Re: new pic in our CHARGE album!

[Guest guest]

AAWW she is so cute!! What a beautiful smile she has.

Hugs,

Crystal and Eva (1 year old CHARGEr)

>

> After three months of being on this group, I have finally added

> Meagan's picture to our album. If you are interested, my smiley girl

> is there for the viewing! Thank you all for being such great

friends.

> I think my healing process started when I met you all.

>

> , mommy to and Meagan (CHaRgE) 18 month twins,

> almost 4, and married to the best daddy in the whole world for 9

years!

>

[Guest guest]

She is absolutely gorgeous ...seriously, she is ADORABLE!!!

And may I ask...it doesn't appear that she has any palsy or ear abnormalities,

right? Because I don't see anything " CHARGE " about her, if that makes sense!

Thanks for sharing, and I feel the same way about the list. It has truly helped

me to accept the diagnosis and lean on others for support and guidance. I feel

soooo incredibly blessed that the list is so active and there are so many

wonderful, knowledgeable parents and professionals to help us!!!

I would love to see a photo of your twins together! I am a twin myself!

Melton wrote:

After three months of being on this group, I have finally added

Meagan's picture to our album. If you are interested, my smiley girl

is there for the viewing! Thank you all for being such great friends.

I think my healing process started when I met you all.

, mommy to and Meagan (CHaRgE) 18 month twins,

almost 4, and married to the best daddy in the whole world for 9 years!

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at

www.chargesyndrome.org or by calling 1-.

[Guest guest]

Meagan wasn't born with facial palsy, but she gets intermittent facial

palsys. They are usually brought upon by being in the upright position (this

doesn't seem to occur as much), or the latest is when she wakes up first

thing in the morning. I don't know if she is SO tired the palsy kicks in..

??? Her " palsys " baffle everyone! Apparently it is not so normal to have a

palsy come and go. As for her ears, she does have malformed ears.

Particularly her right. She is profoundly deaf in both ears. We are

scheduling her CT scan for possible cochlear implants. I love this picture

as well. I guess it is one that she looks least " CHARGEy " . Overall, her

outer physical characteristics are minimal....but she makes up for it

internally. She has a roadmap of scars! Thanks for your kind words...I'm

printing them off for her baby book!

I will send you a personal email with a picture of both the girls!

, mommy to Meagan (CHaRgE) and twins 18 months, and big brother

3 3/4 years, married to the best daddy in the world for 9 years

-- Re: new pic in our CHARGE album!

She is absolutely gorgeous ...seriously, she is ADORABLE!!!

And may I ask...it doesn't appear that she has any palsy or ear

abnormalities, right? Because I don't see anything " CHARGE " about her, if

that makes sense!

Thanks for sharing, and I feel the same way about the list. It has truly

helped me to accept the diagnosis and lean on others for support and

guidance. I feel soooo incredibly blessed that the list is so active and

there are so many wonderful, knowledgeable parents and professionals to help

us!!!

I would love to see a photo of your twins together! I am a twin myself!

Melton wrote:

After three months of being on this group, I have finally added

Meagan's picture to our album. If you are interested, my smiley girl

is there for the viewing! Thank you all for being such great friends.

I think my healing process started when I met you all.

, mommy to and Meagan (CHaRgE) 18 month twins,

almost 4, and married to the best daddy in the whole world for 9 years!

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at www

chargesyndrome.org or by calling 1-.

[Guest guest]

Shes a cutie, I love the photopage, all the little chagers together,

its lovely to see, and its nice to put a face to a name, when catting

on here.

love Les and Chanettes.

> After three months of being on this group, I have finally added

> Meagan's picture to our album. If you are interested, my smiley girl

> is there for the viewing! Thank you all for being such great friends.

> I think my healing process started when I met you all.

>

> , mommy to and Meagan (CHaRgE) 18 month twins,

> almost 4, and married to the best daddy in the whole world for 9 years!

>

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in the

> CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

Shes a cutie, I love the photopage, all the little chagers together,

its lovely to see, and its nice to put a face to a name, when catting

on here.

love Les and Chanettes.

> After three months of being on this group, I have finally added

> Meagan's picture to our album. If you are interested, my smiley girl

> is there for the viewing! Thank you all for being such great friends.

> I think my healing process started when I met you all.

>

> , mommy to and Meagan (CHaRgE) 18 month twins,

> almost 4, and married to the best daddy in the whole world for 9 years!

>

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in the

> CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

Shes a cutie, I love the photopage, all the little chagers together,

its lovely to see, and its nice to put a face to a name, when catting

on here.

love Les and Chanettes.

> After three months of being on this group, I have finally added

> Meagan's picture to our album. If you are interested, my smiley girl

> is there for the viewing! Thank you all for being such great friends.

> I think my healing process started when I met you all.

>

> , mommy to and Meagan (CHaRgE) 18 month twins,

> almost 4, and married to the best daddy in the whole world for 9 years!

>

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in the

> CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

Hi ,

Meagan is gorgeous

>And may I ask...it doesn't appear that she has any palsy or ear

abnormalities, right? >Because I don't see anything " CHARGE " about her, if

that makes

sense!

Well she looks like a CHARGER to me. She is very similar facially to my son

Jack when he was that age.

Elaine mum to Elise(13yrs) & Jack(8yrs) CHaRGE

Scotland

[Guest guest]

cutie

>

> Hi ,

> Meagan is gorgeous

>

> >And may I ask...it doesn't appear that she has any palsy or ear

> abnormalities, right? >Because I don't see anything " CHARGE " about

> her, if that makes

> sense!

>

> Well she looks like a CHARGER to me. She is very similar facially to my

> son

> Jack when he was that age.

>

>

>

> Elaine mum to Elise(13yrs) & Jack(8yrs) CHaRGE

> Scotland

>

>

>

[Guest guest]

cutie

>

> Hi ,

> Meagan is gorgeous

>

> >And may I ask...it doesn't appear that she has any palsy or ear

> abnormalities, right? >Because I don't see anything " CHARGE " about

> her, if that makes

> sense!

>

> Well she looks like a CHARGER to me. She is very similar facially to my

> son

> Jack when he was that age.

>

>

>

> Elaine mum to Elise(13yrs) & Jack(8yrs) CHaRGE

> Scotland

>

>

>

[Guest guest]

cutie

>

> Hi ,

> Meagan is gorgeous

>

> >And may I ask...it doesn't appear that she has any palsy or ear

> abnormalities, right? >Because I don't see anything " CHARGE " about

> her, if that makes

> sense!

>

> Well she looks like a CHARGER to me. She is very similar facially to my

> son

> Jack when he was that age.

>

>

>

> Elaine mum to Elise(13yrs) & Jack(8yrs) CHaRGE

> Scotland

>

>

>