Re: Pill contest

[Guest guest]

Well, Lem, I think you're a close runner up behind Lynn, but she still has ya

beat. Aren't you sad?? LOL.

Dawn

lem1432 wrote:

> Hey Dawn, glad things are looking brighter today. I called my lawyer

> about my last appeal and she told me it takes 8-12 months to get the

> court date. I know it didn't take beck that long, so I guess we can

> be gratful that hers didn't take so long. It looks like mine in going

> to take the 3 yrs. I've heard others took that long. I take the

> plavix to thin my blood. I am allergic to asprin. Here is my list of

> meds: 4 colestid daily

> 2 prevacid daily

> 2 toprolXL daily

> 1 plavix daily

> 1 digoxin daily

> 1 folic acid daily (execpt on metho day)

> 4 methorexate once a week

> 1 5mg pred

> 4 1mg pred (I am on 9mg daily)

> 3 calcium tablets daily

> 1 pain patch

> 6-8 pain pills

> dose of enulose

> promethazine ( it is for nausea from taking all these pills)

> I use nitro pills and a inhaler as needed

> Isn't this awful? So who is the biggest pill head? My kids tease me

> and tell me I am a walking pharmacy, lol Lem

>

>

>

>

>

>

[Guest guest]

Well, Lem, I think you're a close runner up behind Lynn, but she still has ya

beat. Aren't you sad?? LOL.

Dawn

lem1432 wrote:

> Hey Dawn, glad things are looking brighter today. I called my lawyer

> about my last appeal and she told me it takes 8-12 months to get the

> court date. I know it didn't take beck that long, so I guess we can

> be gratful that hers didn't take so long. It looks like mine in going

> to take the 3 yrs. I've heard others took that long. I take the

> plavix to thin my blood. I am allergic to asprin. Here is my list of

> meds: 4 colestid daily

> 2 prevacid daily

> 2 toprolXL daily

> 1 plavix daily

> 1 digoxin daily

> 1 folic acid daily (execpt on metho day)

> 4 methorexate once a week

> 1 5mg pred

> 4 1mg pred (I am on 9mg daily)

> 3 calcium tablets daily

> 1 pain patch

> 6-8 pain pills

> dose of enulose

> promethazine ( it is for nausea from taking all these pills)

> I use nitro pills and a inhaler as needed

> Isn't this awful? So who is the biggest pill head? My kids tease me

> and tell me I am a walking pharmacy, lol Lem

>

>

>

>

>

>

[Guest guest]

Buaaaaaaaaaaaaaaaaaaaaaaaa

I lost the pil contest.

0 (zero) pil !!!

There is any prize for me??? lololol

Take care!!

Alvaro Nunes

[Guest guest]

Wow, Alvaro, no pills?? I knew you took IVIg, but thought you were also

taking Prednisone. Is this common for IBM??

You should definately get a prize, though. That's great!!

DAwn

Alvaro.Nunes@... wrote:

> Buaaaaaaaaaaaaaaaaaaaaaaaa

>

> I lost the pil contest.

>

> 0 (zero) pil !!!

>

> There is any prize for me??? lololol

>

> Take care!!

>

> Alvaro Nunes

>

>

>

>

>

[Guest guest]

Wow, Alvaro, no pills?? I knew you took IVIg, but thought you were also

taking Prednisone. Is this common for IBM??

You should definately get a prize, though. That's great!!

DAwn

Alvaro.Nunes@... wrote:

> Buaaaaaaaaaaaaaaaaaaaaaaaa

>

> I lost the pil contest.

>

> 0 (zero) pil !!!

>

> There is any prize for me??? lololol

>

> Take care!!

>

> Alvaro Nunes

>

>

>

>

>

[Guest guest]

What the neuro told us is that IBM usually does not respond to meds

like prednisone, MTX or other immunosuppressants. Unless the biopsy

actually shows the characteristic vacuoles or inclusion bodies, the

other way to diagnose IBM is find that the treatments for PM don't

make any difference. Then they stop the meds because they have such

strong effects on the rest of the body.

IVIG sometimes makes a difference, but not always.

While the symptoms are similar (except for rash), IBM has a different

mechanism from PM, as well as from DM.

Tenayahh

> Wow, Alvaro, no pills?? I knew you took IVIg, but thought you were

also

> taking Prednisone. Is this common for IBM??

>

>

>

> > Buaaaaaaaaaaaaaaaaaaaaaaaa

> >

> > I lost the pil contest.

> >

> > 0 (zero) pil !!!

> >

> > There is any prize for me??? lololol

> >

> > Take care!!

> >

> > Alvaro Nunes

> >

> >

> >

> >

> >

[Guest guest]

What the neuro told us is that IBM usually does not respond to meds

like prednisone, MTX or other immunosuppressants. Unless the biopsy

actually shows the characteristic vacuoles or inclusion bodies, the

other way to diagnose IBM is find that the treatments for PM don't

make any difference. Then they stop the meds because they have such

strong effects on the rest of the body.

IVIG sometimes makes a difference, but not always.

While the symptoms are similar (except for rash), IBM has a different

mechanism from PM, as well as from DM.

Tenayahh

> Wow, Alvaro, no pills?? I knew you took IVIg, but thought you were

also

> taking Prednisone. Is this common for IBM??

>

>

>

> > Buaaaaaaaaaaaaaaaaaaaaaaaa

> >

> > I lost the pil contest.

> >

> > 0 (zero) pil !!!

> >

> > There is any prize for me??? lololol

> >

> > Take care!!

> >

> > Alvaro Nunes

> >

> >

> >

> >

> >

[Guest guest]

Thanks for the info, Tenayahh. I was aware that IBM usually doesn't respond

to Pred., but I guess I figured there would have to be some other meds. he

would be taking to help the IVIg along. Hmmm...interesting!!

Dawn

tenayahh wrote:

> What the neuro told us is that IBM usually does not respond to meds

> like prednisone, MTX or other immunosuppressants. Unless the biopsy

> actually shows the characteristic vacuoles or inclusion bodies, the

> other way to diagnose IBM is find that the treatments for PM don't

> make any difference. Then they stop the meds because they have such

> strong effects on the rest of the body.

>

> IVIG sometimes makes a difference, but not always.

>

> While the symptoms are similar (except for rash), IBM has a different

> mechanism from PM, as well as from DM.

>

> Tenayahh

>

>

> > Wow, Alvaro, no pills?? I knew you took IVIg, but thought you were

> also

> > taking Prednisone. Is this common for IBM??

> >

> >

> >

> > > Buaaaaaaaaaaaaaaaaaaaaaaaa

> > >

> > > I lost the pil contest.

> > >

> > > 0 (zero) pil !!!

> > >

> > > There is any prize for me??? lololol

> > >

> > > Take care!!

> > >

> > > Alvaro Nunes

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Thanks for the info, Tenayahh. I was aware that IBM usually doesn't respond

to Pred., but I guess I figured there would have to be some other meds. he

would be taking to help the IVIg along. Hmmm...interesting!!

Dawn

tenayahh wrote:

> What the neuro told us is that IBM usually does not respond to meds

> like prednisone, MTX or other immunosuppressants. Unless the biopsy

> actually shows the characteristic vacuoles or inclusion bodies, the

> other way to diagnose IBM is find that the treatments for PM don't

> make any difference. Then they stop the meds because they have such

> strong effects on the rest of the body.

>

> IVIG sometimes makes a difference, but not always.

>

> While the symptoms are similar (except for rash), IBM has a different

> mechanism from PM, as well as from DM.

>

> Tenayahh

>

>

> > Wow, Alvaro, no pills?? I knew you took IVIg, but thought you were

> also

> > taking Prednisone. Is this common for IBM??

> >

> >

> >

> > > Buaaaaaaaaaaaaaaaaaaaaaaaa

> > >

> > > I lost the pil contest.

> > >

> > > 0 (zero) pil !!!

> > >

> > > There is any prize for me??? lololol

> > >

> > > Take care!!

> > >

> > > Alvaro Nunes

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Dawn,

No pills and no Prednisone . Nothing!!

I receive the prize yesterday .lololo

I went to my Family Doctor and he give me a document wih this information:

" special permanent illness "

And with this document all treatments ,all meds are free, i dont´t need to

pay ( x-ray.emg,ivig,psical terapy....)

Take care

Alvaro Nunes

Dawn

<dawn73@nbnet To: OurMyositis

.nb.ca> cc:

Subject: Re: Pill contest

11-09-2002

23:17

Please

respond to

OurMyositis

Wow, Alvaro, no pills?? I knew you took IVIg, but thought you were also

taking Prednisone. Is this common for IBM??

You should definately get a prize, though. That's great!!

DAwn

Alvaro.Nunes@... wrote:

> Buaaaaaaaaaaaaaaaaaaaaaaaa

>

> I lost the pil contest.

>

> 0 (zero) pil !!!

>

> There is any prize for me??? lololol

>

> Take care!!

>

> Alvaro Nunes

>

>

>

>

>

[Guest guest]

Great news, Alvaro!!! You must be so happy. That should save you alot of

money.

Dawn

Alvaro.Nunes@... wrote:

> Dawn,

>

> No pills and no Prednisone . Nothing!!

>

> I receive the prize yesterday .lololo

> I went to my Family Doctor and he give me a document wih this information:

>

> " special permanent illness "

>

> And with this document all treatments ,all meds are free, i dont´t need to

> pay ( x-ray.emg,ivig,psical terapy....)

>

> Take care

>

> Alvaro Nunes

>

>

> Dawn

> <dawn73@nbnet To: OurMyositis

> .nb.ca> cc:

> Subject: Re: Pill contest

> 11-09-2002

> 23:17

> Please

> respond to

> OurMyositis

>

>

>

> Wow, Alvaro, no pills?? I knew you took IVIg, but thought you were also

> taking Prednisone. Is this common for IBM??

>

> You should definately get a prize, though. That's great!!

>

> DAwn

>

> Alvaro.Nunes@... wrote:

>

> > Buaaaaaaaaaaaaaaaaaaaaaaaa

> >

> > I lost the pil contest.

> >

> > 0 (zero) pil !!!

> >

> > There is any prize for me??? lololol

> >

> > Take care!!

> >

> > Alvaro Nunes

> >

> >

> >

> >

> >

[Guest guest]

Great news, Alvaro!!! You must be so happy. That should save you alot of

money.

Dawn

Alvaro.Nunes@... wrote:

> Dawn,

>

> No pills and no Prednisone . Nothing!!

>

> I receive the prize yesterday .lololo

> I went to my Family Doctor and he give me a document wih this information:

>

> " special permanent illness "

>

> And with this document all treatments ,all meds are free, i dont´t need to

> pay ( x-ray.emg,ivig,psical terapy....)

>

> Take care

>

> Alvaro Nunes

>

>

> Dawn

> <dawn73@nbnet To: OurMyositis

> .nb.ca> cc:

> Subject: Re: Pill contest

> 11-09-2002

> 23:17

> Please

> respond to

> OurMyositis

>

>

>

> Wow, Alvaro, no pills?? I knew you took IVIg, but thought you were also

> taking Prednisone. Is this common for IBM??

>

> You should definately get a prize, though. That's great!!

>

> DAwn

>

> Alvaro.Nunes@... wrote:

>

> > Buaaaaaaaaaaaaaaaaaaaaaaaa

> >

> > I lost the pil contest.

> >

> > 0 (zero) pil !!!

> >

> > There is any prize for me??? lololol

> >

> > Take care!!

> >

> > Alvaro Nunes

> >

> >

> >

> >

> >

[Guest guest]

Great news, Alvaro!!! You must be so happy. That should save you alot of

money.

Dawn

Alvaro.Nunes@... wrote:

> Dawn,

>

> No pills and no Prednisone . Nothing!!

>

> I receive the prize yesterday .lololo

> I went to my Family Doctor and he give me a document wih this information:

>

> " special permanent illness "

>

> And with this document all treatments ,all meds are free, i dont´t need to

> pay ( x-ray.emg,ivig,psical terapy....)

>

> Take care

>

> Alvaro Nunes

>

>

> Dawn

> <dawn73@nbnet To: OurMyositis

> .nb.ca> cc:

> Subject: Re: Pill contest

> 11-09-2002

> 23:17

> Please

> respond to

> OurMyositis

>

>

>

> Wow, Alvaro, no pills?? I knew you took IVIg, but thought you were also

> taking Prednisone. Is this common for IBM??

>

> You should definately get a prize, though. That's great!!

>

> DAwn

>

> Alvaro.Nunes@... wrote:

>

> > Buaaaaaaaaaaaaaaaaaaaaaaaa

> >

> > I lost the pil contest.

> >

> > 0 (zero) pil !!!

> >

> > There is any prize for me??? lololol

> >

> > Take care!!

> >

> > Alvaro Nunes

> >

> >

> >

> >

> >