Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 I am very disappointed in that article. This is why the term is so confusing. A disorder means something is out of order and with a pelvic floor disorder or disfunction there can be more than one problem. This article explains only one side of the picture. There is relaxation and or CONTRACTURE or elongation or muscles or SHORTENING of muscles. Believe it or not, a person can have both at the same time. Most if not all of us with ic or vulvodynia have a shortening of the pelvic floor. When I was sick it just couldn't believe that it wasn't my bladder and my vagina that was the problem. Well, I was wrong. After a year of intensive painful pt to stretch and release those muscles as well as connective tissue work, I am now pain free. Rhonda Kotarinos has an article called Physical Therapy for Urogynecologic Disorders. If you google her and the name of the article I'm sure it will come up. I believe it is on Biomedcentral so include that too. It explains the difference between relaxation and contracture and how so many doctors and therapists don't know about the latter. love, MollyBABB wrote: I find that so many words are thrown around that aresupposed to make us think we have some mysteriousdisease and the diagnosis "Pelvic Floor Disorder" onetends to make me a little annoyed. We should reallytry to get to what is really wrong and not acceptthese trite little non disease descriptions because itdoesn't help us to not know what we are really dealingwith.The following has a few words on just what a PelvicFloor Disorder is:http://www.merck.com/mmhe/sec22/ch249/ch249a.htmlI hope this is helpful.Arline__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 There is relaxation and or CONTRACTURE or > elongation or muscles or SHORTENING of muscles. And of course these are the things that describe the prolapses I would say. In any case. Why don't they call it a muscle problem instead of a pelvic floor disorder? I suspect the term is intentionally misleading and I wonder who first coined the term and they did so to start a new medical paradigm. Arline Just my opinion here. I am glad you are being helped. --- molly ring wrote: > I am very disappointed in that article. This is why > the term is so confusing. A disorder means > something is out of order and with a pelvic floor > disorder or disfunction there can be more than one > problem. This article explains only one side of the > picture. There is relaxation and or CONTRACTURE or > elongation or muscles or SHORTENING of muscles. > Believe it or not, a person can have both at the > same time. Most if not all of us with ic or > vulvodynia have a shortening of the pelvic floor. > When I was sick it just couldn't believe that it > wasn't my bladder and my vagina that was the > problem. Well, I was wrong. After a year of > intensive painful pt to stretch and release those > muscles as well as connective tissue work, I am now > pain free. > > Rhonda Kotarinos has an article called Physical > Therapy for Urogynecologic Disorders. If you google > her and the name of the article I'm sure it will > come up. I believe it is on Biomedcentral so > include that too. It explains the difference > between relaxation and contracture and how so many > doctors and therapists don't know about the latter. > > love, > Molly > > BABB wrote: > I find that so many words are thrown around that > are > supposed to make us think we have some mysterious > disease and the diagnosis " Pelvic Floor Disorder " > one > tends to make me a little annoyed. We should really > try to get to what is really wrong and not accept > these trite little non disease descriptions because > it > doesn't help us to not know what we are really > dealing > with. > > The following has a few words on just what a Pelvic > Floor Disorder is: > > http://www.merck.com/mmhe/sec22/ch249/ch249a.html > > I hope this is helpful. > > Arline > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 A prolapse is a relaxation of the pelvic floor, so is leaking. Pelvic pain is a tightening of the pelvic floor. The muscles become so tight that the nerves get angry and then we suffer the pain. It is possible to have both. I had a cystocele or a bladder prolapse. I had surgery to correct this thinking it would make my pain go away but it didn't, it made it worse as surgery often does. No one could have convinced me that I was doing a constant kegel or that my muscles were super tight. I didn't believe it until I was hooked up to biofeedback and I couldn't get the numbers below 9 - normal is 1 or 2. I could send you some links and more info if you are interested. Also the pelvic floor is the group of muscles that hold our lower body together, I'm sure you know that, but it is a group of muscles, and when they have problems it is termed a dysfunction. Just like a hip contracture or a stomachache. love, MollyBABB wrote: There is relaxation and or CONTRACTURE or> elongation or muscles or SHORTENING of muscles.And of course these are the things that describe theprolapses I would say.In any case. Why don't they call it a muscle probleminstead of a pelvic floor disorder?I suspect the term is intentionally misleading and Iwonder who first coined the term and they did so tostart a new medical paradigm.ArlineJust my opinion here. I am glad you are being helped.--- molly ring wrote:> I am very disappointed in that article. This is why> the term is so confusing. A disorder means> something is out of order and with a pelvic floor> disorder or disfunction there can be more than one> problem. This article explains only one side of the> picture. There is relaxation and or CONTRACTURE or> elongation or muscles or SHORTENING of muscles. > Believe it or not, a person can have both at the> same time. Most if not all of us with ic or> vulvodynia have a shortening of the pelvic floor. > When I was sick it just couldn't believe that it> wasn't my bladder and my vagina that was the> problem. Well, I was wrong. After a year of> intensive painful pt to stretch and release those> muscles as well as connective tissue work, I am now> pain free. > > Rhonda Kotarinos has an article called Physical> Therapy for Urogynecologic Disorders. If you google> her and the name of the article I'm sure it will> come up. I believe it is on Biomedcentral so> include that too. It explains the difference> between relaxation and contracture and how so many> doctors and therapists don't know about the latter.> > love, > Molly> > BABB wrote:> I find that so many words are thrown around that> are> supposed to make us think we have some mysterious> disease and the diagnosis "Pelvic Floor Disorder"> one> tends to make me a little annoyed. We should really> try to get to what is really wrong and not accept> these trite little non disease descriptions because> it> doesn't help us to not know what we are really> dealing> with.> > The following has a few words on just what a Pelvic> Floor Disorder is:> > http://www.merck.com/mmhe/sec22/ch249/ch249a.html> > I hope this is helpful.> > Arline> > > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Hello, I think mine is differnt in regards to the pain was first and then the pelvic floor tightened. I had pelvic pain from severe dyslapsia and adenomyosis. I think that caused the pelvic floor to tighten and that made everything worse. Kind Regards, Tami --- molly ring wrote: > A prolapse is a relaxation of the pelvic floor, so > is leaking. Pelvic pain is a tightening of the > pelvic floor. The muscles become so tight that the > nerves get angry and then we suffer the pain. > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Tami When you mention dyslapsia - do you mean on the cervix? Am not familiar with that term used other than that.. Re: Pelvic Floor Disorder > Hello, > I think mine is differnt in regards to the > pain was first and then the pelvic floor tightened. I > had pelvic pain from severe dyslapsia and adenomyosis. > I think that caused the pelvic floor to tighten and > that made everything worse. > Kind Regards, Tami > > --- molly ring wrote: > >> A prolapse is a relaxation of the pelvic floor, so >> is leaking. Pelvic pain is a tightening of the >> pelvic floor. The muscles become so tight that the >> nerves get angry and then we suffer the pain. >> >> > > > __________________________________________________ >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Valeri, I had severe dysplasia of the cervic. I had CNIII I had to have it coned. I no longer have it they took it with my hystorectomy 6 years ago. When I first noticed pain at my cervix I was told for 2 years it was cervixcitis. They finaly did a coposcopy and I had to have it coned. I also had hpv. Kind Regards, Tami p.s Thats how all this pain started 8 yrs. ago. --- Lohrenz wrote: > > Tami > > When you mention dyslapsia - do you mean on the > cervix? Am not familiar > with that term used other than that.. > > > > > > > > > > Re: Pelvic Floor Disorder > > > > Hello, > > I think mine is differnt in regards to the > > pain was first and then the pelvic floor > tightened. I > > had pelvic pain from severe dyslapsia and > adenomyosis. > > I think that caused the pelvic floor to tighten > and > > that made everything worse. > > Kind Regards, Tami > > > > --- molly ring wrote: > > > >> A prolapse is a relaxation of the pelvic floor, > so > >> is leaking. Pelvic pain is a tightening of the > >> pelvic floor. The muscles become so tight that > the > >> nerves get angry and then we suffer the pain. > >> > >> > > > > __________________________________________________ > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 kRISTY, I seen my dr. at the Pelvic Pain Clinic at the UOM. I told her I wanted to get the statis of my Endo. checked and adhesions that it had been 6 years since my hystorectomy.she said it didnt matter. I had a M.R.I on my back and I brought up to the tec. that since they were doing the I.V (I forgot the word) I was injected with a dye. He siad that you could detect endo. and adhesion doing this test. Im gonna try and get a script for a pelvic m.r.i Im not giving up. Hugs, Tami --- Kristy Sokoloski wrote: > For those that are wondering what adenomyosis is, > it's > endometriosis inside the walls of the uterus. This > is the only > time that hysterectomy can cure. > > Also, women who have adenomyosis also have > endometriosis in the > abdominal area (yes, two names for the same thing > b/c of the > locations). That's why Tami, I've been telling you > to get the > status of your endo checked. > > One would think that b/c hysterectomy cures adeno it > would cure > endo. Doesn't work that way. The reason > hysterectomy cures > adeno is b/c adeno is confined to the uterine walls > and muscle > layers of the uterus. > > Kristy > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Val, I was diagnosed with cervixcitis first. look it up untreated it becomes very painful. I dont know what was first the hpv or cervixcitis. But I had them both at the sametime. So I cant tell you if hpv was painful or not. But I also have another friend on this support group who lives close and she also had her pain start with hpv and hasnt gotten better either. Our cases are simialer. I hope she reads this and posts. Kind Regards, Tami --- Lohrenz wrote: > > Ok, thought that was what you meant. I also have > HPV and had cone biopsy - > pap tests have come back ok since then. Just didn't > realize dysplasis > caused pain. > > Take Care > > > > > > > > > > Re: Pelvic Floor Disorder > >> > >> > >> > Hello, > >> > I think mine is differnt in regards to > the > >> > pain was first and then the pelvic floor > >> tightened. I > >> > had pelvic pain from severe dyslapsia and > >> adenomyosis. > >> > I think that caused the pelvic floor to tighten > >> and > >> > that made everything worse. > >> > Kind Regards, Tami > >> > > >> > --- molly ring wrote: > >> > > >> >> A prolapse is a relaxation of the pelvic > floor, > >> so > >> >> is leaking. Pelvic pain is a tightening of > the > >> >> pelvic floor. The muscles become so tight > that > >> the > >> >> nerves get angry and then we suffer the pain. > >> >> > >> >> > > > >> > > __________________________________________________ > >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Tami, Your pelvic pain specialist is not correct in telling you that b/c it's been 6 years since your hyst that it doesn't matter what the status of your endo is. It most certainly does matter b/c you are trying to find out what's causing your back pain and this may very well be one of the things that is causing your pain. As for endo showing up on MRI, the tech was wrong to tell you that. He is not correct. The only way to truly diagnose endo even at this time is laparoscopy. There is some thought that maybe a PET Scan could show endo b/c of the kind of test it is but I've not heard anymore along these lines as to whether that is the case. But at this time the only way to definitively diagnose endo is thru laparoscopy. It's b/c of nonsense statements like this that we are struggling to get the word out about endo even though there is an official Endometriosis Awareness Month now thanks to the ERC (gave the link to their site in the other post). This is why I feel that even though yes money for research in relation to vulvodynia is necessary we need to also get going on getting a National Awareness Month for this condition passed in to law. Kristy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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