Re: Re: Henry Scammel

[Guest guest]

What a pleasure that must have been. He didn't by any chance have pass outs

or literature re his upcoming presentations, did he? I'd rearrange my whole

week to hear and see him personally.

Judy (Keels)

[Guest guest]

Ditto

Pam

[Guest guest]

Hi my name is and I am new to this group, and I have been on the AP

for 21 yrs and still doing fine. I had RA back then and was bed-ridden, I am

one of many with a sucess story, this treatment I feel saved my life . I no

longer have RA, but the last 5 yrs. have gotten Mild Discoid Lupus and an

other Auto-immune disease called pemphigus. I started out as a patient of Dr.

Oliver at the Arthritis Clinic a yr after Dr. Brown died but was taken

tetracycline here for a yr. before. I took the IV's about 3 times and stayed

on tetracycline for 18 yrs. I talked with Henry Scammell and DR. john Sinnott

from Iowa who both suggested I take Doxycyline as its easier for Lupus

people, I have been on this for three months and I feel things are getting

under control again. I am 52 now and I feel menopause has set things off and

also I needed to change AP meds after so long. My AP treatment has done no

damage to my organs or blood and I am walking and doing quite a bit, tired,

but I always have been I hope this hasn't been to long, I am hopeing to know

you all better and its nice to be home with people on AP again, Thank You

from Ohio

[Guest guest]

Carol, thanks for the responce, yes I am keeping up with my supplements, but

I just started my Moducare with great results as I said I have pemphigus

which is a serious Auto-immune disease and it causes bliters in the mouth and

body well I take just 2mg of prednisone and doxy 3xaweek 50mg 2xaday, anyway

I hope its allright to say on this line but the Moducare in 3 weeks has taken

all the blisters away from my mouth and just 2 are on my head and I am

hopeful that they will go also I am trying to decide what else I need as my

body is changeing and sometimes things need put in and some must go. I really

came back just to see if theres new things that I don;t know about and to

touch base with people Cfrom Ohio

[Guest guest]

Welcome back. Not sure that I want to say that as your coming back means

that you are sick again. Have you been keeping your immune system boosted? I

use colostrum, moducare and thymic complex, at long last, and feel that had

I used them a year or two ago I would not now have lymphoma. Oh well, my

combination of chemo and alternative medicine seem to be doing the trick.

God bless. Carol/Piney/Canada dermatomyositis oct94 ap jun98 lymphoma

jun2000

minocycline 100mg 2 x day

vitamin and herbal supplements too numerous to mention

palafer(iron)

B12 shots 1cc once every two weeks

tylenol #3 2 each morning and when needed which is very seldom

Re: rheumatic Re: Henry Scammel

> Hi my name is and I am new to this group, and I have been on the AP

> for 21 yrs and still doing fine. I had RA back then and was bed-ridden, I

am

> one of many with a sucess story, this treatment I feel saved my life . I

no

> longer have RA, but the last 5 yrs. have gotten Mild Discoid Lupus and an

> other Auto-immune disease called pemphigus. I started out as a patient of

Dr.

> Oliver at the Arthritis Clinic a yr after Dr. Brown died but was taken

> tetracycline here for a yr. before. I took the IV's about 3 times and

stayed

> on tetracycline for 18 yrs. I talked with Henry Scammell and DR. john

Sinnott

> from Iowa who both suggested I take Doxycyline as its easier for Lupus

> people, I have been on this for three months and I feel things are getting

> under control again. I am 52 now and I feel menopause has set things off

and

> also I needed to change AP meds after so long. My AP treatment has done no

> damage to my organs or blood and I am walking and doing quite a bit,

tired,

> but I always have been I hope this hasn't been to long, I am hopeing to

know

> you all better and its nice to be home with people on AP again, Thank You

> from Ohio

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

[Guest guest]

In a message dated 10/15/2000 5:33:27 PM Pacific Daylight Time,

MUGGYPC@... writes:

<< I am hopeing to know

you all better and its nice to be home with people on AP again >>

HI and welcome :-) Wow I have so many questions as I am sure do

others First off how did you get so lucky to get the AP so long ago? I want

to hear about that! I have AS and have been on them for 4 years and they work

pretty well for me. How long did it take you to feel your best better?

Oh I am so excited you are here! It is so important for the new people to

hear of our success stories.

Love,

[Guest guest]

Hi, I first heard about this treatment on I think it was 20/20 or a

show like that 21 yrs ago, and I got my Dr. to put me on the tetracycline by

mouth just like Dr. Brown said, then I was on high steriods, and some pain

medicine, I was a mess, and I had a terrible time, I could barely walk, and I

really did not want to live the pain was like hot lava everywhere. So off I

went to Arlington and to Dr. Oliver who took over after Dr. Brown, and was

great, he was working on finding mycoplasmas with some DR> in England and Yes

I had them and the strep showed with Typhoid and Samanella bacteria, he

started me on a week of IV " S and I came home takeing it orally, well I got

better at first, then the Herx and this went back and forth for 3 Yr. before

I turned the corner, I got the IV " s 3 different times, then I showed no RA,

and I had the never-ending problem of getting the antibiotics from any DR. I

went back and forth to Arlington just to get the meds, About 5 yrs ago I

still couldn't get them and I went to the feed store and got my Tetracycline

there in cow form, Yea I was very tired of fighting with DRs. who kept saying

you don't have RA and I would say its the treatment, and I need the medicine.

Well those cow pills are very large and I had to dilute them in water over

night, and just drink it , THIS by the way is desperate and not the best or

easiest, but it worked until I could find a DR> This even today is a BIG BIG

problem for me, and I am sure others. I am now haveing a few problems and It

needed adjusted and Henry Scammell and Sinnott have been more than

helpful in there information to me. It is a long road but it will get better,

it helps that they are giveing this at the MAYO clinic now, and I will use

that now on any DR. who argues with me, as the MAYO is considered the best. I

will answer all questions as I feel I owe that to all and the AP treatment,

so either just e-mail me or on line, but I don't want to bore the ones who

are busy. Is there anyone out here from the Arlington Clinic on line?Would

love to hear from you. Take Care LOL from Ohio

[Guest guest]

Dear I have such mixed emotions for you. I hurt that you are back here

after such a brave, long battle which you conquered for so long. This is a

reminder to me, however, that this may be a life time of meds for me and if so,

this is okay. I now have a wonderful life again and the meds are, while

expensive, a lifesaver and at worst, an inconvenience, as I do not think they

are

doing any harm but only good. I am scleraderma and also a patient of Dr.

Sinnott's. Maybe we will be there at the same time someday!. I seem to always

miss my new friends here and spend a week there alone. You are at least close

by

so know you are in on-going good hands. I am in Billings, Montana. I will be

seeing Dr. Sinnott in two weeks. I fly in on Nov. 4 and will be there that week.

If you are anywhere very, very near, maybe we can meet. Probably not, though. I

drive to all the little surrounding towns or into Sioux City for lunch for day

during that interim. My other mixed emotion for you is the joy that you have

sometime proven to fall back on. Wouldn't it be terrible if you did not have

the

AP and had to live in fear rather than know you have this proven treatment? And

I am joyful to have another of Dr. Sinnott's here on board. What are your

symptoms now? Are you also doing the clindy ivs now with the lupus? Welcome,

Chris. Hugs,

MUGGYPC@... wrote:

> Hi my name is and I am new to this group, and I have been on the AP

> for 21 yrs and still doing fine. I had RA back then and was bed-ridden, I am

> one of many with a sucess story, this treatment I feel saved my life . I no

> longer have RA, but the last 5 yrs. have gotten Mild Discoid Lupus and an

> other Auto-immune disease called pemphigus. I started out as a patient of Dr.

> Oliver at the Arthritis Clinic a yr after Dr. Brown died but was taken

> tetracycline here for a yr. before. I took the IV's about 3 times and stayed

> on tetracycline for 18 yrs. I talked with Henry Scammell and DR. john Sinnott

> from Iowa who both suggested I take Doxycyline as its easier for Lupus

> people, I have been on this for three months and I feel things are getting

> under control again. I am 52 now and I feel menopause has set things off and

> also I needed to change AP meds after so long. My AP treatment has done no

> damage to my organs or blood and I am walking and doing quite a bit, tired,

> but I always have been I hope this hasn't been to long, I am hopeing to know

> you all better and its nice to be home with people on AP again, Thank You

> from Ohio

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups