Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 About a year ago, Bryce started making a sucking noise with his mouth, often when he is relaxing or playing his game boy or something. The frequency seems to be increasing and can be very annoying, particularly at school. When we ask him to stop he will but he might start back up again in a minute or two, absentmindedly. I would say he has mild OCD and does self-stim his head fairly frequently as well. He takes 12.5 mg of zoloft for the OCD and anxiety issues. He doesn't really have any other ticks but I sure would love to lesson the frequency of this one or be able to teach him when it's ok to suck away. Has anyone has any success with this sort of thing? Deedee, Mom to Bryce, just turned 9 (YIKES!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Deedee, Does he have a submucus cleft? Patty used to suck stuff down from her sinus right into her mouth when she had a sinus or even ear infections. Sometimes she'd do it when she had too much fluid moving around. She still does every once in a while and I am sure with spring coming I'll hear it again. Can he chew on things at various times during his day? Gummy bears or fruit snacks are great if he can handle them. When is his snack, lunch, etc? It could be an outlet for sensory issues for him. Also it could be ear infections, it could be boredom, it could be OCD, it could be ... tons of stuff. Are there times that he can hold it in and then given a place to let free? Just some thoughts. Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Thanks , Good to hear from you as well. I hope your year is going well. Bryce and Kennedy sound just alike on this one. He will stop when reminded as well. I'm sure it's not consciuos, but it sure bus the teachers. ' Deedee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 and DeeDee- for most people who do something when they are really concentrating or even the fidgets people do that teachers get upset about are not usually something the person is doing consciously. When it is in a problem is when the teacher tells them to stop, then without thinking they are doing it again, and then they are in trouble for it. When it is obsessive or tic like - needing to do it to feel okay inside - then having the kid overly focus on it can backfire. In either case, creating a neutral cue (not attached to emotion, or blame) that serves as a notice that they are doing the whatever, so they can then think self-adjust, can be really helpful. It is also helpful if the cue is such that it does not need to be announced to the entire class. Kim L > ungethe@... wrote: > About a year ago, Bryce started making a sucking noise with his mouth, often > when he is relaxing or playing his game boy or something > DeeDee, > So great to hear from you - last time we chatted was on the sunny poolside > in Miami! > RE: sucking noises - Kennedy has an increase in secretions in her mouth when > she is " really into something " and it sucks in and out and makes a pretty > annoying sound, so I completely understand where you're coming from. This had > a late onset as well. The only luck we have is just to remind her....if it's > more than once in a few minutes, she always says " sorry sorry I keep > forgetting " which leads me to believe it's not a conscious effort on her part > to drive me (and others at time) around her insane. It's just one of her > " things " . It is my hope by reminding her gently when possible that she will > begin to ascertain that she is doing it and stop it on her own as she gets > older and matures. I know this isn't much help, but wanted to pipe in on > something that I'm familiar with!!! > Hugs to you & Bryce, > > > > Weir > Visit the Weir family online: > http://ca.geocities.com/weirfamilyrogers > > Home: lisaweir@... > Work: lisa.weir@... > Phone: > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 and DeeDee- for most people who do something when they are really concentrating or even the fidgets people do that teachers get upset about are not usually something the person is doing consciously. When it is in a problem is when the teacher tells them to stop, then without thinking they are doing it again, and then they are in trouble for it. When it is obsessive or tic like - needing to do it to feel okay inside - then having the kid overly focus on it can backfire. In either case, creating a neutral cue (not attached to emotion, or blame) that serves as a notice that they are doing the whatever, so they can then think self-adjust, can be really helpful. It is also helpful if the cue is such that it does not need to be announced to the entire class. Kim L > ungethe@... wrote: > About a year ago, Bryce started making a sucking noise with his mouth, often > when he is relaxing or playing his game boy or something > DeeDee, > So great to hear from you - last time we chatted was on the sunny poolside > in Miami! > RE: sucking noises - Kennedy has an increase in secretions in her mouth when > she is " really into something " and it sucks in and out and makes a pretty > annoying sound, so I completely understand where you're coming from. This had > a late onset as well. The only luck we have is just to remind her....if it's > more than once in a few minutes, she always says " sorry sorry I keep > forgetting " which leads me to believe it's not a conscious effort on her part > to drive me (and others at time) around her insane. It's just one of her > " things " . It is my hope by reminding her gently when possible that she will > begin to ascertain that she is doing it and stop it on her own as she gets > older and matures. I know this isn't much help, but wanted to pipe in on > something that I'm familiar with!!! > Hugs to you & Bryce, > > > > Weir > Visit the Weir family online: > http://ca.geocities.com/weirfamilyrogers > > Home: lisaweir@... > Work: lisa.weir@... > Phone: > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 and DeeDee- for most people who do something when they are really concentrating or even the fidgets people do that teachers get upset about are not usually something the person is doing consciously. When it is in a problem is when the teacher tells them to stop, then without thinking they are doing it again, and then they are in trouble for it. When it is obsessive or tic like - needing to do it to feel okay inside - then having the kid overly focus on it can backfire. In either case, creating a neutral cue (not attached to emotion, or blame) that serves as a notice that they are doing the whatever, so they can then think self-adjust, can be really helpful. It is also helpful if the cue is such that it does not need to be announced to the entire class. Kim L > ungethe@... wrote: > About a year ago, Bryce started making a sucking noise with his mouth, often > when he is relaxing or playing his game boy or something > DeeDee, > So great to hear from you - last time we chatted was on the sunny poolside > in Miami! > RE: sucking noises - Kennedy has an increase in secretions in her mouth when > she is " really into something " and it sucks in and out and makes a pretty > annoying sound, so I completely understand where you're coming from. This had > a late onset as well. The only luck we have is just to remind her....if it's > more than once in a few minutes, she always says " sorry sorry I keep > forgetting " which leads me to believe it's not a conscious effort on her part > to drive me (and others at time) around her insane. It's just one of her > " things " . It is my hope by reminding her gently when possible that she will > begin to ascertain that she is doing it and stop it on her own as she gets > older and matures. I know this isn't much help, but wanted to pipe in on > something that I'm familiar with!!! > Hugs to you & Bryce, > > > > Weir > Visit the Weir family online: > http://ca.geocities.com/weirfamilyrogers > > Home: lisaweir@... > Work: lisa.weir@... > Phone: > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 Deedee, The mouth sucking noise was specifically due to clearing fluids out and yes Patty learned when and when she could do this. Patty also does have Tourettes which started in 4th grade and she learned how to deal with them quite well. She is on medication or there would be no way she could be in this world and would tic galore. This continues to be true though we have tried almost everything. You wouldn't even know she has them now. I must admit it is hard, socially isolating, and is a difficult thing for educators or anyone else to understand. Increase the stress and the tics increase. But Patty learned great coping strategies. And I mean great! Honestly though if she were in a class and was doing something that upset the teacher she would then focus real hard on trying to not do it that it would actually increase the tic (or behavior, whatever). That then embarrassed her which increased a whole bunch of things including her irritation at herself which then makes it internal. In reality much of it wasn't Patty's fault in the beginning though it almost always ended up having people treat her that it was something she was doing on purpose just to annoy them. Can you imagine that? It's kind of like the old school where children are to just sit and be quiet and if they aren't then something's wrong with THEM. Once we went in and helped them understand her and what tics were things were better. Not great, just better. Not making a big deal about it is one way to work through it. Giving it a name as Laurie Denno says, and teaching her appropriate or substitute behaviors worked great. So did a bunch of other things. When Patty was in high school I had it that she was allowed to chew gum and not get in trouble for it. She had an assistant who said it wasn't right that Patty could chew gum and other students couldn't. Obviously this woman didn't understand. But that worked wonders. So did going to the bathroom and letting her tic away there. Patty could hold it in long enough to get away and release it elsewhere. I heard that Perkins actually has it that the child has a personal place to release tics. Gosh doing it in the bathroom was the best we could do but if Patty had a place then I am sure it would have even been better. She probably would have decreased the number of times she needed to go to tic and destress. Don't forget that getting the teacher to allow your child to chew on something is one of those things you really have to sell. Most don't like that. But sometimes if you do it kindly they might come around or even have different ideas. Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 Deedee, The mouth sucking noise was specifically due to clearing fluids out and yes Patty learned when and when she could do this. Patty also does have Tourettes which started in 4th grade and she learned how to deal with them quite well. She is on medication or there would be no way she could be in this world and would tic galore. This continues to be true though we have tried almost everything. You wouldn't even know she has them now. I must admit it is hard, socially isolating, and is a difficult thing for educators or anyone else to understand. Increase the stress and the tics increase. But Patty learned great coping strategies. And I mean great! Honestly though if she were in a class and was doing something that upset the teacher she would then focus real hard on trying to not do it that it would actually increase the tic (or behavior, whatever). That then embarrassed her which increased a whole bunch of things including her irritation at herself which then makes it internal. In reality much of it wasn't Patty's fault in the beginning though it almost always ended up having people treat her that it was something she was doing on purpose just to annoy them. Can you imagine that? It's kind of like the old school where children are to just sit and be quiet and if they aren't then something's wrong with THEM. Once we went in and helped them understand her and what tics were things were better. Not great, just better. Not making a big deal about it is one way to work through it. Giving it a name as Laurie Denno says, and teaching her appropriate or substitute behaviors worked great. So did a bunch of other things. When Patty was in high school I had it that she was allowed to chew gum and not get in trouble for it. She had an assistant who said it wasn't right that Patty could chew gum and other students couldn't. Obviously this woman didn't understand. But that worked wonders. So did going to the bathroom and letting her tic away there. Patty could hold it in long enough to get away and release it elsewhere. I heard that Perkins actually has it that the child has a personal place to release tics. Gosh doing it in the bathroom was the best we could do but if Patty had a place then I am sure it would have even been better. She probably would have decreased the number of times she needed to go to tic and destress. Don't forget that getting the teacher to allow your child to chew on something is one of those things you really have to sell. Most don't like that. But sometimes if you do it kindly they might come around or even have different ideas. Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 Deedee, The mouth sucking noise was specifically due to clearing fluids out and yes Patty learned when and when she could do this. Patty also does have Tourettes which started in 4th grade and she learned how to deal with them quite well. She is on medication or there would be no way she could be in this world and would tic galore. This continues to be true though we have tried almost everything. You wouldn't even know she has them now. I must admit it is hard, socially isolating, and is a difficult thing for educators or anyone else to understand. Increase the stress and the tics increase. But Patty learned great coping strategies. And I mean great! Honestly though if she were in a class and was doing something that upset the teacher she would then focus real hard on trying to not do it that it would actually increase the tic (or behavior, whatever). That then embarrassed her which increased a whole bunch of things including her irritation at herself which then makes it internal. In reality much of it wasn't Patty's fault in the beginning though it almost always ended up having people treat her that it was something she was doing on purpose just to annoy them. Can you imagine that? It's kind of like the old school where children are to just sit and be quiet and if they aren't then something's wrong with THEM. Once we went in and helped them understand her and what tics were things were better. Not great, just better. Not making a big deal about it is one way to work through it. Giving it a name as Laurie Denno says, and teaching her appropriate or substitute behaviors worked great. So did a bunch of other things. When Patty was in high school I had it that she was allowed to chew gum and not get in trouble for it. She had an assistant who said it wasn't right that Patty could chew gum and other students couldn't. Obviously this woman didn't understand. But that worked wonders. So did going to the bathroom and letting her tic away there. Patty could hold it in long enough to get away and release it elsewhere. I heard that Perkins actually has it that the child has a personal place to release tics. Gosh doing it in the bathroom was the best we could do but if Patty had a place then I am sure it would have even been better. She probably would have decreased the number of times she needed to go to tic and destress. Don't forget that getting the teacher to allow your child to chew on something is one of those things you really have to sell. Most don't like that. But sometimes if you do it kindly they might come around or even have different ideas. Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 hmmmmmmm now wonder if thatd work for me might give it a try > > Just an idea: > An adult friend of mine who is deafblind tends to speak very loudly. > She can control it, but when really engaged in a conversation tends > to forget and her voice escalates. Something that works for her is to > have a rubber band around her water bottle (people in West Oz take > water bottles everywhere!), she sees/feels that and is subtly and > inconspicuously reminded to moderate her voice... > perhaps a rubber band or string around a child's pencil or a sticker > on a pencil case could serve a similar purpose? > Sharon from West Oz > > > and DeeDee- for most people who do something when they are really > >concentrating or even the fidgets people do that teachers get upset about > >are not usually something the person is doing consciously. When it is in > a > >problem is when the teacher tells them to stop, then without thinking > they > >are doing it again, and then they are in trouble for it. When it is > >obsessive or tic like - needing to do it to feel okay inside - then > having > >the kid overly focus on it can backfire. In either case, creating a > neutral > >cue (not attached to emotion, or blame) that serves as a notice that they > >are doing the whatever, so they can then think self-adjust, can be really > >helpful. It is also helpful if the cue is such that it does not need to > be > >announced to the entire class. Kim L > > > > > > > > > >> ungethe@... wrote: > >> About a year ago, Bryce started making a sucking noise with his > >>mouth, often > >> when he is relaxing or playing his game boy or something > >> DeeDee, > >> So great to hear from you - last time we chatted was on the sunny > poolside > >> in Miami! > >> RE: sucking noises - Kennedy has an increase in secretions in > >>her mouth when > >> she is " really into something " and it sucks in and out and makes a > pretty > >> annoying sound, so I completely understand where you're coming > >>from. This had > >> a late onset as well. The only luck we have is just to remind > >>her....if it's > >> more than once in a few minutes, she always says " sorry sorry I keep > >> forgetting " which leads me to believe it's not a conscious effort > >>on her part > >> to drive me (and others at time) around her insane. It's just one of > her > >> " things " . It is my hope by reminding her gently when possible that > she will > >> begin to ascertain that she is doing it and stop it on her own as she > gets > >> older and matures. I know this isn't much help, but wanted to pipe in > on > >> something that I'm familiar with!!! > >> Hugs to you & Bryce, > >> > >> > >> > >> Weir > >> Visit the Weir family online: > >> http://ca.geocities.com/weirfamilyrogers > >> > >> Home: lisaweir@... > >> Work: lisa.weir@... > >> Phone: > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
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