Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 I take the bar off as a suggestion from the nurses at the hospital. Matty doesn't just fuss during this transition, he screams. He flails around and even refuses to feed (one time for 9 hours when he was almost 3 months old). The nurses and I have found that he needs to gradually get used to the bar. I put it on for a few hours and hold him while he screams. Over the next few days it should get better like the first time. Also, his foot was never turned in as much as it pointed down. It seems that his heel cord is the real problem and the shoes seem to help that alot. I know it would be better to not take the bar off at all, but I can't deal with him screaming for longer then about 2-3 hours. It's like when he had colic all over again. When Isabella got the DBB the first time, how was she with it? Did she fuss and then accept? Or did she scream? Even the nurses at the hospital are surprised at how he screams over this. I hope to have him back to 23 hours by the end of the weekend. Jody and Matty > > Matty got his new shoes today. He had been out of the others for a > > week and it is like getting the shoes for the first time all over > > again. He is screaming when I put him down, and crying when I hold > > him. He refuses to sleep (slept for a total of 15 min so far) and > is > > mad beyond words. The new shoes do fit properly, the nurse at the > > hospital fitted him. He is just a high needs/spirited kid. > > > > Anyone else have a really tough time getting their baby used to the > > DBB? We are back to wearing the shoes for a few hours, then the > bar > > for an hour then nothing for an hour. Even when the shoes are off > he > > is screaming.... > > > > I know this is for the better, but it is so hard on Mommy... > > > > Jody and Matty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 I take the bar off as a suggestion from the nurses at the hospital. Matty doesn't just fuss during this transition, he screams. He flails around and even refuses to feed (one time for 9 hours when he was almost 3 months old). The nurses and I have found that he needs to gradually get used to the bar. I put it on for a few hours and hold him while he screams. Over the next few days it should get better like the first time. Also, his foot was never turned in as much as it pointed down. It seems that his heel cord is the real problem and the shoes seem to help that alot. I know it would be better to not take the bar off at all, but I can't deal with him screaming for longer then about 2-3 hours. It's like when he had colic all over again. When Isabella got the DBB the first time, how was she with it? Did she fuss and then accept? Or did she scream? Even the nurses at the hospital are surprised at how he screams over this. I hope to have him back to 23 hours by the end of the weekend. Jody and Matty > > Matty got his new shoes today. He had been out of the others for a > > week and it is like getting the shoes for the first time all over > > again. He is screaming when I put him down, and crying when I hold > > him. He refuses to sleep (slept for a total of 15 min so far) and > is > > mad beyond words. The new shoes do fit properly, the nurse at the > > hospital fitted him. He is just a high needs/spirited kid. > > > > Anyone else have a really tough time getting their baby used to the > > DBB? We are back to wearing the shoes for a few hours, then the > bar > > for an hour then nothing for an hour. Even when the shoes are off > he > > is screaming.... > > > > I know this is for the better, but it is so hard on Mommy... > > > > Jody and Matty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 I take the bar off as a suggestion from the nurses at the hospital. Matty doesn't just fuss during this transition, he screams. He flails around and even refuses to feed (one time for 9 hours when he was almost 3 months old). The nurses and I have found that he needs to gradually get used to the bar. I put it on for a few hours and hold him while he screams. Over the next few days it should get better like the first time. Also, his foot was never turned in as much as it pointed down. It seems that his heel cord is the real problem and the shoes seem to help that alot. I know it would be better to not take the bar off at all, but I can't deal with him screaming for longer then about 2-3 hours. It's like when he had colic all over again. When Isabella got the DBB the first time, how was she with it? Did she fuss and then accept? Or did she scream? Even the nurses at the hospital are surprised at how he screams over this. I hope to have him back to 23 hours by the end of the weekend. Jody and Matty > > Matty got his new shoes today. He had been out of the others for a > > week and it is like getting the shoes for the first time all over > > again. He is screaming when I put him down, and crying when I hold > > him. He refuses to sleep (slept for a total of 15 min so far) and > is > > mad beyond words. The new shoes do fit properly, the nurse at the > > hospital fitted him. He is just a high needs/spirited kid. > > > > Anyone else have a really tough time getting their baby used to the > > DBB? We are back to wearing the shoes for a few hours, then the > bar > > for an hour then nothing for an hour. Even when the shoes are off > he > > is screaming.... > > > > I know this is for the better, but it is so hard on Mommy... > > > > Jody and Matty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 Jody, I haven't been following all of your emails, so I'm not positive of what you have been dealing with. BUT, I would be wondering if his feet were fully corrected if he's protesting so much. Is Matty an older infant? Was he treated by a well-informed Ponseti-trained doc? I know sometimes children just don't like to have their feet restrained ( had small periods of this) and possibly this is also one of those times?! However, if it hurts him to position his feet in the shoes, I wonder if you need another doc to take a look at his feet. Best of Luck!!!! Amy Re: Here we go again - I take the bar off as a suggestion from the nurses at the hospital. Matty doesn't just fuss during this transition, he screams. He flails around and even refuses to feed (one time for 9 hours when he was almost 3 months old). The nurses and I have found that he needs to gradually get used to the bar. I put it on for a few hours and hold him while he screams. Over the next few days it should get better like the first time. Also, his foot was never turned in as much as it pointed down. It seems that his heel cord is the real problem and the shoes seem to help that alot. I know it would be better to not take the bar off at all, but I can't deal with him screaming for longer then about 2-3 hours. It's like when he had colic all over again. When Isabella got the DBB the first time, how was she with it? Did she fuss and then accept? Or did she scream? Even the nurses at the hospital are surprised at how he screams over this. I hope to have him back to 23 hours by the end of the weekend. Jody and Matty > > Matty got his new shoes today. He had been out of the others for a > > week and it is like getting the shoes for the first time all over > > again. He is screaming when I put him down, and crying when I hold > > him. He refuses to sleep (slept for a total of 15 min so far) and > is > > mad beyond words. The new shoes do fit properly, the nurse at the > > hospital fitted him. He is just a high needs/spirited kid. > > > > Anyone else have a really tough time getting their baby used to the > > DBB? We are back to wearing the shoes for a few hours, then the > bar > > for an hour then nothing for an hour. Even when the shoes are off > he > > is screaming.... > > > > I know this is for the better, but it is so hard on Mommy... > > > > Jody and Matty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 Hello fellow Albertan! I am in Calgary! Nice to see another Canadian here! I know that Matty will adjust again. I just HATE this part. He takes so long to adjust. If I try to make him wear it 24/7 right away he screams (not crys but screams) for hours til he falls asleep, then he wakes up 15 min later screaming. We found the first time that it was best to ease him into it. Already he is wearing the shoes no problem. He has had them on for a 4 hour stretch with no problems. When he wakes up from his nap, I'll put the bar on for a few hours. Hopefully by the end of the weekend he will be wearing them full time again. Sleeping is a whole other story. He wakes hourly when he is in the DBB. I've tried tummy sleeping and side sleeping. Neither work. He wore the old shoes for 5 weeks and still woke every hour. I am sooooo tired! When he hits 5 months we are going to sleep train. Hopefully that will work for him. Where in the States do you get the shoes shipped from? We got ours from Toronto. Jody and Matty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 Hello fellow Albertan! I am in Calgary! Nice to see another Canadian here! I know that Matty will adjust again. I just HATE this part. He takes so long to adjust. If I try to make him wear it 24/7 right away he screams (not crys but screams) for hours til he falls asleep, then he wakes up 15 min later screaming. We found the first time that it was best to ease him into it. Already he is wearing the shoes no problem. He has had them on for a 4 hour stretch with no problems. When he wakes up from his nap, I'll put the bar on for a few hours. Hopefully by the end of the weekend he will be wearing them full time again. Sleeping is a whole other story. He wakes hourly when he is in the DBB. I've tried tummy sleeping and side sleeping. Neither work. He wore the old shoes for 5 weeks and still woke every hour. I am sooooo tired! When he hits 5 months we are going to sleep train. Hopefully that will work for him. Where in the States do you get the shoes shipped from? We got ours from Toronto. Jody and Matty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 Hello fellow Albertan! I am in Calgary! Nice to see another Canadian here! I know that Matty will adjust again. I just HATE this part. He takes so long to adjust. If I try to make him wear it 24/7 right away he screams (not crys but screams) for hours til he falls asleep, then he wakes up 15 min later screaming. We found the first time that it was best to ease him into it. Already he is wearing the shoes no problem. He has had them on for a 4 hour stretch with no problems. When he wakes up from his nap, I'll put the bar on for a few hours. Hopefully by the end of the weekend he will be wearing them full time again. Sleeping is a whole other story. He wakes hourly when he is in the DBB. I've tried tummy sleeping and side sleeping. Neither work. He wore the old shoes for 5 weeks and still woke every hour. I am sooooo tired! When he hits 5 months we are going to sleep train. Hopefully that will work for him. Where in the States do you get the shoes shipped from? We got ours from Toronto. Jody and Matty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 Jody, when isabella got her DBB she transitioned quickly into them. She just fussed every now and then but slept thru the night. I guess i was lucky that she didn't have a problem with them. I heard that majority of the kids fuss with the DBB and it takes a good week or two fully in the DBB to have them get use to it. They have also suggested to have the babies sleep on their tummy at night, some parents on here said that it really works. I know when Isabella is fussy and cries for just an hour my nerves are shot. I can only imagine what your going thru and i am sorry that matty is having such a tough time. Have you emailed Dr.Ponsetti about this and maybe some pics of matty's feet. He could tell you more about how to get Matty used to the DBB and if the feet are corrected right. I think i read one lady on here her daughters feet turned down and she sent a pic to dr.ponsetti and he told her they weren't corrected right. So i am wondering if matty's feet truely hurt when he is in the DBB if he fusses this much. I would definately get a second opinion on this. Best of luck > > > Matty got his new shoes today. He had been out of the others for > a > > > week and it is like getting the shoes for the first time all over > > > again. He is screaming when I put him down, and crying when I > hold > > > him. He refuses to sleep (slept for a total of 15 min so far) > and > > is > > > mad beyond words. The new shoes do fit properly, the nurse at > the > > > hospital fitted him. He is just a high needs/spirited kid. > > > > > > Anyone else have a really tough time getting their baby used to > the > > > DBB? We are back to wearing the shoes for a few hours, then the > > bar > > > for an hour then nothing for an hour. Even when the shoes are > off > > he > > > is screaming.... > > > > > > I know this is for the better, but it is so hard on Mommy... > > > > > > Jody and Matty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 Hey Jody. I remember how hard the initial adjustment was. iel first realized he could roll over when he got the brace. He kicked and screamed so much he flipped himself right over, and just about gave me a heart attack cause he was lying on the couch! I found it so hard because Dr. McIvor is in Edmonton and can only be reached at certain times. And didn't have much advice or tips to give me to help with the transition. At iel's check up we realized the bar was too short. Originally Dr. McIvor refered us to Kunitz Shoes in Edmonton, they order the shoes directly from the Markel manufacturer in New York. Dr. McIvor now refers his patients to Orthotic Consultants in Edmonton, but Kunitz shoes still has up to size 6 in stock and are desprite to sell off what they have left. Ortotic Consultants also deal with Markell in New York. Where do you get Matty's shoes? There should be someone locally in Calgary who stocks them. Who is Matty's doctor? Have you tried lying him across your lap on his belly? I used to do this during iel's naps and as late as I could stay awake at night, jsut to keep the brace on as long as possible. I would shake my legs a little and it would settle him and go to sleep. I would even catch a couple cat naps myself. When he's sleeping have you tried proping his legs up with a pillow or rolled blanket? That was it takes some of the tension off his legs and he won't notice it as much. I tried almost everything with iel. He has only ever worn the brace at night (dr's orders). What we did for a while and it worked was wait until he was sleeping and then put the brace on. Each night he kept it on a little longer and after a month wore it all night. Then I started to introduce it as part of his bedtime routine (bath, shoes, snack, brace, story, bed) and sometimes for awhile when he would be on the floor playing suring the day. Anyway I'm getting long winded here. You are welcome to check out our Canadian group clubfootcanada. We're only a small group but slowly growing. And feel free to email me at candice_biggin@... & iel right clubfoot 16-11-01 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 Hey Jody. I remember how hard the initial adjustment was. iel first realized he could roll over when he got the brace. He kicked and screamed so much he flipped himself right over, and just about gave me a heart attack cause he was lying on the couch! I found it so hard because Dr. McIvor is in Edmonton and can only be reached at certain times. And didn't have much advice or tips to give me to help with the transition. At iel's check up we realized the bar was too short. Originally Dr. McIvor refered us to Kunitz Shoes in Edmonton, they order the shoes directly from the Markel manufacturer in New York. Dr. McIvor now refers his patients to Orthotic Consultants in Edmonton, but Kunitz shoes still has up to size 6 in stock and are desprite to sell off what they have left. Ortotic Consultants also deal with Markell in New York. Where do you get Matty's shoes? There should be someone locally in Calgary who stocks them. Who is Matty's doctor? Have you tried lying him across your lap on his belly? I used to do this during iel's naps and as late as I could stay awake at night, jsut to keep the brace on as long as possible. I would shake my legs a little and it would settle him and go to sleep. I would even catch a couple cat naps myself. When he's sleeping have you tried proping his legs up with a pillow or rolled blanket? That was it takes some of the tension off his legs and he won't notice it as much. I tried almost everything with iel. He has only ever worn the brace at night (dr's orders). What we did for a while and it worked was wait until he was sleeping and then put the brace on. Each night he kept it on a little longer and after a month wore it all night. Then I started to introduce it as part of his bedtime routine (bath, shoes, snack, brace, story, bed) and sometimes for awhile when he would be on the floor playing suring the day. Anyway I'm getting long winded here. You are welcome to check out our Canadian group clubfootcanada. We're only a small group but slowly growing. And feel free to email me at candice_biggin@... & iel right clubfoot 16-11-01 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 As suggests - send pictures to Dr. Ponseti via E-mail - he will answer immediately! Good luck! Dessi Re: Here we go again - Jody, when isabella got her DBB she transitioned quickly into them. She just fussed every now and then but slept thru the night. I guess i was lucky that she didn't have a problem with them. I heard that majority of the kids fuss with the DBB and it takes a good week or two fully in the DBB to have them get use to it. They have also suggested to have the babies sleep on their tummy at night, some parents on here said that it really works. I know when Isabella is fussy and cries for just an hour my nerves are shot. I can only imagine what your going thru and i am sorry that matty is having such a tough time. Have you emailed Dr.Ponsetti about this and maybe some pics of matty's feet. He could tell you more about how to get Matty used to the DBB and if the feet are corrected right. I think i read one lady on here her daughters feet turned down and she sent a pic to dr.ponsetti and he told her they weren't corrected right. So i am wondering if matty's feet truely hurt when he is in the DBB if he fusses this much. I would definately get a second opinion on this. Best of luck > > > Matty got his new shoes today. He had been out of the others for > a > > > week and it is like getting the shoes for the first time all over > > > again. He is screaming when I put him down, and crying when I > hold > > > him. He refuses to sleep (slept for a total of 15 min so far) > and > > is > > > mad beyond words. The new shoes do fit properly, the nurse at > the > > > hospital fitted him. He is just a high needs/spirited kid. > > > > > > Anyone else have a really tough time getting their baby used to > the > > > DBB? We are back to wearing the shoes for a few hours, then the > > bar > > > for an hour then nothing for an hour. Even when the shoes are > off > > he > > > is screaming.... > > > > > > I know this is for the better, but it is so hard on Mommy... > > > > > > Jody and Matty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 As suggests - send pictures to Dr. Ponseti via E-mail - he will answer immediately! Good luck! Dessi Re: Here we go again - Jody, when isabella got her DBB she transitioned quickly into them. She just fussed every now and then but slept thru the night. I guess i was lucky that she didn't have a problem with them. I heard that majority of the kids fuss with the DBB and it takes a good week or two fully in the DBB to have them get use to it. They have also suggested to have the babies sleep on their tummy at night, some parents on here said that it really works. I know when Isabella is fussy and cries for just an hour my nerves are shot. I can only imagine what your going thru and i am sorry that matty is having such a tough time. Have you emailed Dr.Ponsetti about this and maybe some pics of matty's feet. He could tell you more about how to get Matty used to the DBB and if the feet are corrected right. I think i read one lady on here her daughters feet turned down and she sent a pic to dr.ponsetti and he told her they weren't corrected right. So i am wondering if matty's feet truely hurt when he is in the DBB if he fusses this much. I would definately get a second opinion on this. Best of luck > > > Matty got his new shoes today. He had been out of the others for > a > > > week and it is like getting the shoes for the first time all over > > > again. He is screaming when I put him down, and crying when I > hold > > > him. He refuses to sleep (slept for a total of 15 min so far) > and > > is > > > mad beyond words. The new shoes do fit properly, the nurse at > the > > > hospital fitted him. He is just a high needs/spirited kid. > > > > > > Anyone else have a really tough time getting their baby used to > the > > > DBB? We are back to wearing the shoes for a few hours, then the > > bar > > > for an hour then nothing for an hour. Even when the shoes are > off > > he > > > is screaming.... > > > > > > I know this is for the better, but it is so hard on Mommy... > > > > > > Jody and Matty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 As suggests - send pictures to Dr. Ponseti via E-mail - he will answer immediately! Good luck! Dessi Re: Here we go again - Jody, when isabella got her DBB she transitioned quickly into them. She just fussed every now and then but slept thru the night. I guess i was lucky that she didn't have a problem with them. I heard that majority of the kids fuss with the DBB and it takes a good week or two fully in the DBB to have them get use to it. They have also suggested to have the babies sleep on their tummy at night, some parents on here said that it really works. I know when Isabella is fussy and cries for just an hour my nerves are shot. I can only imagine what your going thru and i am sorry that matty is having such a tough time. Have you emailed Dr.Ponsetti about this and maybe some pics of matty's feet. He could tell you more about how to get Matty used to the DBB and if the feet are corrected right. I think i read one lady on here her daughters feet turned down and she sent a pic to dr.ponsetti and he told her they weren't corrected right. So i am wondering if matty's feet truely hurt when he is in the DBB if he fusses this much. I would definately get a second opinion on this. Best of luck > > > Matty got his new shoes today. He had been out of the others for > a > > > week and it is like getting the shoes for the first time all over > > > again. He is screaming when I put him down, and crying when I > hold > > > him. He refuses to sleep (slept for a total of 15 min so far) > and > > is > > > mad beyond words. The new shoes do fit properly, the nurse at > the > > > hospital fitted him. He is just a high needs/spirited kid. > > > > > > Anyone else have a really tough time getting their baby used to > the > > > DBB? We are back to wearing the shoes for a few hours, then the > > bar > > > for an hour then nothing for an hour. Even when the shoes are > off > > he > > > is screaming.... > > > > > > I know this is for the better, but it is so hard on Mommy... > > > > > > Jody and Matty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 That is a great idea. I will try to get some good pics of his feet and send that with questions to Dr P. I have often wondered about his toes. They seem different then most club footers. Thanks for the idea. BTW, where can I get the email addy? Jody and Matty > > > > Matty got his new shoes today. He had been out of the others > for > > a > > > > week and it is like getting the shoes for the first time all > over > > > > again. He is screaming when I put him down, and crying when I > > hold > > > > him. He refuses to sleep (slept for a total of 15 min so far) > > and > > > is > > > > mad beyond words. The new shoes do fit properly, the nurse at > > the > > > > hospital fitted him. He is just a high needs/spirited kid. > > > > > > > > Anyone else have a really tough time getting their baby used to > > the > > > > DBB? We are back to wearing the shoes for a few hours, then > the > > > bar > > > > for an hour then nothing for an hour. Even when the shoes are > > off > > > he > > > > is screaming.... > > > > > > > > I know this is for the better, but it is so hard on Mommy... > > > > > > > > Jody and Matty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 That is a great idea. I will try to get some good pics of his feet and send that with questions to Dr P. I have often wondered about his toes. They seem different then most club footers. Thanks for the idea. BTW, where can I get the email addy? Jody and Matty > > > > Matty got his new shoes today. He had been out of the others > for > > a > > > > week and it is like getting the shoes for the first time all > over > > > > again. He is screaming when I put him down, and crying when I > > hold > > > > him. He refuses to sleep (slept for a total of 15 min so far) > > and > > > is > > > > mad beyond words. The new shoes do fit properly, the nurse at > > the > > > > hospital fitted him. He is just a high needs/spirited kid. > > > > > > > > Anyone else have a really tough time getting their baby used to > > the > > > > DBB? We are back to wearing the shoes for a few hours, then > the > > > bar > > > > for an hour then nothing for an hour. Even when the shoes are > > off > > > he > > > > is screaming.... > > > > > > > > I know this is for the better, but it is so hard on Mommy... > > > > > > > > Jody and Matty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 That is a great idea. I will try to get some good pics of his feet and send that with questions to Dr P. I have often wondered about his toes. They seem different then most club footers. Thanks for the idea. BTW, where can I get the email addy? Jody and Matty > > > > Matty got his new shoes today. He had been out of the others > for > > a > > > > week and it is like getting the shoes for the first time all > over > > > > again. He is screaming when I put him down, and crying when I > > hold > > > > him. He refuses to sleep (slept for a total of 15 min so far) > > and > > > is > > > > mad beyond words. The new shoes do fit properly, the nurse at > > the > > > > hospital fitted him. He is just a high needs/spirited kid. > > > > > > > > Anyone else have a really tough time getting their baby used to > > the > > > > DBB? We are back to wearing the shoes for a few hours, then > the > > > bar > > > > for an hour then nothing for an hour. Even when the shoes are > > off > > > he > > > > is screaming.... > > > > > > > > I know this is for the better, but it is so hard on Mommy... > > > > > > > > Jody and Matty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 How to Contact Dr. Ponseti Ignacio Ponseti, M.D. Department of Orthopaedic Surgery, University of Iowa Hospitals and Clinics Peer Review Status: Internally Peer Reviewed _____ Telephone: (319)356-3469 Address: University of Iowa Hospitals and Clinics 200 Hawkins Drive 010255 JPP Iowa City, IA 52242 Via E-mail: ignacio-ponseti@... Re: Here we go again - That is a great idea. I will try to get some good pics of his feet and send that with questions to Dr P. I have often wondered about his toes. They seem different then most club footers. Thanks for the idea. BTW, where can I get the email addy? Jody and Matty > > > > Matty got his new shoes today. He had been out of the others > for > > a > > > > week and it is like getting the shoes for the first time all > over > > > > again. He is screaming when I put him down, and crying when I > > hold > > > > him. He refuses to sleep (slept for a total of 15 min so far) > > and > > > is > > > > mad beyond words. The new shoes do fit properly, the nurse at > > the > > > > hospital fitted him. He is just a high needs/spirited kid. > > > > > > > > Anyone else have a really tough time getting their baby used to > > the > > > > DBB? We are back to wearing the shoes for a few hours, then > the > > > bar > > > > for an hour then nothing for an hour. Even when the shoes are > > off > > > he > > > > is screaming.... > > > > > > > > I know this is for the better, but it is so hard on Mommy... > > > > > > > > Jody and Matty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 How to Contact Dr. Ponseti Ignacio Ponseti, M.D. Department of Orthopaedic Surgery, University of Iowa Hospitals and Clinics Peer Review Status: Internally Peer Reviewed _____ Telephone: (319)356-3469 Address: University of Iowa Hospitals and Clinics 200 Hawkins Drive 010255 JPP Iowa City, IA 52242 Via E-mail: ignacio-ponseti@... Re: Here we go again - That is a great idea. I will try to get some good pics of his feet and send that with questions to Dr P. I have often wondered about his toes. They seem different then most club footers. Thanks for the idea. BTW, where can I get the email addy? Jody and Matty > > > > Matty got his new shoes today. He had been out of the others > for > > a > > > > week and it is like getting the shoes for the first time all > over > > > > again. He is screaming when I put him down, and crying when I > > hold > > > > him. He refuses to sleep (slept for a total of 15 min so far) > > and > > > is > > > > mad beyond words. The new shoes do fit properly, the nurse at > > the > > > > hospital fitted him. He is just a high needs/spirited kid. > > > > > > > > Anyone else have a really tough time getting their baby used to > > the > > > > DBB? We are back to wearing the shoes for a few hours, then > the > > > bar > > > > for an hour then nothing for an hour. Even when the shoes are > > off > > > he > > > > is screaming.... > > > > > > > > I know this is for the better, but it is so hard on Mommy... > > > > > > > > Jody and Matty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 How to Contact Dr. Ponseti Ignacio Ponseti, M.D. Department of Orthopaedic Surgery, University of Iowa Hospitals and Clinics Peer Review Status: Internally Peer Reviewed _____ Telephone: (319)356-3469 Address: University of Iowa Hospitals and Clinics 200 Hawkins Drive 010255 JPP Iowa City, IA 52242 Via E-mail: ignacio-ponseti@... Re: Here we go again - That is a great idea. I will try to get some good pics of his feet and send that with questions to Dr P. I have often wondered about his toes. They seem different then most club footers. Thanks for the idea. BTW, where can I get the email addy? Jody and Matty > > > > Matty got his new shoes today. He had been out of the others > for > > a > > > > week and it is like getting the shoes for the first time all > over > > > > again. He is screaming when I put him down, and crying when I > > hold > > > > him. He refuses to sleep (slept for a total of 15 min so far) > > and > > > is > > > > mad beyond words. The new shoes do fit properly, the nurse at > > the > > > > hospital fitted him. He is just a high needs/spirited kid. > > > > > > > > Anyone else have a really tough time getting their baby used to > > the > > > > DBB? We are back to wearing the shoes for a few hours, then > the > > > bar > > > > for an hour then nothing for an hour. Even when the shoes are > > off > > > he > > > > is screaming.... > > > > > > > > I know this is for the better, but it is so hard on Mommy... > > > > > > > > Jody and Matty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 I will try the rolled blanket under the legs. Maybe that will help. I did try folding a small one under his legs once, but it flatened quickly. Maybe a towel rolled up will be better. I have also read here that some babies sleep better on their tummies, but I can't get Matty down like that. I get him to fall asleep then when I move him to the crib on his tummy he wakes and cries. Maybe someone has a tip on how to do this better. I laughed about iel rolling over with the DBB. Matty used to roll from tummy to back all the time. Then when he got the DBB he tried and found that his feet were heavier and he stopped. The look on his face when he tried and couldn't was really funny! Our dr here is Dr. Harder, but we have also seen Dr. Parsons. The hospital just received a shipment of shoes in, but I was dealing with a store here in town called Happyland that orders directly as well. Maybe they do order from New York. I can't remember if he said he ordered them from Toronto or 'out east' and I assumed he meant Toronto. I will check out the canadian site too. Thanks for that info! Jody and Matty > Hey Jody. I remember how hard the initial adjustment was. iel > first realized he could roll over when he got the brace. He kicked > and screamed so much he flipped himself right over, and just about > gave me a heart attack cause he was lying on the couch! I found it so > hard because Dr. McIvor is in Edmonton and can only be reached at > certain times. And didn't have much advice or tips to give me to help > with the transition. At iel's check up we realized the bar was > too short. > > Originally Dr. McIvor refered us to Kunitz Shoes in Edmonton, they > order the shoes directly from the Markel manufacturer in New York. > Dr. McIvor now refers his patients to Orthotic Consultants in > Edmonton, but Kunitz shoes still has up to size 6 in stock and are > desprite to sell off what they have left. Ortotic Consultants also > deal with Markell in New York. Where do you get Matty's shoes? There > should be someone locally in Calgary who stocks them. > > Who is Matty's doctor? Have you tried lying him across your lap on > his belly? I used to do this during iel's naps and as late as I > could stay awake at night, jsut to keep the brace on as long as > possible. I would shake my legs a little and it would settle him and > go to sleep. I would even catch a couple cat naps myself. > When he's sleeping have you tried proping his legs up with a pillow > or rolled blanket? That was it takes some of the tension off his legs > and he won't notice it as much. I tried almost everything with > iel. He has only ever worn the brace at night (dr's orders). > What we did for a while and it worked was wait until he was sleeping > and then put the brace on. Each night he kept it on a little longer > and after a month wore it all night. Then I started to introduce it > as part of his bedtime routine (bath, shoes, snack, brace, story, bed) > and sometimes for awhile when he would be on the floor playing suring > the day. > > Anyway I'm getting long winded here. You are welcome to check out our > Canadian group clubfootcanada. We're only a small group but slowly > growing. And feel free to email me at candice_biggin@y... > > & iel > right clubfoot 16-11-01 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 I will try the rolled blanket under the legs. Maybe that will help. I did try folding a small one under his legs once, but it flatened quickly. Maybe a towel rolled up will be better. I have also read here that some babies sleep better on their tummies, but I can't get Matty down like that. I get him to fall asleep then when I move him to the crib on his tummy he wakes and cries. Maybe someone has a tip on how to do this better. I laughed about iel rolling over with the DBB. Matty used to roll from tummy to back all the time. Then when he got the DBB he tried and found that his feet were heavier and he stopped. The look on his face when he tried and couldn't was really funny! Our dr here is Dr. Harder, but we have also seen Dr. Parsons. The hospital just received a shipment of shoes in, but I was dealing with a store here in town called Happyland that orders directly as well. Maybe they do order from New York. I can't remember if he said he ordered them from Toronto or 'out east' and I assumed he meant Toronto. I will check out the canadian site too. Thanks for that info! Jody and Matty > Hey Jody. I remember how hard the initial adjustment was. iel > first realized he could roll over when he got the brace. He kicked > and screamed so much he flipped himself right over, and just about > gave me a heart attack cause he was lying on the couch! I found it so > hard because Dr. McIvor is in Edmonton and can only be reached at > certain times. And didn't have much advice or tips to give me to help > with the transition. At iel's check up we realized the bar was > too short. > > Originally Dr. McIvor refered us to Kunitz Shoes in Edmonton, they > order the shoes directly from the Markel manufacturer in New York. > Dr. McIvor now refers his patients to Orthotic Consultants in > Edmonton, but Kunitz shoes still has up to size 6 in stock and are > desprite to sell off what they have left. Ortotic Consultants also > deal with Markell in New York. Where do you get Matty's shoes? There > should be someone locally in Calgary who stocks them. > > Who is Matty's doctor? Have you tried lying him across your lap on > his belly? I used to do this during iel's naps and as late as I > could stay awake at night, jsut to keep the brace on as long as > possible. I would shake my legs a little and it would settle him and > go to sleep. I would even catch a couple cat naps myself. > When he's sleeping have you tried proping his legs up with a pillow > or rolled blanket? That was it takes some of the tension off his legs > and he won't notice it as much. I tried almost everything with > iel. He has only ever worn the brace at night (dr's orders). > What we did for a while and it worked was wait until he was sleeping > and then put the brace on. Each night he kept it on a little longer > and after a month wore it all night. Then I started to introduce it > as part of his bedtime routine (bath, shoes, snack, brace, story, bed) > and sometimes for awhile when he would be on the floor playing suring > the day. > > Anyway I'm getting long winded here. You are welcome to check out our > Canadian group clubfootcanada. We're only a small group but slowly > growing. And feel free to email me at candice_biggin@y... > > & iel > right clubfoot 16-11-01 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 I will try the rolled blanket under the legs. Maybe that will help. I did try folding a small one under his legs once, but it flatened quickly. Maybe a towel rolled up will be better. I have also read here that some babies sleep better on their tummies, but I can't get Matty down like that. I get him to fall asleep then when I move him to the crib on his tummy he wakes and cries. Maybe someone has a tip on how to do this better. I laughed about iel rolling over with the DBB. Matty used to roll from tummy to back all the time. Then when he got the DBB he tried and found that his feet were heavier and he stopped. The look on his face when he tried and couldn't was really funny! Our dr here is Dr. Harder, but we have also seen Dr. Parsons. The hospital just received a shipment of shoes in, but I was dealing with a store here in town called Happyland that orders directly as well. Maybe they do order from New York. I can't remember if he said he ordered them from Toronto or 'out east' and I assumed he meant Toronto. I will check out the canadian site too. Thanks for that info! Jody and Matty > Hey Jody. I remember how hard the initial adjustment was. iel > first realized he could roll over when he got the brace. He kicked > and screamed so much he flipped himself right over, and just about > gave me a heart attack cause he was lying on the couch! I found it so > hard because Dr. McIvor is in Edmonton and can only be reached at > certain times. And didn't have much advice or tips to give me to help > with the transition. At iel's check up we realized the bar was > too short. > > Originally Dr. McIvor refered us to Kunitz Shoes in Edmonton, they > order the shoes directly from the Markel manufacturer in New York. > Dr. McIvor now refers his patients to Orthotic Consultants in > Edmonton, but Kunitz shoes still has up to size 6 in stock and are > desprite to sell off what they have left. Ortotic Consultants also > deal with Markell in New York. Where do you get Matty's shoes? There > should be someone locally in Calgary who stocks them. > > Who is Matty's doctor? Have you tried lying him across your lap on > his belly? I used to do this during iel's naps and as late as I > could stay awake at night, jsut to keep the brace on as long as > possible. I would shake my legs a little and it would settle him and > go to sleep. I would even catch a couple cat naps myself. > When he's sleeping have you tried proping his legs up with a pillow > or rolled blanket? That was it takes some of the tension off his legs > and he won't notice it as much. I tried almost everything with > iel. He has only ever worn the brace at night (dr's orders). > What we did for a while and it worked was wait until he was sleeping > and then put the brace on. Each night he kept it on a little longer > and after a month wore it all night. Then I started to introduce it > as part of his bedtime routine (bath, shoes, snack, brace, story, bed) > and sometimes for awhile when he would be on the floor playing suring > the day. > > Anyway I'm getting long winded here. You are welcome to check out our > Canadian group clubfootcanada. We're only a small group but slowly > growing. And feel free to email me at candice_biggin@y... > > & iel > right clubfoot 16-11-01 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 Hi Jody- I agree with Amy too. It NEVER hurts to get a second opinion. I know your son is young, but can you tell if it is a screaming of pain or frustration??? If it sounds like a painful scream I wouldn't hesitate to get a second opinion. Perhaps he lost some dorsiflexion or degree of flexability while out of the shoes. What happens when you move his foot to 70 degrees outward with your hand when the shoes aren't on?? If he screams at that point I would assume his foot needs another cast to gain that overcorrection stage. My son was only casted at 45 degrees after the tenonomy, so he could not tolerate the shoes out to 70 degrees at all. After consulting with Dr. P (not our doctor) through pictures and emails, he suggested that we keep him at 45 degrees for 5 days, then move his foot out 5 degrees every 5 days after that until we got to 70 degrees. The most my son can tolerate without it being painful is 65 degrees. My son was diagnosed with loose joints and so Dr. P felt fine with him only getting out to 65 and not needing to be reacasted to gain the total 70 degrees outward. Try putting the shoes to 0 degrees (straight) with the DBB on and see if he has the same scream. If he does then he properly just isn't liking the whole DBB thing. If he is more content then his foot properly isn't fully corrected. Good luck. I'm not a doctor by any means just a parent that has been " down that road " . > >Reply-To: nosurgery4clubfoot >To: <nosurgery4clubfoot > >Subject: Re: Re: Here we go again - >Date: Thu, 3 Apr 2003 13:14:18 -0600 > >Jody, >I haven't been following all of your emails, so I'm not positive of what >you have been dealing with. BUT, I would be wondering if his feet were >fully corrected if he's protesting so much. Is Matty an older infant? Was >he treated by a well-informed Ponseti-trained doc? I know sometimes >children just don't like to have their feet restrained ( had small >periods of this) and possibly this is also one of those times?! However, if >it hurts him to position his feet in the shoes, I wonder if you need >another doc to take a look at his feet. >Best of Luck!!!! >Amy > Re: Here we go again - > > > I take the bar off as a suggestion from the nurses at the hospital. > Matty doesn't just fuss during this transition, he screams. He > flails around and even refuses to feed (one time for 9 hours when he > was almost 3 months old). The nurses and I have found that he needs > to gradually get used to the bar. I put it on for a few hours and > hold him while he screams. Over the next few days it should get > better like the first time. > > Also, his foot was never turned in as much as it pointed down. It > seems that his heel cord is the real problem and the shoes seem to > help that alot. > > I know it would be better to not take the bar off at all, but I can't > deal with him screaming for longer then about 2-3 hours. It's like > when he had colic all over again. > > When Isabella got the DBB the first time, how was she with it? Did > she fuss and then accept? Or did she scream? Even the nurses at the > hospital are surprised at how he screams over this. > > I hope to have him back to 23 hours by the end of the weekend. > > Jody and Matty > > > > Matty got his new shoes today. He had been out of the others for > a > > > week and it is like getting the shoes for the first time all over > > > again. He is screaming when I put him down, and crying when I > hold > > > him. He refuses to sleep (slept for a total of 15 min so far) > and > > is > > > mad beyond words. The new shoes do fit properly, the nurse at > the > > > hospital fitted him. He is just a high needs/spirited kid. > > > > > > Anyone else have a really tough time getting their baby used to > the > > > DBB? We are back to wearing the shoes for a few hours, then the > > bar > > > for an hour then nothing for an hour. Even when the shoes are > off > > he > > > is screaming.... > > > > > > I know this is for the better, but it is so hard on Mommy... > > > > > > Jody and Matty > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 Hi Jody- I agree with Amy too. It NEVER hurts to get a second opinion. I know your son is young, but can you tell if it is a screaming of pain or frustration??? If it sounds like a painful scream I wouldn't hesitate to get a second opinion. Perhaps he lost some dorsiflexion or degree of flexability while out of the shoes. What happens when you move his foot to 70 degrees outward with your hand when the shoes aren't on?? If he screams at that point I would assume his foot needs another cast to gain that overcorrection stage. My son was only casted at 45 degrees after the tenonomy, so he could not tolerate the shoes out to 70 degrees at all. After consulting with Dr. P (not our doctor) through pictures and emails, he suggested that we keep him at 45 degrees for 5 days, then move his foot out 5 degrees every 5 days after that until we got to 70 degrees. The most my son can tolerate without it being painful is 65 degrees. My son was diagnosed with loose joints and so Dr. P felt fine with him only getting out to 65 and not needing to be reacasted to gain the total 70 degrees outward. Try putting the shoes to 0 degrees (straight) with the DBB on and see if he has the same scream. If he does then he properly just isn't liking the whole DBB thing. If he is more content then his foot properly isn't fully corrected. Good luck. I'm not a doctor by any means just a parent that has been " down that road " . > >Reply-To: nosurgery4clubfoot >To: <nosurgery4clubfoot > >Subject: Re: Re: Here we go again - >Date: Thu, 3 Apr 2003 13:14:18 -0600 > >Jody, >I haven't been following all of your emails, so I'm not positive of what >you have been dealing with. BUT, I would be wondering if his feet were >fully corrected if he's protesting so much. Is Matty an older infant? Was >he treated by a well-informed Ponseti-trained doc? I know sometimes >children just don't like to have their feet restrained ( had small >periods of this) and possibly this is also one of those times?! However, if >it hurts him to position his feet in the shoes, I wonder if you need >another doc to take a look at his feet. >Best of Luck!!!! >Amy > Re: Here we go again - > > > I take the bar off as a suggestion from the nurses at the hospital. > Matty doesn't just fuss during this transition, he screams. He > flails around and even refuses to feed (one time for 9 hours when he > was almost 3 months old). The nurses and I have found that he needs > to gradually get used to the bar. I put it on for a few hours and > hold him while he screams. Over the next few days it should get > better like the first time. > > Also, his foot was never turned in as much as it pointed down. It > seems that his heel cord is the real problem and the shoes seem to > help that alot. > > I know it would be better to not take the bar off at all, but I can't > deal with him screaming for longer then about 2-3 hours. It's like > when he had colic all over again. > > When Isabella got the DBB the first time, how was she with it? Did > she fuss and then accept? Or did she scream? Even the nurses at the > hospital are surprised at how he screams over this. > > I hope to have him back to 23 hours by the end of the weekend. > > Jody and Matty > > > > Matty got his new shoes today. He had been out of the others for > a > > > week and it is like getting the shoes for the first time all over > > > again. He is screaming when I put him down, and crying when I > hold > > > him. He refuses to sleep (slept for a total of 15 min so far) > and > > is > > > mad beyond words. The new shoes do fit properly, the nurse at > the > > > hospital fitted him. He is just a high needs/spirited kid. > > > > > > Anyone else have a really tough time getting their baby used to > the > > > DBB? We are back to wearing the shoes for a few hours, then the > > bar > > > for an hour then nothing for an hour. Even when the shoes are > off > > he > > > is screaming.... > > > > > > I know this is for the better, but it is so hard on Mommy... > > > > > > Jody and Matty > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 Hi Jody- I agree with Amy too. It NEVER hurts to get a second opinion. I know your son is young, but can you tell if it is a screaming of pain or frustration??? If it sounds like a painful scream I wouldn't hesitate to get a second opinion. Perhaps he lost some dorsiflexion or degree of flexability while out of the shoes. What happens when you move his foot to 70 degrees outward with your hand when the shoes aren't on?? If he screams at that point I would assume his foot needs another cast to gain that overcorrection stage. My son was only casted at 45 degrees after the tenonomy, so he could not tolerate the shoes out to 70 degrees at all. After consulting with Dr. P (not our doctor) through pictures and emails, he suggested that we keep him at 45 degrees for 5 days, then move his foot out 5 degrees every 5 days after that until we got to 70 degrees. The most my son can tolerate without it being painful is 65 degrees. My son was diagnosed with loose joints and so Dr. P felt fine with him only getting out to 65 and not needing to be reacasted to gain the total 70 degrees outward. Try putting the shoes to 0 degrees (straight) with the DBB on and see if he has the same scream. If he does then he properly just isn't liking the whole DBB thing. If he is more content then his foot properly isn't fully corrected. Good luck. I'm not a doctor by any means just a parent that has been " down that road " . > >Reply-To: nosurgery4clubfoot >To: <nosurgery4clubfoot > >Subject: Re: Re: Here we go again - >Date: Thu, 3 Apr 2003 13:14:18 -0600 > >Jody, >I haven't been following all of your emails, so I'm not positive of what >you have been dealing with. BUT, I would be wondering if his feet were >fully corrected if he's protesting so much. Is Matty an older infant? Was >he treated by a well-informed Ponseti-trained doc? I know sometimes >children just don't like to have their feet restrained ( had small >periods of this) and possibly this is also one of those times?! However, if >it hurts him to position his feet in the shoes, I wonder if you need >another doc to take a look at his feet. >Best of Luck!!!! >Amy > Re: Here we go again - > > > I take the bar off as a suggestion from the nurses at the hospital. > Matty doesn't just fuss during this transition, he screams. He > flails around and even refuses to feed (one time for 9 hours when he > was almost 3 months old). The nurses and I have found that he needs > to gradually get used to the bar. I put it on for a few hours and > hold him while he screams. Over the next few days it should get > better like the first time. > > Also, his foot was never turned in as much as it pointed down. It > seems that his heel cord is the real problem and the shoes seem to > help that alot. > > I know it would be better to not take the bar off at all, but I can't > deal with him screaming for longer then about 2-3 hours. It's like > when he had colic all over again. > > When Isabella got the DBB the first time, how was she with it? Did > she fuss and then accept? Or did she scream? Even the nurses at the > hospital are surprised at how he screams over this. > > I hope to have him back to 23 hours by the end of the weekend. > > Jody and Matty > > > > Matty got his new shoes today. He had been out of the others for > a > > > week and it is like getting the shoes for the first time all over > > > again. He is screaming when I put him down, and crying when I > hold > > > him. He refuses to sleep (slept for a total of 15 min so far) > and > > is > > > mad beyond words. The new shoes do fit properly, the nurse at > the > > > hospital fitted him. He is just a high needs/spirited kid. > > > > > > Anyone else have a really tough time getting their baby used to > the > > > DBB? We are back to wearing the shoes for a few hours, then the > > bar > > > for an hour then nothing for an hour. Even when the shoes are > off > > he > > > is screaming.... > > > > > > I know this is for the better, but it is so hard on Mommy... > > > > > > Jody and Matty > > > Quote Link to comment Share on other sites More sharing options...
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