Re: was fed Gluten but no reaction???

[Guest guest]

WOW... I would have been so upset if that had happened to

me... 'cause I would have been vomiting for days. Restaurants, I

swear...

I don't know what to say re: his possible misdiagnosis, but he would

need to be on a high gluten diet for at least a month before a biopsy

could be conclusive... But, it would seem like it would be a good

idea to consider re-testing. I have heard though that the teenage

years are the " kindest " to celiacs in that supposedly reactions are

minimized at this time, which can encourage people to get off the

diet and then pay for it later when their body isn't as quick to heal

itself. I don't know what the evidence for this is, just something I

heard my Mom say many times. Do other family members also have celiac?

--- In SillyYaks , " and Kristopher "

> Ok so in my dreamworld I have always wondered if since the biopsy

> was inconclusive and only the blood (IgG) was positive on him that

> maybe he really doesn't have Celiac and it's just an intollerance

> and he could grow out of it with taking it out of his diet for a

> while, but he would be able to have gluten in smaller amounts in

the

> future...

[Guest guest]

I have wondered the same thing about myself. Over Christmas I knowingly ate

gluten and didn't notice any reaction yet other times when I don't think

I've had gluten I get that feeling again.

My bloodwork came back at greater than 39 and I immediately went GF for

relief. A week later when I saw the doctor for follow up, I was feeling so

much better we skipped the scope (this was April of 2005). In January 2006

my bloodwork was down to 5 and we did a sigmoid colon scope and lower GI,

both came back clear.

In my case, I am still dealing with " inflamation issues " from endometriosis.

My celiac symptoms were not GI, but mood swings and lower back pain, which

are very similiar to my endo to add to the confusion. I was hoping going GF

would help my endo like I've heard about others, but for me it's only gotten

worse.

I guess this rambling answer doesn't answer any of your questions, but know

that you aren't alone in the confusion. I do know that being GF has helped

tremendously whether I'm Celiac or just intolerant but I haven't been brave

enough to knowlingly consume gluten on a regular basis. Is there anything

else that could be going on with ? It sounds like is still

young...too young to help you track symptoms? Or if he has been GF for a

long time then his symptoms and reactions could be different?!?!? Are the

girls showing symptoms or just being testing as a precaution? Just asking

as the answers to those questions may help point you in the right direction

with . Good Luck!

was fed Gluten but no reaction???

> Ok so Friday night we went to a restaurant down near my grandma that

> I had read an awsome review about on a celiac board. Well we

> explained that had Celiac and couldn't have gluten and

> ordered his pasta with the gluten free pasta. So they brought his

> out when they brought out the salads and he ate the whole plate (I

> would say close to 2 cups of cooked pasta) just starving and asked

> for 2nds... Now we're not going to starve him so my grandma took the

> plate up to the waitresses and asked if we could order him another

> meal with the GF pasta and alfredo. That was when they figured out

> that they had made a HUGE mistake. The waitress messed up and didn't

> write down the GF on the ticket and given him regular pasta! So the

> waitress came over and appologized and asked if he would be ok. Well

> NO, he wouldn't be! There was a big reason we asked for GF because

> he will get violently ill if he eats gluten. So we prepared him and

> explained that he had accedentally eaten wheat pasta and will get

> sick, but if he needed to throw up or go potty to let us know so we

> can get him to the bathroom. We expected it to hit in about an hour

> cause that had been his response in the past... It is now 2 days

> later and NOTHING! Not even 1 symptom!!! No tummy ache, no vomiting,

> no diarrhea. Nothing at all!!! Not even a bad mood!

>

> Ok so in my dreamworld I have always wondered if since the biopsy

> was inconclusive and only the blood (IgG) was positive on him that

> maybe he really doesn't have Celiac and it's just an intollerance

> and he could grow out of it with taking it out of his diet for a

> while, but he would be able to have gluten in smaller amounts in the

> future... Now after this I really am wondering if I could be

> right!!! We've been on such a strict GF diet for so long and he just

> ate 2 cups of wheat pasta and didn't even get a tummy ache from it!

>

> I'm going to ask the GI that we are taking the girls to if I could

> have him refered to her as well and possibly re-tested/scoped to

> find out if his inital diagnosis was wrong... Am I living in a very

> nice dream?

>

>

>

>

>

>

>

[Guest guest]

He's only 4 1/2 so not teen years yet though I have heard that

also. No other family members tested positive for Celiac yet but

all 3 of our kids have food issues. Emma just recently tested neg

by blood for celiac, but her stool tests show she has malabsorption

problems... So we're trying to figure out what our kids real

problems are. lol!

>

> WOW... I would have been so upset if that had happened to

> me... 'cause I would have been vomiting for days. Restaurants, I

> swear...

>

> I don't know what to say re: his possible misdiagnosis, but he

would

> need to be on a high gluten diet for at least a month before a

biopsy

> could be conclusive... But, it would seem like it would be a good

> idea to consider re-testing. I have heard though that the teenage

> years are the " kindest " to celiacs in that supposedly reactions

are

> minimized at this time, which can encourage people to get off the

> diet and then pay for it later when their body isn't as quick to

heal

> itself. I don't know what the evidence for this is, just something

I

> heard my Mom say many times. Do other family members also have

celiac?

>

[Guest guest]

The same thing happened to my daughter.I think it is called the

honeymoon phase. My daughter has been gluten free for 5 years and is 7

years old now. I had made a gluten free banana bread with chocolate

chips and one with wheat without chips. Well, she came up to me and

said, " Mom, don't be mad at me but I had the gluten bread on

accident. " I felt bad for her and told her that when she got sick to

go to the bathroom. Then she said,

" I ate it yesterday. " I was shocked she did not get sick at all. She

has not had a reaction for at least a year. It worries me because I

don't know if or when she is getting gluten. The damage can still

occur inside.

[Guest guest]

At 4-1/2, he could have healed fairly quickly so it would seem to me

that his reaction could change (even diminish) fairly dramatically.

Some folks find that one oops is tolerated, but repeated glutening

brings on gradually worsening symptoms. So that's something to

consider as well.

My DD (age 13) always had severe stomach symptoms, pre-GF. Within

months of going GF, the GI stuff went away completely. Her only

symptom now of glutening is a mouth sore that appears 10 days later

(and last for 3 weeks!).

As for your Emma, it is possible to have Celiac with negative blood

tests. It is also possible to have malabsorption with gluten

sensitivity without testing positive for Celiac. No simple answers,

unfortunately.

Sue in Denver

>

> He's only 4 1/2 so not teen years yet though I have heard that

> also. No other family members tested positive for Celiac yet but

> all 3 of our kids have food issues. Emma just recently tested neg

> by blood for celiac, but her stool tests show she has malabsorption

> problems... So we're trying to figure out what our kids real

> problems are. lol!

>

>

[Guest guest]

I meant to post this earlier, but the possibility ocurred to me that the

server was wrong and actually brought out the GF pasta.

--

n : jt@... http://jt-mj.net

In the beautiful Finger Lakes Wine Country of New York State!

Warpstock X - October 12-15 2006; Windsor, Ont. I'll be there - will you?

-- --

If you want it done right, forget Microsoft.

[Guest guest]

No, it was the wrong pasta, even the chef came out and appologized

(even though it wasn't the chef's fault)

had a reaction about 40 hours after... Delayed, yes... But

still a reaction.. I guess that tells me that I am doing a good

job keeping him GF otherwise though because it took a long time to

get a reaction and it wasn't a bad one. A year ago he would have

reacted within a few hours and been violently ill...

>

> I meant to post this earlier, but the possibility ocurred to me

that the

> server was wrong and actually brought out the GF pasta.

>

>

> --

> n : jt@... http://jt-mj.net

> In the beautiful Finger Lakes Wine Country of New York State!

> Warpstock X - October 12-15 2006; Windsor, Ont. I'll be there -

will you?

> -- --

> If you want it done right, forget Microsoft.

>

[Guest guest]

How old is ? Our DD was diagnosed

at 11 yrs old. At 15 she started withdrawing, she was tired of being “different”

from the other kids. …Teenagers. So we decided to have a second opinion

on the Celiac diagnoses (please no lectures) before she spent the rest of her

life on the diet. (mistakes do happen in labs) We took her off of the diet to

do the endoscopy and waited, and waited for symptoms. There were none. The

doctor would not do the endo. Without the symptoms but we took blood work every

6 months to check her levels and he also checked nutrients to make sure she was

absorbing. He explained it to us, that sometimes teenagers will go through a

sort of “remission” (I know there is no such animal) that it would

probably return when her body goes through anything different. It could even be

brought back with any ailment the body went through. Most probably, if not

before, when she had her first child.  Well, she had an ovarian cyst in May and

guess what. She hasn’t been right since. We had the endoscopy last month

and the doctor confirmed Celiac. She is now 18yrs old and back on her diet with

no doubts this time. She’s having a rough time but she has a fiancé for

extra support and we’re hoping the diet also helps her endometriosis.

Judy

Gettysburg, PA

From: SillyYaks [mailto:SillyYaks ] On Behalf Of and Kristopher

Sent: Sunday, February 12, 2006

12:34 PM

To: SillyYaks

Subject: was

fed Gluten but no reaction???

Ok so Friday night we went to

a restaurant down near my grandma that

I had read an awsome review about on a celiac

board. Well we

explained that had Celiac and couldn't

have gluten and

ordered his pasta with the gluten free pasta. So

they brought his

out when they brought out the salads and he ate

the whole plate (I

would say close to 2 cups of cooked pasta) just

starving and asked

for 2nds... Now we're not going to starve him so

my grandma took the

plate up to the waitresses and asked if we could

order him another

meal with the GF pasta and alfredo. That was when

they figured out

that they had made a HUGE mistake. The waitress

messed up and didn't

write down the GF on the ticket and given him

regular pasta! So the

waitress came over and appologized and asked if he

would be ok. Well

NO, he wouldn't be! There was a big reason we

asked for GF because

he will get violently ill if he eats gluten. So we

prepared him and

explained that he had accedentally eaten wheat

pasta and will get

sick, but if he needed to throw up or go potty to

let us know so we

can get him to the bathroom. We expected it to hit

in about an hour

cause that had been his response in the past... It

is now 2 days

later and NOTHING! Not even 1 symptom!!! No tummy

ache, no vomiting,

no diarrhea. Nothing at all!!! Not even a bad

mood!

Ok so in my dreamworld I have always wondered if

since the biopsy

was inconclusive and only the blood (IgG) was

positive on him that

maybe he really doesn't have Celiac and it's just

an intollerance

and he could grow out of it with taking it out of

his diet for a

while, but he would be able to have gluten in

smaller amounts in the

future... Now after this I really am wondering if

I could be

right!!! We've been on such a strict GF diet for

so long and he just

ate 2 cups of wheat pasta and didn't even get a

tummy ache from it!

I'm going to ask the GI that we are taking the

girls to if I could

have him refered to her as well and possibly

re-tested/scoped to

find out if his inital diagnosis was wrong... Am I

living in a very

nice dream?

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[Guest guest]

Hi,

My daughter ate 2 big bowls of wha she thought was GF cereal once. (I was

sleeping in and the kids got their own breakfast!!!) Poor thing was soooo

excited to have a new cereal. Well I freaked out because it wasn't GF. NO

reaction from her belly . She seems to react to small amounts over long

periods. I had bought flour from a bulk bin thinking it was fine and after

a few months she started regular belly aching and it stopped automatically

when I started a pure source of flour again. Go figure, they are all

different. I have no doubt she is celiac, but reactions vary.

Sabreena in CA

>

>Ok so in my dreamworld I have always wondered if since the biopsy

>was inconclusive and only the blood (IgG) was positive on him that

>maybe he really doesn't have Celiac and it's just an intollerance

>and he could grow out of it with taking it out of his diet for a

>while, but he would be able to have gluten in smaller amounts in the

>future... Now after this I really am wondering if I could be

>right!!! We've been on such a strict GF diet for so long and he just

>ate 2 cups of wheat pasta and didn't even get a tummy ache from it!

>

>I'm going to ask the GI that we are taking the girls to if I could

>have him refered to her as well and possibly re-tested/scoped to

>find out if his inital diagnosis was wrong... Am I living in a very

>nice dream?

>

>

>