Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Just did a quick search. The are dilated superficial blood vessels, telangiectasia is in same catagory as scleroderma. However, there could be a connection to medications (including anesthesia?) as you say it worsened post surgery. you might want to ask about that. Good ol' CHARGE-never boring ! in Ma. Mom to , 20 yrs old (CHARGE), 22 yrs. and partner to Alan (12 years now) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 _http://www.sclero.org/medical/symptoms/skin/telangiectasia.html_ (http://www.sclero.org/medical/symptoms/skin/telangiectasia.html) There's even a link to hear it pronounced- in Ma. Mom to , 20 yrs old (CHARGE), 22 yrs. and partner to Alan (12 years now) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Oh, boy! I haven't heard of that one. Can't even figure out how to pronounce it! I hope you get some quick answers for Cedie. Let us know what you find out. Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Telangiectasias Have any of you heard of telangiectasias? Just when we thought that Cedie has been seen by every specialist there is, they decided that she needed to be seen by a dermatologist! She has a spot on her forehead that gets redder as she gets angry or upset. That has been there since birth. However, now she has some markings on her stomach as well. I think they look like bruises, but what do I know, I'm just her mom! They just appeared a couple weeks ago, around the time of her ear tubes surgery. I think they bruised her when they were trying to get an IV in (it took 8 tries by 4 different nurses!). However, it is wierd that they haven't disappeared. CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Oh, boy! I haven't heard of that one. Can't even figure out how to pronounce it! I hope you get some quick answers for Cedie. Let us know what you find out. Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Telangiectasias Have any of you heard of telangiectasias? Just when we thought that Cedie has been seen by every specialist there is, they decided that she needed to be seen by a dermatologist! She has a spot on her forehead that gets redder as she gets angry or upset. That has been there since birth. However, now she has some markings on her stomach as well. I think they look like bruises, but what do I know, I'm just her mom! They just appeared a couple weeks ago, around the time of her ear tubes surgery. I think they bruised her when they were trying to get an IV in (it took 8 tries by 4 different nurses!). However, it is wierd that they haven't disappeared. CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Oh, boy! I haven't heard of that one. Can't even figure out how to pronounce it! I hope you get some quick answers for Cedie. Let us know what you find out. Michele W mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ Telangiectasias Have any of you heard of telangiectasias? Just when we thought that Cedie has been seen by every specialist there is, they decided that she needed to be seen by a dermatologist! She has a spot on her forehead that gets redder as she gets angry or upset. That has been there since birth. However, now she has some markings on her stomach as well. I think they look like bruises, but what do I know, I'm just her mom! They just appeared a couple weeks ago, around the time of her ear tubes surgery. I think they bruised her when they were trying to get an IV in (it took 8 tries by 4 different nurses!). However, it is wierd that they haven't disappeared. CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 :-) I can't pronounce it either! Thanks, and I'll let you know > > Oh, boy! I haven't heard of that one. Can't even figure out how to > pronounce it! I hope you get some quick answers for Cedie. Let us know > what you find out. > > Michele W > mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ > > > Telangiectasias > > Have any of you heard of telangiectasias? Just when we thought that > Cedie has been seen by every specialist there is, they decided that she > needed to be seen by a dermatologist! She has a spot on her forehead > that gets redder as she gets angry or upset. That has been there since > birth. However, now she has some markings on her stomach as well. I > think they look like bruises, but what do I know, I'm just her mom! > They just appeared a couple weeks ago, around the time of her ear tubes > surgery. I think they bruised her when they were trying to get an IV in > (it took 8 tries by 4 different nurses!). However, it is wierd that > they haven't disappeared. > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Telangectasis is the medical term for " dilated blood vessels. " The little spot Cedie has is just a small grouping of blood vessels that are always dilated. When she gets upset, her body releases chemical messages into her blood stream that causes blood vessels to dilate and allow more blood through, which makes the spot look that much redder. mockfamily814 wrote: Have any of you heard of telangiectasias? Just when we thought that Cedie has been seen by every specialist there is, they decided that she needed to be seen by a dermatologist! She has a spot on her forehead that gets redder as she gets angry or upset. That has been there since birth. However, now she has some markings on her stomach as well. I think they look like bruises, but what do I know, I'm just her mom! They just appeared a couple weeks ago, around the time of her ear tubes surgery. I think they bruised her when they were trying to get an IV in (it took 8 tries by 4 different nurses!). However, it is wierd that they haven't disappeared. CHARGE SYNDROME LISTSERV PHOTO PAGE: http://www.imagestation.com/album/?id=2117043995 Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter), please contact marion@... or visit the web site at http://www.chargesyndrome.org (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) 8th International CHARGE Syndrome Conference, July, 2007. Information will be available at www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 ive had them on my tummy i think when i used to have clexane > > Telangectasis is the medical term for " dilated blood vessels. " The little > spot Cedie has is just a small grouping of blood vessels that are always > dilated. When she gets upset, her body releases chemical messages into her > blood stream that causes blood vessels to dilate and allow more blood > through, which makes the spot look that much redder. > > > mockfamily814 wrote: > Have any of you heard of telangiectasias? Just when we thought that > Cedie has been seen by every specialist there is, they decided that she > needed to be seen by a dermatologist! She has a spot on her forehead > that gets redder as she gets angry or upset. That has been there since > birth. However, now she has some markings on her stomach as well. I > think they look like bruises, but what do I know, I'm just her mom! > They just appeared a couple weeks ago, around the time of her ear tubes > surgery. I think they bruised her when they were trying to get an IV in > (it took 8 tries by 4 different nurses!). However, it is wierd that > they haven't disappeared. > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 ive had them on my tummy i think when i used to have clexane > > Telangectasis is the medical term for " dilated blood vessels. " The little > spot Cedie has is just a small grouping of blood vessels that are always > dilated. When she gets upset, her body releases chemical messages into her > blood stream that causes blood vessels to dilate and allow more blood > through, which makes the spot look that much redder. > > > mockfamily814 wrote: > Have any of you heard of telangiectasias? Just when we thought that > Cedie has been seen by every specialist there is, they decided that she > needed to be seen by a dermatologist! She has a spot on her forehead > that gets redder as she gets angry or upset. That has been there since > birth. However, now she has some markings on her stomach as well. I > think they look like bruises, but what do I know, I'm just her mom! > They just appeared a couple weeks ago, around the time of her ear tubes > surgery. I think they bruised her when they were trying to get an IV in > (it took 8 tries by 4 different nurses!). However, it is wierd that > they haven't disappeared. > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 ive had them on my tummy i think when i used to have clexane > > Telangectasis is the medical term for " dilated blood vessels. " The little > spot Cedie has is just a small grouping of blood vessels that are always > dilated. When she gets upset, her body releases chemical messages into her > blood stream that causes blood vessels to dilate and allow more blood > through, which makes the spot look that much redder. > > > mockfamily814 wrote: > Have any of you heard of telangiectasias? Just when we thought that > Cedie has been seen by every specialist there is, they decided that she > needed to be seen by a dermatologist! She has a spot on her forehead > that gets redder as she gets angry or upset. That has been there since > birth. However, now she has some markings on her stomach as well. I > think they look like bruises, but what do I know, I'm just her mom! > They just appeared a couple weeks ago, around the time of her ear tubes > surgery. I think they bruised her when they were trying to get an IV in > (it took 8 tries by 4 different nurses!). However, it is wierd that > they haven't disappeared. > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 I saw posted a link with an audio pronunciation, but phonetically it is: tee-lan-ject-taysh-uhs or sometimes you will see telangectasis (tee-lan-ject-uh-sis) mockfamily814 wrote: :-) I can't pronounce it either! Thanks, and I'll let you know > > Oh, boy! I haven't heard of that one. Can't even figure out how to > pronounce it! I hope you get some quick answers for Cedie. Let us know > what you find out. > > Michele W > mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ > > > Telangiectasias > > Have any of you heard of telangiectasias? Just when we thought that > Cedie has been seen by every specialist there is, they decided that she > needed to be seen by a dermatologist! She has a spot on her forehead > that gets redder as she gets angry or upset. That has been there since > birth. However, now she has some markings on her stomach as well. I > think they look like bruises, but what do I know, I'm just her mom! > They just appeared a couple weeks ago, around the time of her ear tubes > surgery. I think they bruised her when they were trying to get an IV in > (it took 8 tries by 4 different nurses!). However, it is wierd that > they haven't disappeared. > > > > > > CHARGE SYNDROME LISTSERV PHOTO PAGE: > http://www.imagestation.com/album/?id=2117043995 > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org > (CHARGE Syndrome Canada - http://www.chargesyndrome.ca) > > 8th International > CHARGE Syndrome Conference, July, 2007. Information will be available at > www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
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