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Hi Jen,

I also have full facial flushing.I know that the heat aggravates it

(along with my nerves!) but It also is bad in very cold weather. What type of

tests did you have done? Does your entire face swell or just parts of it? This

conditon is just so frustrating that the more info that you have the more you

might be able to piece together some common traits that we all have and

hopefully find something that will help.

Desitin is a diaper rash ointment that some in the group have tried

with good results. They say it helped with the redness and bumps associated

with rosacea. I didnt have such a good result, but you never know what might

work. Desitin has zinc oxide in it that has been known to eliminate redness

and rashes.

I also have a problem with my eyes and was told it is Blepharitis/dry

eyes. My eyes are swollen and red/itchy,sometimes burn. Im not sure of the

connection with Occular rosacea(Im waiting on a response from another group

member for that one).

I believe developing occular rosacea is a result of having rosacea.

Anyway welcome to the group and good luck.Bill

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Hi Priscilla!

Welcome to our rosy, cozy little group--lots of good, helpful information

here. Yes, the hot flashes definitely do not help the rosacea...you'd

think at our ages, we would have outgrown this, huh? I keep hoping, and

in the meantime, am gathering information, as hope springs eternal!

Welcome to you!

Carol

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  • 3 weeks later...
Guest guest

original article

Hi,

I am 30 years old and am currently on some new medications for rosacea. I was diagnosed with blepharitis about 5 years ago. I didn't have any other rosacea symptoms until a year or so later and only recently learned that they were linked. Has anyone tried Septra as an oral medication? I have tried Minocin, doxycycline, tetracycline and erythromycin. None of them did a thing. Two of my sisters also have rosacea. One of them was on Accutane in a low dose for awhile. The next time I saw her after a few months I couldn't believe it. Almost all of her red spots were gone in addition to her red bumps and pustules. I would appreciate any input from those who have some advice. I am currently using Cetaphil morning and night to wash my face. I am taking Septra twice a day and using Metrogel.

Thanks, Suzanne

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  • 1 month later...
Guest guest

wrote:

Original Article: /list/rosacea-support/?start=3580

>

>

> Have you, or anyone, tried treating cea with the treatment for the H.

> Pylori - the same meds as for treating stomach ulcers?

>

I did go and get tested for h. pylori and the blood test came up negative.

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  • 3 months later...

In a message dated 8/18/99 12:03:41 AM Eastern Daylight Time,

mandyk@... writes:

<< I have been having infertility problems since I got married (doctor

diagnosed PCOS). Can this surgery help with such problems? I had it for

other reasons, hoping fertility may be an extra benefit....? Has anyone here

been diagnosed with PCOS and then become pregnant after surgery? >>

Mandy,

I was recently discussing this with my endocrinologist. I have never been

officially diagnosed with PCOS but she feels I probably have it. The best

treatment is weight loss, according to her. I do present with they classic

symptoms of irregular periods, obesity, facial hair, acne, etc. But, I was

able to get pregnant previously. But, that could have also been due to

different factors. I had been on the pill for years, and screwed them up one

month so decided to take the month off and start the next, and wound up

pregnant. I did not continue the pregnancy due to my health and medication

risks. But, I should be able to conceive fine after I finish losing weight.

Have this checked into.

Rita in NYC

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  • 5 months later...

,

Hi and welcome!! :)

My daughter, Abby, was born 2 lbs 9 oz and has basically followed the

regular curve-just several squares below it. She's never really caught up

or fallen back, although with a recent illness, she has fallen back quite a

bit.

You may find as you seek 2nd and 3rd opinions that the diagnosis will vary.

RSS is a tricky diagnosis as there is not test for it so often Drs will

disagree. Dr. H should be a good source of info though as she has seen so

many RSS kids. She may question the diagnosis based on birth length or lack

of other characteristics but its hard to know what she'll say. There is

such a variation among the kids. We're seeing her next month to see what

she has to say. Abby's geneticist thinks its a possibility but is reluctant

to diagnose anything w/o a blood test for it.

I'm a little envious that you got to nurse. I wanted to so badly and pumped

for 9 mos but we were always adding extra fat and calories so I didn't

really get to nurse.

I put the RSS growth curves out in the files. You could plot Jasper's

growth against the RSS mean to get an idea of where he is.

Does he get OT, PT or ST? With this recent growth slow down, has your ped,

nutritionist, edno or anyone suggested bumping up his calories at all? that

seems to be all we do-try to figure out how to get more calories in Abby! :)

Well, welcome to the list. I can't tell you how incredibly valuable its

been for me.

Kathleen (Mom to Abby--15 mos, 12 lbs. 12 oz, 25 in., not officially

diagnosed RSS yet) :)

new member

>From: hamiwers@...

>

>Hi everyone.

>I've just joined the list and spent some time scanning through the recent

> archives. The info has been useful but I find the experiences of other RSS

>parents to be the most enlightening. My 11mo son Jasper was just diagnosed

with

>RSS a week ago and until the week before xmas when we saw a pdendo, I had

never

> heard of RSS. He was born full term at 18.5 " and 4lbs 10oz. He grew very

well

> until about 5.5mos at which point he seemed to stall at 15.5lb and 25.5 " .

>He is now 16.5lb and 27 " . I nursed exclusively until 6mos and this is

still

> his strongly preferred source of nourishment though he recently has

started to eat more jar food and cheerios. We will probably go to a second

geneticist (is

> there a list of relevant abbreviations somewhere so I don't have to spell

>everything out?) to confirm the diagnosis and since we are in the NY area,

we

>might consider seeing Dr. Harbison. In addition to IUGR, Jasper has cafe

au

>lait spots and size asymmetry in his legs. The only other obvious RSS

>characteristic is a small chin. He is an extremely active and happy baby

which

>might have made it easier to stall investigating why his growth slowed down

so

> abruptly. Is this common in RSS children? I would appreciate any advice on

how

>we should proceed with " treating " Jasper.

>thanks,

>

>

>---------------------------

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,

I have been told by several specialists that the growth of a child during

the first 6 months is fueled from hormones received inutero, that after this

time growth is from hormones the child produces. I was told this from

doctors at Children's Hospital in DC as well as Hopkins. If I recall

correctly, the RSS growth curves show a decline in rate of growth at 6

months -- they are in the files (Kathleen - thank you for putting them out

there!).

Kathleen - we are comrads at the pump! I was certain I was the only person

on the planet to pump exclusively for an extended time -- 9 months today! I

HATE IT!!!!! If this child ever questions my love and devotion -- or is

reckless with himself -- I will surely strangle the bugger!

new member

>From: hamiwers@...

>

>Hi everyone.

>I've just joined the list and spent some time scanning through the recent

> archives. The info has been useful but I find the experiences of other RSS

>parents to be the most enlightening. My 11mo son Jasper was just diagnosed

with

>RSS a week ago and until the week before xmas when we saw a pdendo, I had

never

> heard of RSS. He was born full term at 18.5 " and 4lbs 10oz. He grew very

well

> until about 5.5mos at which point he seemed to stall at 15.5lb and 25.5 " .

>He is now 16.5lb and 27 " . I nursed exclusively until 6mos and this is

still

> his strongly preferred source of nourishment though he recently has

started to eat more jar food and cheerios. We will probably go to a second

geneticist (is

> there a list of relevant abbreviations somewhere so I don't have to spell

>everything out?) to confirm the diagnosis and since we are in the NY area,

we

>might consider seeing Dr. Harbison. In addition to IUGR, Jasper has cafe

au

>lait spots and size asymmetry in his legs. The only other obvious RSS

>characteristic is a small chin. He is an extremely active and happy baby

which

>might have made it easier to stall investigating why his growth slowed down

so

> abruptly. Is this common in RSS children? I would appreciate any advice on

how

>we should proceed with " treating " Jasper.

>thanks,

>

>

>---------------------------

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,

I know what you mean! Hang in there! You're a great mom to keep pumping this

long! I finally quit after having mastitis 5 times-yuck!

I actually had a lot of extra milk because Abby ate so little so I ended up

donating it to a national organization called The Mother's Milkbank. It goes

bad after a while anyway, so I donated it before it did. Apparently there are

babies and small children, that for health reasons, can only have breastmilk.

They came and picked up the frozen bags and even left me bottles to use for the

next donation. You have to fill out a questionnaire and some other paperwork

and they have your OB and they baby's ped sign a form that all is okay with you

and the baby. That's it if you just donate once. To be a regular donor, they

ask for a simple blood test (for AIDS and a couple of other things) and they pay

for the test. Just thought I'd share in case you're like me and have a lot of

extra milk. Let me know if you want the number. :)

Take care!

Kathleen (Mom to Abby--15 mos, 12 lbs. 12 oz, 25 in., not officially diagnosed

RSS yet) :)

new member

>From: hamiwers@...

>

>Hi everyone.

>I've just joined the list and spent some time scanning through the recent

> archives. The info has been useful but I find the experiences of other RSS

>parents to be the most enlightening. My 11mo son Jasper was just diagnosed

with

>RSS a week ago and until the week before xmas when we saw a pdendo, I had

never

> heard of RSS. He was born full term at 18.5 " and 4lbs 10oz. He grew very

well

> until about 5.5mos at which point he seemed to stall at 15.5lb and 25.5 " .

>He is now 16.5lb and 27 " . I nursed exclusively until 6mos and this is

still

> his strongly preferred source of nourishment though he recently has

started to eat more jar food and cheerios. We will probably go to a second

geneticist (is

> there a list of relevant abbreviations somewhere so I don't have to spell

>everything out?) to confirm the diagnosis and since we are in the NY area,

we

>might consider seeing Dr. Harbison. In addition to IUGR, Jasper has cafe

au

>lait spots and size asymmetry in his legs. The only other obvious RSS

>characteristic is a small chin. He is an extremely active and happy baby

which

>might have made it easier to stall investigating why his growth slowed down

so

> abruptly. Is this common in RSS children? I would appreciate any advice on

how

>we should proceed with " treating " Jasper.

>thanks,

>

>

>---------------------------

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Kathleen,

Thanks for the welcome. What is OT, PT and ST? We haven't yet seen a

nutritionist but we will in the next few weeks and we only saw the endo once,

though it seems pretty obvious that the more calories the better. It's just of

question of how to best get Jasper's cooperation in eating more.

new member

>From: hamiwers@...

>

>Hi everyone.

>I've just joined the list and spent some time scanning through the recent

> archives. The info has been useful but I find the experiences of other RSS

>parents to be the most enlightening. My 11mo son Jasper was just diagnosed

with

>RSS a week ago and until the week before xmas when we saw a pdendo, I had

never

> heard of RSS. He was born full term at 18.5 " and 4lbs 10oz. He grew very

well

> until about 5.5mos at which point he seemed to stall at 15.5lb and 25.5 " .

>He is now 16.5lb and 27 " . I nursed exclusively until 6mos and this is

still

> his strongly preferred source of nourishment though he recently has

started to eat more jar food and cheerios. We will probably go to a second

geneticist (is

> there a list of relevant abbreviations somewhere so I don't have to spell

>everything out?) to confirm the diagnosis and since we are in the NY area,

we

>might consider seeing Dr. Harbison. In addition to IUGR, Jasper has cafe

au

>lait spots and size asymmetry in his legs. The only other obvious RSS

>characteristic is a small chin. He is an extremely active and happy baby

which

>might have made it easier to stall investigating why his growth slowed down

so

> abruptly. Is this common in RSS children? I would appreciate any advice on

how

>we should proceed with " treating " Jasper.

>thanks,

>

>

>---------------------------

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RE: new memberKathleen,

I forgot to mention that Jasper tested negative for GHD though his tsh (thyroid

hormone precursor) was elevated in an initial test but the retest result were

normal and he was negative for thyroid antibodies. Are there other major hormone

deficiencies linked to growth besides thyroid and GH? I am extremely grateful

that I'm able to nurse Jasper as it's such a strong bonding experience thuogh I

also have pumping experience as I returned to work at 3mos. Thanks for the

info.

CIndy

new member

>From: hamiwers@...

>

>Hi everyone.

>I've just joined the list and spent some time scanning through the recent

> archives. The info has been useful but I find the experiences of other RSS

>parents to be the most enlightening. My 11mo son Jasper was just diagnosed

with

>RSS a week ago and until the week before xmas when we saw a pdendo, I had

never

> heard of RSS. He was born full term at 18.5 " and 4lbs 10oz. He grew very

well

> until about 5.5mos at which point he seemed to stall at 15.5lb and 25.5 " .

>He is now 16.5lb and 27 " . I nursed exclusively until 6mos and this is

still

> his strongly preferred source of nourishment though he recently has

started to eat more jar food and cheerios. We will probably go to a second

geneticist (is

> there a list of relevant abbreviations somewhere so I don't have to spell

>everything out?) to confirm the diagnosis and since we are in the NY area,

we

>might consider seeing Dr. Harbison. In addition to IUGR, Jasper has cafe

au

>lait spots and size asymmetry in his legs. The only other obvious RSS

>characteristic is a small chin. He is an extremely active and happy baby

which

>might have made it easier to stall investigating why his growth slowed down

so

> abruptly. Is this common in RSS children? I would appreciate any advice on

how

>we should proceed with " treating " Jasper.

>thanks,

>

>

>---------------------------

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,

Occupational Therapy, Physical Therapy and Speech Therapy. :) Abby has seen the

OT for a long time and we'll be starting ST soon as she is not yet talking and

could stand to eat more textured foods. I'd think with Jaspers asymmetry, that

OT would be helpful. Many RSS kids have gross motor delays but as with

everything RSS, it varies. I'm sure the nutritionist will be helpful with the

calorie stuff. Our ST will be too-we know her but aren't officially seeing her

yet. She's seen other RSS kids which is a plus. An ST should help with both

feeding and speech. I don't know of any hormone deficiencies with RSS kids.

(Maybe someone else does?) I know that they usually aren't GHD. Has Jasper's

bone age been determined yet? That's something they'll want to look at if they

haven't already. Its just a hand x-ray. Abby's bone age when she was 12 mos

was 5 mos--which is good. It means more growing time if that makes sense. A

good video that will probably answer a lot of your questions is Dr. Harbison's

video from last year's Magic convention. She explains bone age, GH, Periactin,

RSS growth expectations and a ton of other things. If you haven't joined Magic

yet, you might consider it. (The tape is $15 for members.) They are at

1-800-3magic3 and their web site is www.magicfoudation.org. You can just call

and they'll send you information about RSS, membership, and the tape if you want

it. If you have more Qs, ask away! I'm fairly new to this myself but have

learned a lot the past few months doing research and talking with parents on the

list. This list has been so helpful and informative. Unfortunately, I've found

that I know more about RSS than any of Abby's Dr.s which is a little unnerving.

So, off to see Dr. H and also to educate Abby's Dr's about it. It can seem

overwhelming but we're all in this together and that kind of support is

immeasurable. :)

Kathleen (Mom to Abby--15 mos, 12 lbs. 12 oz, 25 in., not officially diagnosed

RSS yet) :)

Kathleen,

Thanks for the welcome. What is OT, PT and ST? We haven't yet seen a

nutritionist but we will in the next few weeks and we only saw the endo once,

though it seems pretty obvious that the more calories the better. It's just of

question of how to best get Jasper's cooperation in eating more.

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Hi ,

Welcome to the list.Not much to mention what hasn't already been

mentioned except check out the MAGIC(Major Aspects of Growth In Children)web

site at www.magicfoundation.org. This list has been a great support forme as

well as extremely informative.

Peace and Prayers

Mark dad to 41/2, G-tube

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Hello, it's me again--I haven't gone to bed yet, but

I'll make this short!

When Jake was dx'd RSS, we were told by the Geneticist

that the avg. final ht for RSS boys is 5'--I'm

assuming that's untreated. We were led to believe

that as I am 5'1 " and Mike is 5'7 " , he may or may not

even reach 5'.

But, alas, our 'Pediatrician in Denial " still thinks

he'll reach about 5'6 " untreated --and the interesting

part is that he feels my daughter, who is petite at 8

1/2 yrs., but growing normally, none the less, will

only be about my height. Hello!!

Just get me the crystal ball, that will probably work

as well.

Goodnight for real, now, except I'm not done reading

my emails.

Debbi, Mom to Jake (and, no, I haven't been drinking!)

__________________________________________________

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Debbie,

You're right-it was for no asymmetry. :) That was just one

researchers suggestion though. As it stands, its all just RSS. Everyone

has their two cents. :)

My geneticist was telling me a little about the human gene project where

they are isolating every single gene on every single chromosome! Exciting,

huh? It will be years and years before its done but its amazing that we can

even do that. Genetics really fascinates me.

And we're ALL a little nuts-its not just you. LOL

Kathleen (Mom to Abby--15 mos, 12 lbs. 12 oz, 25 in., not officially

diagnosed RSS yet) :)

----Original Message-----

To: RSS-Supportonelist <RSS-Supportonelist>

Date: Sunday, January 30, 2000 8:26 PM

Subject: Re: New Member

>

>

>Kathleen,

>

>Hi! I think I remember your saying that Abby doesn't

>have asymmetry, I think, too that that's

>Syndrome, not Silver. I'm not trying to correct you,

>I'm checking myself--as I was recently reciting this

>info to someone. Do you remember?

>

>Also, the Bloom is not a good one, I believe if I

>remember correctly, the child develops luekemia and

>other cancers. Jake was thought at one time, too, to

>have Stickler Syndrome--that's a bad one, blindness

>and deafness and muscle deteriation all by the time

>the person is in the 20's. I had to check this one

>out at the library (before we were on-line) about 3

>yrs ago.

>

>I think I recently checked out when someone

>mentioned it--but now I don't remember the charac's.

>

>It's amazing how many different little things/parts of

>the body can be affected by the differences in genetic

>makeup and when those regular genetic directions go

>askew. Hence, the human race, I guess. We are all

>are made differently anyway, blonde hair or black

>hair, fair skin or dark skin, round face or oblong

>face,... short or tall. Oh, I guess that's how this

>whole thing started! Anyway, I've gotten too deep

>(it's late). Well, variety IS the spice of life. I

>think that's my 'signature', but I haven't completely

>decided yet. And, you all think I'm nuts, so I'll say

>goodnight now!!

>

>Goodnight now, Debbi, mom to Jake (who is holding fast

>at 27 lbs., yea!!), 37.5 " and will be 5 on Feb 20th.

>__________________________________________________

>

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To Michele

I live about 10 minutes from Stansted Airport so It does not sound that you

are too far away.As I understand it your childs adult height is strongly

effected by her parents height but because you are petite it doesn't mean

that Lily will be a shorter Rss child[both myself and husband are 5 ft 4 "

but Christian is one of the larger RSs children i have heard about]Oh and

Christians expected adult height now[with Gh is 5ft 6 " -7 " ]Hope this makes

sense!!!If you would like to ring me my number is 01279722208

Joanne mum to Christian 3 3/4 RSS

Re: New Member

>

>

> Barbara

>

> Thank you for your message. I will post a couple of

> photos of Lily tomorrow (if that's ok with no dx yet).

> Lily was 1.4kg at birth so was certainly low birth

> weight! At her last weigh in she was 14lb but I am

> sure she has put on a couple of lbs since then as she

> has been on an eating spurt and feels heavier. The

> RSS signs I have noticed ... Lily has got a thin top

> lip, slightly sticking out ears, long arms and a small

> pointed chin (plus gorgeous dimple). The feeding

> clinic appointment we have in May is at Barts. Lily

> and I live in a small village on the Essex/Suffolk

> borders. I have been told by the hospital that Lily

> will be very petite. I am pretty short myself. If

> Lily has got RSS would the fact that I am short (5ft)

> as was her father (5ft 6') mean that Lily would be

> especially tiny or do RSS children simply have a

> maximum height? I have a feeling that may not be an

> easy question to answer.

>

> Thanks

>

> Michele

>

>

>

>

> ____________________________________________________________

>

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Welcome Miechele! Congrats on having child #4 on the way! I hope to learn a

lot from you about having babies after surgery!

Rasley

mailto:drasley@...

BTC, Columbus, 10/7/98

Start: 348 pounds and infertile

Gained: Health and I AM PREGNANT!

> New Member

>

>

> From: 72668@...

>

> First, I need to apologize for my membership stats saying I am a man(LOL)

> We are having problems with our computer and I can't seem to sign

> up for anything in my name, only my husbands. My name is

> Meichele, I am 30 yrs old, I have 3 children and #4 on the way.

> I had RNY in 4-93. I am currently on my 2nd pregnancy after

> surgery. I am

> due in 5 weeks. I had 2 children before surgery so yes the

> surgery has had an effect on how the pregnancies progressed. I

> haven't had any real problems it's

> just been very different. Lots more nausua and morning sickness

> and very little weight gain. In response to , yes all the

> things you mentioned are normal but I agree they can be really

> annoying too. You said getting up in the middle of the night is

> a pain, well I got up at least 8 different times last night. And

> as far as not getting up in time goes, it has happened.Oops!

> I look forward to getting to know everyone here. Private e-mails

> are also welcome (elehciem@...).

>

> Meichele

>

> ---------------------------

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  • 3 months later...
Guest guest

Hey, . Welcome to the list. You had your surgery 12/2/99 or '98? Your

weight loss is great, from 227 to 140! I had my surgery in March of 99 (VBG)

and have gone from 252 to 167. I'm still about 15 pounds away from my goal.

Don't worry about the age difference that would be between your kids and a

baby. My son is 12 (from a prior marriage), so that would be a major age

difference! My husband and I have just started trying for our own baby.

We've been together 10 years, married 6. I'll be 35 Sunday and figure it's

time to do it if we are going to do it. I'm terrified about gaining weight

again, but everyone here on the list seems to have done great with theirs and

haven't gained much at all.

I'm with you on learning from everyone here. Good luck!

Tammy in Alabama

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Guest guest

Give yourself until next December before you try. Pregnancy is hard enough

without dealing with all the other changes. You need a year to adapt to the

changes this surgery will put you through. Granted you are almost to goal

however you may still hit a few bumps. I highly recommend you not trying

until one full year has passed.

Rasley

mailto:drasley@...

BTC, Columbus, 10/7/98

Start: 348 pounds and infertile

Gained: Health and I AM PREGNANT!

> New Member

>

>

> Hi everyone....

> Just a quick post to introduce myself. I had my lap RNY on 12/2/99 at

> NEMC in Boston. I am 26 years old, married with two kids.. I know

> it's pretty early for my being here, but I was very curious. I have

> been wanting to find others who have had surgery and got pregnant for

> some time now but didn't find this list until now. I was curious as

> to what all your surgeons said about getting pregnant after surgery?

> My surgeon told me to wait one year or until my weight evened

> out....Well,I started at 227 lbs. and am now 140 lbs. I am not far

> from my goal at all. My husband and I have two children now, ages 7 &

> 8, but really want a third pretty badly. We tried for a very long

> time to get pregnant before this surgery and it never happened. When

> I finally did become pregnant, I m/c at 3 months. My ob/gyn kept

> saying it was all weight related.I also have a fibroid uterus and was

> told I'd most likely end up w/ a hysterectomy before I'm 30 (This

> only came from one ob/gyn, so who knows!) I guess I'm kind of worried

> about the age difference between my kids if we wait any longer. What

> could happen if I were to get pregnant now? ANY information at ALL

> would be GREATLY appreciated.

> Thanks in advance...

>

>

>

> ------------------------------------------------------------------------

> How about a flat, no-fee long distance rate of 6.7¢ per min. -

> or less? Join beMANY! Our huge buying group gives you rates which

> fall monthly, plus an extra $60 in FREE calls!

> http://click./1/3820/5/_/551092/_/957748237/

> ------------------------------------------------------------------------

>

> Children are a reward from the Lord.

> Psalm 127:3

>

>

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Guest guest

Welcome!1 My Dr. told me 1 year or weight stable for 6 months. I went off

birth control in August which was one year for me, and was pregnant

immediately. I am due in 2 weeks and have had no problems, with all my labs

coming back better than when I was pregnant pre-op. Good luck!!

donna

Hi everyone....

Just a quick post to introduce myself. I had my lap RNY on 12/2/99 at

NEMC in Boston. I am 26 years old, married with two kids.. I know

it's pretty early for my being here, but I was very curious. I have

been wanting to find others who have had surgery and got pregnant for

some time now but didn't find this list until now. I was curious as

to what all your surgeons said about getting pregnant after surgery?

My surgeon told me to wait one year or until my weight evened

out....Well,I started at 227 lbs. and am now 140 lbs. I am not far

from my goal at all. My husband and I have two children now, ages 7 &

8, but really want a third pretty badly. We tried for a very long

time to get pregnant before this surgery and it never happened. When

I finally did become pregnant, I m/c at 3 months. My ob/gyn kept

saying it was all weight related.I also have a fibroid uterus and was

told I'd most likely end up w/ a hysterectomy before I'm 30 (This

only came from one ob/gyn, so who knows!) I guess I'm kind of worried

about the age difference between my kids if we wait any longer. What

could happen if I were to get pregnant now? ANY information at ALL

would be GREATLY appreciated.

Thanks in advance...

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Guest guest

Thanks to those who resonded to my post. I think I'm just going to

check with my surgeon on the subject and make an appointment with my

gyn....just to let him know of my surgery and that I will be looking

to get pregnant by the end of the year and see what he says.

Thanks again,

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  • 2 weeks later...
Guest guest

Shirlie,

I live in Bothell which is between Lynnwood and Bellevue. I am so glad to

be a member of a sane Fibro group.....the last experience I had was

horrible. I have a sister that lives in the tri-city area and have been to

Spokane a couple of times. Thank you for your warm welcome.

Debbie

Re: New Member

> Hi Debbie,

> I to am from Washington I am living in Spokane, how about you?

> Welcome to the group, I think that you will like it :-)

>

> Shirlie

>

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  • 1 year later...

Welcome!!

Peace and Love,

phine

--- quarkiamnot wrote:

> hi everyone i am new to the group my wife

> (luckysmiles) joined last

> week she said it was very helpful i am going to

> start reading

> messages tonight

>

>

__________________________________________________

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  • 1 year later...

Hi

I post infrequently, but when I do, I'm generally supporting my belief that

this is largely a genetic condition that we're dealing with. I think that

the fact that you are willing to entertain the idea that you could be " to

blame " for your daughter's problem is a pretty good indication that you are

not. My ex-wife would never take responsibility for anything real (long

after we parted as she continued to get worse, she believed that she was

responsible somehow for acccidents that she learned about from TV - a lot of

narsissim and low reality contact). She might believe that our daughter

also has issues because my ex had mercury fillings, or some other thing

(that was done to her, not by her) but never look realistically at what the

issues are - that would mean looking at herself, and trying to learn to

control her behavior.

One thing that causes " nons " to stick around borderlines is their

willingness to consider " it could be my fault " , " I could be wrong, " " I could

be interpreting things in the wrong way " etc. With the borderline throwing

off responsibility and the non accepting it, sometimes stability is achieved

in a relationship, at least for a while, but it isn't healthy.

But it sounds like your daughter is pretty high functioning, and you are

pretty sensible, and you are getting the tools to make things better -

congratulations for that.

" He jests at scars who never felt a wound. " ( Shakespeare, Romeo &

t)

new member

> Hi all - I did an intro and accidently deleted it - duh. Here goes

> number two! I have a 23 year old daughter who was diagnosed with BPD

> last year. She is very high functioning - a first year medical

> student - so it has been very confusing to live through

> the " episodes " that are characteristic of this disorder. It's like

> having some shameful secret - and always waiting for the other shoe

> to drop. SO we were actually happy to have a name and the hope that

> can come from understanding.

>

> I'm a recovering alcoholic (almost 11 years now) and have been

> custodial parent for my daughter and son for all but a few years of

> my non-BP son's high school years. SO I'm pretty easy to " blame " when

> anything is wrong with the kids. Actually I do recognize myself in

> some of the feelings attributed to BPD. I seriously wonder about my

> children's dad - reading about being married to a BP was VERY

> familiar, even tho we have been apart since my kids were 5 (BP

> daughter) and 3 (non-BP son).

>

> I look forward to learning and sharing (I find in the materials that

> there a few no no's that I used to do pretty consistently - and she

> would come apart - didn't make sense until now.)

>

>

>

>

>

>

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