Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 Georgianna, Hell'o, I gave enzyms before and after tube feedings. DR's orders. hugs and prayers mom wo/CF --son w/CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 Eme is on a continuous night feed. Our gi doc told us that the only fda approved enzyme in bead form approved to go down the tube is pancrecarb. With many weeks of practice (definitely not standard technique to get it to wor we could finally easily get these down the tube and then had to work on increasing to get the right dose. For us we actually found that Eme did better on the viocase, but we were waking every 3-4 hours and shooting some down the tube, I wondered about placing it in the formula so we wouldn't need to do this. She is taking food orally now during the day, but not enough calories to keep her weight where it should be. How much viocase were you giving? How long was it hanging in the formula at a time? Kris in Idaho Mo 31/2 wcf Eme almost 1 wcf g-tube and enzymes >My daughter is 1 year old and gets continuous g-tube feeds and TPN. >My question to those that do continuous feeds (maybe even just night >feeds) is how do you handle enzymes. She is on Viacase and we have >been just mixing it into her feed, but lately she seems to be having >trouble with digesting again and I was wondering if there was a >better way to do this. She won't take any oral feeds yet. > > > > >PLEASE do not post religious emails to the list. > > >------------------------------------------- > > >The opinions and information exchanged on this list should >IN NO WAY >be construed as medical advice. > >PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > >-------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 We give Eme 1/2 tsp. at the begining of feed then every four hours after that. She is getting 90ml/hr of 25 cal pregestimil formula. Seems to work well for her. We mix the viocase with about 10ml of tap water. I also add her reglan with it to keep her from getting over full. Seems to work for her, but I would like to try the pre mixed in the bag of formula. kris in Idaho Re: g-tube and enzymes >I give her 85 mg of Viacase per 100 cc's of formula. I put in the >whole nights feed at once with the enzyme mixed in. This worked for >us several months ago when she was on full feeds. Then she got >switched to TPN and we are now slowly trying to get her back onto her >g-tube feeds and she seems to be having problems with it. She seems >really uncomfortable and cries a lot. Her stools are getting greasy >and smell pretty bad. It is just strange to me that the same method >that worked before isn't working now, but it does seem to be an >enzyme problem to me. > >How much Viacase do you give? When you give it a few times a night, >what do you mix it with? > > > > >PLEASE do not post religious emails to the list. > > >------------------------------------------- > > >The opinions and information exchanged on this list should >IN NO WAY >be construed as medical advice. > >PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > >-------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 Stupid question, what is TPN? kris in Idaho Re: g-tube and enzymes >HI > >When my son was on TPN continuily and 10 hour nite G-tube feeds, we had the same problems with the enzymes. Your not supposed to add them to the feed, I was told. >So what we ended up doing was give the enzymes every couple of hours. This became quite a hassel because I would wake-up mix the enzymes and put them into my sound sleep baby. Which most of the time woke him up. >So after a few months of this I begged for another solution. >We started giving the enzymes 1 hour after the feeds began, 1/2 way thru and then at the end. This was the solution that worked for us. > > It's so tough having to do the TPN and the the g-tube feeds. >I wish you luck in finding a solution, I hope mine helps. > >Take Care, > > Stein....mom of CF (10 Mo)W/asthma, rotavirus,short-gut,milk protein allergy..ect & Tori wo/CF (3 1/2 yr) W/asthma > > g-tube and enzymes > > > My daughter is 1 year old and gets continuous g-tube feeds and TPN. > My question to those that do continuous feeds (maybe even just night > feeds) is how do you handle enzymes. She is on Viacase and we have > been just mixing it into her feed, but lately she seems to be having > trouble with digesting again and I was wondering if there was a > better way to do this. She won't take any oral feeds yet. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 I give her 85 mg of Viacase per 100 cc's of formula. I put in the whole nights feed at once with the enzyme mixed in. This worked for us several months ago when she was on full feeds. Then she got switched to TPN and we are now slowly trying to get her back onto her g-tube feeds and she seems to be having problems with it. She seems really uncomfortable and cries a lot. Her stools are getting greasy and smell pretty bad. It is just strange to me that the same method that worked before isn't working now, but it does seem to be an enzyme problem to me. How much Viacase do you give? When you give it a few times a night, what do you mix it with? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 HI When my son was on TPN continuily and 10 hour nite G-tube feeds, we had the same problems with the enzymes. Your not supposed to add them to the feed, I was told. So what we ended up doing was give the enzymes every couple of hours. This became quite a hassel because I would wake-up mix the enzymes and put them into my sound sleep baby. Which most of the time woke him up. So after a few months of this I begged for another solution. We started giving the enzymes 1 hour after the feeds began, 1/2 way thru and then at the end. This was the solution that worked for us. It's so tough having to do the TPN and the the g-tube feeds. I wish you luck in finding a solution, I hope mine helps. Take Care, Stein....mom of CF (10 Mo)W/asthma, rotavirus,short-gut,milk protein allergy..ect & Tori wo/CF (3 1/2 yr) W/asthma g-tube and enzymes My daughter is 1 year old and gets continuous g-tube feeds and TPN. My question to those that do continuous feeds (maybe even just night feeds) is how do you handle enzymes. She is on Viacase and we have been just mixing it into her feed, but lately she seems to be having trouble with digesting again and I was wondering if there was a better way to do this. She won't take any oral feeds yet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 Don't you know there are no stupid questions here. TPN..total parental nutrition. what is that, right? lol I said the same thing. It's IV nutrition for people who cant take food orally or have problems gaining, GI problems ect...The IV bag is full of vitamins,water, sugar salt..all the electrolyte balances and any meds they can add all go directly into a vein. You also have to have a Picc line or a central line to receive the TPN, peripherals arent big enough to handle the volume. Stein g-tube and enzymes > > > My daughter is 1 year old and gets continuous g-tube feeds and TPN. > My question to those that do continuous feeds (maybe even just night > feeds) is how do you handle enzymes. She is on Viacase and we have > been just mixing it into her feed, but lately she seems to be having > trouble with digesting again and I was wondering if there was a > better way to do this. She won't take any oral feeds yet. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 Hi, I was just wondering for those of you whose kids have to be via a tube, when this started? Was it when they were born/very young or when they hadn't been thriving for a while? Love Kristy, 2yr mwocf, 4mth mwcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 started tube feedings within a few weeks of birth while in NICU because she just couldn't take enough food. At the time, she was taking about half of her feeds with a bottle. Then she had to go 1.5 months without feeds because of an intestinal blockage that needed surgery. At first, she was too malnourished to handle the surgery so they fattened her up with TPN, then she came down with full blown psuedomonas pnueomonia and was too sick for the surgery. By the time she was able to eat again, she had no interest. She was very orally defensive because of all the tubes that had been stuck down her throat. Since then we have been working on getting her to eat, but it has been a very slow process because she is sick so often and we don't push her when she isn't well. Right now, the big push is just to get her tube feeds up high enough to get her off TPN again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 Kris, there's no such thing in the CF world as a stupid question. My daughter's 19years old and I ask questions about CF every day. And, by the way, I have no idea what TPN is. , mom of Shantell 19yr wcf Re: g-tube and enzymes >HI > >When my son was on TPN continuily and 10 hour nite G-tube feeds, we had the same problems with the enzymes. Your not supposed to add them to the feed, I was told. >So what we ended up doing was give the enzymes every couple of hours. This became quite a hassel because I would wake-up mix the enzymes and put them into my sound sleep baby. Which most of the time woke him up. >So after a few months of this I begged for another solution. >We started giving the enzymes 1 hour after the feeds began, 1/2 way thru and then at the end. This was the solution that worked for us. > > It's so tough having to do the TPN and the the g-tube feeds. >I wish you luck in finding a solution, I hope mine helps. > >Take Care, > > Stein....mom of CF (10 Mo)W/asthma, rotavirus,short-gut,milk protein allergy..ect & Tori wo/CF (3 1/2 yr) W/asthma > > g-tube and enzymes > > > My daughter is 1 year old and gets continuous g-tube feeds and TPN. > My question to those that do continuous feeds (maybe even just night > feeds) is how do you handle enzymes. She is on Viacase and we have > been just mixing it into her feed, but lately she seems to be having > trouble with digesting again and I was wondering if there was a > better way to do this. She won't take any oral feeds yet. > > > Quote Link to comment Share on other sites More sharing options...
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