snowy Day) and some

suggested

> activities. We're supposed to work on s-combonation sounds like " snow "

and

> " slow. " There was a poem included about a bunny who eats the snowman's

> carrot nose, and we're supposed to cut out a snow man and a bunny and act

> out the story, and then have the child do the same, and tape record the

> child telling the story to us.

>

> Because, you know, I just wasn't in enough pain already today.

>

> And I can see that this is a reasonable activity for every other child in

> his class (which is the higher-functioning special ed class which we

fought

> to get him into because none of the kids in the lower-functioning class

> talk)

THAT was assigned in a sped class? OMG, I've never had something like that

assigned in all four years 's been in intergrated classrooms! That's

TOO HARD!

If that had been assigned to me and when he was three, I'd have spent

the day curled up under the table crying. How are YOU doing???

Jacquie

-utterly horrified

January 8, 2003

Holy Moses Batman, not even my 8 year old could do that. Trust me this child

can't remember one second to the next and if I was suppose to have do that,

well You know, not in a million years

Re: Another one of those slaps in the face.

> 's ST at school does group activities with the kids. Today she

sent

> home a paper about the book they had read (The Snowy Day) and some

suggested

> activities. We're supposed to work on s-combonation sounds like " snow "

and

> " slow. " There was a poem included about a bunny who eats the snowman's

> carrot nose, and we're supposed to cut out a snow man and a bunny and act

> out the story, and then have the child do the same, and tape record the

> child telling the story to us.

>

> Because, you know, I just wasn't in enough pain already today.

>

> And I can see that this is a reasonable activity for every other child in

> his class (which is the higher-functioning special ed class which we

fought

> to get him into because none of the kids in the lower-functioning class

> talk)

THAT was assigned in a sped class? OMG, I've never had something like that

assigned in all four years 's been in intergrated classrooms! That's

TOO HARD!

If that had been assigned to me and when he was three, I'd have spent

the day curled up under the table crying. How are YOU doing???

Jacquie

-utterly horrified

January 8, 2003

Holy Moses Batman, not even my 8 year old could do that. Trust me this child

can't remember one second to the next and if I was suppose to have do that,

well You know, not in a million years

Re: Another one of those slaps in the face.

> 's ST at school does group activities with the kids. Today she

sent

> home a paper about the book they had read (The Snowy Day) and some

suggested

> activities. We're supposed to work on s-combonation sounds like " snow "

and

> " slow. " There was a poem included about a bunny who eats the snowman's

> carrot nose, and we're supposed to cut out a snow man and a bunny and act

> out the story, and then have the child do the same, and tape record the

> child telling the story to us.

>

> Because, you know, I just wasn't in enough pain already today.

>

> And I can see that this is a reasonable activity for every other child in

> his class (which is the higher-functioning special ed class which we

fought

> to get him into because none of the kids in the lower-functioning class

> talk)

THAT was assigned in a sped class? OMG, I've never had something like that

assigned in all four years 's been in intergrated classrooms! That's

TOO HARD!

If that had been assigned to me and when he was three, I'd have spent

the day curled up under the table crying. How are YOU doing???

Jacquie

-utterly horrified

January 8, 2003

> If that had been assigned to me and when he was three, I'd have spent

> the day curled up under the table crying. How are YOU doing???

I'm not thinking about it.

Instead I am writing many many posts and considering researching fibro so I

can go to my stupid doctor and tell him the things he needs to hear to dx me

with it. (If you followed that, congrats, and if not, well, it's a very

long story.) What good that would do I am not sure.

Thanks for the support.

-Sara.

January 8, 2003

> If that had been assigned to me and when he was three, I'd have spent

> the day curled up under the table crying. How are YOU doing???

I'm not thinking about it.

Instead I am writing many many posts and considering researching fibro so I

can go to my stupid doctor and tell him the things he needs to hear to dx me

with it. (If you followed that, congrats, and if not, well, it's a very

long story.) What good that would do I am not sure.

Thanks for the support.

-Sara.

January 8, 2003

> If that had been assigned to me and when he was three, I'd have spent

> the day curled up under the table crying. How are YOU doing???

I'm not thinking about it.

Instead I am writing many many posts and considering researching fibro so I

can go to my stupid doctor and tell him the things he needs to hear to dx me

with it. (If you followed that, congrats, and if not, well, it's a very

long story.) What good that would do I am not sure.

Thanks for the support.

-Sara.

January 8, 2003

>>Instead I am writing many many posts and considering researching fibro

so I

can go to my stupid doctor and tell him the things he needs to hear to

dx me

with it. (If you followed that, congrats, and if not, well, it's a very

long story.) What good that would do I am not sure.<<

That's the way to do it. Insist, demand he do something about your

symptoms. In a doctors office the squeaky wheel always gets the grease.

debbi

January 8, 2003

Nope. He keeps telling me I'm depressed and need to wean Gabe & go on some

med or other.

I need a new doctor, but somehow I keep ending up being the last one on the

list...

-Sara.

> > >>Instead I am writing many many posts and considering researching fibro

> > so I

> > can go to my stupid doctor and tell him the things he needs to hear to

> > dx me

> > with it.

>

> Has he done a pressure point test, Sara?

January 8, 2003

Nope. He keeps telling me I'm depressed and need to wean Gabe & go on some

med or other.

I need a new doctor, but somehow I keep ending up being the last one on the

list...

-Sara.

> > >>Instead I am writing many many posts and considering researching fibro

> > so I

> > can go to my stupid doctor and tell him the things he needs to hear to

> > dx me

> > with it.

>

> Has he done a pressure point test, Sara?

January 8, 2003

Nope. He keeps telling me I'm depressed and need to wean Gabe & go on some

med or other.

I need a new doctor, but somehow I keep ending up being the last one on the

list...

-Sara.

> > >>Instead I am writing many many posts and considering researching fibro

> > so I

> > can go to my stupid doctor and tell him the things he needs to hear to

> > dx me

> > with it.

>

> Has he done a pressure point test, Sara?

January 8, 2003

Doctors...Oh I have come across some great ones throughout this.

I was told I was stressed and that was why I couldn't eat without

falling unconsious...and all the other shit that went with it.

In fact I was very nearly dead this time last year from mercury

poison.

Life still sucks but my levels are coming down nicely, life is still

very tough but I am a whole lot better.

They still didn't have a clue, I discovered it and then I proved it

and they still didn't help because they didn't KNOW what to do about

it.

If I had have been helped I would have a got a lot better a whole

lot quicker.

Sara keep on shouting until you get some answers.

Louisa

> Nope. He keeps telling me I'm depressed and need to wean Gabe &

go on some

> med or other.

>

> I need a new doctor, but somehow I keep ending up being the last

one on the

> list...

>

> -Sara.

January 8, 2003

Doctors...Oh I have come across some great ones throughout this.

I was told I was stressed and that was why I couldn't eat without

falling unconsious...and all the other shit that went with it.

In fact I was very nearly dead this time last year from mercury

poison.

Life still sucks but my levels are coming down nicely, life is still

very tough but I am a whole lot better.

They still didn't have a clue, I discovered it and then I proved it

and they still didn't help because they didn't KNOW what to do about

it.

If I had have been helped I would have a got a lot better a whole

lot quicker.

Sara keep on shouting until you get some answers.

Louisa

> Nope. He keeps telling me I'm depressed and need to wean Gabe &

go on some

> med or other.

>

> I need a new doctor, but somehow I keep ending up being the last

one on the

> list...

>

> -Sara.

January 8, 2003

Doctors...Oh I have come across some great ones throughout this.

I was told I was stressed and that was why I couldn't eat without

falling unconsious...and all the other shit that went with it.

In fact I was very nearly dead this time last year from mercury

poison.

Life still sucks but my levels are coming down nicely, life is still

very tough but I am a whole lot better.

They still didn't have a clue, I discovered it and then I proved it

and they still didn't help because they didn't KNOW what to do about

it.

If I had have been helped I would have a got a lot better a whole

lot quicker.

Sara keep on shouting until you get some answers.

Louisa

> Nope. He keeps telling me I'm depressed and need to wean Gabe &

go on some

> med or other.

>

> I need a new doctor, but somehow I keep ending up being the last

one on the

> list...

>

> -Sara.

January 8, 2003

Awwww. I am sure the teacher only expects him and you to do your bests. She has

sounded like a great teacher to have. And who knows what Mikey will surprise you

with when you try and do this together. I am not saying he will tell you the

story but maybe he will say some things and that will be great. I do remember

the times that Greggory was at the tale end of his class. It was hard to see him

struggle but we had him do all the stuff anyway. Even if he didnt come close to

doing it right at least we tried.~Hugs~

Jacquie H

Another one of those slaps in the face.

's ST at school does group activities with the kids. Today she sent

home a paper about the book they had read (The Snowy Day) and some suggested

activities. We're supposed to work on s-combonation sounds like " snow " and

" slow. " There was a poem included about a bunny who eats the snowman's

carrot nose, and we're supposed to cut out a snow man and a bunny and act

out the story, and then have the child do the same, and tape record the

child telling the story to us.

Because, you know, I just wasn't in enough pain already today.

And I can see that this is a reasonable activity for every other child in

his class (which is the higher-functioning special ed class which we fought

to get him into because none of the kids in the lower-functioning class

talk) and it is great that they're sending stuff like this home because most

of those parents don't seem to have a clue what you're supposed to do with a

child. (Like, you know, dress them and bathe them and things of that

nature.)

But, ouch.

-Sara.

wife to Matt

SAHM to , 3, autism, pica, SIB, hyperlexia, and probably ADHD

and , 19 mos, speech delay and?

and 'Punkin' due late May.

January 8, 2003

Awwww. I am sure the teacher only expects him and you to do your bests. She has

sounded like a great teacher to have. And who knows what Mikey will surprise you

with when you try and do this together. I am not saying he will tell you the

story but maybe he will say some things and that will be great. I do remember

the times that Greggory was at the tale end of his class. It was hard to see him

struggle but we had him do all the stuff anyway. Even if he didnt come close to

doing it right at least we tried.~Hugs~

Jacquie H

Another one of those slaps in the face.

's ST at school does group activities with the kids. Today she sent

home a paper about the book they had read (The Snowy Day) and some suggested

activities. We're supposed to work on s-combonation sounds like " snow " and

" slow. " There was a poem included about a bunny who eats the snowman's

carrot nose, and we're supposed to cut out a snow man and a bunny and act

out the story, and then have the child do the same, and tape record the

child telling the story to us.

Because, you know, I just wasn't in enough pain already today.

And I can see that this is a reasonable activity for every other child in

his class (which is the higher-functioning special ed class which we fought

to get him into because none of the kids in the lower-functioning class

talk) and it is great that they're sending stuff like this home because most

of those parents don't seem to have a clue what you're supposed to do with a

child. (Like, you know, dress them and bathe them and things of that

nature.)

But, ouch.

-Sara.

wife to Matt

SAHM to , 3, autism, pica, SIB, hyperlexia, and probably ADHD

and , 19 mos, speech delay and?

and 'Punkin' due late May.

January 8, 2003

Awwww. I am sure the teacher only expects him and you to do your bests. She has

sounded like a great teacher to have. And who knows what Mikey will surprise you

with when you try and do this together. I am not saying he will tell you the

story but maybe he will say some things and that will be great. I do remember

the times that Greggory was at the tale end of his class. It was hard to see him

struggle but we had him do all the stuff anyway. Even if he didnt come close to

doing it right at least we tried.~Hugs~

Jacquie H

Another one of those slaps in the face.

's ST at school does group activities with the kids. Today she sent

home a paper about the book they had read (The Snowy Day) and some suggested

activities. We're supposed to work on s-combonation sounds like " snow " and

" slow. " There was a poem included about a bunny who eats the snowman's

carrot nose, and we're supposed to cut out a snow man and a bunny and act

out the story, and then have the child do the same, and tape record the

child telling the story to us.

Because, you know, I just wasn't in enough pain already today.

And I can see that this is a reasonable activity for every other child in

his class (which is the higher-functioning special ed class which we fought

to get him into because none of the kids in the lower-functioning class

talk) and it is great that they're sending stuff like this home because most

of those parents don't seem to have a clue what you're supposed to do with a

child. (Like, you know, dress them and bathe them and things of that

nature.)

But, ouch.

-Sara.

wife to Matt

SAHM to , 3, autism, pica, SIB, hyperlexia, and probably ADHD

and , 19 mos, speech delay and?

and 'Punkin' due late May.

January 8, 2003

I belong to a fibromyalgia online support group. The only problem is

there are more posts in that club than there are in here, but posts

there just get lost among the crowd. My physical terrorist gave me a

good book to read but I forgot the name (damn fibrofog). All I can

tell you is this-your doctor needs to rule out other possibilities

FIRST before diagnosing you with Fibromyalgia. I recently found out

that insurance companies will give you a hard time with the diagnosis

as well, putting you into a high risk group. You might want to

consider an 'unspoken' diagnosis. I know doctors use tender points

as a reference of diagnosis after they rule out things like lupus,

lyme disease, sleep apnea and ms. I believe her name is Devin

Starlyn who is a big advocate for Fibromyalgia and is the one who

wrote the book I was referring to earlier. I always describe my pain

as 'like I worked out for the first time, but everyday " I also

describe my pain as being more profound in the joints, but yet all

over. Fatigue that is crippling. I heard about this stupid fibrofog

later on, and I didn't want to admit I had it...just sounded

so...silly. Of course I'd forget appointments I made earlier in the

day, noticing that I had to write notes to myself more and more, and

the kicker...staring at a dollar bill, waiting for my brain to engage

on how to make change for it. I really wish I had a cure for this.

I get sick of whining about it. Good luck to you.

> > If that had been assigned to me and when he was three, I'd

have spent

> > the day curled up under the table crying. How are YOU doing???

>

> I'm not thinking about it.

>

> Instead I am writing many many posts and considering researching

fibro so I

> can go to my stupid doctor and tell him the things he needs to hear

to dx me

> with it. (If you followed that, congrats, and if not, well, it's a

very

> long story.) What good that would do I am not sure.

>

> Thanks for the support.

>

> -Sara.

January 8, 2003