&/Lamictal

[Guest guest]

& ,

Here's what I tried to send. One thing I forgot

is that Lamictal can cause decrease in appetite. With every increase

would reject food though as he got used to the dosage his appetite would

return.

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To: " & Savage "

Subject: Re: Lamicatal reaction

Date: Thu, Aug 29, 2002, 10:01 AM

No, I definitely don't mind you contacting me directly. Unfortunately I

wasn't able to open your attachment. (MacIntonish user!)

The bad reaction had was myoclonic seizures. If your son has any

myoclonic seizures at all, this is not the drug for him. went from

having a few myoclonic drops per week to 75+ sets of myoclonic jerks per day

(lasting 30-45 sec each). Now that we're off Lamictal, we don't see them

much any more. Others on the list have had behavior problems as well

(aggressiveness, agitation). We never saw any of that. As a matter of fact,

seemed pretty happy on Lamictal and we didn't see any cognitive

impairment like we have with other AEDs. I think in general it can be a

good, safe---- drug. Though you have to increase the dosage VERY slowly or

there is a risk of a life-threatening allergic reaction. Aren't the drugs

fun? It takes a while to get to a theraputic level, so I wouldn't wait until

it hits a crisis point.

How has a raw vegan diet helped ? Doesn't sound like you could do the

keto diet, but I guess anything is possible. The fat could come from heavy

cream and oil.

Feel free to e-mail me with any other questions.

ashley

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>

>To:

>Subject: Lamicatal reaction

>Date: Tue, Aug 27, 2002, 4:18 PM

>

> ,

>

> Hope you don't mind me contacting you direct.

>

> You mentioned on ketogenic newsgroup some days ago that your

> son had a bad reaction to Lamictal. Could you please tell us more

> about that.

>

> Our 6 yr old son (overview of his situation attached) has had an

> increase in his seizure activity over the last 3-4 months, and Lamictal is

> the drug of choice for seizure control by the leading mitochondrial doctors

> in America. We don't want to go down the drug road again, however should

> his seizure activity continue to increase, we will have to do something. We

> actually have a script for Lamictal sitting in the draw, which we can fill

> if we feel his seizures are getting to an unacceptable level.

>

> Have thought about the keto diet, however I don't think a raw food vegan

> keto diet would be possible!! To risk the improvements has made with

> the raw food vegan diet in order to introduce the keto diet (which may or

> may not work), we feel is not worth it.

>

> Regards,

>

> & Savage.

> Queensland, Australia howard@...

>